Kodi mwana wanu ali ndi chotupa cha muubongo chonga ichi? Tiyeni tidziwe (Ganglioglioma)!

Kodi mwana wanu amadwala khunyu mwadzidzidzi? Kapena nthawi zonse amadandaula kuti mutu wake umapweteka akadzuka m'mawa? Ndizachibadwa kuti inu monga kholo muzichita mantha kwambiri mukaona zinthu ngati izi. Nthawi zina izi zitha kukhala zizindikiro za chotupa chaching'ono muubongo. Ichi ndichifukwa chake lero taganiza zolankhula za mtundu wosowa uwu wa chotupa cha muubongo chotchedwa Ganglioglioma . Musadandaule, tikambirana izi mwatsatanetsatane komanso mosavuta.

Kodi Ganglioglioma iyi ndi chiyani?

Mwachidule, Ganglioglioma ndi mtundu wosowa kwambiri wa chotupa cha muubongo. Chimapangidwa ndi mitundu iwiri ya maselo: maselo a neuronal ndi maselo a glial .

Taganizirani izi, ubongo wathu uli ngati makina ovuta kwambiri.

• Maselo a mitsempha ali ngati mawaya omwe amanyamula chidziwitso m'makina awa. Maselo amenewa ndi omwe amanyamula chidziwitso m'thupi lathu lonse.
• Maselo a glial ali ngati othandizira omwe amathandiza kuti mawaya amenewo akhale pamalo ake. Amapanga kapangidwe ka dongosolo lathu la mitsempha , ndipo amagwira ntchito limodzi ndi ma neuron kuti awathandize kugwira ntchito.

Ma Ganglioglioma amatchedwanso zotupa zosakanikirana za neuronal-glial chifukwa zimapangidwa kuchokera ku mitundu yonse iwiri ya maselo. Amapezeka kwambiri mwa ana ndi achinyamata .

Nkhani yabwino ndi yakuti nthawi zambiri, ma ganglioglioma amenewa ndi ang'onoang'ono, amakula pang'onopang'ono, ndipo si a khansa (osaopsa) . Izi zikutanthauza kuti safalikira ku ziwalo zina za thupi. Komabe, ngakhale atakhala kuti si a khansa, angayambitse mavuto chifukwa ali muubongo, kotero chithandizo ndi chofunikira.

Ma ganglioglioma ambiri amagawidwa m'magulu a gliomas otsika . Ma gliomas ndi zotupa zomwe zimakula muubongo kapena msana chifukwa cha kukula kosalamulirika kwa maselo a glial. Chifukwa ndi otsika, si khansa ndipo ali ndi chiopsezo chochepa chobwereranso.

Komabe, nthawi zambiri, ma Ganglioglioma amenewa amatha kukhala apamwamba kwambiri . Zikatero, amatha kukhala ndi khansa . Amakula kwambiri, amafalikira mwachangu, ndipo amatha kubwereranso pambuyo pa chithandizo.

Kodi pali mitundu yosiyanasiyana ya gangliogliomas? Kodi imayambira kuti?

Ma ganglioglioma amapezeka kwambiri m'mbali za ubongo wanu pafupi ndi makutu anu, zotchedwa temporal lobes . Komabe, amatha kufalikira kulikonse mu ubongo. Mwachitsanzo:

• Ubongo - Gawo lalikulu kwambiri la ubongo wathu.
• Chigawo cha ubongo (Brainstem) - Malo omwe ubongo ndi msana zimalumikizana.
• Cerebellum - gawo lomwe limayang'anira kulinganiza.
• Thalamus
• Hypothalamus

Sikuti izi zokha, nthawi zina zotupazi zimathanso kupangika mu msana .

Palinso mtundu wina wosowa kwambiri wotchedwa Desmoplastic Infantile Ganglioglioma . Nthawi zambiri izi zimachitika kumtunda kwa ubongo mwa ana aang'ono osakwana zaka ziwiri .

Kodi matendawa ndi ofala bwanji?

