Ese urimo kubyimba, kunanuka, no kubabara munsi y'uruhu rwawe? Reka tuvuge kuri Eosinophilic Fasciitis!

Ese wigeze wumva ikibyimba, kubyimba, cyangwa ububabare munsi y'uruhu rw'ukuboko cyangwa ukuguru kwawe? Wenda byarabaye nyuma yo gukora imyitozo ngororamubiri neza. Ese wigeze uhura n'ikintu nk'iki? Noneho, dore indwara itazwi cyane ishobora kuba ingenzi kuri wewe.

Eosinophilic Fasciitis ni iki?

Mu magambo make, Eosinophilic Fasciitis ni indwara aho ingingo zitwikira imitsi n'ingingo zacu munsi y'uruhu rwacu - tuyita fascia mu magambo y'ubuvuzi - zihita zibyimba, zigakomera, kandi zigakomera. Tekereza nk'urushundura rufata uruhu rwacu n'imitsi hamwe kandi rukayifasha kugenda, kimwe n'urushundura dushyira mu modoka yacu iyo tugiye guhaha.

Ibi bishyirwa mu cyiciro cya ``indwara y’ubwirinzi bw’umubiri`` . Ibi bivuze ko ubwirinzi bw’umubiri wacu, ari bwo bwirinzi bw’umubiri, butangira kwibeshya ku bice by’umubiri wacu bizima. Ni nko kwibasira abagize umuryango wacu iyo batekereje ko bambuwe.

Iyo bitabonetse kandi bigavurwa hakiri kare, bishobora gutera impinduka zidashira ku ruhu no kubura uburyo ingingo zikora . Kubwibyo, ni ngombwa cyane gushaka inama kwa muganga vuba ibimenyetso bikigaragara.

Ni gute iki kibazo bigira ingaruka cyane? Ni bande bigira ingaruka?

Eosinophilic Fasciitis ishobora kwibasira fascia ahantu hose ku mubiri, ariko akenshi ifata amaguru n'amaboko . Ku bantu benshi, ibimenyetso, nko kubabara cyangwa kubyimba, bishobora kugaragara bwa mbere nyuma yo gukora imyitozo ngororamubiri igoye cyangwa akazi gasaba guhagarara umunsi wose.

Ibi bimenyetso, nko kubabara imitsi no kubyimba, bishobora gusa n'iby'izindi ndwara zisanzwe, bityo rero ni ngombwa kujya kwa muganga ako kanya mu gihe ubonye impinduka nshya cyangwa ububabare ku ruhu rwawe, imitsi, cyangwa ingingo. Ushobora kandi gukenera kujya kwa muganga w’indwara za rubagimpande, umuganga w’inzobere mu ndwara z’ingingo n’izindi ndwara ziterwa n’ububyimba.

Ubu nta muti uhari w’iyi ndwara. Ariko, inkuru nziza ni uko ku bantu benshi, ibimenyetso birashira mu myaka mike, bivuze ko indwara igenda mu gihe cyo "kwisubiraho", cyangwa ikaba yasinziriye. Ariko, hari abantu bashobora kongera kugira ibimenyetso.

Itandukaniro riri hagati ya Eosinophilic Fasciitis na Scleroderma

Iyo bavuga kuri izi ndwara ebyiri, hari abantu bashobora kuzivanga n'indi ndwara yitwa 'Scleroderma'. 'Eosinophilic Fasciitis' na 'Scleroderma' zombi ni indwara zidakunze kugaragara cyane za 'autoimmune'. Nanone, muri izi ndwara zombi, ingingo z'umubiri ziba nini kandi zikomeye.

None se itandukaniro ni irihe? Itandukaniro riri mu bwoko bw'imitsi yangiritse.

• Muri Eosinophilic Fasciitis, nk'uko twabiganiriyeho mbere, fascia, igice gito kandi cyoroshye kiri munsi y'uruhu, irafatwa n'ingaruka. Uko igihe kigenda gihita, iyi fascia irakomera kandi irakura, bigatuma bigorana kwimura igice cy'umubiri cyafashwe n'ingaruka.
• Ariko muri 'Scleroderma', ubudahangarwa bw'umubiri butera izindi selile gukora poroteyine nyinshi yitwa 'collagen' (ikintu giha imbaraga uruhu rwacu n'ingingo zacu). Iyi kolajeni nyinshi ishyirwa mu ruhu no mu ngingo z'imbere, bigatuma ziba nini kandi zikomeye, nk'inkovu ishaje. Ariko aho gukiza igisebe, iyi kolajeni nyinshi ishobora no kwangiza ingingo nzima.

