Kodi thupi lanu limamva kuti lasowa madzi m'thupi? Likhoza kukhala matenda a Sjögren's Syndrome!

Kodi nthawi zina mumamva ngati maso anu ndi ouma ndipo pakamwa panu ndi pouma? Mwina ndi chifukwa chakuti ngati mumangotopa ndipo nthawi zonse mumakhala ndi zinthuzi, sizachilendo. Lero tikambirana za matenda otchedwa 'Sjögren's Syndrome', omwe ali ndi dzina lachilendo, koma amakhudza anthu ena. Mwina simukudziwa dzinali, koma zizindikiro zake zingakhale zodziwika bwino kwa inu.

Kodi 'Sjögren's Syndrome' ndi chiyani?

Mwachidule, 'Sjogren's Syndrome' ndi matenda odziteteza okha omwe amakhudza tiziwalo timene timatulutsa chinyezi m'thupi lathu. Tsopano mwina mukudabwa kuti 'autoimmune' iyi imatanthauza chiyani. Tangoganizani, thupi lathu lili ndi dongosolo lomwe limatiteteza ku matenda, limatchedwa chitetezo chamthupi. Lili ngati gulu lankhondo lomwe limateteza dziko lathu. Koma mu matenda a 'autoimmune' awa, chomwe chimachitika ndichakuti oteteza athu, omwe ndi chitetezo chamthupi, amaukira molakwika maselo athu abwino, pamenepa tiziwalo timene timatulutsa chinyezi. Izi zili ngati mlonda m'nyumba mwathu akuganiza kuti ndife wakuba ndipo akutiukira.

Zotsatira zake, ma glands omwe amapanga chinyezi m'thupi lanu amasiya kugwira ntchito bwino. Izi zimakhudza kwambiri:

• Kusoka: Izi zimayambitsa maso ouma.
• Matumbo a mkamwa: Izi zimapangitsa kuti pakamwa pakhale pouma.
• Mphuno: Mphuno ikhoza kuuma.
• Pakhosi: Pakhosi pakhoza kuuma ndi kuyambitsa chifuwa.
• Dongosolo la kugaya chakudya lingakhudzidwenso pang'ono.
• Kwa akazi: Nyini ikhoza kuuma.

Dzinali limatchedwa "Shaw-Granz syndrome." Ngati muli ndi zizindikiro zatsopano za maso ouma kapena pakamwa, makamaka ngati zikugwirizana ndi zizindikiro zina (monga kupweteka), ndikofunikira kwambiri kukaonana ndi dokotala.

Kodi pali mitundu ina ya matenda a Sjögren?

Inde, madokotala amagawa izi m'magulu awiri akuluakulu:

1. Matenda a Sjögren's: Izi sizimachitika chifukwa cha matenda ena aliwonse. Ndiko kuti, zimachitika zokha.

2. Matenda a Sjögren achiwiri: Izi zimachitika chifukwa cha vuto lina. Ndiko kuti, matenda ena ndi omwe amachititsa vutoli.

Kodi vutoli ndi lofala bwanji?

Zanenedwa kuti anthu ambiri padziko lonse lapansi ali ndi vutoli lotchedwa 'Sjögren's Syndrome'. Akuti anthu pafupifupi 2 miliyoni m'dziko ngati America ali ndi vutoli. Pakhoza kukhala anthu omwe ali ndi vutoli m'dziko lathu.

Kodi zizindikiro za matenda a Sjögren ndi ziti?

Chizindikiro chachikulu komanso chodziwika bwino cha izi ndi kuuma kosazolowereka m'mbali zina za thupi.

