Kodi mukumva kutupa, kuuma, ndi kupweteka pansi pa khungu lanu? Tiyeni tikambirane za Eosinophilic Fasciitis!

Kodi mwadzidzidzi munamvapo chotupa, kutupa, kapena kupweteka pansi pa khungu la mkono kapena mwendo wanu? Mwina zinachitika mutachita masewera olimbitsa thupi bwino. Kodi munayamba mwakumanapo ndi vuto ngati ili? Ndiye, nali vuto lomwe silikudziwika bwino lomwe lingakhale lofunika kwa inu.

Kodi Eosinophilic Fasciitis ndi chiyani?

Mwachidule, Eosinophilic Fasciitis ndi matenda omwe minofu yomwe imaphimba minofu ndi minofu yathu pansi pa khungu lathu - timatcha fascia m'mawu azachipatala - imatupa mwadzidzidzi, imakhuthala, komanso imalimba. Taganizirani ngati ukonde womwe umagwirira khungu lathu ndi minofu pamodzi ndikuwathandiza kuyenda, monga ukonde womwe timayika m'galimoto yathu tikamapita kukagula zinthu.

Izi zimatchedwa 'matenda odziteteza okha' . Izi zikutanthauza kuti chitetezo cha mthupi lathu, chitetezo cha mthupi, molakwika chimayamba kuukira ziwalo zathanzi za thupi lathu. Zili ngati kuukira achibale athu akaganiza kuti abera.

Ngati sizipezeka ndi kuchiritsidwa msanga, zingayambitse kusintha kwa khungu kosatha komanso kutayika kwa kuyenda kwa mafupa . Chifukwa chake, ndikofunikira kwambiri kufunafuna upangiri wa dokotala zizindikiro zikayamba kuwonekera.

Kodi vutoli limakhudza bwanji kwambiri? Kodi limakhudza ndani?

Eosinophilic Fasciitis ingakhudze fascia kulikonse m'thupi, koma nthawi zambiri imakhudza manja ndi mapazi . Kwa anthu ambiri, zizindikiro, monga kupweteka kapena kutupa, zingayambe kuwonekera pambuyo pochita masewera olimbitsa thupi kapena ntchito yomwe imafuna kuyimirira tsiku lonse.

Zizindikiro zimenezi, monga kupweteka kwa minofu ndi kutupa, zitha kufanana ndi za matenda ena ofala, choncho ndikofunikira kuonana ndi dokotala nthawi yomweyo ngati muwona kusintha kulikonse kapena kupweteka pakhungu lanu, minofu, kapena mafupa. Mungafunikenso kuonana ndi dokotala wa nyamakazi, dokotala yemwe ndi katswiri wa mafupa ndi matenda ena otupa.

Pakadali pano palibe mankhwala a matendawa. Komabe, nkhani yabwino ndi yakuti kwa anthu ambiri, zizindikiro zimatha pakatha zaka zingapo, zomwe zikutanthauza kuti matendawa amasiya kugwira ntchito, kapena amakhala chete. Komabe, anthu ena angakumane ndi zizindikiro zobwerezabwereza.

Kusiyana Pakati pa Eosinophilic Fasciitis ndi Scleroderma

Pokamba za matenda awiriwa, anthu ena angawasokoneze ndi matenda ena otchedwa `Scleroderma`. `Eosinophilic Fasciitis` ndi `Scleroderma` onse ndi matenda osowa kwambiri a `autoimmune`. Komanso, m'matenda onsewa, minofu ya thupi imakhala yokhuthala komanso yolimba.

Ndiye kusiyana kwake n'kotani? Kusiyana kwake kuli m'mitundu ya minofu yomwe yakhudzidwa.

• Mu Eosinophilic Fasciitis, monga tafotokozera kale, fascia, yomwe ndi minofu yopyapyala komanso yotanuka yomwe ili pansi pa khungu, imakhudzidwa. Pakapita nthawi, fascia iyi imakula ndikukulirakulira, zomwe zimapangitsa kuti zikhale zovuta kusuntha gawo la thupi lomwe lakhudzidwalo.
• Koma mu 'Scleroderma', chitetezo cha mthupi chimalimbikitsa maselo ena kupanga puloteni yotchedwa 'collagen' (chinthu chomwe chimapatsa mphamvu khungu lathu ndi minofu). Collagen yochulukirapoyi imayikidwa pakhungu ndi ziwalo zamkati, zomwe zimapangitsa kuti zikhale zolimba komanso zolimba, ngati chilonda chakale. Koma m'malo mochiritsa bala, collagen yochulukirapoyi ingawonongenso minofu yathanzi.

