Ese ibice by'umweru by'umwana wawe byangiritse? Reka tuvuge kuri Periventricular Leukomalacia (PVL)

Niba umwana wawe yaravutse mbere y'igihe, cyangwa niba ufite ikibazo cyo kudakura neza, ibi ni ingenzi cyane kuri wewe. Hari igihe ibice bito by'ubwonko mu bana bishobora kwangirika. Iyi ni indwara yitwa periventricular leukomalacia, cyangwa PVL mu magambo ahinnye. Ibi ntibigutere ubwoba, reka tubiganireho birambuye.

PVL ni iki? Reka tubisobanukirwe mu buryo bworoshye.

Reka turebe icyo PVL (Periventricular Leukomalacia) ari cyo. Urabizi, ubwonko bwacu ni urugingo rugoye cyane kandi rutangaje. Rufite ibice bitandukanye. Igice kimwe cy'ingenzi ni 'ibintu byera' . Ibi bimeze nk'uburyo bw' 'insinga' mu bwonko bwacu. Uturemangingo tw'ubwonko, ni ukuvuga uturemangingo tw'imitsi (neurons) , turaganira hagati yatwo no kuva mu bwonko kugera mu ruti rw'umugongo, kandi tugahana amakuru binyuze muri ubwo buryo bw' 'insinga', ni ukuvuga (ibintu byera) .

Rero, niba umwana wawe afite leukomalacia yo mu maraso, bivuze ko hari icyangiritse ku gice cy'iki kintu cy'umweru . Uku kwangirika gushobora gutera gutinda mu mikurire y'umwana mu bushobozi bwe bwo gukora imitsi, ari na bwo buryo agenzura umubiri we, ndetse n'ubuhanga bwe mu bwenge, ari na bwo atekereza kandi akumva ibintu. Si ibyo gusa, ahubwo n'abana bafite iki kibazo baba bafite ibyago byinshi byo kurwara indwara yitwa cerebral palsy .

Reka dusesengure gato iri zina rirerire rya 'periventricular leukomalacia' maze turisobanukirwe. Hanyuma bizasobanuka neza:

• 'Peri' bisobanura 'hafi' cyangwa 'hafi'.
• 'Ventricular' yerekeza ku mwobo wuzuyemo amazi mu bwonko. Izi ventricles nazo tuzita.
• 'Leuko' bisobanura 'umweru'. Ibi bivuga umweru w'ubwonko.
• Malariya ni "koroha" kudasanzwe kw'ingingo iyo ingingo zangiritse. Abaganga bashobora kubibona binyuze mu bipimo.

Mu magambo make rero, leukomalacia yo mu gihe cy'izuba ni ukwangirika kw'ibintu byera bikikije imitsi yo mu bwonko bw'umwana wawe, bigatuma byoroha.

Abana bavutse mbere y'ibyumweru 32, cyangwa mbere y'igihe, baba bari mu kaga gakomeye ko kurwara PVL. Ibi byago biriyongera uko imyaka yo gutwita igenda iba mike, cyangwa uko bavuka hakiri kare.

Niba umwana wawe yaravutse igihe kitageze, ndumva ufite ibibazo byinshi n'ubwoba mu mutwe wawe. Ushobora kuba ufite ibitekerezo byinshi ku buzima bw'umwana wawe n'ejo hazaza he. Ariko ibuka ko itsinda ry'abaganga b'umwana wawe rihora rihari kugira ngo rigufashe gusobanukirwa iki kibazo, kandi rigufashe kandi rikuyobore wowe n'umuryango wawe.

Ni ibihe bimenyetso by'umwana ufite PVL?

