Kodi mudamvapo za khansa ya gland yaying'ono muubongo wanu? (Pineoblastoma) Tiyeni tikambirane izi!

Kodi munayamba mwamvapo mutu, kuvutika kusuntha maso anu, kapena kusakhazikika mukuyenda? Mwina mwawonapo mwana wanu ali ndi zizindikiro izi. Ngakhale nthawi zina timazinyalanyaza, nthawi zina, zinthuzi zimatha kukhala zizindikiro za matenda aakulu. Lero tikambirana za mtundu wosowa kwambiri wa khansa ya muubongo womwe ndi wofunikira kwambiri kudziwa. Izi zimatchedwa `(Pineoblastoma)`.

Kodi `(Pineoblastoma)` iyi ndi chiyani? Mwachidule...

Mwachidule, `(Pineoblastoma)` ndi chotupa cha khansa (timachitcha `(malignant)`) chomwe chimayamba mu `(pineal gland)` muubongo wathu. Mtundu uwu wa khansa umakula mofulumira kwambiri ndipo ukhoza kufalikira ku minofu yozungulira ndi madzi ozungulira ubongo. Uwu ndi matenda oopsa kwambiri.

Dikirani kaye, kodi pineal gland iyi ndi chiyani?

Chabwino, choyamba tiyeni tiphunzire pang'ono za `(Pineal Gland)` iyi. Iyi ndi gland yaying'ono kwambiri, yooneka ngati kononi, yofanana ndi mawonekedwe a mtedza wa cashew. Ili pakati pa ubongo wathu. Gland iyi imatulutsa mahomoni otchedwa `(Melatonin)` . Muyenera kuti munamvapo za `(Melatonin)`. Izi ndi zomwe zimathandiza kulamulira zochita za thupi lathu tsiku ndi tsiku, kutanthauza, `(circadian rhythm)`. Mwachidule, izi zili ngati wotchi yachilengedwe ya thupi lathu yomwe imatithandiza kukhala maso masana ndikugona usiku.

Kodi khansa ya mtundu wanji ndi `(Pineoblastoma)`?

`(Pineoblastoma)` iyi ndi chotupa cha muubongo chomwe chikukula mofulumira . Madokotala angachitchenso `(chotupa cha muubongo cha giredi 4)`. Komanso, ichi ndi `(chotupa choipa)`, zomwe zikutanthauza kuti ndi chotupa cha khansa. Izi zikutanthauza kuti ndi choopsa mthupi lathu ndipo chingafalikire.

Kodi matenda otchedwa ``Pineoblastoma'' ndi ofala bwanji?

Pineoblastoma kwenikweni ndi matenda osowa kwambiri . Ku United States, zotupa za muubongo zosakwana 0.2% zimapezeka ngati zotupa za pineal gland. Mtundu uwu wa khansa nthawi zambiri umapezeka mwa ana aang'ono kapena anthu osakwana zaka 20. Komabe, ndikofunikira kukumbukira kuti ukhoza kufalikira kwa aliyense wa msinkhu uliwonse.

Kodi zizindikiro za matenda awa `(Pineoblastoma)` ndi ziti?

Chabwino, tsopano tiyeni tiwone mtundu wa zizindikiro zomwe timaona pamene `(Pineoblastoma)` iyi ikuyamba.

• Mungathe kudwala mutu waukulu . Uwu si mutu wamba, koma mutu woopsa pang'ono.
• Kumva kutopa nthawi zonse (`( Kutopa )`) . Mutha kumva kutopa kwambiri kotero kuti simungathe kuchita chilichonse.
• Kuvuta kusuntha maso anu . Zingakhale zovuta kuyang'ana pamalo amodzi.
• Mavuto okhudzana ndi kulinganiza bwino ndi kugwirizanaZili ngati kulephera kukhala ndi mphamvu poyenda, kapena kuvutika kugwira zinthu.
• Kusintha kwa khalidwe . Zinthu monga kukwiya kwambiri, kukwiya kwambiri, kapena kukhala chete kuposa kale.
• Kusanza ndi kusanza .