Eosinophilic Fasciitis na COVID-19

Abantu bafite indwara ziterwa n’ubwiyongere bw’umubiri nka Eosinophilic Fasciitis bafatwa nk’abafite ibyago byinshi byo kwandura COVID-19 kurusha abaturage muri rusange.

Impuguke ziracyizera niba abantu bafite iyi ndwara bashobora kugira ibimenyetso bikomeye bya COVID-19. Kubwibyo, ni byiza gukurikiza inama z'inzego z'ubuzima, nka CDC, kugira ngo wirinde kwandura.

Ni nde ufite amahirwe menshi yo kurwara iyi ndwara?

Indwara ya Eosinophilic Fasciitis ishobora kwibasira umuntu uwo ari we wese, ariko ikunze kwibasira abantu bari hagati y’imyaka 30 na 60.

Byongeye kandi, abantu bafite indwara zimwe na zimwe zidakira bashobora kurwara iyi ndwara. Zimwe muri izi ndwara zirimo:

• Aplastic anemia (aplastic anemia - anemia aho umusaruro w'uturemangingo tw'amaraso ugabanuka)
• Anemia yo mu maraso (amaraso atukura aho uturemangingo tw’amaraso ducika vuba)
• Lymphoma (kanseri y'urusobe rw'amaraso)
• Leukemia (kanseri y'uturemangingo tw'amaraso)
• Amoko amwe n'amwe ya 'indwara ya Tiroyide'

Ibi ni ibisanzwe gute?

Eosinophilic Fasciitis mu by’ukuri ni indwara idakunze kugaragara . Kugeza ubu, umubare muto cyane w’abanduye, bagera kuri 300, ni bo bavuzwe mu binyamakuru bya siyansi ku isi yose. Ariko, wenda bitewe n’uko indwara idapimwa neza cyangwa ko idatangazwa neza, umubare w’abanduye ushobora kuba munini cyane.

Ni gute Eosinophilic Fasciitis igira ingaruka ku mubiri wanjye?

Nkuko twabivuze mbere, iyi ndwara iterwa no kubyimba kw'urugingo rw'umubiri, igice gito kandi cyoroshye kiri munsi y'uruhu. Uru rugingo rw'umubiri rutwikira kandi rukarinda imitsi yacu na zimwe mu ngingo z'imbere. Runafata uruhu n'imitsi mu mwanya wabyo kandi rukayishyigikira iyo igenda.

Tekereza nawe, iyi fascia ifasha amaguru yacu gukomeza koroha, ariko ntabwo ari ukunama gusa. Ariko ku muntu urwaye `Eosinophilic Fasciitis`, iyi fascia membrane irabyimba, igenda yiyongera buhoro buhoro, kandi igakomera. Amaherezo, iyi fascia ituma bigorana kwimura uruhu n'imitsi biyikikije. Iyo itavuwe, iyi fascia ishobora gufata ahantu hamwe igakomeza gukomera. Ibi rimwe na rimwe byitwa `contracture`. Ni ukuvuga, indwara aho ingingo idashobora kwaguka cyangwa kunama.

Aho kugira ngo fascia ibe isanzwe, ibice by'umubiri byangiritse birababaza cyangwa bikagorana kugenda.

Ibice by'umubiri bikunze kwibasirwa ni ibi bikurikira:

• Amaboko (cyane cyane ikiganza, ni ukuvuga imbere mu kuboko)
• Amaguru (cyane cyane imbere, iburyo ku igufwa ry'ikibuno)
• Ahantu cyangwa mu duce dukikije

Nubwo bidakunze kubaho, iyi ndwara ishobora no kugira ingaruka ku ruhu rwo mu maso, mu gituza no mu nda.

Bamwe mu barwayi ba Eosinophilic Fasciitis bashobora no kugira ububyimbirwe bw'ingingo nk'ubwa Arthritis ya Rumatizime. Iyo ubu bubyimbirwe bw'ingingo budagenzuwe, agahu k'ingingo gashobora kwangirika, bigatera rubagimpande igihe kirekire.