• Maso ouma kapena oyabwa: Amatha kumva ngati mchenga uli m'maso mwanu. Nthawi zina maso anu amathanso kufiira.
• Pakamwa pouma (xerostomia): Pakamwa pakhoza kukhala pouma kwambiri moti zimakhala zovuta kulankhula kapena kumeza chakudya. Zilonda za pakamwa zimatha kuyamba. Malovu amathanso kukhuthala.
• Kuuma kwa nyini mwa akazi: Izi zingayambitse ululu panthawi yogonana.
• Khungu louma: Khungu likhoza kuuma ndi kuyabwa.
• Mphuno youma komanso kutuluka magazi pafupipafupi.
• Pakhosi pouma: Mutha kukhala ndi chifuwa chouma pafupipafupi.

Kuwonjezera pa kuuma kumeneku, matenda a Sjögren angayambitse zizindikiro zina:

• Kupweteka kwa mafupa: Monga nyamakazi.
• Kupweteka kwa minofu kapena kufooka.
• Kutupa kwa ma lymph nodes.
• Kutopa: Kumva kutopa kosalekeza komwe sikutha ngakhale mutagona tulo tochuluka bwanji.
• Kuvuta kumeza (dysphagia) kapena kuvutika kulankhula.
• Ubongo: Kuvutika kuganiza bwino komanso kumva ngati simungathe kuganizira bwino.
• Kutaya kukoma.
• Kuwola kwa dzino kapena kutayika kwa dzino: Pamene malovu mkamwa akuchepa, chitetezo cha mano chimachepa.
• Ziphuphu pakhungu.
• Matenda a mitsempha: Zinthu monga dzanzi ndi kumva kuwawa m'miyendo.
• Kutupa m'mimba kapena mavuto ena am'mimba.
• Kuzindikira kuwala: Maso amaoneka ngati abuluu mukatuluka panja.

Kodi ndi zifukwa ziti zomwe zimayambitsa matenda a Sjögren's Syndrome?

Tanena kale kuti uwu ndi matenda a 'autoimmune' . Izi zikutanthauza kuti chitetezo chathu chamthupi chimaukira tiziwalo tathu tomwe timatulutsa timadzi timeneti. Komabe, madokotala sanadziwebe chifukwa chake izi zimachitika.

• Palibe chifukwa chenicheni chomwe chimadziwika chomwe chimayambitsa matenda a Sjögren .
• Matenda a Secondary Sjögren's syndrome amayamba chifukwa cha matenda ena, makamaka matenda ena odziteteza ku matenda a autoimmune ndi matenda ena oyambitsidwa ndi mavairasi.

Matenda angapo a kachilombo omwe angayambitse matenda achiwiri a Sjögren ndi awa:

• Chiwindi cha chiwindi C
• `Cytomegalovirus (CMV)`
• Kachilombo ka Epstein-Barr
• `Kachilombo ka T-lymphotropic ka anthu 1 (HTLV)`
• `COVID-19`

Matenda ena a autoimmune omwe amabwera chifukwa cha matenda a Sjögren ndi awa:

• Matenda a nyamakazi
• Matenda a nyamakazi
• `Lupus`

Zofunika:Si aliyense amene ali ndi matendawa amene adzadwala matenda a Sjögren. Ndipo palibe chitsimikizo chakuti munthu amene ali ndi matenda a Sjögren nayenso adzadwala matenda enawa. Komabe, kafukufuku akusonyeza kuti pali kugwirizana.

Ndani ali pachiwopsezo chachikulu chotenga matenda a Sjögren's Syndrome?

Ngakhale kuti aliyense akhoza kukhala ndi vutoli, magulu ena ali pachiwopsezo chachikulu:

• Akazi: Anthu opitilira 90% omwe ali ndi matenda a Sjögren ndi akazi. Amuna nawonso amatha kukhala ndi matendawa, koma nthawi zambiri samachitika kawirikawiri.
• Anthu omwe ali ndi matenda ena a autoimmune: Pafupifupi theka la anthu omwe ali ndi Sjögren's syndrome ali ndi matenda ena a autoimmune osachepera amodzi.
• Anthu azaka zapakati pa 45 ndi 55: Ngakhale kuti imatha kufalikira mwa ana, achinyamata, ndi anthu azaka zopitirira 55, nthawi zambiri ndi m'gulu la zaka zimenezi lomwe limakula kwambiri.
• Anthu omwe ali ndi mbiri ya banja lawo ya matenda a Sjögren: Pafupifupi 10% ya anthu omwe ali ndi matenda a Sjögren ali ndi wachibale wapafupi (kholo kapena mchimwene wake) yemwe ali ndi vutoli.