Zizindikiro zimenezi nthawi zambiri zimayambitsidwa ndi matenda otchedwa `(hydrocephalus)`. Izi zikutanthauza kuti, kuthamanga kwa magazi mu `(cerebrospinal fluid)` (timatcha kuti cerebrospinal fluid) kuzungulira ubongo kumawonjezeka. Khansa iyi imatha kufalikira kudzera mu `(cerebrospinal fluid)` kupita kumadera ena a ubongo ndi dongosolo la mitsempha (CNS). Komabe, khansa ya `(pineoblastoma)` siimafalikira kupitirira `(CNS)`.

Tangoganizirani kuti muli ndi mwana wamng'ono amene nthawi zonse amadandaula za mutu, samasewera kwambiri monga kale, ndipo akuwoneka kuti akukwiya pang'ono. Makolo angaganize kuti izi ndi zachilendo. Koma ngati zizindikirozi zikupitirira, ndikofunikira kwambiri kuonana ndi dokotala.

Kodi zimayambitsa `(Pineoblastoma)` ndi chiyani?

Chifukwa chachikulu cha izi ndi chakuti mtundu wa selo lotchedwa ``maselo a pinealocyte'' mu pineal gland muubongo wathu umakula mosalamulirika komanso mopitirira muyeso . Kafukufuku akusonyeza kuti maselo amenewa angayambe kugwira ntchito molakwika chifukwa cha kusintha kwa majini athu (``majini mutation''). Pali mitundu iwiri ya majini awa: 1. Ochokera kwa makolo (``germline mutation'') : Izi zimachitika pakutenga pakati, ndiko kuti, pamene umuna wa mayi ndi bambo umasakanikirana. 2. Omwe amapezeka mwachisawawa pambuyo pa kutenga pakati (``sporadic mutation'') : Pankhaniyi, palibe aliyense m'banjamo amene angakhale ndi kusintha kwa majini kumeneku kale.

Ndani ali pachiwopsezo chachikulu chotenga `(Pineoblastoma)`?

Anthu ena ali pachiwopsezo chachikulu chotenga "Pineoblastoma" iyi.

• Ngati muli ndi retinoblastoma, mtundu wa khansa yomwe imapezeka mu retina ya diso, muli pachiwopsezo chachikulu chotenga pineoblastoma.
• Komanso, anthu omwe ali ndi kusintha kwina kwa majini `(RB1)` ndi `(DICER1)` ali ndi mwayi waukulu wopeza khansa iyi. Monga tanenera kale, kusintha kwa majini kumeneku kumatha kutengera kwa makolo, kapena kungachitike mwangozi.

Ngati mukukonzekera kuyambitsa banja, ndi bwino kulankhula ndi dokotala za kuyezetsa majini kuti mudziwe ngati muli ndi chilichonse mwa zinthuzi zomwe zingakubweretsereni chiopsezo.

Kodi Pineoblastoma imapezedwa bwanji?

Dokotala amazindikira matendawa (Pineoblastoma) mwa kukufufuzani ndikuchita mayeso osiyanasiyana.

• Kuyezetsa thupi : Choyamba, dokotala adzakufunsani za zizindikiro zanu, ngati pali aliyense m'banja mwanu amene wakhala ndi matenda ofanana ndi anu, komanso adzafufuza momwe maso anu amayendera.
• Mayeso apadera :
• Kujambula ubongo (Magnetic Resonance Imaging - MRI ).
• Kujambula kwa `(Computed Tomography - CT)`.
• Mwina kujambulidwa kwa `(Positron Emission Tomography - PET)`.
• Kujambula ndi njira yodziwira ngati kachidutswa kakang'ono ka minofu kamene kali m'chotupacho katengedwa ndi kufufuzidwa. Ichi ndi chomwe chimatsimikizira ngati ndi khansa komanso mtundu wake.
• Kuyezetsa magazi ndi/kapena madzi a m'mitsempha (madzi ozungulira ubongo) kumachitika kuti aone ngati pali chotupa.

Kodi `(Pineoblastoma)` ingachiritsidwe kwathunthu?