Eosinophilic Fasciitis ndi COVID-19

Anthu omwe ali ndi matenda odziteteza okha monga Eosinophilic Fasciitis amaonedwa kuti ali pachiwopsezo chachikulu chotenga COVID-19 kuposa anthu onse.

Akatswiri akadali otsimikiza ngati anthu omwe ali ndi vutoli ali ndi mwayi wokhala ndi zizindikiro zoopsa za COVID-19. Chifukwa chake, ndi bwino kutsatira malangizo a akuluakulu azaumoyo, monga Centers for Disease Control and Prevention (CDC), kuti mudziteteze ku matenda.

Ndani amene ali ndi mwayi waukulu wopeza matendawa?

Eosinophilic Fasciitis ingakhudze aliyense, koma nthawi zambiri imakhudza anthu azaka zapakati pa 30 ndi 60.

Kuphatikiza apo, anthu omwe ali ndi matenda enaake osatha ali pachiwopsezo chachikulu chotenga matendawa. Zina mwa matenda amenewa ndi monga:

• Kuchepa kwa magazi m'thupi (aplastic anemia - kuchepa kwa magazi m'thupi komwe kupanga maselo amagazi kumachepa)
• Kuchepa kwa magazi m'thupi (kuchepa kwa magazi m'thupi komwe maselo ofiira amagazi amawonongeka mwachangu)
• Lymphoma (khansa ya dongosolo la lymphatic)
• Khansa ya m'magazi (leukemia)
• Mitundu ina ya 'matenda a chithokomiro'

Kodi izi ndizofala bwanji?

Eosinophilic Fasciitis kwenikweni ndi matenda osowa kwambiri . Pakadali pano, milandu yochepa kwambiri, pafupifupi 300, yalembedwa m'magazini asayansi padziko lonse lapansi. Komabe, mwina chifukwa cha kusapezeka kwa matenda kapena kusapezeka kwa malipoti okwanira, chiwerengero cha milandu chikhoza kukhala chokwera kwambiri.

Kodi Eosinophilic Fasciitis imakhudza bwanji thupi langa?

Monga tafotokozera kale, vutoli limayamba chifukwa cha kutupa kwa fascia, minofu yopyapyala komanso yosinthasintha yomwe ili pansi pa khungu. Chigawo ichi cha fascia chimaphimba ndi kuteteza minofu yathu ndi ziwalo zina zamkati. Chimasunganso khungu ndi minofu pamalo ake ndikuzichirikiza zikasuntha.

Taganizirani izi, fascia iyi imathandiza kuti miyendo yathu ikhale yofewa, osati kungolendewera pansi. Koma mwa munthu amene ali ndi `Eosinophilic Fasciitis`, fascia nembanemba iyi imatupa, pang'onopang'ono imakhuthala, ndikulimba. Pamapeto pake, kutupa kumeneku kumapangitsa kuti zikhale zovuta kusuntha khungu ndi minofu yozungulira. Ngati sichichiritsidwa, fascia iyi imatha kukhazikika pamalo amodzi ndikulimba. Izi nthawi zina zimatchedwa `contracture`. Izi zikutanthauza kuti, vuto lomwe cholumikizira sichingathe kutambasulidwa kapena kupindika.

M'malo mwa kusinthasintha kwabwinobwino kwa fascia, ziwalo za thupi zomwe zakhudzidwa zimakhala zopweteka kapena zovuta kusuntha.

Ziwalo za thupi zomwe zimakhudzidwa kwambiri ndi izi:

• Manja (makamaka chikhatho, ndiko kuti, mkati mwa dzanja)
• Miyendo (makamaka kutsogolo, kumanja kwa fupa la m'chiuno)
• Malo olumikizirana kapena madera ozungulira

Ngakhale kuti vutoli ndi losowa, lingakhudzenso khungu la nkhope, chifuwa, ndi mimba.

Odwala ena omwe ali ndi Eosinophilic Fasciitis amathanso kukhala ndi kutupa kwa mafupa mofanana ndi Rheumatoid Arthritis. Ngati kutupa kwa mafupa kumeneku sikulamuliridwa, khungu la mafupa m'malo olumikizirana mafupa likhoza kuwonongeka, zomwe zimapangitsa kuti munthu akhale ndi nyamakazi kwa nthawi yayitali.