Kodi mungadziwe bwanji ngati muli ndi Sjögren's Syndrome? (Kuzindikira)

Dokotala adzakuyezani thupi lanu ndikuchita mayeso ena kuti adziwe ngati muli ndi matenda a Sjögren. Dokotala adzakuyezani ndikufunsani za zizindikiro zanu. Muuzeni dokotala nthawi yoyamba yomwe mwawona kusinthaku, komanso ngati zizindikiro zanu zimakhala zoyipa nthawi zina za tsiku kapena panthawi ya zochita zinazake.

Kuzindikira matenda a Sjögren nthawi zambiri ndi gawo la njira yotchedwa differential diagnosis . Izi zikutanthauza kuti dokotala wanu asanatsimikizire kuti muli ndi matenda a Sjögren, adzakuyesani mayeso angapo kuti apeze matenda ena omwe angayambitse zizindikiro zanu. Mayeso ena omwe mungakhale nawo ndi awa:

• Kuyezetsa magazi: Makamaka, kuti muwone mitundu ina ya ma antibodies.
• Kuyezetsa maso: Pali mayeso apadera oyesa kuchuluka kwa chinyezi m'maso.
• Kuyezetsa mano: Ntchito ya tinthu ta m'kamwa ta malovu ikuwoneka.
• Kusanthula mkodzo.
• Kuyeza magazi m'thupi: Nthawi zina minofu yaing'ono, monga yochokera mkati mwa mlomo, imatengedwa ndi kufufuzidwa kuti ione ngati pali kusintha kwa malovu m'thupi.
• Ma X-ray: Mungapemphedwe kuti mutenge X-ray pachifuwa kuti muwone ngati pali vuto lililonse pa mapapo anu.

Mungafunikenso kuonana ndi akatswiri angapo:

• Katswiri wa mafupa a mafupa: Dokotala amene amagwira ntchito yokhudza matenda a mafupa ndi matenda odziteteza ku matenda a chitetezo chamthupi.
• Akatswiri a maso.
• Dokotala wa mano.
• Katswiri wa otolaryngologist (ENT specialist) ndi dokotala yemwe amagwira ntchito yokhudza makutu, mphuno, ndi pakhosi.

Kodi mavuto omwe angakhalepo chifukwa cha matenda a Sjögren's Syndrome ndi ati?

Matenda a Sjögren angayambitse mavuto ena. Koma musadandaule , anthu ambiri samakhala ndi mavuto aakulu.

• Kuwonjezeka kwa chiopsezo cha matenda opatsirana m'kamwa ndi m'maso: Chifukwa cha chinyezi chochepa, majeremusi amatha kuyambitsa matenda mosavuta.
• Kusagwira bwino ntchito kwa chiwindi kapena impso.
• Lymphomas: Mtundu wa khansa womwe umayamba m'malo olumikizirana mafupa. Chiwopsezo cha izi ndi chochepa kwambiri, koma sichinthu chonyalanyazidwa.
• Mavuto a m'mapapo: Nthawi zina amatha kusokonezedwa ndi chibayo.
• Mavuto a mitsempha: Zinthu monga kufooka, dzanzi.

Anthu ambiri omwe ali ndi matenda a Sjögren amakhala opanda mavuto aakulu. Ngati muli ndi matenda ena a Sjögren, vutoli likhoza kuwonjezera chiopsezo chanu cha mavuto. Lankhulani ndi dokotala wanu za izi.

