Iyo ugize agasebe gato cyangwa ucitse, amaraso make aratemba ubwayo, sibyo? Ibi biterwa n'uburyo butangaje umubiri wacu ukora. Ariko kuri bamwe, ibi ntibibaho. Nubwo bacitse gato, kuva amaraso bifata igihe kirekire kugira ngo bihagarare, rimwe na rimwe ntibihagarara na gato. Ibi biterwa n'uko amaraso yabo adafunga neza. Uyu munsi, tugiye kuvuga kuri imwe muri izo ndwara, Hemophilia B, n'uburyo bwihariye kandi burokora ubuzima bwo kuyivura, Factor IX Complex Injection . Nubwo ibi bishobora gusa n'ibigoye, reka tubikomeze byoroshye.
Mu magambo make, iyi Factor IX Complex ni iki?
Tekereza ko amaraso yacu ari itsinda rito ry'abakozi. Iyo hari igikomere ahantu runaka maze kuva amaraso bigatangira, iri tsinda ry'abakozi rihita rihurira hamwe kugira ngo rifunge igikomere maze rikore "urugomero" rwo guhagarika kuva amaraso. Buri mukozi afasha muri uyu murimo mu buryo bumwe cyangwa ubundi. Aba bakozi tubita Ibintu Bituma Bagwa .
Ubu, ku muntu ufite indwara yitwa Hemophilia B , umukozi wa 9 (IX) muri iri tsinda, poroteyine yitwa Factor IX , iba iri hasi cyane cyangwa ntayo. Rero iyo idafite, iyo "damu" ntishobora gusanwa neza. Niyo mpamvu bigoye ko bahagarika kuva amaraso.
Aha niho urukingo rwa Factor IX Complex ruboneka. Uru rukingo rutanga Factor IX yabuze cyangwa idafite akamaro iturutse hanze y'umubiri. Ni urushinge ruterwa mu mitsi. Iyo rwinjiye mu mubiri, inzira yo kuvura amaraso itangira kongera kubaho nk'uko bisanzwe. Ibi bivuze ko rushobora gukumira kuva amaraso no kugenzura kuva amaraso kwari kumaze kubaho.
Uyu muti ushobora kuboneka mu mazina atandukanye muri Sri Lanka. Urugero, ushobora kuvuga amazina nka Bebulin na Profilnine. Uko izina ry'umuti uhabwa ryaba riri kose, urimo ikintu kimwe cyitwa Factor IX.
Ibintu ugomba kubwira muganga wawe mbere yo gufata uyu muti:
Iki ni ingenzi cyane. Ni ngombwa kubwira muganga wawe amateka y’ubuzima bwawe bwose mbere yo gutangira ubu buvuzi, kuko hari indwara zimwe na zimwe zisaba kwitabwaho by’umwihariko iyo ukoresha uyu muti.
| Ikibazo ugomba gutangaza | Kuki ugomba kubwira muganga ibyo? |
|---|---|
| Niba warigeze kugira amaraso afungana mbere. | Kubera ko uyu muti wongera amaraso, ushobora kongera ibyago ku muntu usanzwe uri mu kaga. Muganga wawe ashobora kwita cyane ku gipimo n'uburyo bwo kuvura iyo abimenye. |
| Niba uherutse kubagwa cyangwa uteganya kubagwa mu gihe kizaza. | Kubagwa ni igihe cyo kubagwa habaho ibyago byinshi byo kuva amaraso. Hari kandi n'ibyago byo kuvura amaraso. Kubwibyo, ni ngombwa ko muganga abimenya. |
| Niba ufite indwara y'umutima. | Abantu barwaye indwara z'umutima bafite ibyago byinshi byo kuvura amaraso, bityo rero hakenewe ubwitonzi bwihariye mu gihe ukoresha uyu muti. |
| Niba ufite indwara y'umwijima. | Umwijima ni wo utuma amaraso agwa mu mubiri wacu. Ibi kandi bigomba kwitabwaho mu gihe uha uyu muti umuntu ufite ibibazo by'umwijima. |
| Niba ufite allergie ku birebana na Factor IX, indi miti, ibiryo, cyangwa amarangi. | Ibi ni ingenzi cyane. Bwira muganga wawe ibyerekeye ubwivumbure ubwo aribwo bwose ufite. Ibi bishobora gufasha kwirinda ingaruka zikomeye z'ubwivumbure. |
| Niba utwite cyangwa ugerageza gutwita. | Umuti uwo ari wo wose ugomba gukoreshwa witonze cyane mu gihe utwite. Ugomba gutekereza ku ngaruka zishobora kugaragara ku mwana. Kubwibyo, ugomba kubimenyesha muganga wawe. |
| Niba uri umubyeyi wonsa. | Ni ngombwa kumenya niba umuti ugera ku mwana binyuze mu mashereka. Bityo rero menya neza ko ubibwiye muganga wawe. |
Uru rukingo rukoreshwa rute?