Komanso, ngati matendawa akhudza fascia yomwe ili m'dzanja lanu kapena pachikhatho, kutupako kungayambitse mitsempha yapakati, imodzi mwa mitsempha yayikulu m'dzanja, kupsinjika, zomwe zimayambitsa matenda otchedwa Carpal Tunnel Syndrome (kusanza, kupweteka, ndi kufooka m'dzanja).

Chofunika kwambiri ndichakuti Eosinophilic Fasciitis ndi matenda omwe amatha kusintha ndikukula mwachangu kwambiri. Mutha kuyamba kuwona zotsatira zake pakapita nthawi yochepa, monga milungu ingapo. Chifukwa chake, ngati muwona zizindikiro kapena kusintha kulikonse m'thupi lanu, pitani kwa dokotala nthawi yomweyo.

Kodi zizindikiro za Eosinophilic Fasciitis ndi ziti?

Ndiye, kodi muyenera kuganiza bwanji kuti matendawa ndi owopsa? Nazi zina mwa zizindikiro zazikulu:

• Kupweteka kwa minofu .
• Khungu lofewa .
• Kutupa kapena kutupa .
• Zizindikiro za `Carpal Tunnel Syndrome` (monga dzanzi, kupweteka, kufooka m'dzanja).
• Matenda a nyamakazi (nyamakazi - kutupa kwa mafupa, kupweteka, kuuma kwa m'mawa).
• Khungu limaoneka lolimba komanso lolimba kuposa masiku onse.
• M'malo ena, khungu limawoneka lotupa komanso lolimba, ngati khungu la lalanje ('khungu lotupa' kapena mawonekedwe a "peau d'orange").

Kodi chifukwa chake ndi chiyani?

Kunena zoona, akatswiri sakudziwabe chomwe chimayambitsa Eosinophilic Fasciitis. Monga matenda ambiri odziteteza ku matenda a autoimmune, imatha kuchitika mwadzidzidzi, nthawi zina popanda chifukwa chomveka.

Komabe, kafukufuku wina wapeza kuti matenda a autoimmune awa amatha "kuyambitsidwa" ndi zinthu zina. Izi zikutanthauza kuti matendawa amatha kuchitika chifukwa cha china chake. Mwachitsanzo:

• Mitundu ina ya matenda .
• Matenda ena a ziwengo .
• Kugwiritsa ntchito mankhwala enaake.
• Kugwiritsa ntchito mankhwala enaake.

Anthu ena omwe ali ndi Eosinophilic Fasciitis amanena kuti zizindikiro zawo zoyamba zimachitika atachita masewera olimbitsa thupi olemera , monga kuthamanga, kunyamula zolemera, kapena kuchita masewera olimbitsa thupi, kapena pamene akugwira ntchito yomwe imafuna khama lalikulu pa manja kapena miyendo yawo.

Ndibwino kulankhula ndi dokotala wanu za zinthu zomwe zingakupangitseni kukhala ndi matenda odziteteza okha ngati awa.

Kodi madokotala amazindikira bwanji matendawa? (Kuzindikira)

Ngati muli ndi zizindikiro izi, dokotala angachite mayeso angapo kuti adziwe ngati muli ndi Eosinophilic Fasciitis:

1. Kufufuza za Fascia Biopsy: Kufufuza za fascia ndi pamene dokotala wanu akutenga chitsanzo chaching'ono cha minofu yanu ndikutumiza ku labu kuti akaione pogwiritsa ntchito maikulosikopu. Izi zimaphatikizapo kutenga chidutswa chaching'ono cha khungu lomwe lakhudzidwa ndi fascia yomwe ili pansi pake ndikuchiyang'ana. Nthawi zambiri, iyi ndiyo njira yodalirika yodziwira vutoli.

2. Kuyezetsa magazi: Ngati muli ndi Eosinophilic Fasciitis, mungakhale ndi kuchuluka kwa maselo oyera m'magazi otchedwa Eosinophils m'magazi anu (ndipo matendawa amatchedwa dzina lake). Komabe, kuyezetsa magazi kokha sikungatsimikizire matendawa. Nthawi zambiri, pamafunika biopsy.

3. Mayeso ojambulira: Mayeso monga MRI (Magnetic Resonance Imaging) angathandize kuzindikira kutupa m'thupi, makamaka m'malo olumikizirana mafupa ndi minofu yozungulira. Komabe, monga mayeso a magazi, si enieni monga biopsy kuti adziwe matendawa.

