Uburyo bwo kwihanganira ububabare bwa AS (Ankylosing Spondylitis)

Biragoye gusobanura mu magambo ibyiyumvo byo gufatwa n'indwara ibabaza kandi ishobora gushyira ubuzima mu kaga nka Ankylosing Spondylitis (AS) mu gihe cyiza cy'ubuzima, igihe ukiri muto kandi wuzuye inzozi, ibyiringiro, n'imigambi. Ku ruhande rumwe, urimo kugerageza gutangira ubuzima bwawe bushya, naho ku rundi ruhande, ugomba guhangana n'ikibazo nk'icyo. Iki ni umutwaro uremereye cyane. Ariko, hari abantu muri twe babonye uburyo bwo kubaho neza muri iki kibazo no kwemera ubuzima bushya. Uyu munsi, turimo kuvuga ku bantu babiri nk'abo.

'Nari mfite ubwoba bwinshi' – Inkuru ya Ivan

Ivan yahuye n'ingorane zo kugenda kuva akiri umwana. Hari igihe yagombaga gukoresha inkoni no gufata imiti igabanya ububabare kugira ngo ashobore kwihanganira ubu bubabare. Yatangiye no gutekereza akiri muto kugira ngo ahangane n'ubu bubabare.

Ku myaka 21, ubwo yigaga ikizamini cy’ubuforomo, Ivan yabonye ko ibimenyetso yari amaze igihe kinini afite bisa cyane n’indwara yavuzwe mu gitabo cy’ikizamini. Afite icyo cyizere, yagiye kureba inzobere mu ndwara za rubagimpande, umuganga w’inzobere mu kuvura ingingo n’ibibazo by’umugongo. Nyuma yo gupimwa, yasanze afite Ankylosing Spondylitis (AS).

Ubwoba bukomeye bwamuje mu mutwe ubwo yari amaze kumenya iyi nkuru bwari ubwo yari asanzwe akorana n'umwuga we.

Ivan agira ati: “Igihe nabonaga akazi ko kuba umuforomo ukora mu ishami rishinzwe ubuvuzi bwihutirwa (ETU), nagize ubwoba bwinshi. Natinyaga ko ningira ikibazo cyo kwiheba, ntazashobora gukora. Nabonye ko niba nshaka guhagarika inzozi mbi zo kuba mfite ubumuga mfite mu myaka ya za 20, ngomba kwita ku buzima bwanjye mu buryo bwose bushoboka.”

Bityo, yatangiye kubonana n'umuganga w'indwara z'imitekerereze y'abantu wamwigishije uburyo bwo kuvura ububabare nta miti. Yanagerageje uburyo bwo kuvura bwitwa Acceptance and Commitment Therapy (ACT) . Muri make, ubu buryo budufasha kureka kurwanya ibitekerezo n'ibyiyumvo byacu ahubwo tukabyakira.

Ivan agira ati: "Nitabiriye gusa amwe muri ayo masomo yo kuvura. Ariko byamfashije gutsinda ububabare bwo mu mutwe n'ihungabana mu myaka irenga icumi ishize. Nahisemo kwemera iki kibazo. Ndishimira amahirwe yo gutsinda iki kibazo no kubaho ubuzima bwiza."

Igitabo cya Viktor Frankl cyitwa 'Man's Search for Meaning' nacyo cyamuteye imbaraga zo guteza imbere iyi myumvire. Iki gitabo kivuga ku gihe cye nk'imfungwa mu nkambi y'abakoranyirizwagamo ya Nazi. Gisobanura uburyo yabayeho mu cyubahiro muri icyo gihe kigoye kandi akabona intego mu buzima.

Indwara ya Ivan imaze amezi 14 yorohewe.Indyo ikwiye, imiti yandikiwe na muganga, n'imyitozo ngororamubiri (akora yoga, aterura ibiremereye, kandi akora nibura iminota 75 ya cardio mu cyumweru) byose byamufashije cyane gukira.

"Nishimiye cyane kubona amahirwe yo gukora neza no kumva ngize icyo nshoboye nk'umuforomo. Nanone, ndashimira AS, mu buryo runaka. Kuko byatumye nshyira imbere ubuzima bwanjye bwo mu mutwe n'ubw'umubiri nkiri muto."

Agira ati: “Ndacyafite ububabare n’ubukomere, ariko ndishimye cyane kuba ndi kubaho uyu munsi, nta ndwara zikomeye zambayeho mu gihe cy’imyaka 10.” Aritegura kandi kugera ku ntego ze zikomeye: gufata ikiruhuko cy’umwaka umwe cyangwa ibiri mu buforomo no mu igare ku migabane yose.

