Tangoganizirani ngati mwadzidzidzi mutu wanu unayamba kupweteka kwambiri, kusawona bwino, komanso kumva movutikira? Mungaganize kuti awa ndi mavuto atatu osagwirizana. Koma lero tikulankhula za vuto losowa kwambiri lomwe limaphatikiza zizindikiro zonse zitatuzi, koma silimakambidwa kwambiri m'gulu la anthu. Izi zimatchedwa "Susac Syndrome." Dzinali likhoza kukhala latsopano kwa inu. Koma ndikofunikira kwambiri kudziwa izi.
Mwachidule, kodi Susac Syndrome ndi chiyani?
Matenda a Susac ndi matenda omwe chitetezo cha mthupi lathu, chitetezo cha mthupi, chimaukira thupi lathu molakwika. Timatcha izi kuti ndi matenda a autoimmune. Tangoganizani gulu lankhondo likuteteza dziko lomwe likuukira anthu ake molakwika.
Mu matendawa, chitetezo chathu chamthupi chimalimbana ndi mitsempha yamagazi yaying'ono m'malo atatu ofunikira kwambiri m'thupi lathu. Malo atatuwo ndi awa:
1. Ubongo
2. Retina
3. Khutu lamkati (Cochlea)
Izi zikachitika, makoma amkati mwa mitsempha yamagazi iyi amatupa. Pamene chitoliro chamadzi chimatsekeka, kuyenda kwa madzi kudzera m'mitsempha iyi kumachepa, ndipo nthawi zina kumatsekeka kwathunthu. Izi zimalepheretsa ubongo, maso, ndi makutu kupeza mpweya ndi zakudya zomwe zimafunikira. Pamenepo ndi pomwe zizindikiro za matendawa zimayamba kuonekera.
Kodi zizindikiro zazikulu za matendawa ndi ziti?
Mu matenda a Susac Syndrome, zizindikiro zokhudzana ndi ziwalo zitatu zazikuluzi zimatha kuwonekera pamodzi kapena padera. Koma nthawi zambiri ziwalo zonse zitatu zimakhudzidwa. Tiyeni tiwone zizindikirozi.
| Gawo lokhudzidwa | Zizindikiro zomwe zingatheke |
|---|---|
| 1. Ubongo |
|
| 2. Maso |
|
| 3. Khutu Lamkati |
|
Chofunika kwambiri ndichakuti si aliyense amene amakumana ndi zizindikiro zonsezi nthawi imodzi. Anthu ena amatha kuona zizindikirozi kamodzi kenako osabwereranso. Ena amatha kuona zizindikirozo kwa zaka zingapo.
N’chifukwa chiyani izi zimachitika ndipo ndani amene ali pachiwopsezo chachikulu?
Monga tafotokozera kale, chomwe chimayambitsa izi sichinapezekebe . Chokhacho chomwe chikudziwika ndichakuti ndi matenda omwe amayambitsa chitetezo chamthupi. Si matenda obadwa nawo . Izi zikutanthauza kuti palibe umboni woti ana angadwale matendawa ngati makolo awo anali nawo.
Komabe, zinthu zina zimatha kuzindikira anthu omwe ali pachiwopsezo chotenga matendawa:
- Jenda: Akazi ali ndi mwayi wochuluka wopeza matendawa katatu kuposa amuna.
- Zaka: Zizindikiro zimenezi nthawi zambiri zimayamba kuonekera mwa anthu azaka zapakati pa 20 ndi 40 .
Kodi madokotala amapeza bwanji izi?
Matenda a Susac Syndrome amatha kukhala ovuta kuwazindikira chifukwa zizindikiro zake zimafanana ndi za matenda ena ambiri. Mwachitsanzo, zizindikiro zake zimafanana kwambiri ndi za matenda monga Multiple Sclerosis (MS), sitiroko, ndi matenda a muubongo (encephalitis). Chifukwa chake, dokotala angaganize molakwika kuti ndi matenda ena.
Choncho, mayeso angapo apadera amachitidwa kuti adziwe matenda molondola.
- Kuyezetsa thupi
- Kuyezetsa ubongo
- Kuyezetsa maso
Kuphatikiza apo, mayeso apaderawa ndi ofunikira kwambiri kuti atsimikizire matendawa.
| Mayeso | Mukufuna chiyani pamenepa? |
|---|---|
| Kujambula kwa MRI (Kujambula kwa Magnetic Resonance) | Izi zimatenga zithunzi za ubongo mwatsatanetsatane. Mwa munthu amene ali ndi Susac Syndrome, zilonda zoyera zomwe zimaoneka ngati "mabala a chipale chofewa" zimatha kuwoneka mu corpus callosum, gawo la ubongo lomwe limalumikiza zigawo za kumanja ndi kumanzere za ubongo. Ichi ndi chizindikiro cha matendawa. |
| Angiography ya fluorescein | Iyi ndi njira yowunikira mitsempha yamagazi mu retina ya diso. Mu njira iyi, utoto wapadera umalowetsedwa mu mtsempha womwe uli m'dzanja ndipo zithunzi za mitsempha yamagazi yomwe ili mkati mwa diso zimatengedwa. Izi zimatha kuwona bwino ngati mitsempha yamagazi yatsekedwa. |
| Audiogram | Iyi ndi mayeso omwe amayesa kumva. Anthu omwe ali ndi Susac Syndrome akhoza kukhala ndi vuto la kumva, makamaka mawu otsika, komanso akhoza kukhala ndi vuto lomvetsa mawu. Mayesowa amatha kuzindikira izi. |
Kodi chithandizo chake ndi chiyani?