Matenda a Ganglioglioma ndi matenda osowa kwambiri. Mwachitsanzo, ku United States, ana pafupifupi 4,000 osakwana zaka 19 amapezeka ndi chotupa cha muubongo kapena msana chaka chilichonse. Komabe, pafupifupi 1% mpaka 2% ya ana amenewo ndi omwe ali ndi matenda a ganglioglioma. Chifukwa chake, izi sizachilendo kwenikweni.

Kodi zizindikiro za izi ndi ziti?

Monga ndanenera kale, popeza zotupa zimenezi nthawi zambiri zimakula m'malo ozungulira thupi, pali mwayi waukulu wa khunyu . Chifukwa chake, khunyu mwina ndi chizindikiro choyamba chomwe mumachiwona mwa mwana wanu.

Zizindikiro zina nthawi zambiri zimakula pang'onopang'ono. Zizindikirozi zimatha kusiyana malinga ndi komwe chotupa chili muubongo:

• Mutu umapweteka , makamaka ukadzuka m'mawa.
• Kusanza ndi kusanza .
• Kuvuta kumeza .
• Kuwona kawiri .
• Kuyenda kosakhazikika .
• Kumva kutopa (Kutopa) .
• Chizungulire .
• Kufooka mbali imodzi ya thupi lanu .

Ngati mwana wanu ali ndi chimodzi mwa zizindikiro izi, ndi bwino kupita kwa dokotala nthawi yomweyo ndikupita naye kuchipatala.

N’chifukwa chiyani Ganglioglioma imeneyi imayamba?

Nthawi zambiri, zimakhala zovuta kupeza chifukwa chenicheni cha kukula kwa ma Gangliogliomas awa. Izi zikutanthauza kuti amakula mwachisawawa.

Komabe, ofufuza apeza kuti kusintha kwa majini mu jini ya BRAF kumapezeka pakati pa 10% ndi 60% ya ma gangliogliomas awa. Komabe, kusintha kwa majini kumeneku kungapezekenso mu mitundu ina ya zotupa, kotero sizingatheke kunena motsimikiza kuti ichi ndi chifukwa chenicheni cha ma gangliogliomas.

Kodi ndi zinthu ziti zomwe zimayambitsa vutoli?

Ana omwe ali ndi matenda enaake a majini ali pachiwopsezo chachikulu chotenga matenda a glial, kuphatikizapo ganglioglioma. Zina mwa matenda amenewa ndi monga:

• Mtundu wa Neurofibromatosis 1 (NF1)
• Matenda a chifuwa chachikulu (tuberous sclerosis)
• Matenda a Turcot
• Matenda a Li-Fraumeni
• Von Hippel-Lindau syndrome

Kuphatikiza apo, deta ikuwonetsa kuti anyamata nthawi zambiri amakhala ndi mwayi waukulu wopeza zotupa muubongo ndi msana kuposa atsikana, ndipo ana oyera amakhala ndi zotupa izi nthawi zambiri kuposa ana amitundu ina.

Kodi mumazindikira bwanji izi molondola?

Ngati mwana wanu ali ndi zizindikiro izi, dokotala adzayamba kaye wamuyeza thupi mokwanira. Kenako adzakufunsani za zizindikiro za mwana wanu komanso mbiri yake yachipatala.

Kenako, kuyezetsa ubongo kumachitika. Izi zimayesa momwe mwanayo amagwirira ntchito, mphamvu ya minofu, mayendedwe a pakamwa ndi maso, chikumbumtima, ndi kugwirizana kwa ziwalo.