'Natekerezaga ko ari ikosa ryanjye' - Inkuru ya Tristan

Mu 2013, Tristan yari umunyeshuri w’umuhanga mu kwiga impamyabumenyi mu bya chimie. Ariko mu mpeshyi y’uwo mwaka, yatangiye kumva ananiwe cyane. Ntiyashoboraga kubyuka mu gitondo, maze atangira gusiba akazi ko ku ishuri.

Agira ati: "Nibwiraga ko ntafite ikinyabupfura. Nibwiraga ko byose ari amakosa yanjye."

Nyuma ni bwo Tristan yamenye ko yari afite indwara yitwa non-radiographic axial spondyloarthritis (nr-AxSpA), ubwoko bwa AS. Muri make, AS na nr-AxSpA byombi ni ububyimbirwe bw'umugongo. Muri nr-AxSpA, kwangirika k'umugongo ntibigaragara kuri X-rays kubera icyiciro cya mbere cy'indwara. Uko indwara ikomeza, urutirigongo rwo mu mugongo rushobora kwihuza. Hari igihe ibi bishobora kugira ingaruka ku zindi ngingo, nko mu maso.

"Ikibazo ni uko iyo ubushyuhe buri mu mubiri wanjye bwiyongera, numva imikorere y'ubwonko bwanjye igabanuka. Ni nk'"igihu cy'ubwonko," abisobanura.

"Igihe nigaga chimie, sinashoboraga gukora akazi ko muri laboratwari. Byasabaga guhagarara igihe kirekire no gufata neza ibikoresho by'ikirahure, ariko nasanze bigoye."

Amaherezo, byabaye ngombwa ko afata icyemezo kitoroshye cyane - cyo kureka ishuri.

Agira ati: "Nari umuntu wari ufite ishyaka rikomeye kandi numvaga nshaka gukora mu bijyanye na chimie. Gutakaza ibyo byose byari bigoye cyane kwihanganira."

Ariko Tristan ntiyarekeye aho. Yahisemo gufungura undi muryango. Nubwo atigeze aba umukinnyi, imyitozo ngororamubiri yabaye igice kinini cy'ubuzima bwe. Yatangiye gukora imyitozo yo kunanura ikibuno n'umugongo no guterura ibintu biri ku rugero rwo hasi. Ariko ikintu cy'ingenzi mu myitozo ye ni igikoresho cyitwa vibration plate . Iki gikoresho gituma imitsi ifungana kandi ikaruhuka inshuro nyinshi mu isegonda. Bivugwa ko cyongera imbaraga, ubushobozi bwo koroha no kugabanya ububabare. Tristan agikoresha iminota 10 buri gitondo.

"Uko kunyeganyega kuragabanya ubukana bw'umubiri wanjye. Hari igihe mpura n'ingorane zikomeye mu ngingo zanjye, ariko nyuma yo kubikora, numva nduhutse ako kanya."

Amaze gukira gato, igihe cyari kigeze cyo gushaka akazi gahuye n'ubuzima bwe bushya. Tristan yigishije porogaramu za mudasobwa. Muri iki gihe, akora akazi ko gutegura porogaramu za mudasobwa.

Ubu Tristan akora munsi y'umuyobozi usobanukiwe n'ibibazo ahura na byo.

"Ndacyafite ingorane zo gukora kuva saa tatu za mu gitondo kugeza saa kumi n'imwe z'umugoroba nk'abandi bose. Kwihutira gukora mu gitondo ni byo bigoye cyane. Ariko mfite amahirwe, kuko umukoresha wanjye aranyumva kandi akamfasha."

Agira ati: “Biragoye guhangana no kutagira ubuzima wifuza. Nari umuntu ugera ku ntego nyinshi, ufite imico nk’iya A. Nagombaga kwemera ko ntari kwihuta nk’uko nabikoraga mbere, kandi ko ntagomba gukora ibintu bikabije kugira ngo ngire ibyishimo.”

"Ubu nshobora gutaha nkajya kwishimira umugoroba utuje, no kwishimira kugenda gato muri pariki. Byari bigoye cyane kugera kuri iyi ngingo, ariko uko mbibona ubuzima byarahindutse burundu."

Izi nkuru zombi zitwereka ukuntu bigoye kubaho urwaye indwara idakira nka AS. Ariko, hamwe n'inama nziza z'abaganga, ubufasha bwo mu mutwe, impinduka mu mibereho, n'imyitwarire ikomeye,Bari kutwereka ko dushobora gutsinda iki kibazo hamwe. Niba ufite ikibazo nk'iki, ntugatekereze ko uri wenyine. Vugana na muganga wawe maze ubone ubufasha ukeneye.