Ese wumva ibihaha byawe biri munsi y'umuvuduko ukabije? Reka tuvuge ku ndwara itera umuvuduko ukabije w'amaraso mu mitsi (CTEPH)!

Ese hari igihe wumva ufite umwuka udafite imbaraga, cyangwa ukumva umeze nk'uwumva udasanzwe mu gituza cyawe? Birashoboka ko umuvuduko uri mu mitsi y'amaraso mu bihaha byawe uba uri hejuru gato. Iyi ni indwara yihariye yitwa `(Chronic Thromboembolic Pulmonary Hypertension)` cyangwa `(CTEPH)`. Ntugahangayike, tuzavuga kuri ibi mu buryo bworoshye, mu buryo ushobora gusobanukirwa.

Iki ni iki `(CTEPH)`? Reka dusobanukirwe neza!

Muri make, CTEPH ni ukwiyongera kudasanzwe k'umuvuduko w'amaraso mu mitsi mito y'amaraso mu bihaha. Ni nk'umuvuduko uri mu muyoboro w'amazi. Ariko impamvu nyamukuru ibi ni uko wigeze kugira amaraso mu bihaha byawe mbere (ibi tubyita Pulmonary Embolism) kandi amaraso mu mitsi ntashonge neza . Ni bwo uyu muvuduko wiyongera.

Ni nde ufite amahirwe menshi yo kugira CTEPH?

Ibi ni ingenzi cyane. CTEPH ibaho gusa ku bantu bafite amateka yo kuvura indwara yo mu bihaha . Niba ufite umuvuduko ukabije mu bihaha byawe ariko nta maraso afite, ishobora kuba atari CTEPH, ahubwo ari indwara itandukanye. Rero ni ngombwa gusobanukirwa iri tandukaniro.

Iyi ndwara ikunze kugaragara gute?

Mu by’ukuri CTEPH ni indwara idakunze kugaragara. Urugero, mu gihugu nka Leta Zunze Ubumwe za Amerika, abantu bagera ku 5.000 gusa ni bo bandura buri mwaka. Ariko, kubera ko rimwe na rimwe idasuzumwa neza, umubare ushobora kuba munini cyane. Kubwibyo, ni ngombwa cyane kumenya ibimenyetso.

Ni izihe ngaruka CTEPH ishobora kugira ku buzima bwawe?

Iyo umuvuduko mu bihaha byawe wiyongereye, cyane cyane mu gihe cya CTEPH, uruhande rw'iburyo rw'umutima wawe rukumva umuvuduko mwinshi . Tekereza, umutima wawe ugomba gukora cyane kugira ngo wohereze amaraso mu bihaha byawe. Icyaba gihari ni uko amwe mu maraso adahumeka neza aguma mu mutima wawe kandi bigafata igihe kirekire kugira ngo agere mu bihaha byawe. Ibi bishobora gutuma umubiri wawe ugira ogisijeni nkeya. Iyi ni indwara ikomeye cyane, si byo se?

Kuki iyi '(CTEPH)' itera? Ni izihe mpamvu?

Impamvu nyamukuru ibitera ni uko amaraso afunganye mu mitsi mito y'amaraso mu bihaha adashonga neza. Iyo ibi bibaye , ingirangingo zisa n'inkovu zikora aho ibibyimba byari biri. Iyi nkovu ituma imitsi y'amaraso ifungana, nk'umuyoboro w'amazi ufunga. Uko uku kugabanuka kwiyongera, ni ko umuvuduko w'amaraso na wo urushaho kwiyongera.

Ni ibihe bintu bishobora gutera indwara ya CTEPH?