Akenshi biragoye kumenya ako kanya niba umwana afite PVL urebye gusa. Ibyo bivuze ko nta bimenyetso bigaragara inyuma bishobora kubaho . Ariko uko igihe kigenda gihita, PVL ishobora gutera kimwe cyangwa byinshi muri ibi bikurikira. Ni ngombwa kwitondera ibi bikurikira:

• Gutinda kw'imitsi: Kugorwa no kwicara, kunyara, kugenda, cyangwa gukoresha amaguru neza. Urugero, bamwe mu bana bashobora gutinda gufata amajosi yabo neza, cyangwa bagatinda kuzunguruka cyangwa kwicara kurusha abandi bana.
• Gutinda mu mitekerereze / (Ubumuga bwo mu mutwe): Kutamenya no kutamenya neza. Ibi bishobora kuba birimo ibintu nko gutinda kuvuga amagambo cyangwa kugorwa no gusobanukirwa amabwiriza yoroshye.
• Ibibazo byo kuringaniza: Kugorwa no kugumana kuringaniza.
• Ubumuga bwo kutabona no kutumva.
• Kubabara mu maguru yose uko ari ane (kugorama kw'amaguru ane, mu buryo bw'umwihariko, kugorwa no kunama cyangwa kwaguka) cyangwa diplegia ( kugorama kw'amaguru abiri gusa) - ibi bishobora no kuba ibimenyetso bya cerebral palsy .

Ibi bimenyetso bikunze kugaragara umuntu afite imyaka 2. Ikintu kimwe ugomba kwibuka ni uko PVL itandukana bitewe n'umwana. Ntibigira ingaruka kuri bose kimwe.

Ni izihe mpamvu zitera PVL?

Impamvu nyamukuru ya PVL ni igihe ubwonko bw'umwana butabona amaraso cyangwa ogisijeni ihagije , haba mbere cyangwa nyuma yo kuvuka. Tekereza nawe, uturemangingo tw'ubwonko bwacu dukeneye ogisijeni n'intungamubiri kugira ngo tubeho kandi dukore. Iyo ibi bidatanzwe neza, utwo turemangingo turangirika.

Nkuko byavuzwe mbere, abana bavuka imburagihe (igihe kitageze) , cyangwa abavuka ari bato mu gihe cyo gutwita (igihe gito mu gihe cyo gutwita), ni bo bafite ibyago byinshi. Ibi biterwa nuko ubwonko bwabo bukiri gukura, bigatuma bworoshye cyane. Kubwibyo, bashobora kwangirika cyane.

Ibindi bintu bishobora kuba bifitanye isano na PVL birimo:

• Kuva amaraso mu bwonko (kuva amaraso mu ruhu mu ruhu) .
• Guturika mbere y'igihe k'agasabo k'imyororokere mu gihe cyo gutwita.
• Kwandura nyababyeyi mu gihe cyo gutwita.

Ni gute abaganga basuzuma indwara ya PVL?

Iyo umwana wawe avutse igihe kitageze, abaganga bazakora ibizamini byihariye byo kumupima mu minsi mike ya mbere n'ibyumweru bike by'ubuzima bw'umwana wawe.Ibi bikorwa kugira ngo hamenyekane ikibazo cy’ubwonko hakiri kare. Hari igihe ibizamini bishobora kudakorwa kugeza igihe umwana agaragaje ibimenyetso by’ikibazo, nko gutinda mu mikurire.

Hari ibizamini byinshi bishobora gusuzuma neza PVL:

• Gupima MRI y'ubwonko: Gupima MRI (Magnetic Resonance Imaging) bishobora gufata amashusho asobanutse neza kandi arambuye y'ubwonko bw'umwana wawe. Ibi bishobora kureba imiterere y'ibyangiritse ku gice cy'umweru cy'ubwonko, bihuye na PVL.
• Ultrasound yo mu mutwe: Ultrasound ikoresha amajwi kugira ngo ikore amashusho y'ingingo z'umubiri. Ubu ni uburyo bukoreshwa mu gusuzuma PVL. Niba umwana wawe afite PVL, ultrasound ishobora kwerekana impinduka mu gice cy'umweru cy'ubwonko.

Ni ubuhe buryo bwo kuvura PVL?