Kodi matenda a Sjögren amachiritsidwa bwanji?

Dokotala wanu adzakupatsani chithandizo chothandiza kuchepetsa zizindikiro zanu. Pakadali pano palibe mankhwala a Sjögren's syndrome. Komabe, dokotala wanu angakuthandizeni kupeza njira yothandizira yomwe ingachepetse zotsatira zake pa moyo wanu watsiku ndi tsiku komanso moyo wabwino.

Chithandizo chomwe mukufuna chidzadalira ziwalo za thupi lanu zomwe zakhudzidwa ndi matenda a Sjögren.

Mankhwala ena odziwika bwino a maso ouma, pakamwa, kapena kumaliseche ndi awa:

• Misozi yopangidwa: Katswiri wanu wa maso angakulangizeni madontho a m'maso omwe sagulitsidwa ndi dokotala (OTC), madontho olembedwa ndi dokotala, kapena mafuta odzola omwe amapaka m'maso.
• Opaleshoni ya maso ouma (punctal plugs): Dokotala wa maso (ophthalmologist) akhoza kutseka njira zanu zochotsera misozi. Izi zimathandiza kuti misozi yanu yachilengedwe ikhale m'maso mwanu kwa nthawi yayitali.
• Opanga malovu: Dokotala wanu wa mano angakulangizeni kuti mugule mankhwala owonjezera pa malovu kapena mankhwala omwe amathandiza thupi lanu kutulutsa malovu ambiri. Kutafuna chingamu, kumwa madzi, ndi kuyamwa madzi oundana tsiku lonse kungathandize kuti pakamwa panu pakhale chinyezi.
• Mankhwala apadera otsukira pakamwa kapena otsukira mano: Anthu omwe ali ndi matenda a Sjögren ali pachiwopsezo chachikulu cha mavuto a mano. Chifukwa chake, kutsuka mano nthawi zonse, mankhwala apadera a fluoride, kapena mankhwala otsukira mano ndi otsukira mano omwe amaperekedwa ndi dokotala kungakhale kofunikira.
• Mafuta odzola kapena mafuta odzola kumaliseche:Dokotala angakulangizeni mafuta odzola omwe angagwiritsidwe ntchito tsiku lililonse kapena panthawi yogonana.
• Chithandizo cha mahomoni: Anthu ena angafunike chithandizo cha mahomoni, monga estrogen, kuti achiritse kuuma kwa m'mimba chifukwa cha kusalingana kwa mahomoni.

Chithandizo cha ululu ndi zizindikiro zina:

• Mankhwala ochepetsa ululu omwe amaperekedwa ndi dokotala: Mankhwala monga `NSAIDs (mankhwala oletsa kutupa omwe si a steroidal)` (monga ibuprofen) kapena `acetaminophen` (monga Panadol) angathandize kuchepetsa ululu ndi kutupa. Musamwe mankhwalawa kwa masiku opitilira 10 popanda upangiri wa dokotala.
• Corticosteroids: Awa ndi mankhwala omwe amachepetsa kutupa ndipo amaperekedwa ngati mapiritsi kapena jakisoni woperekedwa ndi dokotala.
• Mankhwala oletsa chitetezo chamthupi: Mankhwalawa amachepetsa chitetezo chamthupi chanu ndipo amachepetsa mphamvu yake yogwira ntchito. Dokotala wanu angakulangizeni mankhwala monga DMARD (mankhwala ochepetsa matenda oletsa nyamakazi).

Kodi munthu amene ali ndi matenda a Sjögren's Syndrome angayembekezere zotani?

Mudzayenera kusamalira zizindikiro zanu kwa nthawi yayitali, mwina kwa moyo wanu wonse. Komabe, mukapeza chithandizo choyenera, kuopsa kwa zizindikiro zanu kuyenera kuchepa. Anthu omwe ali ndi matenda a Sjögren nthawi zambiri amaphunzira kusamalira zizindikiro zawo, kotero kuopsa kwa zizindikiro zawo kudzachepa pakapita nthawi.