Chithandizo cha Eosinophilic Fasciitis

Nthawi zambiri, zizindikiro zimatha zokha popanda chithandizo chilichonse. Koma nthawi zambiri, madokotala amachiritsa Eosinophilic Fasciitis ndi mtundu wa mankhwala otchedwa corticosteroids . Awa ndi mtundu wa steroid.

Mankhwala a Corticosteroid amagwira ntchito pochepetsa kutupa m'thupi ndikuletsa chitetezo chamthupi kugwira ntchito mopitirira muyeso. Prednisone ndiye mankhwala ofala kwambiri omwe amaperekedwa.

Kuwonjezera pa corticosteroids, dokotala wanu angaperekenso mankhwala ena, monga:

• `NSAIDs`: Mankhwala oletsa kutupa omwe si a steroidal (NSAIDs) omwe amapezeka ku pharmacy - mwachitsanzo, ibuprofen ndi diclofenac - amatha kuchepetsa zizindikiro monga kupweteka ndi kutupa. Komabe, ngati mukumwa kale `corticosteroids`, lankhulani ndi dokotala wanu musanamwe `NSAIDs`. Musamwe `NSAIDs` kwa masiku opitilira 10 popanda chilolezo cha dokotala wanu.
• Mankhwala oletsa chitetezo chamthupi: Kutengera ndi kuopsa kwa matenda anu, dokotala wanu angakupatseni mankhwala ena (monga Methotrexate) omwe amaletsa chitetezo chamthupi chomwe chimayambitsa Eosinophilic Fasciitis.
• Kuchiza ndi thupi: Kuchiza ndi thupi kungathandize kutambasula ndi kumasula fascia yanu ikalimba, komanso kumathandiza kuti mafupa aziyenda bwino. Dokotala wanu kapena katswiri wa thupi adzakuphunzitsani masewera olimbitsa thupi ndi kutambasula zomwe zikugwirizana ndi zizindikiro zanu.
• Kuchiza matenda ena: Mungakhale omasuka kwambiri pochiza zizindikiro za matenda ena, monga matenda a carpal tunnel kapena nyamakazi.
• Opaleshoni: Ngati Eosinophilic Fasciitis yanu ndi yoopsa kwambiri moti ingayambitse kupweteka kwa minofu, mungafunike kuchitidwa opaleshoni kuti mutulutse kapena kuchotsa gawo la fascia yanu (fascial release). Nthawi zambiri iyi ndi njira yomaliza.

Kodi mungatani kuti muthane ndi zizindikiro?

• Ndikofunikira kwambiri kumwa mankhwala monga momwe dokotala wanenera, kwa nthawi yonse yomwe mwapatsidwa.
• Ngati dokotala wanu kapena katswiri wa zamaganizo akukupatsani mphamvu zotambasula kapena kuchita masewera olimbitsa thupi ena, chitani nthawi zambiri monga momwe akulangizirani kuti muthandize kutambasula fascia yomwe yakhudzidwa. Ngakhale izi zingakhale zovuta, zingakhale zothandiza ngati mupitiliza kuzichita.
• Ngati muli ndi matenda a Carpal Tunnel Syndrome, mungafunike kuvala chogwirira kuti dzanja lanu likhale pamalo ake pamene mukugona. Gwiritsani ntchito monga momwe dokotala wanu wanenera.

Kodi ndidzamva bwino msanga bwanji nditalandira chithandizo?

Kutupa komwe kumachitika chifukwa cha Eosinophilic Fasciitis kuyenera kuyamba kuchepa patangopita maola ochepa kuchokera pamene mwatenga mlingo woyamba wa corticosteroids. Mpumulo uwu ukhoza kukhala wakanthawi, ndipo zizindikiro zingabwererenso pamene mankhwalawo akutha. Chifukwa chake, ndikofunikira kumwa mankhwalawo kwa nthawi yonse yomwe dokotala wanu wakupatsani.

Kodi Eosinophilic Fasciitis ingapewedwe?

Mwatsoka, palibe njira yeniyeni yopewera matendawa. Akatswiri sakudziwa chomwe chimayambitsa matenda odziteteza ku matenda kapena momwe amayamba, kotero sanganene nthawi kapena chifukwa chake mudzayamba nawo.