Pambuyo pa mayeso oyamba awa, dokotala adzalangiza mayeso ena angapo kuti atsimikizire matendawa:

• Kujambula kwa CT (Computed tomography - CT scan) : Izi zimagwiritsa ntchito X-ray ndi kompyuta kuti zijambule zithunzi za ubongo wa mwana m'magawo osiyanasiyana.
• Kujambula kwa MRI (Brain magnetic resonance imaging - MRI scan) : Izi zimagwiritsa ntchito maginito amphamvu, mafunde a wailesi, ndi kompyuta kuti zipange zithunzi zatsatanetsatane za ubongo. Izi ndizofunikira kwambiri podziwa malo enieni ndi kukula kwa chotupacho.
• EEG (Electroencephalogram - EEG) : Kuyeza kumeneku kumayesa zizindikiro zamagetsi ndi ntchito ya ubongo wa mwana. Izi zingathandize kudziwa chomwe chimayambitsa khunyu, makamaka ngati ndi khunyu.
• Kuyeza kwa Mitsempha : Nthawi zina, kutengera momwe mwana alili, dokotala wa opaleshoni ya mitsempha angachite biopsy. Izi zimaphatikizapo kuchotsa chidutswa chaching'ono kwambiri cha minofu kuchokera ku chotupacho, kaya kudzera mu opaleshoni kapena kudzera mu kudula pang'ono, ndikuchiyang'ana pansi pa maikulosikopu ndi katswiri wa matenda . Kuphatikiza apo, chitsanzo cha minofuchi chingatumizidwe kuti akayesedwenso zina zapadera, monga kuyesa majini . Izi zingathandize kuzindikira mtundu weniweni wa chotupacho.

Kodi Ganglioglioma imachiritsidwa bwanji?

Kuti mwana wanu alandire chithandizo chabwino kwambiri, ndi bwino kumutumiza ku chipatala cha ana . Muyenera kuonana ndi dokotala wa khansa ya ana wovomerezeka ndi bungwe la boma kapena katswiri wa mitsempha ya ana yemwe ali ndi luso lochiza matenda a gangliogliomas.

Chithandizo chomwe mwana amapatsidwa chimadalira zinthu zingapo:

• Thanzi la mwana, zaka zake, ndi matenda omwe analipo kale.
• Mtundu wa chotupa, komwe chili muubongo, ndi kukula kwake.
• Kuopsa kwa chotupacho.
• Momwe mwanayo angapiririre bwino mankhwala enaake, opaleshoni, kapena mankhwala.
• Momwe chotupacho chidzapitirire monga momwe madokotala amayembekezera.

Chithandizo choyamba nthawi zambiri chimakhala opaleshoni yochotsa chotupacho. Dokotala amayesa kuchotsa chotupacho momwe angathere. Komabe, nthawi zina ngati chotupacho chili m'dera lovuta kwambiri la ubongo, zimakhala zovuta kuchichotsa kwathunthu.

Tangoganizirani, ngati chotupacho sichingathe kuchotsedwa kotheratu, ndipo ngati chili chapamwamba kwambiri, madokotala angayambe kugwiritsa ntchito chithandizo cha radiation .

• Chithandizo cha radiation : Izi zimagwiritsa ntchito ma X-ray amphamvu kwambiri kapena mitundu ina ya radiation kuti iphe maselo a khansa kapena kuwaletsa kukula kapena kugawanitsa. Chithandizochi chingayang'ane malo enieni a chotupacho ndikupereka radiation. Chithandizochi chingalimbikitsidwe ngati chotupacho chikukula pang'onopang'ono (chikupita patsogolo) kapena ngati chabwerera pambuyo pa opaleshoni (chobwerezabwereza).
• Chemotherapy : Izi zimaphatikizapo kupereka mankhwala omwe amapha kapena kuchepetsa maselo a khansa.
• Chithandizo cholunjika : Ichi ndi chithandizo chogwiritsa ntchito mankhwala. Komabe, izi zimagwiritsa ntchito mankhwala omwe amangoyang'ana chizindikiro china chake mu chotupacho. Ma ganglioglioma ambiri ali ndi zizindikiro zinazake, monga kusintha kwa majini a BRAF komwe tidakambirana kale. Mankhwala olunjika awa amatha kuwononga zizindikirozo.