Uyu muti utangwaItangwa nk'umuti uterwa mu mitsi. Ubusanzwe uyihabwa n'abaganga bo mu bitaro cyangwa mu ivuriro. Ariko, mu bihe bimwe na bimwe, cyane cyane ku bantu bavurwa igihe kirekire, ushobora guhugurwa guterwa uru rushinge mu rugo.
Niba ugomba gukoresha uyu muti mu rugo, uzahabwa amahugurwa yuzuye. Uzigishwa uburyo bwo kuvanga icupa ry'ifu n'icupa ry'amazi yanduye, uburyo bwo kwinjiza urushinge mu mitsi, ndetse n'uburyo bwo kwihutisha gutera umuti mu mubiri wawe. Kurikiza aya mabwiriza neza.
Ukoresha iki inshinge n'inshinge zakoreshejwe?
Ibi ni ingenzi cyane. Ntukigere ujugunya inshinge n'inshinge byakoreshejwe mu myanda . Kubikora bishobora guteza imvune ikomeye ku muntu utwara imyanda cyangwa abandi, harimo n'indwara zandurira mu maraso.
Hari agasanduku kabigenewe k'ibinini ushobora gukoresha kugira ngo ubishyiremo. Niba uvurirwa mu rugo, baza itsinda ry'abaganga uko wabigura. Bazaguha kandi amabwiriza y'uko wabijugunya mu buryo bwizewe igihe byuzuye.
Ese uyu muti ushobora guhabwa abana?
Yego, ubu buvuzi buhabwa abana iyo bibaye ngombwa. Ariko bukorwa neza kandi hakurikijwe inama z'abaganga b'inzobere.
Bite ho iyo mfashe imiti myinshi?
Niba ubona ko wanyoye imiti myinshi kurusha uko ubyibwira, jya ku bitaro bikuru byita ku butabazi bw’ibanze (ETU) bikwegereye vuba. Cyangwa hamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo kugira ngo bakugire inama.
Wibuke ko uyu muti ari uwawe gusa. Ntukigere uwusangira n'undi muntu uwo ari we wese.
Wakora iki niba wabuze dose y'umuti?
Ni ingenzi cyane gufata imiti yawe ku gihe, cyane cyane niba uyifata kugira ngo wirinde kuva amaraso (prophylaxis). Niba wabuze dose, ntugatinye kandi uhite uhamagara muganga wawe cyangwa itsinda ry’abaganga kugira ngo bakugire inama y’icyo wakora nyuma yaho. Bazakubwira niba ugomba gufata dose yabuze cyangwa gufata dose ikurikiraho ku gihe cyagenwe.
Ni ibihe bintu bindi bishobora kugira ingaruka kuri uyu muti?
Imiti imwe ishobora kugira ingaruka ku rukingo rwa Factor IX Complex. Urugero,
- aside aminocaproic
- aside Tranexamic
Iyi miti isa n'indi miti ifasha kuvura amaraso. Kuyikoresha hamwe bishobora kongera ibyago byo kuvura amaraso.
Ariko uru rutonde ntirwuzuye. Kubwibyo, undi muti uwo ari wo wose ufataBwira muganga wawe imiti iyo ari yo yose (yanditswe n'abaganga ku zindi ndwara), vitamine , inyongeramusaruro , imiti ya Ayurvedic cyangwa imiti y'ibimera urimo gufata. Bwira kandi muganga wawe niba unywa itabi cyangwa unywa inzoga. Hanyuma muganga wawe ashobora kuguha gahunda yo kugufasha kwivura neza.
Ibintu ugomba kwitondera cyane cyane mu gihe ufata umuti
- Gusuzumwa kwa muganga buri gihe: Komeza uganire na muganga wawe buri gihe kugira ngo urebe uko ubuvuzi bwawe buhagaze. Jya kwa muganga ku matariki yagenwe. Bwira muganga wawe niba ibimenyetso byawe bitaragabanuka cyangwa niba birushaho kwiyongera.
- Gupima amaraso: Mu gihe cyo kuvurwa, ushobora gukenera gupima amaraso kugira ngo urebe urugero rwa Factor IX yawe n'ibindi bintu biri mu maraso yawe.
- Inkomoko y'umuti: Iki ni ikibazo abantu benshi bibaza. Bimwe mu bicuruzwa bya Factor IX bikozwe mu maraso atangwa n'abantu . Kubera iyo mpamvu, hashobora kubaho impungenge ku bijyanye na virusi nka hepatite cyangwa virusi itera SIDA zishobora kwanduzwa muri ayo maraso. Ariko, bitewe n'ikoranabuhanga ririho ubu, ibi bicuruzwa bikorwa hakoreshejwe uburyo bukomeye bwo gusukura kugira ngo byice virusi cyangwa bagiteri zishobora kuba zihari. Kubwibyo, ibyago byo kwandura ni bike cyane . Niba ufite ibindi bibazo kuri ibi, ntutindiganye kuvugana na muganga wawe.
