Sitingotengera maonekedwe ndi luso lathu kuchokera kwa makolo athu, komanso nthawi zina timalandira matenda. Matenda a Huntington ndi matenda oopsa omwe amakhudza maselo amitsempha muubongo ndipo amapatsirana kuchokera ku mibadwomibadwo . Mungamve mantha mukamva dzinali, koma ndikofunikira kwambiri kulidziwa. Chifukwa chake lero, tiyeni tikambirane za izi m'njira yosavuta komanso yomveka bwino.
Kodi matenda a Huntington ndi chiyani kwenikweni?
Mwachidule, matenda a Huntington ndi matenda a majini omwe amapatsirana kuchokera ku mibadwomibadwo. Amachititsa kuti maselo amitsempha muubongo azifa pang'onopang'ono. Pakapita nthawi, izi zingayambitse kusintha kwa luso lathu loyendetsa thupi, kuzindikira, komanso ngakhale malingaliro. Izi zitha kuwonjezera chiopsezo chokhala ndi mavuto amisala monga kuvutika maganizo ndi nkhawa.
Ngakhale matendawa angayambe pa msinkhu uliwonse, zizindikiro nthawi zambiri zimawonekera pakati pa zaka 30 ndi 40. Komabe, ngati matendawa ayamba ali mwana, kapena asanakwanitse zaka 20, amatchedwa matenda a achinyamata a Huntington (JHD).
Pakadali pano palibe mankhwala a matendawa. Komabe, pali njira zambiri zothandizira zomwe zingathandize kuchepetsa zizindikiro ndikupangitsa moyo kukhala wosavuta. Choncho musataye mtima.
Ndizachibadwa kumva kutopa kwambiri mukadziwa za matenda ngati awa. Komabe, kupeza thandizo kuchokera kwa wantchito wothandiza anthu, mlangizi, kapena gulu lothandizira la anthu omwe ali ndi matendawa kungathandize kwambiri pothana ndi vutoli. Mothandizidwa ndi gulu la akatswiri azachipatala osiyanasiyana, ngakhale munthu amene ali ndi matenda a Huntington akhoza kukhala yekha kwa zaka zambiri.
N’chiyani chimayambitsa matendawa?
Chifukwa chachikulu cha izi ndi vuto la majini. Tangoganizani kuti malangizo a ntchito iliyonse m'thupi lathu, monga njira yophikira, amalembedwa m'majini athu. Tonsefe tili ndi jini yomwe imayambitsa matenda a Huntington (jini la HD). Koma m'mabanja ena, kopi ya jini iyi yolakwika, yosinthika imalandira kuchokera kwa makolo kupita kwa ana.
Ngati amayi kapena abambo anu ali ndi matendawa, muli ndi mwayi wa 50% wotengera jini yolakwika ndikuyamba matendawa. Izi zikutanthauza kuti mungadwale kapena ayi. Zili ngati kuponya ndalama.
Ndikofunikira kudziwa zinthu zingapo zokhudza izi:
- Jini lolakwika limeneli likhoza kutengedwa ndi amuna ndi akazi omwe.
- Ngati simulandira jini yolakwika, simudzadwala matenda a Huntington, ndipo simudzapatsira matendawa kwa ana anu.
- Matendawa sapitirira mibadwo . Izi zikutanthauza kuti, palibe njira yomwe mwana angakulire ngati agogo ake anali nawo koma bambo ake sanali nawo.
Ngati inu kapena wina m'banja mwanu akuganiza zoyezetsa majini kuti adziwe ngati muli ndi vutoli, ndikofunikira kukumana ndi katswiri wa majini pasadakhale. Angakuthandizeni kumvetsetsa zotsatira za mayesowo ndikukuthandizani kukonzekera.
Kodi zizindikiro za matendawa ndi ziti?
Zizindikiro za matenda a Huntington zitha kugawidwa m'magulu atatu akuluakulu: luso loyendetsa thupi, magwiridwe antchito a ubongo, ndi kusintha kwa khalidwe. Anthu ambiri omwe ali ndi matendawa amakumana ndi zizindikiro m'mbali zonse zitatu. Zizindikirozi nthawi zambiri zimawonekera kutengera gawo la matendawa.
| Gawo la matendawa | Zizindikiro zomwe zimawoneka kawirikawiri |
|---|---|
| Gawo Loyambirira | Kusinthaku n'kosavuta kuzindikira panthawiyi, kotero n'kovuta kuzindikira mosavuta.
|
| Gawo Lapakati | Zizindikiro zimayamba kukhudza moyo watsiku ndi tsiku mochulukirachulukira.
|
| Gawo Lomaliza | Pa nthawiyi, wodwalayo sangathe kuchita chilichonse payekha ndipo amadalira ena kotheratu.
|
Zizindikiro za matenda a Huntington (JHD) mwa ana aang'ono
Ngati mwana kapena wachinyamata adwala matendawa, amatha kukula mofulumira. Pali zizindikiro zingapo zosiyana zomwe zingawonekere:
- Kuuma ndi kuyenda movutikira
- Kuvuta kuyang'ana kwambiri
- Kusapezeka mwadzidzidzi kuntchito ya kusukulu
- Kugwedezeka
- Kugwidwa ndi khunyu
Kodi mungazindikire bwanji matendawa?
