Ngati muli ndi wokondedwa wanu yemwe ali ndi Down Syndrome m'banja mwanu, ndi zachilendo kukhala ndi mafunso osiyanasiyana, komanso mwina mantha pang'ono, okhudza thanzi lawo akamakalamba. Makamaka, mwina mwamvapo dzina lakuti "Alzheimer's Disease" kwambiri. Mwina mwakhala mukudabwa kwambiri ngati pali kugwirizana pakati pa matenda awiriwa. Inde, alipo. Koma musanayambe kuchita mantha, tiyeni tikambirane momveka bwino, mosavuta, komanso mosavuta.
Nchifukwa chiyani anthu omwe ali ndi Down syndrome akuti ali pachiwopsezo chachikulu cha matenda a Alzheimer's?
Kuti timvetse izi, tiyenera kubwerera ku gawo lofunika kwambiri la matupi athu. Amenewo ndi ma chromosome athu. Mwachidule, ma chromosome amenewa ali ngati 'malangizo' mu selo iliyonse m'thupi lathu. Chilichonse kuyambira mtundu wa tsitsi lathu mpaka kutalika kwathu chimadalira majini omwe ma chromosome amenewa ali nawo. Kawirikawiri, munthu amakhala ndi makope awiri a mtundu uliwonse wa chromosome.
Komabe, munthu amene ali ndi matenda a Down syndrome ali ndi kopi yowonjezera ya chromosome 21, kutanthauza makope atatu . Umu ndi momwe imagwirizanirana ndi matenda a Alzheimer: Jini yomwe imaphunzitsa kupanga mapuloteni oopsa (beta-amyloid) omwe amaikidwa muubongo matenda a Alzheimer akayamba amapezeka pa chromosome yomweyi 21.
Chifukwa chake, chifukwa pali kopi yowonjezera ya chromosome 21, munthu yemwe ali ndi Down syndrome amapanga mapuloteni ambiri owopsa awa muubongo wake. Pakapita nthawi, mapuloteni awa amasonkhana ndikusungidwa mozungulira maselo a ubongo, ndikuwononga maselo amenewo ndikuyamba kuwawononga. Izi ndi zomwe zimachitika mu matenda a Alzheimer's.
Kuphatikiza apo, matupi ndi ubongo wa anthu omwe ali ndi Down syndrome amakalamba mofulumira kuposa munthu wamba (kukalamba msanga) . Izi zikutanthauza kuti, thupi la munthu wazaka 45 yemwe ali ndi Down syndrome likhoza kufanana ndi thupi la munthu wazaka 65 kapena 70 mwa anthu ambiri. Kukalamba msanga kumeneku ndi chifukwa chachikulu chomwe chimayambitsa matenda a Alzheimer's.
Kodi zizindikirozi zimawonekera bwanji? Kodi zimasiyana ndi zizindikiro za Alzheimer's zomwe zimachitika nthawi zambiri?
Inde, mfundo yofunika kwambiri ndi iyi. Zizindikiro za matenda a Alzheimer mwa munthu amene ali ndi Down syndrome zingakhale zosiyana pang'ono ndi zizindikiro za munthu wabwinobwino. Ichi ndichifukwa chake nthawi zina zimakhala zovuta kuzindikira vutoli.
Tikamaganizira za matenda a Alzheimer's, nthawi zambiri timaganiza za kuiwala zinthu. Koma kwa munthu amene ali ndi matenda a Down syndrome, kuiwala zinthu sikungakhale chizindikiro choyamba . Kusintha kwina kungaonekere poyamba.
Tiyeni tiwone kusintha kumeneku komwe kuli mu tebulo ili m'munsimu.
| Chizindikiro | Mmene zimaonekera mwa munthu amene ali ndi Down syndrome |
|---|---|
| Ntchito ya tsiku ndi tsiku | Zinthu zomwe munkatha kuchita nokha, monga kuvala, kudya, kusamba, ndi kuphika tiyi, zimafuna thandizo. Chidwi ndi luso lochita zinthu zimenezo zimachepa pang'onopang'ono. |
| Kusintha kwa khalidwe | Mwadzidzidzi, amakhala ouma khosi, amachita zinthu mopanda nzeru, amakwiya, kapena amayamba kuyima pambali chete, osafuna chilichonse chokhudza mbali ina, osalankhula. |
| Matenda Atsopano Oyamba Kugwidwa | Ichi ndi chizindikiro chofunikira kwambiri. Ngati munthu amene sanakumanepo ndi khunyu pa moyo wake ayamba kukhala ndi khunyu latsopano atakwanitsa zaka 40, chikhoza kukhala chizindikiro cha matenda a Alzheimer's. |
| Kukumbukira ndi luso loganiza | Ngakhale kuti kutayika kwa kukumbukira sikungaonekere poyamba, koma pakapita nthawi kumabweranso. Zimakhala zovuta kukumbukira zinthu zatsopano. Kutha kusankha chabwino ndi choipa ndikupanga zisankho kumachepa. |
| Kuvuta kulankhula | Mungayambe kulankhula pang'ono, kuvutika kupeza mawu, kapena kunyoza mawu anu. |
Chofunika kwambiri ndikuwona kusintha kuchokera ku khalidwe la mwana wanu kapena wachibale wanu (zoyambira) . Chifukwa chakuti ali ndi vuto la kuphunzira kuyambira kubadwa, zingakhale zovuta kuzindikira kusintha kwa kukumbukira. Koma ngati mukumva kuti, "Munthu uyu sanali wotere kale, ndipo tsopano ndi wosiyana," ndicho chinthu chofunikira kwambiri.