Ili ndi funso lomwe anthu ambiri ali nalo. Kunena zoona, pakadali pano palibe mankhwala a `(Pineoblastoma)`. Koma, musadandaule, pali njira zingapo zochiritsira. Ngati chotupacho sichinafalikire, dokotala akhoza kuchichotsa ndi opaleshoni. Komabe, `(Pineoblastoma)` ndi mtundu wa khansa wovuta kuchiza. Chifukwa chake, chiopsezo cha mavuto ochokera ku khansa iyi ndi chachikulu. Zizindikiro zimatha kuipiraipira pakapita nthawi ndipo nthawi yotsala ya moyo ingachepe. Komanso, pali kuthekera kwa khansa kubwerera pambuyo pa chithandizo.

Kodi mankhwala a `(Pineoblastoma)` ndi ati?

Zotsatirazi zitha kuchitidwa ngati chithandizo cha `(Pineoblastoma)`:

• Opaleshoni : Opaleshoni imachitika kuti ichotse chotupa chonse kapena mbali ina. Dokotala wanu adzakufotokozerani zomwe opaleshoniyo ingachite komanso zoopsa zomwe zingachitike.
• Opaleshoni ya Hydrocephalus : Chingwe chaching'ono chingaikidwe kuti chichepetse kuchulukana kwa madzi a m'mitsempha ya ubongo mozungulira ubongo. Izi zimachotsa madzi ochulukirapo ndikuchepetsa kuthamanga kwa magazi.
• Chithandizo cha radiation : Ichi ndi chithandizo chofala kwambiri pambuyo pa opaleshoni. Chithandizo cha radiation chingachepetse zotupa kapena kupha maselo a khansa.
• Chemotherapy : Chithandizo chomwe chimaperekedwa kuwonjezera pa chithandizo cha radiation ndi opaleshoni. Chemotherapy imatha kuchepetsa chotupacho musanachite opaleshoni ndikupha maselo ena onse a khansa pambuyo pa opaleshoni.
• Mankhwala a chemotherapy okwera kwambiri komanso kuikidwa kwa maselo oyambira a autologous : Mu izi, maselo anu oyambira amasonkhanitsidwa musanalandire mankhwala a chemotherapy okwera kwambiri. Kenako, pambuyo pa mankhwala a chemotherapy, maselo oyambirawo amabwezeretsedwanso m'thupi lanu.

Pamene mankhwala ndi njira zatsopano zochiritsira zikupezeka, mungakhalenso ndi mwayi wochita nawo "mayesero azachipatala." Izi zingaphatikizepo kuyesa mankhwala atsopano monga "chithandizo cholunjika" kapena "chithandizo cha immunotherapy."

Ndani amachita nawo chithandizochi?

Ngati muli ndi pineoblastoma, gulu lanu lachipatala lingaphatikizepo:

• Katswiri wa mitsempha (katswiri wa mitsempha)
• Katswiri wa khansa (katswiri wa khansa)
• Katswiri wa khansa ya khansa ya m'mawere
• Dokotala wa opaleshoni ya ubongo

Kodi pali zotsatirapo zilizonse za mankhwalawa?

Inde, mankhwala ena, makamaka chithandizo cha radiation, angayambitse zotsatirapo zoyipa. Izi zingakhudze ntchito yanu ya endocrine. Izi zikutanthauza:

• Kukula (`(Kukula)`)
• Magawo a mphamvu (`(Magawo a mphamvu)`)
• Kubereka (`(Kubereka)`)

Musanayambe kulandira chithandizo, kambiranani ndi dokotala wanu za zotsatirapo zake . Adzakuyang'anirani nthawi zonse ndikuchiza zotsatirapo zilizonse zomwe zingachitike.

Kodi mungapulumuke `(Pineoblastoma)`?

Inde, anthu ena amapulumuka Pineoblastoma. Chiwerengero cha anthu omwe ali ndi matenda a Pineoblastoma omwe amapulumuka zaka zisanu ndi 60% mpaka 69.5% . Izi zikutanthauza kuti pakati pa 60% ndi 70% ya anthu omwe ali ndi matendawa amakhalabe ndi moyo patatha zaka zisanu. Ngakhale kuti Pineoblastoma ingafupikitse nthawi yanu yoyembekezera moyo, pali mankhwala omwe angakuthandizeni kukhala ndi thanzi labwino komanso kukhala ndi moyo wautali.

Kodi matenda a Pineoblastoma ndi otani?