Matendawa akapezeka msanga, moyo wanu umakhala wabwino kwa nthawi yayitali. Ngati muli ndi zizindikiro, dokotala wanu adzakufunsani za mbiri ya matenda a m'banja mwanu ndikukupimirani thupi. Kuphatikiza apo, adzakupimirani mayeso angapo okhudzana ndi mitsempha.
- Kusinkhasinkha
- Mphamvu ya minofu
- Kukhazikika kwa thupi
- Kuona ndi kumva
- Kukumbukira ndi luso loganiza
Koposa zonse, njira yabwino yotsimikizira matendawa ndi kudzera mu mayeso a majini . Izi zingakuuzeni motsimikiza ngati muli ndi jini ya HD yolakwika m'thupi lanu kapena ayi.
Kodi imachiritsidwa ndi kuyendetsedwa bwanji?
Ngakhale kuti palibe mankhwala a matendawa, pali njira zambiri zothandizira kuchepetsa zizindikiro ndikupangitsa moyo kukhala wosavuta. Pali mwambi pakati pa madokotala womwe umati, "Sitingawonjezere zaka pa moyo wanu, koma tingawonjezere moyo pa zaka zanu." Ndi zoona. Chofunika kwambiri ndichakuti akatswiri ochokera m'magawo osiyanasiyana azigwira ntchito limodzi kuti akuthandizeni.
Mankhwala
Dokotala angapereke mankhwala osiyanasiyana kuti achepetse zizindikiro.
- Poletsa mayendedwe: Gulu la mankhwala otchedwa `VMAT2 inhibitors` (monga Deutetrabenazine, Tetrabenazine) amagwiritsidwa ntchito kuchepetsa mayendedwe osalamulirika monga `Chorea`.
- Kwa mavuto amisala:Mankhwala oletsa kuvutika maganizo ndi oletsa kukhumudwa amaperekedwa kuti athetse matenda monga kuvutika maganizo ndi nkhawa.
Chithandizo
Izi ndi gawo lofunika kwambiri pakuwongolera matenda.
- Kuchiza thupi: Kumathandiza kuchepetsa kugwa mwa kukonza kuyenda bwino komanso kulimbitsa thupi.
- Chithandizo cha ntchito: Chimaphunzitsa njira ndi zida zofunika kuti munthu apitirize kuchita zinthu za tsiku ndi tsiku (kuvala, kudya).
- Chithandizo cha kulankhula: Chimathandiza kuthetsa mavuto olankhula ndi kumeza.
Zakudya ndi kusintha kwa moyo
Odwala a Huntington ali ndi mwayi wochepa thupi. Izi zili choncho chifukwa thupi limatentha ma calories ambiri chifukwa choyenda bwino komanso kuvutika kumeza chakudya. Chifukwa chake, ndikofunikira kwambiri kudya zakudya zokhala ndi ma calories ambiri, zopatsa thanzi, komanso zosavuta kugaya, monga momwe katswiri wazakudya amalangizira.
Kuphatikiza apo, kuchita masewera olimbitsa thupi, kudya zakudya za ku Mediterranean, kupewa kumwa mowa, kugona tulo tokwanira, komanso kuchepetsa nkhawa zimathandizanso kwambiri polimbana ndi matendawa.
Uthenga Wopita Nawo Kunyumba
- Matenda a Huntington ndi matenda obadwa nawo omwe amapezeka m'mabanja. Ndizachibadwa kuchita mantha ukadziwa za matendawa, koma chofunika kwambiri ndikudziwa za matendawa.
- Ngakhale kuti palibe mankhwala enieni a matendawa, pali njira zambiri zochiritsira zomwe zingakuthandizeni kuchepetsa zizindikiro zanu ndikukhala ndi moyo wabwino.
- Matendawa akapezeka msanga, zimakhala zosavuta kuwongolera zizindikiro zake ndikupangitsa moyo kukhala wosavuta.
- Ndikofunikira kufunafuna thandizo la gulu lachipatala lopangidwa ndi akatswiri osiyanasiyana, monga dokotala wanu, katswiri wa zamaganizo, ndi mlangizi.
- Kuyesa majini kapena ayi ndi chisankho chaumwini, koma funsani thandizo kwa mlangizi wa majini musanapange chisankho chimenecho.
- Simuli nokha. Pali magulu othandizira ndi mabungwe omwe angakuthandizeni inu ndi osamalira anu omwe muli ndi matendawa. Yang'anani ndi vutoli ndi chiyembekezo komanso kulimba mtima.
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