- Witondere imiti igabanya ububabare: Iki ni ikintu ugomba kwibuka rwose. Irinde gukoresha imiti igabanya ububabare nka Aspirine, Ibuprofen, na Naproxen . Iyi miti yongera ibyago byo kuva amaraso. Niba ufite umuriro cyangwa ububabare bw'umubiri muri rusange, baza muganga wawe ku bijyanye no gukoresha Paracetamol .
- Ikarita y'indangamuntu cyangwa umukufi wo kwa muganga: Ni byiza gutwara ikarita cyangwa umukufi uriho amakuru yerekeye indwara yawe (ko urwaye Hemophilia B), imiti ufata, n'ingano yayo. Ibi bizafasha cyane abakuvura mu gihe cy'impanuka, nk'impanuka.
Ni izihe ngaruka mbi zishobora kubaho?
Kimwe n'indi miti iyo ari yo yose, iyi ishobora gutera ingaruka mbi ku bantu bamwe na bamwe. Ariko si buri wese uzibona. Reka turebere hamwe izo ngaruka mbi n'icyo wakora mu gihe zibayeho.
| Ubwoko bw'ingaruka mbi | Ibimenyetso |
|---|---|
| Niba ubonye ibi bimenyetso, menyesha muganga wawe cyangwa ibitaro ako kanya. | |
| Indwara zikomeye z'ubwivumbure | Uruhu rushyushye, kuribwa, gutukura, kubyimba mu maso, iminwa, ururimi cyangwa umuhogo, no kugorwa no guhumeka. |
| Amaraso apfutse | Kubabara amaguru, kubyimba cyangwa gushyuha, guhumeka bigoranye, kubabara mu gituza. |
| Ibi akenshi ntabwo ari ibintu bikomeye, ariko niba bikomeje, bwira muganga wawe. | |
| Umunaniro | Kumva ufite umunaniro ukabije n'umunaniro ukabije. |
| Gusukura | Igice cyo mu maso n'ijosi gihinduka umutuku kandi kikumva gishyushye. |
| Umutwe | Umutwe usanzwe. |
| Isesemi | Kumva ushaka kuruka. |
| Ububabare aho umuntu atewe urushinge | Kubabara, gutukura, cyangwa kubyimba gato aho bateye urushinge. |
Uru rutonde rurimo ingaruka nke gusa zishobora kubaho. Niba uhuye n'ikintu kidasanzwe, hamagara muganga wawe ako kanya.
Ni gute ubibika kandi ukajugunya umuti?
- Kubika: Itsinda ry'abaganga bawe rizaguha amabwiriza asobanutse neza y'uburyo bwo kubika uyu muti. Umwe ugomba gushyirwa muri firigo, undi ushobora kubikwa ahantu hashyushye mu cyumba. Kurikiza ayo mabwiriza neza. Ubishyire kure y'abana n'amatungo.
- Guta: Imiti yarengeje igihe cyangwa itagikenewe igomba gutabwa neza. Ntukayishyire mu myanda yawe isanzwe. Baza muganga wawe cyangwa itsinda ry'abaganga uburyo bwo kuyijugunya neza.
Ubutumwa bwo kujyana mu rugo
- Urukingo rwa Factor IX Complex ni uburyo bwo kuvura bukiza kandi bukagenzura kuva amaraso mu bantu bafite hemophilia B binyuze mu gutanga ikintu kidakora neza mu maraso (Factor IX) hanze.
- Mbere yo gutangira kuvurwa, banza ubwire muganga wawe amateka y’ubuzima bwawe bwose, indi miti ufata, ndetse n’ubwivumbure bwose ushobora kugira.
- Niba urimo kuvurirwa mu rugo, jugunya ibintu nk'inshinge n'inshinge neza (mu gikoresho gishyushye). Ntukigere ubishyira mu myanda.
- Niba ugize ingaruka mbi zikomeye nko kugorwa no guhumeka, kubyimba mu maso, kubabara mu gituza, cyangwa kubyimba amaguru, shaka ubufasha bwa muganga byihutirwa.
- Ntugafate imiti igabanya ububabare nka aspirine cyangwa ibuprofen utabanje kugisha inama muganga. Parasetamol ni nziza ku bubabare cyangwa umuriro.
- Niba ufite ikibazo icyo ari cyo cyose kijyanye n'ubuvuzi bwawe cyangwa imiti yawe, ntutinye kubaza muganga wawe. Uko urushaho kumenya indwara yawe, niko bizakorohera kuyifata neza.
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