Cholinga chachikulu chochiza matendawa ndikuwongolera chitetezo chathu chamthupi, chomwe sichikugwira ntchito bwino. Ndiko kuti, kuletsa ntchito yake. Timatcha mankhwala omwe amaperekedwa pachifukwa ichi kuti ndi oletsa chitetezo chamthupi .
Mankhwalawa angafunike kumwedwa kwa nthawi yayitali. Ena mwa mankhwala omwe amagwiritsidwa ntchito kwambiri ndi awa:
- Corticosteroids - mwachitsanzo prednisone
- Immunoglobulin ya m'mitsempha (IVIG)
- Mycophenolate
- Azathioprine
- Cyclophosphamide
- Rituximab
Pali njira zingapo zoperekera mankhwalawa. Ena amaperekedwa ngati mapiritsi, ena ngati jakisoni, ndipo ena amaperekedwa kudzera m'mitsempha (IV) ngati madzi amchere.
Chofunika kwambiri: Ndikofunikira kumwa mankhwalawa monga momwe dokotala wanu wanenera, kwa nthawi yonse ya maphunzirowa. Ngati musiya kulandira chithandizo kapena kusiya nokha, pali mwayi waukulu kuti zizindikiro zanu zidzayambiranso.
Monga mankhwala ena onse, mankhwalawa akhoza kukhala ndi zotsatirapo zake. Choncho kambiranani momasuka ndi dokotala wanu za vutoli musanayambe kulandira chithandizo. Ngati pali zotsatirapo zilizonse, mudziwitseni nthawi yomweyo.
Kodi tingakhale bwanji ndi chiyembekezo cha mtsogolo?
Ngakhale dzina lakuti Susac Syndrome lingamveke loopsa, pali mankhwala abwino kwambiri a vutoli. Makamaka ngati matendawa apezeka ndi kuchiritsidwa msanga, zotsatira zake zimakhala zabwino kwambiri. Chithandizo choyambirira chingalepheretse kuwonongeka kosatha kwa ubongo, maso, ndi makutu.
Komabe, ngati chithandizo chachedwa, nthawi zina maso ndi kumva zimatha kutayika kwamuyaya. Komabe, izi zimachitika kawirikawiri.
Matendawa nthawi zambiri samakhala oopsa kwa anthu. Izi zikutanthauza kuti, sachepetsa nthawi yomwe munthu amakhala ndi moyo. Komabe, amatha kukhudza moyo watsiku ndi tsiku. Zinthu monga masomphenya ndi kumva, zomwe kale zinali zabwino, zikasintha, komanso kusintha momwe mumaganizira ndi kukumbukira, zimatha kukhala ndi zotsatirapo zamaganizo kwambiri. Chifukwa chake, kulankhula ndi mlangizi wa zaumoyo wamaganizo mutapezeka ndi matendawa motere kumabweretsa mpumulo kwa anthu ambiri.
Kodi ndiyenera kupita kwa dokotala liti?
Ngati inu kapena munthu amene mumamudziwa akumana ndi chimodzi kapena zingapo mwa izi nthawi imodzi, pitani kwa dokotala nthawi yomweyo .
- Kusintha kwadzidzidzi kwa masomphenya (madontho akuda, kumva ngati kuti waphimbidwa ndi nsalu).
- Kutaya mwadzidzidzi kumva , chizungulire, kapena kulira m'makutu.
- Kuvutika kuganiza kapena kukumbukira (kusintha kwa ntchito ya ubongo).
- Kusintha kosamveka bwino kwa khalidwe kapena umunthu .
- Ngati zizindikiro izi zikusokoneza moyo wanu watsiku ndi tsiku .
Dokotala wanu akhoza kudziwa chomwe chimayambitsa zizindikirozi ndikukupatsani chithandizo chofunikira, chomwe chingathandize kupewa mavuto a nthawi yayitali.
Uthenga Wopita Nawo Kunyumba
- Matenda a Susac ndi matenda osowa kwambiri omwe chitetezo chathu cha mthupi chimaukira mitsempha yaing'ono yamagazi muubongo, m'maso, ndi m'makutu.
- Zizindikiro zazikulu za matendawa ndi zizindikiro zitatu: mavuto okhudza kugwira ntchito kwa ubongo (kupweteka mutu, kusokonezeka), mavuto a maso, ndi mavuto a kumva (chizungulire, kulephera kumva).
- Uwu si matenda obadwa nawo, ndipo ndi ofala kwambiri mwa akazi.
- Kukaonana ndi dokotala zizindikiro zikangoyamba kuwonekera komanso kupeza chithandizo mwamsanga kungalepheretse kuwonongeka kosatha.
- Chithandizo chimaphatikizapo mankhwala omwe amawongolera chitetezo chamthupi (immunosuppressants), ndipo ndikofunikira kwambiri kutsatira malangizo a dokotala wanu.
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