Hari ibintu bimwe na bimwe bishobora gutera ingaruka mbi bishobora gutera iterambere rya `(CTEPH). Reka turebe ibyo ari byo:

• Kugira ubwoko bw'amaraso butari ubwoko bwa O.
• Kugira ubwandu mu magufwa (Osteomyelitis).
• Amoko amwe na amwe ya kanseri.
• Indwara zidakira zo mu mara, urugero, indwara nka `(Indwara y'amara abyimba)`.
• Kuba umugore. (Abagore bafite amahirwe make yo kurwara iyi ndwara kurusha abagabo.)
• Kwandura kw'imitsi y'umutima guterwa n'icyuma gipima umutima.
• Wowe cyangwa undi muntu wo mu muryango wawe ufite amateka yo kurwara indwara zo kuvura amaraso, nka Antiphospholipid Syndrome.
• Kuba narigeze gukuramo urwagashya (Splenectomy).
• Gufata imiti isimbura imisemburo ya tiroyide.

Ibi bintu byose si ko bigira ingaruka kuri buri wese, ariko byagaragaye ko ari ibintu bishobora gutera ibyago.

Ni ibihe bimenyetso bya `(CTEPH)`?

Umuntu urwaye CTEPH ashobora kugira ibimenyetso nk'ibi bikurikira:

• Kumva ububabare mu gituza cyangwa gufungana .
• Gukorora amaraso (ibi ni ibintu bidasanzwe).
• Ibara ry'ubururu ry'intoki n'amano (Cyanosis).
• Kumva mfite isereri .
• Syncope.
• Kumva unaniwe cyane (`Umunaniro`) .
• Ukumva igituza cyawe kirimo gutera cyane, ibi tubyita "Umutima utera cyane".
• Kugorwa no guhumeka , cyane cyane iyo uri gukora ikintu cyangwa kugenda.
• Kubyimba amaguru, biterwa no kwirundanya kw'amazi mu mubiri (edema).

Ntugatekereze ko ufite CTEPH kubera ko ufite kimwe cyangwa bibiri muri ibi bimenyetso. Ariko niba ibi bimenyetso bikomeje, ni byiza kujya kwa muganga.

Iyi ndwara `(CTEPH)` ipimwa ite?

Iyo ugiye kwa muganga, ashobora kubanza gukora ibizamini kugira ngo arebe niba CTEPH ari mbi, urugero:

• Ikizamini kireba uburyo umwuka uhumeka n'amaraso anyura mu bihaha (`(Isuzuma ry'ihumeka ry'ibihaha-isesengura ry'amaraso - Isuzuma rya V/Q)`).
• "Pulmonary Angiogram" ni ikizamini gisuzuma niba amaraso afite ibice cyangwa imitsi y'amaraso yo mu bihaha igabanuka.
• Ibizamini by'imikorere y'ibihaha.
• Isuzuma rya Transthoracic Echocardiogram (TTE) rimeze nk'isuzuma rya ultrasound ry'umutima.

Nyuma y'ibi bizamini bya mbere, hashobora gukenerwa ibindi bizamini kugira ngo hemezwe ko CTEPH yanduye kandi hamenyekane ubukana bwayo. Ibi bishobora kuba birimo:

• Catheterization y'umutima w'iburyo ni ikizamini gipima umuvuduko w'amaraso hifashishijwe umuyoboro muto mu ruhande rw'iburyo rw'umutima.
• Suzuma imitsi yo mu bihaha ukoresheje ubuhanga buhanitse bwo gufata amashusho nka CTPA cyangwa Digital Subtraction Angiography.
• Isuzuma rya MRI.
• "Ikizamini cy'imyitozo ngororamubiri" gisuzuma imikorere y'umutima mu gihe cy'imyitozo ngororamubiri.

Ibi bizamini nibyo bituma abaganga bamenya neza niba ufite CTEPH n'urwego igezemo.

Ni ubuhe buryo bwo kuvura `(CTEPH)`?

Ubusanzwe ubuvuzi bwa CTEPH busaba kubagwa cyangwa ubundi buryo busa nabwo. Hari amahitamo abiri y'ingenzi:

1. Kubaga indwara yo mu bihaha : Ubu buryo bwo kubaga bukorerwa ahantu hafunguye. Muri ubu buryo, amaraso ashaje n'inkovu biba byafatiwe mu mitsi y'ibihaha birakurwaho. Ibi bikorwa kugira ngo amaraso agaruke mu bihaha.