Pambuyo pozindikira `(Pineoblastoma)`, dokotala wanu adzakuuzani za matendawo. Monga tanenera kale, palibe mankhwala a `(Pineoblastoma)`, koma pali mankhwala. Nthawi ya moyo wa munthu imadalira zinthu zambiri, monga thanzi lanu lonse, momwe mumayankhira chithandizo, komanso momwe chotupacho chikukulira mofulumira . Mukazindikira `(Pineoblastoma)`, muyenera kupita kwa dokotala nthawi zonse. Izi zili choncho chifukwa adzakuyang'anirani kuti mudziwe zotsatirapo zilizonse ndikuchita zomwe zikufunika.

Kodi Pineoblastoma ingapewedwe?

Mwatsoka, pakadali pano palibe njira yodziwika yopewera Pineoblastoma.

Kodi ndiyenera kupita kwa dokotala liti?

Zizindikiro za `(Pineoblastoma)` kwa inu kapena mwana wanu, zomwe zikuphatikizapo:

• Mutu
• Kusintha kwa khalidwe
• Kuvuta kusuntha maso

Ngati muli ndi chimodzi mwa zotsatirazi, pitani kwa dokotala nthawi yomweyo . Ngati mwapezeka ndi `(Pineoblastoma)` ndipo mukulandira chithandizo, uzani dokotala wanu ngati mukukumana ndi zotsatirapo zina. Ngati mwana wanu ali wamng'ono, chithandizocho chingakhudze kukula kwake. Ngati mukuona kuti mwana wanu akuchedwa kukula pamlingo woyenera msinkhu wake, lankhulani ndi dokotala wanu za zimenezo.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Mukapita kwa dokotala, ndi bwino kufunsa mafunso ngati awa:

• Kodi mumalimbikitsa chithandizo chamtundu wanji?
• Kodi khansa yafalikira?
• Kodi ndikufunika opaleshoni?
• Kodi zotsatirapo zake ndi ziti?
• Kodi nthawi yanga yodzakhala ndi moyo ndi yotani kapena chiyembekezo changa ndi chotani?

Ndi zachilendo kumva kudabwa, chisoni, komanso mantha mukamva mawu akuti "muli ndi khansa." Mwadzidzidzi, mumakhala ndi mafunso ambiri okhudza zomwe mungachite kenako, zomwe mungayembekezere, komanso zomwe mungayembekezere. Musadandaule . Dokotala wanu ndi gulu lachipatala adzakuthandizani kuthana ndi matendawa ndikusankha chithandizo chomwe chili chabwino kwa inu. Panthawiyi, onetsetsani kuti mukukhala ndi achibale ndi abwenzi okuthandizani. Kafukufuku wa mankhwala atsopano a pineoblastoma akupitilira, choncho khalani ndi chiyembekezo.

Uthenga Wopita Nawo Kunyumba

• Pineoblastoma ndi khansa yosowa koma yomwe ikukula mofulumira yomwe imayamba mu pineal gland ya ubongo.
• Zizindikiro monga mutu, mavuto a maso, kulephera kulinganiza bwino zinthu, ndi kusintha kwa khalidwe zingachitike. Izi zitha kukhala chifukwa cha hydrocephalus (kusonkhanitsa madzi muubongo) .
• Choyambitsa nthawi zambiri chimakhala majini. Anthu omwe ali ndi `(Retinoblastoma)` ndi omwe ali ndi kusintha kwa majini `(RB1)` ndi `(DICER1)` ali pachiwopsezo chachikulu.
• Mayeso monga MRI, CT scan, ndi biopsy amachitidwa kuti adziwe matenda.
• Ngakhale kuti palibe mankhwala okwanira, pali njira zina monga opaleshoni, chithandizo cha radiation, ndi chemotherapy.
• Ngati muli ndi zizindikiro , funsani upangiri wa dokotala nthawi yomweyo . Musaope kufunsa mafunso.
• Ngakhale kuti izi ndi zovuta, landirani chithandizo ndi chiyembekezo komanso mphamvu . Simuli nokha.

Ndikukhulupirira kuti izi zikuthandizani. Ngati mukukayikira za zizindikiro zilizonse, chonde pitani kwa dokotala.

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