Nanone, iyo iyi ndwara igize ingaruka ku gice cyo hejuru cy'ukuboko kwawe cyangwa ku kuboko kwawe, ubushye bushobora gutuma umutsi wo hagati, umwe mu mitsi ikomeye mu kuboko, ucika intege, bigatera indwara yitwa Carpal Tunnel Syndrome (gucika intege, ububabare, n'intege nke mu kuboko).

Igikuru ni uko Eosinophilic Fasciitis ari indwara ishobora guhinduka no gukura vuba cyane. Ushobora gutangira kubona ingaruka zigaragara mu gihe gito, nk'ibyumweru bike. Kubwibyo, niba ubonye ibimenyetso cyangwa impinduka mu mubiri wawe, jya kwa muganga ako kanya.

Ni ibihe bimenyetso bya Eosinophilic Fasciitis?

None se, ni gute wakwikeka iyi ndwara? Dore bimwe mu bimenyetso by'ingenzi:

• Kubabara imitsi .
• Uruhu rworoshye .
• Kubyimba cyangwa kubyimba .
• Ibimenyetso bya `Carpal Tunnel Syndrome` (nk'ibishishwa, ububabare, intege nke mu kuboko).
• Kuribwa mu ngingo (arthritis - kubyimba ingingo, kubabara, gukomereka mu gitondo).
• Uruhu rurushaho kuba runini kandi rufunganye kurusha uko bisanzwe.
• Mu duce tumwe na tumwe, uruhu rusa n'urujijo kandi ruteye ubwoba, nk'igishishwa cy'icunga ('uruhu rujimye' cyangwa "ishusho ya peau d'orange").

Impamvu ni iyihe?

Mu by’ukuri, abahanga ntibaramenya impamvu nyayo ya Eosinophilic Fasciitis. Kimwe n’izindi ndwara nyinshi zirwanya ubudahangarwa bw’umubiri, ishobora kuvuka mu buryo butunguranye, rimwe na rimwe nta mpamvu igaragara.

Ariko, hari ubushakashatsi bwagaragaje ko izi ndwara zo mu bwoko bwa autoimmune zishobora guterwa n'ibintu bimwe na bimwe. Ni ukuvuga ko indwara ishobora gukurura bitewe n'ikindi kintu. Urugero:

• Amoko amwe n'amwe y'ubwandu .
• Hari ingaruka zimwe na zimwe ku barwayi ba ALLERIC .
• Gukoresha imiti imwe n'imwe.
• Gukoresha imiti imwe n'imwe.

Bamwe mu bantu barwaye Eosinophilic Fasciitis bavuga ko ibimenyetso byabo bya mbere byagaragaye nyuma yo gukora imyitozo ngororamubiri isaba imbaraga nyinshi , nko kwiruka, guterura ibyuma, cyangwa gukora imyitozo ngororamubiri, cyangwa mu gihe bakora akazi gasaba imbaraga nyinshi ku maboko cyangwa ku maguru.

Ni byiza kuganira na muganga wawe ku bintu bishobora gutuma urwara indwara nk'iyi iterwa n'ubudahangarwa bw'umubiri.

Ni gute abaganga basuzuma iyi ndwara? (Isuzuma)

Niba ufite ibi bimenyetso, muganga ashobora gukora ibizamini byinshi kugira ngo amenye niba ufite Eosinophilic Fasciitis:

1. Gupima indwara ya Fascia: Gupima indwara ni igihe muganga wawe afata icyitegererezo gito cy'ingingo yawe akayohereza muri laboratwari kugira ngo ayirebe akoresheje mikorosikopi. Ibi bisaba gufata agace gato k'uruhu rwangiritse n'agace kari munsi yarwo hanyuma ukagasuzuma. Kenshi na kenshi, ubu ni bwo buryo bwizewe bwo gusuzuma indwara.

2. Gupima amaraso: Niba ufite Eosinophilic Fasciitis, ushobora kuba ufite ubwoko bwinshi bw'uturemangingo tw'amaraso twitwa Eosinophils mu maraso yawe (niho indwara yakuye izina ryayo). Ariko, gupima amaraso byonyine ntibishobora kwemeza indwara. Akenshi, hakenewe isuzuma rya biopsy.