Kodi matenda a Sjögren's Syndrome angapewedwe?

Popeza chifukwa chenicheni sichikudziwika, palibe njira yopewera matenda a Sjögren. N'zosathekanso kuneneratu kuti ndani adzadwala matendawa kapena nthawi yake.

Kodi muyenera kupita kwa dokotala liti?

Pitani kwa dokotala ngati mwayamba zizindikiro zatsopano, kapena ngati zizindikiro zanu zikuipiraipira. Yang'anirani zizindikiro zanu ndipo lembani kusintha kulikonse.

Dokotala wanu adzakuuzani kangati muyenera kubwera kudzakumana ndi dokotala, kudzamuyeza, kapena kukayezetsa matenda ena. Ngati mukuona kuti chithandizo sichikugwira ntchito bwino kapena sichikugwira ntchito bwino monga kale, musazengereze kupita kwa dokotala wanu. Zizindikiro za matenda a Sjögren nthawi zina zimakhala zosaonekera. Ndiwe wekha amene umadziwa ngati pali vuto.

Zadzidzidzi: Ngati mukumva ngati mukuvutika kupuma kapena kumeza, pitani kuchipatala nthawi yomweyo kapena imbani 1990 (ambulansi yadzidzidzi).

Ndi mafunso ati omwe muyenera kufunsa dokotala wanu?

Musaiwale kufunsa mafunso awa mukapita kwa dokotala:

• Kodi ndili ndi matenda a mtundu wanji a Sjögren's? (Oyamba kapena achiwiri?)
• Ndi mayeso otani omwe ndiyenera kuchita?
• Kodi ndiyenera kuwona akatswiri ena?
• Ndi chithandizo chanji chomwe ndikufunika?
• Ndi kusintha kapena zizindikiro ziti zomwe ndiyenera kuyang'anitsitsa?

Kusamalira matenda a Sjögren nthawi zina kungakhale kokhumudwitsa. Zingakhale zokhumudwitsa kukhala ndi maso ouma, pakamwa pouma, kapena ngakhale kuuma kwa m'mimba komwe kumapangitsa kugonana kukhala kowawa. Koma nkhani yabwino ndi yakuti anthu ambiri omwe ali ndi matenda a Sjögren amatha kuthana ndi zizindikiro zawo bwino akapeza njira zosiyanasiyana zochiritsira zomwe zimawathandiza.

Pomaliza, zinthu zoti muzikumbukira (Uthenga Wopita Nawo Kunyumba)

Matenda a Sjögren ndi matenda omwe angakhale osasangalatsa pang'ono, koma amatha kulamulidwa ndi chithandizo choyenera .

• Simuli nokha: pali anthu ena omwe akukhala ndi mavuto amenewa.
• Chithandizo choyenera n'chofunika: Lankhulani ndi dokotala wanu kuti akupatseni njira yoyenera yochizira. Mungafunike kuyesa njira zosiyanasiyana zochizira.
• Uzani dokotala wanu ngati zizindikiro zanu zasintha: Ngati zizindikiro zanu zasintha, zikuipiraipira, kapena zikuoneka kuti zikukhudza kwambiri zochita zanu za tsiku ndi tsiku, uzani dokotala wanu.
• Kuyezetsa maso nthawi zonse: Funsani dokotala wanu kuti muyenera kuyezetsa maso ndi mano kangati. Kuyezetsa maso nthawi zonse ngati kumeneku kungathandize kupewa mavuto.

Ndikukhulupirira kuti izi zikuthandizani. Ngati muli ndi mafunso aliwonse, musazengereze kufunsa dokotala.

Matenda a Sjögren , maso ouma, pakamwa pouma, chitetezo chamthupi, chitetezo chamthupi, kupweteka kwa mafupa