Ubu nta muti cyangwa umuti uboneka wa PVL. Kwangirika k'ubwonko guterwa na PVL ni ukw'iteka ryose . Ariko ntugahangayike. Hari uburyo butandukanye bwo kuvura bushobora gufasha kugenzura ibimenyetso by'umwana wawe no kunoza ubuzima bwe. Ubu buryo bushobora gutanga ihumure rikomeye ku mwana wawe. Harimo:

• Ubuvuzi bw'umubiri: Ibi bifasha umwana wawe kunoza imigendere ye, cyangwa kugenzura umubiri we. Ibi birimo ubuhanga bwo gufata imitsi (nko gufata ikaramu, gukanda buto, gufunga imishumi y'inkweto) n'ubuhanga bwo gukoresha imitsi (nko kwicara, gupfukama, kugenda no kwiruka). Tekereza ukuntu umwana ashobora gukomera aramutse ahawe ubwo bwoko bw'ubu buvuzi kuva akiri muto!
• Ubuvuzi bw'akazi: Ibi bifasha umwana kwiga uburyo bushya bwo gukora imirimo ya buri munsi, nko kurya akoresheje ibikoresho no kwambara, wenyine. Ibi ni ingenzi cyane kugira ngo umwana yongere ubwigenge bwe .
• Ubuvuzi bwo kuvuga: Niba umwana wawe afite ikibazo cyo kuvuga cyangwa kuvugana n'abandi, ubu buvuzi bushobora kumufasha. Bushobora gufasha mu bintu nko kuvuga, gushinga interuro no gusobanukirwa.
• Ibikoresho byo gufasha: Ibikoresho byo gufasha nk'amagare y'abamugaye, abanyamaguru, n'imbago bishobora gufasha umwana kongera ubushobozi bwo kugenda, cyangwa ubushobozi bwo kugenda. Ibi bishobora gufasha umwana gukora ibintu byinshi wenyine.
• Imiti: Hari imiti ishobora gutera imitsi gucika intege.Bishobora gufasha mu kugenzura ibimenyetso nk'ibi, cyangwa mu kugenzura izindi ndwara (urugero, igicuri) umwana wawe ashobora kugira. Ibi bigomba gukoreshwa gusa mu gihe muganga abimugiriye inama.
• Serivisi z'imibereho myiza n'ubufasha mu burezi: Umwana wawe ashobora gukenera ubufasha bw'inyongera mu kazi k'ishuri cyangwa mu bindi bice by'ubuzima bwa buri munsi. Abakozi b'imibereho myiza, abahanga mu burezi, n'abandi banyamwuga bashobora gutanga ubwo bwoko bwa serivisi z'ubufasha n'ubufasha.

Igikuru ni uko ibi byose bikorwa kugira ngo umwana abeho ubuzima bwiza, bumushimishije kandi bumuheshe ibyishimo uko bishoboka kose.

Ese dushobora gukumira PVL?

Nta kintu na kimwe ushobora gukora mu buryo butaziguye kugira ngo wirinde PVL. Intego nyamukuru ni ukugerageza gukumira kubyara igihe kitageze . Ibi biterwa nuko kubyara igihe kitageze ari ikintu gikomeye gishobora gutera PVL. Niba ufite ibyago byo kubyara umwana utageze ku gihe, kujya ahantu hari ibitaro byihariye byo kubyara abana batageze ku gihe bishobora gufasha gukumira iki kibazo ku rugero runaka.

Nubwo kubyara igihe kitageze bidashobora kwirindwa buri gihe, ushobora kugabanya ibyago byo kubyara ukoresheje izi ngamba mu gihe utwite:

• Kugira ngo uhabwe ubuvuzi buhoraho ku babyeyi batwite , ni ukuvuga kujya kwa muganga no kubonana n'abaganga.
• Genzura uburwayi bwawe, nka diyabete , umuvuduko ukabije w'amaraso, cyangwa kwiheba .
• Irinde burundu kunywa itabi, inzoga, cyangwa ibindi biyobyabwenge.
• Kurya ibiryo bifite intungamubiri .
• Kongera ibiro mu buryo bwiza mu gihe utwite.
• Irinde indwara zishobora kukwangiza wowe n'umwana wawe uri mu nda.
• Gerageza kugabanya stress uko bishoboka kose kandi ugume utuje.

Niba umwana wanjye afite PVL, ni iki nategereza ku hazaza?

Abana bose bafite PVL ntibagira ingaruka zimwe. Ibi bivuze ko umwana umwe ashobora kuba atandukanye cyane n'undi . Uko umwana azamera/uko azamera biterwa n'ibintu byinshi. Urugero, ubukana bw'ubwandu bw'ubwonko n'ibindi bibazo by'ubuzima umwana afite.