3. Ibizamini byo gupima: Ibizamini nka MRI (Magnetic Resonance Imaging) bishobora gufasha mu kumenya ububyimbirwe mu mubiri, cyane cyane mu gice cy'imbere n'inyama ziwukikije. Ariko, kimwe n'ibipimo by'amaraso, ntabwo ari ibintu bifatika nk'ibizamini byo gupima indwara.

Uburyo bwo kuvura Eosinophilic Fasciitis

Ni gake cyane ibimenyetso bishobora kwishira ubwabyo nta muti. Ariko akenshi, abaganga bavura Eosinophilic Fasciitis bakoresheje ubwoko bw'imiti yitwa corticosteroids . Iyi ni ubwoko bwa steroid.

Corticosteroids ikora mu kugabanya ububyimbirwe mu mubiri no kugabanya ubudahangarwa bw'umubiri bukora cyane. Prednisone ni yo corticosteroid ikunze kwandikirwa.

Muganga wawe ashobora kandi kuguha ubundi buryo bwo kuvura usibye imiti ya corticosteroid, nko:

• `NSAIDS`: Imiti igabanya ububabare idakoresha steroide (NSAIDs) iboneka muri farumasi – urugero, ibuprofen na diclofenac – ishobora kugabanya ibimenyetso nko kubabara no kubyimba. Ariko, niba usanzwe ufata `corticosteroids`, vugana na muganga wawe mbere yo gufata `NSAIDs`. Ntugafate `NSAIDs` iminsi irenga 10 icyarimwe udafite uruhushya rwa muganga.
• Imiti igabanya ubudahangarwa bw'umubiri: Bitewe n'ubukana bw'indwara yawe, muganga wawe ashobora kukwandikira indi miti (urugero: Methotrexate) igabanya ubudahangarwa bw'umubiri bukabije butera Eosinophilic Fasciitis.
• Ubuvuzi bw'umubiri: Ubuvuzi bw'umubiri bushobora gufasha kunagura no koroshya ipfundo ry'umubiri wawe iyo rifunze, kandi bugafasha gukomeza kugenda neza kw'ingingo. Muganga wawe cyangwa umuvuzi w'umubiri azakwigisha imyitozo ngororamubiri n'imitsi ijyanye n'ibimenyetso byawe.
• Kuvura izindi ndwara: Ushobora kumva umerewe neza uvura ibimenyetso by'izindi ndwara, nka syndrome ya carpal tunnel cyangwa rubagimpande.
• Kubagwa: Niba Eosinophilic Fasciitis yawe ikomeye bihagije ku buryo ishobora gutera iminkanyari, ushobora gukenera kubagwa kugira ngo ukureho cyangwa gukuraho igice cy'ikibyimba cyawe (fascial release). Akenshi iyi ni yo nzira ya nyuma.

Ni gute wakwitwara mu gihe ibimenyetso bihari?

• Ni ngombwa cyane gufata umuti neza nk'uko muganga abivuga, mu gihe cyagenwe.
• Niba muganga wawe cyangwa umuvuzi w’umubiri aguhaye stretch cyangwa indi myitozo ngororamubiri, kora inshuro zose bakubwira kugira ngo ufashe kunagura fascia yangiritse. Nubwo ibi bishobora kugorana, bishobora kugufasha ukomeje kubikora.
• Niba urwaye indwara ya Carpal Tunnel Syndrome, ushobora gukenera kwambara igitambaro cyo gupfuka kugira ngo ukuboko kwawe kugume mu mwanya wako mu gihe usinziriye. Gikoreshe nk'uko muganga wawe yabigutegetse.

Nzumva meze neza vuba gute nyuma yo kuvurwa?

Ububyimbirwe buterwa na Eosinophilic Fasciitis bugomba gutangira kugabanuka mu masaha make uhereye igihe ufashe dose ya mbere ya corticosteroids. Ubu buvuzi bushobora kuba ubw'igihe gito, kandi ibimenyetso bishobora kugaruka uko umuti ugenda ushira. Kubwibyo, ni ngombwa gufata umuti mu gihe cyose wategetswe na muganga wawe.

Ese indwara ya Eosinophilic Fasciitis ishobora kwirindwa?

Ikibabaje ni uko nta buryo bwihariye bwo kwirinda iyi ndwara. Impuguke ntizi neza impamvu itera indwara ziterwa n’ubwiyongere bw’umubiri cyangwa uburyo ziterwa, bityo ntibashobora kuvuga igihe cyangwa impamvu uzirwanya.

