Kodi mukudziwa za Down Syndrome? Tiyeni tikambirane za ana okongola awa.

Kodi munayamba mwawonapo mwana wokongola yemwe amaoneka mosiyana pang'ono, nthawi zonse akumwetulira? Mwina munadzifunsa kuti, 'N'chifukwa chiyani mwana uyu ndi wosiyana ndi ena?' Matenda a Down Syndrome ndi matenda omwe amakhudza ana ambiri awa. Choyamba kumvetsetsa ndichakuti uwu si matenda. Ndi matenda a majini. Chifukwa chake, tiyeni tichotse malingaliro olakwika okhudza izi ndikuphunzira zambiri za ana okongola awa ndi dziko lawo.

Mwachidule, kodi Down Syndrome ndi chiyani?

Kuti timvetse izi, choyamba tiyenera kulankhula za gawo laling'ono kwambiri m'thupi lathu. Thupi lathu limapangidwa ndi maselo mamiliyoni ambiri. Mkati mwa selo lililonseli, muli "malangizo" omwe amalamulira chilichonse m'thupi lathu, zomwe zimatsimikiza khalidwe lililonse la thupi lathu, monga kutalika kwathu, mtundu wa maso, ndi mtundu wa tsitsi. Timatcha magulu a malangizo awa kuti ma chromosome .

Kawirikawiri, munthu wathanzi amakhala ndi ma chromosome 23 mu selo lililonse, zomwe zimapangitsa kuti ma chromosome onse akhale 46. Komabe, mwana yemwe ali ndi Down syndrome amakhala ndi kopi yowonjezera ya chromosome 21 m'malo mwa awiri, koma atatu. Chromosome yowonjezerayi imayambitsa kusiyana kwina pakukula kwakuthupi ndi kwamaganizo kwa ana awa.

Ngakhale kuti kafukufuku wapeza kuti ana obadwa kwa amayi azaka zopitirira 35 ali ndi mwayi waukulu wokhala ndi vutoli, mayi wa msinkhu uliwonse akhoza kukhala ndi mwana yemwe ali ndi matenda a Down syndrome.

Kodi makhalidwe ofanana a ana awa ndi otani?

Si ana onse omwe ali ndi matenda a Down syndrome omwe ali ofanana. Koma pali makhalidwe ena ofanana omwe angaoneke pakati pawo. Palibe choopa mukawaona, ichi ndi gawo la umunthu wawo.

Tidziwenso mavuto azaumoyo omwe amabwera chifukwa cha Down syndrome.

Ana awa ali pachiwopsezo chachikulu chotenga matenda ena kuposa ena. Komabe, si aliyense amene angakumane ndi mavuto onsewa. Chofunika kwambiri ndikudziwa izi, kukumana ndi dokotala wa mwana wanu nthawi zonse, ndikupeza mayeso ofunikira azachipatala ndi chithandizo pa nthawi yake.

• Matenda a Mtima Obadwa Nawo: Pafupifupi theka la ana onse omwe ali ndi matenda a Down syndrome akhoza kukhala ndi vuto la mtima lobadwa nalo. Ambiri mwa ana amenewa tsopano akhoza kuchiritsidwa bwino pogwiritsa ntchito opaleshoni.
• Mavuto a m'mimba: Ana ena angakumane ndi mavuto ena ndi dongosolo lawo logaya chakudya.
• Mavuto a kumva ndi kuona: Pali kuthekera kwa vuto la kuona ndi kumva. Chifukwa chake, ndikofunikira kupita kukayezetsa nthawi zonse.
• Mavuto a chithokomiro: Pali chiopsezo cha hypothyroidism, vuto lomwe kagayidwe ka thupi m'thupi kamakhala kosagwira ntchito mokwanira.
• Kupuma Movutikira: Matenda omwe amasiya kupuma kwakanthawi panthawi yogona.
• Matenda ofala: Chifukwa cha kufooka kwina m'thupi, zinthu monga chimfine ndi matenda a m'makutu zimatha kuchitika pafupipafupi.

Musachite mantha mukaona zinthuzi. Pali njira zabwino kwambiri zochiritsira zonsezi mu sayansi yapamwamba ya zamankhwala masiku ano. Chomwe chikufunika ndi chisamaliro cha makolo ndi osamalira komanso chitsogozo choyenera chachipatala.

Kodi tingawathandize bwanji ana awa?

Iyi ndi gawo lofunika kwambiri. Pali zinthu zambiri zomwe tingachite kuti tithandize mwana yemwe ali ndi matenda a Down syndrome kukhala ndi moyo wopambana komanso wachimwemwe.

1. Kulowererapo Koyambirira

Izi zikutanthauza kuthandiza mwana kukula ali wamng'ono. Kutengera zosowa za mwana,

• Kuchiza Thupi: Kumalimbitsa minofu ndipo kumakuthandizani kuyenda, kuthamanga, ndi kulumpha.
• Chithandizo cha Kulankhula: Chimakuthandizani kulankhula momveka bwino komanso kufotokoza malingaliro.
• Chithandizo cha Ntchito: Chimakuphunzitsani momwe mungachitire ntchito za tsiku ndi tsiku monga kudya ndi kuvala nokha.

Kudzera mu izi, mutha kukulitsa luso la mwana wanu. Funsani dokotala wanu za kupempha thandizo kwa akatswiri odziwa bwino ntchito zamaganizo pa izi.

2. Maphunziro ndi mwayi wofanana

Ndi bodza lenileni kuti ana omwe ali ndi Down syndrome sangaphunzire. Amaphunzira pa liwiro lawo. Maphunziro ophatikizana, omwe amawathandiza kuphunzira m'masukulu wamba ndi ana ena, amawathandiza kukulitsa luso lawo locheza ndi anthu. Ambiri amatha kuwerenga, kulemba, komanso kugwira ntchito zachizolowezi.

3. Chikondi, kuvomereza ndi kulimbikitsana

Ana awa safuna kuti tiwamvere chisoni. Amafunika chikondi, kuleza mtima, kulandiridwa, ndi chilimbikitso. Kondwererani ngakhale kupambana kwawo pang'ono. Ngati ziwatengera nthawi kuti achite chinachake, khalani oleza mtima ndipo muwalole kuti achichite. Ife monga anthu tiyenera kuphunzira kuwakonda pamodzi ndi kusiyana kwawo, osati kuwaseka.

Tangoganizani kuti pali mwana yemwe ali ndi matenda a Down syndrome m'dera lanu. Musamupatule, mugwirizane naye kusewera ndi mwana wanu. Khalani gwero la mphamvu zamaganizo kwa makolo a mwanayo. Kusintha kwathu pang'ono kungakhale mphamvu yaikulu kwa banja limenelo.

Masiku ano, chifukwa cha chithandizo chabwino chamankhwala komanso chithandizo cha anthu, anthu ambiri omwe ali ndi matenda a Down syndrome amakhala ndi moyo kuyambira zaka 55 mpaka 60. Ambiri mwa iwo amakhala okha.