Kodi chiopsezochi chimawonjezeka pa msinkhu wanji?
Matenda a Alzheimer nthawi zambiri amayamba mwa anthu ambiri akakwanitsa zaka 65. Komabe, kwa munthu amene ali ndi matenda a Down syndrome, chiopsezochi chimachitika msanga kwambiri.
- Zaka 35Posachedwapa, kafukufuku wapeza kuti pafupifupi 25% (m'modzi mwa anayi) mwa anthu omwe ali ndi Down syndrome angasonyeze zizindikiro za Alzheimer's.
- Kwa anthu ambiri, zizindikiro zimayamba kuonekera ali ndi zaka zapakati pa 40 kapena kumayambiriro kwa zaka za m'ma 50.
- Ponseponse, mwayi woti munthu amene ali ndi matenda a Down syndrome adwale matenda a Alzheimer ndi wokwera katatu kapena kasanu kuposa anthu onse.
Kodi ndiyenera kuchita chiyani ngati mlonda?
Izi zingakuopseni. Koma musachite mantha. Kudziwa bwino zinthu ndi chida chabwino kwambiri. Pali zinthu zofunika kwambiri zomwe mungachite.
1. Kupita kuchipatala nthawi zonse: Ndikofunikira kupita ndi mwana wanu kapena wachibale wanu kwa dokotala nthawi zonse. Makamaka mukakwanitsa zaka 30, kambiranani momasuka ndi dokotala wanu za chiopsezo cha matenda a Alzheimer's.
2. Kuwunika Koyambira: Mukakhala ndi zaka 30, gwirani ntchito ndi dokotala wanu kuti muwunikire kukumbukira kwa mwana wanu, momwe amagwirira ntchito tsiku ndi tsiku, komanso khalidwe lake. Izi zidzakuthandizani kuzindikira kusintha kulikonse mtsogolo.
3. Yang'anirani kusintha: Mumamudziwa bwino. Choncho, ngakhale kusintha kochepa komwe mungaone, kulembeni m'buku lokhala ndi tsiku ndi nthawi. Lembani zolemba monga, "Sanathe kuvala nsapato zake yekha lero," "Wakhala wokhumudwa kwambiri kuyambira sabata yatha." Izi zithandiza kwambiri dokotala.
4. Fufuzani chithandizo chamankhwala mwachangu: Ngati mukukumana ndi chimodzi kapena zingapo mwa zizindikiro zomwe zatchulidwa pamwambapa, musayembekezere mpaka nthawi ina kuti mukakumane ndi dokotala wanu . Ngakhale kuti matenda a Alzheimer sangachiritsidwe kwathunthu, pali njira zosiyanasiyana zochiritsira ndi njira zomwe zingathandize kuthana ndi zizindikiro, kukonza moyo wabwino, komanso kupereka mpumulo kwa inu ndi wodwalayo.
Uthenga Wopita Nawo Kunyumba
- Anthu omwe ali ndi Down syndrome ali pachiwopsezo chachikulu cha majini chotenga matenda a Alzheimer's kuposa anthu onse.
- Zizindikiro nthawi zambiri zimayamba m'zaka za m'ma 40 kapena kumayambiriro kwa zaka za m'ma 50, mofulumira kwambiri kuposa anthu ambiri.
- M'malo moiwala zinthu, zizindikiro zoyamba zingaphatikizepo kusintha kwa khalidwe, kulephera kuchita ntchito za tsiku ndi tsiku, kapena khunyu latsopano.
- Ngati mukuona kusintha kulikonse koonekeratu pa khalidwe la wokondedwa wanu, luso lake, kapena zizolowezi zake za tsiku ndi tsiku, onetsetsani kuti mwalankhula ndi dokotala wanu za vutoli.
- Kuzindikira msanga ndi kulandira chithandizo choyenera chamankhwala kungathandize kuti moyo wa wodwalayo ukhale wabwino komanso kukupatsani mpumulo monga wosamalira.
💬 Comments (0)
Palibe ndemanga zomwe zatumizidwa pano. Onjezani ndemanga yanu pano koyamba.
Onjezani ndemanga yanu