Kodi munthu amene ali ndi matendawa ayenera kuyembekezera chiyani?

Ngati mwapezeka ndi Eosinophilic Fasciitis, muyenera kuyembekezera kuti zizindikiro zanu zidzatha kwakanthawi. Ngati muwona kusintha kulikonse mu zizindikiro zanu, makamaka ngati zikuipiraipira, lankhulani ndi dokotala nthawi yomweyo.

Monga tanenera kale, palibe mankhwala a izi. Anthu ambiri amakhala ndi vutoli kwa zaka zingapo, kenako zizindikiro zimatha (zimapita ku `remission`). Anthu ena sadzadwalanso, koma ena zizindikiro zimatha kubweranso pambuyo pake (`recur`).

Kodi simudzakwanitsa kupita kuntchito kapena kusukulu?

Ngati mungathe kugwira ntchito yanu kapena sukulu popanda kupsinjika kwambiri pa fascia yanu yokhudzidwa, muyenera kubwerera kuntchito kapena kusukulu mpaka mutachira ku Eosinophilic Fasciitis. Komabe, dokotala wanu adzakuuzani zochita zomwe muyenera kupewa mpaka mutachira. Ndikofunikira kutsatira malangizo awa.

Onetsetsani kuti mwalankhula ndi dokotala wanu ndipo mwalandira chilolezo musanayambe kuchita zinthu zolimbitsa thupi monga kuthamanga, kunyamula zolemera, kapena kuchita masewera olimbitsa thupi.

Kodi muyenera kupita kwa dokotala liti?

• Ngati muwona zizindikiro zatsopano m'manja, mapazi, kapena m'malo olumikizirana mafupa - makamaka ngati muli ndi ululu kapena kutupa komwe sikutha pambuyo pa masiku angapo opuma - pitani kwa dokotala nthawi yomweyo.
• Ngati mwapezeka kale ndi Eosinophilic Fasciitis, uzani dokotala wanu nthawi yomweyo ngati zizindikiro zanu zikuipiraipira, kapena ngati muwona kuti mbali ina ya thupi lanu yayamba kuuma kapena dzanzi.

Kodi muyenera kupita ku Chipinda Chothandizira Anthu Odwala Mwadzidzidzi (ETU) liti?

Ngati mwadzidzidzi simungathe kuyenda kapena kugwiritsa ntchito gawo lina la thupi lanu, kapena ngati mukumva ululu wosapiririka, pitani ku chipinda chadzidzidzi chapafupi nthawi yomweyo .

Ndi mafunso ati omwe muyenera kufunsa dokotala?

Mukapita kwa dokotala, mungafunse mafunso monga awa:

• Kodi ndili ndi Eosinophilic Fasciitis, kapena ndi china chake?
• Kodi zizindikiro zanga zingakule mofulumira bwanji?
• Kodi ndi chithandizo chamtundu wanji chomwe ndikufunika? Kodi ndifunika chithandizo kwa nthawi yayitali bwanji?
• Kodi ndikufunika opaleshoni?
• Kodi ndi liti pamene ndingayambirenso kuchita masewera olimbitsa thupi?
• Kodi vutoli limakhudza bwanji moyo wanga watsiku ndi tsiku?

Zina mwa zinthu zofunika kwambiri zomwe tiyenera kukumbukira kuchokera munkhaniyi ndi izi:

Eosinophilic fasciitis ndi matenda osowa koma oopsa omwe angakukhudzeni mwachangu. Ngati muwona kupweteka kwatsopano, kutupa, kapena kulimba m'manja kapena m'mapazi anu, makamaka ngati sikutha patatha masiku ochepa, musachedwe kupita kwa dokotala. Popeza vutoli limatha kukula mwachangu , mukayang'aniridwa msanga, dokotala wanu amatha kupeza chomwe chikuyambitsa ndikuyamba chithandizo chofunikira.

Dokotala wanu adzakuonjezerani mankhwala oletsa kutupa (corticosteroids) ndi mankhwala ena ngati pakufunika kutero kuti akuthandizeni kuchepetsa zizindikiro zanu. Musachite mantha, koma dziwani zizindikiro zanu ndikutsatira malangizo a dokotala wanu mosamala. Ndikukufunirani kuti muchire mwachangu!

` Eosinophilic Fasciitis, Eosinophilic Fasciitis, Matenda a Khungu, Fascia, Ululu wa Mafupa, Ululu wa Minofu, Matenda a Autoimmune