Nthawi zina, madokotala angalimbikitse kuti ana omwe ali ndi zotupa zomwe sizikuchira ku mankhwala ena atumizidwe ku mayeso azachipatala , omwe ndi maphunziro omwe amayesa mankhwala atsopano.

Kodi chiyembekezo cha matendawa ndi chiyani?

Izi ndi zomwe makolo ambiri amafuna kudziwa. Chiwerengero cha ana omwe ali ndi ganglioglioma omwe amapulumuka zaka zisanu ndi choposa 90% . Izi zikutanthauza kuti mwanayo ali ndi mwayi waukulu wopulumuka zaka zisanu atapezeka ndi matendawa.

Komabe, mwayi uwu wochira umadalira zinthu zingapo, monga kuchuluka kwa chotupa, zaka za mwana, ndi komwe chotupacho chili muubongo.

Kodi pali mwayi wobwereranso? ​​(Kubwereranso)

Ma ganglioglioma opitilira 95% ndi otsika kwambiri , zomwe zikutanthauza kuti sadzabwereranso chotupacho chitachotsedwa kwathunthu.

Komabe, zotupa zapamwamba kwambiri, monga Ganglioglioma ya giredi 3, zili ndi mwayi wochuluka woti zibwerezenso pambuyo pa opaleshoni.

Kodi izi zingalepheretsedwe kuchitika?

Mwatsoka, ofufuza sakudziwabe chifukwa chake ana ena amadwala matenda a Gangliogliomas ndipo ena sadwala. Chifukwa chake, pakadali pano palibe njira yopewera vutoli..

Kodi ndiyenera kupita ndi mwana wanga kwa dokotala liti?

Ngati mwana wanu wagwa mwadzidzidzi khunyu, kapena ngati akuwonetsa chimodzi kapena zingapo mwa zizindikiro zomwe ndatchula kale m'nkhaniyi (monga mutu wam'mawa, nseru, kuvutika kuyenda), ndikofunikira kupita ndi mwana wanu kwa dokotala nthawi yomweyo kuti akamufufuze .

Zizindikiro za Ganglioglioma zitha kufanana ndi za matenda ena, choncho ndikofunikira kuonana ndi dokotala kuti mudziwe bwino zomwe zikuchitika.

Ndi mafunso ati omwe muyenera kufunsa dokotala?

Mukazindikira kuti mwana wanu ali ndi ganglioglioma, ndi zachilendo kukhala ndi mafunso ambiri m'maganizo mwanu. Nazi mafunso ena omwe mungafunse dokotala:

• Kodi mwana wanga ali ndi mtundu wanji wa Ganglioglioma?
• Kodi ndi khansa?
• Kodi chotupa ichi chidzakhudza bwanji ubongo ndi thanzi la mwana wanga?
• Kodi njira zochiritsira ndi ziti?
• Kodi mungalimbikitse magulu othandizira omwe amathandiza mabanja a ana omwe ali ndi ganglioglioma?

Pomaliza, zinthu zoti muzikumbukira...

"Mwana wanu ali ndi chotupa muubongo." Kumva mawu amenewo kungamveke ngati mphindi yozimitsidwa ndi nthawi. Mu mphindi imodzi yodabwitsa, moyo wanu ungamve ngati wasintha kwamuyaya.

Koma, musataye mtima. Ngakhale kuti mawu awa ndi odabwitsa komanso owopsa bwanji, kumbukirani kuti ma ganglioglioma ambiri si khansa, ndi zotupa zochepa.

Ndizachibadwa kuchita mantha mwana wanu akauzidwa kuti ali ndi chotupa, ndipo chithandizo chikufunikadi. Komabe, mwana wanu akhoza kuchotsa chotupacho posachedwa . Lankhulani ndi dokotala wa mwana wanu za matenda ake ndi zomwe akuyembekezera. Adzakupatsani zonse zomwe mukufuna.

Ganglioglioma , zotupa muubongo, ana, khunyu, khunyu, opaleshoni yaubongo, khansa