2. ``(Angioplasty y'ibihaha)'': Muri ibi, agapira gato gashyirwa ku mpera y'umuyoboro muremure (catheter), kagashyirwa mu mitsi y'amaraso ifunganye mu bihaha. Agapira karabyimba kugira ngo gasunike inkovu ku ruhande, bityo umuyoboro w'amaraso wongere ukwaguke.

Guhitamo bumwe muri ubu buryo bubiri bishingiye ku bintu byinshi, nko ku miterere y'umurwayi n'aho amaraso yangiritse.

Ese hari ubundi buryo bwo kuvura?

Yego, hari abantu bashobora kutabasha kubagwa. Kuri abo bantu, cyangwa ku bantu bakomeza kugira umuvuduko mu bihaha nyuma yo kubagwa, ikinini cyitwa `(Riociguat)` gishobora gutangwa. Uyu ni umuti utangwa ku muvuduko ukabije w'amaraso mu bihaha. Ibi bifasha kugabanya ibimenyetso.

Ese CTEPH ishobora kwirindwa?

CTEPH ni ikibazo cy’izindi ndwara nyinshi. Hari ibintu tudashobora kugenzura. Ariko ikintu cy’ingenzi ushobora gukora ni ukwita ku bihaha byawe neza . Ibyo bivuze ko kureka kunywa itabi no kwirinda kunywa itabi ari ingenzi cyane.

Ni iki cyizere cy’abarwayi ba CTEPH?

Iyi ni inkuru nziza cyane! Kubagwa kw'ibihaha na Pulmonary Balloon Angioplasty bishobora gukiza burundu CTEPH . Abantu benshi bakorerwa ubu buvuzi babona ibisubizo byiza cyane.

Nubwo hari ibisubizo byiza, abarwayi bamwe bashobora kugira ikibazo cyo mu mutwe, guhangayika no kwiheba. Ibi bishobora kuba ukuri cyane cyane ku bantu badakwiriye kuvurwa nk'uko byavuzwe haruguru. Niba ufite ikibazo cyo mu mutwe, vugana na muganga wawe. Bashobora kumva impungenge zawe no kukugira inama yo kuvura indwara zizagufasha kumva umeze neza.

Ni ibihe bintu by'ingenzi ugomba kumenya mu gihe ubana na `(CTEPH)`?

• Birashoboka ko uzakenera gufata imiti igabanya amaraso ubuzima bwawe bwose .
• Niba ufata umuti nka Warfarin, ushobora kugabanya ibiryo bimwe na bimwe (nka soya na broccoli, bikungahaye kuri vitamine K). Baza muganga wawe ibi.
• Imyitozo ngororamubiri yoroheje , nko kugenda n'amaguru, ishobora gufasha abantu benshi kugarura imbaraga no kugira ubuzima bwiza. Muganga wawe ashobora kandi kukugira inama yo gukora imyitozo ngororamubiri ikurikiranwa (gusubiza mu buzima busanzwe ibihaha).

Amaherezo, ibuka ibi.

Umuvuduko ukabije w'amaraso mu bihaha (CTEPH) ni indwara idakunze kugaragara aho umuvuduko w'amaraso mu mitsi y'ibihaha wiyongera, ariko ni indwara ishobora kuvurwa iyo ibonetse hakiri kare kandi ikavurwa neza . Niba ufite kimwe muri ibi bimenyetso, ntutindiganye gushaka inama kwa muganga. Wibuke ko iyo uvuwe neza, abantu benshi bashobora gukira neza. Rero ntugatinye. Kurikiza amabwiriza ya muganga witonze, kandi uzakira vuba!

"CTEPH, Umuvuduko ukabije w'amaraso mu bihaha, Kuziba kw'amaraso, Kunanirwa guhumeka, Indwara z'umutima, Kuziba kw'amaraso mu bihaha, Umuvuduko ukabije w'amaraso mu bihaha