Hari abana bashobora kugira ibimenyetso byoroheje cyane , cyangwa ntibagire ibimenyetso na gato. Bashobora kubaho ubuzima busanzwe. Ariko, abandi bashobora kugira ubumuga bukomeye bw'umubiri cyangwa ubwo mu mutwe . Muganga wawe azashobora kuguha igitekerezo cy'imiterere y'ibyangiritse umwana wawe yagize n'uko bishobora kugira ingaruka ku mikurire ye.

Tekereza gato, hari igihe umwana ashobora kugaragara nk'ikibazo gikomeye akiri muto, ariko iyo avuwe neza, ashobora kugera mu mimerere myiza cyane bitewe n'inyungu ze bwite. Rero, ntugacike intege.

Ntibishoboka kumenya neza uko umwana wawe azamererwa. Ikintu cyiza wakora ni ukuganira n'inzobere zikora ubushakashatsi zikavura indwara ya PVL. Uko umwana wawe agenda akura, azungukira cyane ku bufasha bw'itsinda ry'inzobere zishobora kumufasha mu kuvura hakurikijwe ibyo akeneye.

Imyaka yo kubaho y'umuntu ufite PVL ni iyihe?

Ibi ni impungenge ku babyeyi benshi. Abana benshi bafite PVL bashobora kubaho ubuzima bwuzuye . Ariko, niba umwana wawe afite ikibazo gikomeye cy'ubwonko cyangwa izindi ndwara zikomeye , igihe cye cyo kubaho gishobora kuba gito. Hari ibintu bimwe na bimwe bishobora kugira ingaruka ku gihe cye cyo kubaho birimo:

• Kugorwa no kurya no kunywa.
• Kudashobora kwimura umubiri cyangwa ibibazo byo kugenda.
• Ingorane zo guhumeka.

Ibi ntibigira ingaruka kuri buri wese, ariko ni byiza kumenya ibintu nk'ibi. Vugana na muganga wawe kuri ibi.

None se, reka turebe bimwe mu bintu tugomba kwibuka muri ibi? (Ubutumwa bwo kujyana mu rugo)

Umubyeyi cyangwa se ahura n'amarangamutima menshi mu gihe cyo kubyara umwana na nyuma ye, si byo se? Cyane cyane niba umwana avutse mbere y'igihe cyangwa agomba kuguma mu cyumba cyita ku bana bavutse (NICU) , umutwaro wumva muri icyo gihe uragoye kuwusobanura. Hanyuma, uko umarana iminsi n'ibyumweru n'abaganga n'ibizamini, ushobora guhura n'ibirenze ibyo watekerezaga. Ushobora kumva ko ibintu byose bitagenda neza, ndetse ushobora no kwiyagiriza.

Ariko, muri iki kibazo cyitwa periventricular leukomalacia (PVL) , nta muntu n'umwe ugomba kubiryozwa . Ndetse n'abashakashatsi ntibazi neza icyabitera. Ikindi kintu cy'ingenzi ni uko PVL igira ingaruka ku mwana wese mu buryo butandukanye . Rero, ni ngombwa gukorana bya hafi n'itsinda ry'abaganga b'umwana wawe kugira ngo batange ubuvuzi bwiza, inama, n'ubufasha mu gihe umwana wawe akura.

Wibuke ko utari wenyine muri uru rugendo. Abaganga bawe, abaforomo, abavuzi, ndetse n'umuryango wawe n'inshuti zawe bose bari aho kugira ngo bagufashe.

Nanone, ni ingenzi cyane kwiyitaho . Iyo ufite imbaraga kandi ufite ubuzima bwiza ni bwo ushobora kwita ku mwana wawe neza. Igihe cyose wumva wihebye, vugana n'umuntu wizeye. Niba bibaye ngombwa, ntutindiganye gushaka inama. Ubwitange ugirira umwana wawe ni ubw'agaciro ntagereranywa.

"Leukomalacia yo mu maraso, PVL, kwangirika k'ubwonko, kubyara imburagihe, gutinda mu mikurire, ubumuga bwo mu bwonko, ubuzima bw'umwana