Ni iki umuntu urwaye iyi ndwara yagombye kwitega?

Niba usanzwe urwaye Eosinophilic Fasciitis, ugomba kwitega ko ibimenyetso byawe bizagenda neza mu gihe runaka. Niba ubonye impinduka mu bimenyetso byawe, cyane cyane iyo birushijeho kuba bibi, vugana na muganga wawe vuba.

Nkuko twabivuze mbere, nta muti uhari. Abantu benshi bamara imyaka mike barwaye, hanyuma ibimenyetso birashira (bajya mu "remission"). Bamwe ntibazongera kurwara, ariko abandi bashobora kurwara ibimenyetso nyuma (`recur`).

Ese ntuzashobora kujya ku kazi cyangwa ku ishuri?

Niba ushobora gukora akazi kawe cyangwa akazi k'ishuri udashyizeho imbaraga nyinshi ku gice cy'umubiri cyanduye, ugomba kuba ushobora gusubira ku kazi cyangwa ku ishuri kugeza ukize indwara ya Eosinophilic Fasciitis. Ariko, muganga wawe azakubwira ibikorwa ugomba kwirinda kugeza ukize. Ni ngombwa gukurikiza aya mabwiriza.

Menya neza ko uganiriye na muganga wawe kandi ukabona uburenganzira mbere yo gusubira gukora imyitozo ngororamubiri iremereye nko kwiruka, guterura ibyuma, cyangwa gukora imyitozo ngororamubiri.

Ni ryari ukwiye kujya kwa muganga?

• Niba ubonye ibimenyetso bishya mu biganza byawe, ibirenge, cyangwa ingingo – cyane cyane niba ufite ububabare cyangwa kubyimba bidashira nyuma y'iminsi mike yo kuruhuka – jya kwa muganga ako kanya.
• Niba waramaze gufatwa na Eosinophilic Fasciitis, bwira muganga wawe ako kanya niba ibimenyetso byawe bikomeje kwiyongera, cyangwa niba ubonye igice cy'umubiri wawe gitangiye gukomera cyangwa kidakora neza.

Ni ryari ugomba kujya mu Ishami ry’Ubuvuzi bw’Ingoboka (ETU) ?

Niba ubaye utagishoboye kwimuka cyangwa gukoresha igice cy'umubiri wawe, cyangwa ukagira ububabare bukabije, jya mu cyumba cy'ubutabazi bw'ibanze kiri hafi yawe vuba .

Ni ibihe bibazo ugomba kubaza muganga?

Iyo ugiye kwa muganga, ushobora kubaza ibibazo nk'ibi:

• Ese mfite Eosinophilic Fasciitis, cyangwa ni ikindi kintu?
• Ni gute ibimenyetso byanjye bishobora kwiyongera vuba?
• Ni ubuhe bwoko bw'ubuvuzi nkeneye? Nzakenera kuvurwa igihe kingana iki?
• Ese nkeneye kubagwa?
• Ni ryari nshobora kongera gukora imyitozo ngororamubiri isanzwe?
• Ni gute iki kibazo gikora ku buzima bwanjye bwa buri munsi?

Bimwe mu bintu by'ingenzi tugomba kwibuka muri iyi nkuru ni

Eosinophilic fasciitis ni indwara idakunze kugaragara ariko ikomeye ishobora kukugiraho ingaruka vuba. Niba ubonye ububabare bushya, kubyimba, cyangwa gufungana mu biganza cyangwa ibirenge byawe, cyane cyane iyo bitarangiye mu minsi mike, ntutinde kujya kwa muganga. Kubera ko iyi ndwara ishobora guhita ikura vuba cyane , uko usuzuma ibimenyetso byawe vuba, ni ko muganga wawe ashobora kubona impamvu vuba no gutangira ubuvuzi bukenewe.

Muganga wawe azagutera imiti ya corticosteroid n'indi miti nibiba ngombwa kugira ngo igufashe kugenzura ibimenyetso byawe. Ntugatinye, ahubwo menya ibimenyetso byawe kandi ukurikize amabwiriza ya muganga wawe witonze. Tukwifurije gukira vuba!

` Eosinophilic Fasciitis, Eosinophilic Fasciitis, Indwara z'uruhu, Fascia, Ububabare bw'ingingo, Ububabare bw'imitsi, Indwara z'ubudahangarwa bw'umubiri