Ese ufite ibimenyetso by'indwara nyinshi icyarimwe? Reka tuvuge kuri MCTD! (Indwara y'uturemangingo dutandukanye - MCTD)

Ese hari igihe wumva unaniwe cyane? Muri icyo gihe, waba warigeze kugira ibimenyetso bidasanzwe nko kubabara ingingo, kubyimba intoki, ndetse rimwe na rimwe intoki zawe zigahinduka ibara ry'umukara n'ubururu iyo uhuye n'ubukonje? Ese nawe uhangayikishijwe n'ibimenyetso by'izi ndwara bigaragarira icyarimwe? Ubwo rero iyi ishobora kuba indwara idakunze kugaragara yitwa Mixed Connective Tissue Disease, cyangwa MCTD nk'uko tubyita mu magambo ahinnye. Ntugahangayike, reka tubiganireho mu buryo bworoshye.

Mu by'ukuri MCTD ni iki?

Mu magambo make, MCTD ni indwara iterwa n’ubwirinzi bw’umubiri. Tekereza kuri ubu buryo: ubwirinzi bw’umubiri wacu, ari bwo bwirinzi bw’umubiri, buriho kugira ngo buturinde mikorobe zitera indwara. Ariko muri ubu bwoko bw’indwara, ubwirinzi bwacu bwite bwibeshya ko ingingo zacu zizima ari abanzi maze bugatangira kuzitera.

Umwihariko wa MCTD ni uko atari indwara imwe, ahubwo ari uruvange rw'ibimenyetso by'izindi ndwara eshatu zikomeye zifata ingirangingo. Niyo mpamvu yitwa "Mixed". Nanone yitwa "overlap syndrome". Indwara eshatu ni izi:

• Indwara ya lupus erythematosus (SLE): Ubusanzwe ibi tubyita 'lupus'.
• Scleroderma: Ibi bituma uruhu rukomera kandi rugakomera.
• Polymyositis: Ibi bitera intege nke z'imitsi no kubyimba.

Hari abantu bashobora kandi kugaragaza ibimenyetso by'indwara nka dermatomyositis, rubagimpande, cyangwa Sjögren's syndrome uretse ibi bimenyetso.

Ni ibihe bimenyetso bya MCTD?

Akenshi, ibi bimenyetso ntibigaragara icyarimwe. Bigaragara kimwe nyuma y'igihe. Kubwibyo, bishobora kugorana gusuzuma MCTD mu ntangiriro.

MCTD yumva imeze ite iyo itangiye gushya?

Abantu barwaye iyi ndwara rimwe na rimwe bashobora kugira ibimenyetso bikomeye cyane . Ibi tubyita 'flare-up'. Muri iki gihe, ububabare bw'ingingo n'imitsi bishobora kuba bibi cyane. Kimwe n'umuntu urwaye 'Rheumatoid arthritis', ingingo zishobora kubyimba, gukomera no kubabara. 'Raynaud's phenomenon' ishobora no kubaho kenshi kandi bikomeye.

Ni iki gitera MCTD?

Impamvu nyayo y’iyi ndwara ntiramenyekana. Si indwara umuntu avukana mu buryo butaziguye. Ariko, ubushakashatsi bwagaragaje ko iyo umuntu mu muryango afite indwara zo mu ngingo, abandi baba bafite ibyago bimwe byo kuyirwara. Byongeye kandi, bikekwa ko zimwe na zimwe za virusi, kwibasirwa n’ibinyabutabire nka `polyvinyl chloride` na `silica` na byo bishobora kuyitera.

Ni nde uri mu kaga gakomeye ko kurwara iyi ndwara?

MCTD ikunze kugaragara cyane ku bagore bari hagati y'imyaka 20-40.Hagati aho. Ariko ibyo ntibivuze ko abagabo cyangwa abantu bo mu bindi bigero badashobora kurwara. Umuntu wese, mu kigero icyo ari cyo cyose, ashobora kwandura iyi ndwara.

Ni izihe ngorane zishobora guterwa na MCTD?

MCTD ni indwara ishobora rimwe na rimwe guteza ingorane zikomeye, bityo rero ni ngombwa cyane kuyirinda.

Dore zimwe mu ngorane nyamukuru:

• Umuvuduko ukabije w'amaraso mu bihaha: Iyi ni yo mpamvu ikomeye itera urupfu mu barwayi ba MCTD. Ibaho iyo umuvuduko mu mitsi ijyana amaraso mu bihaha wiyongereye.
• Indwara y'ibihaha: Kubyimba no gukomeretsa ingingo z'ibihaha.
• Indwara z'umutima
• Kwangirika kw'impyiko
• Kwangirika kw'inzira y'igifu
• Anemia
• Urupfu rw'ingingo (necrosis)
• Gutakaza ubushishozi

Ni gute umuganga asuzuma indwara ya MCTD?

Nkuko twabivuze mbere, ibimenyetso by'iyi ndwara bishobora kugorana kuyimenya kuko bigaragara buhoro buhoro uko igihe kigenda gihita. Bishobora gufata imyaka myinshi kugira ngo umenye niba ari MCTD. Niba ufite ibi bimenyetso, ushobora koherezwa kwa muganga w’inzobere mu ndwara z’ingingo n’iz’ubudahangarwa bw’umubiri, witwa inzobere mu ndwara za rubagimpande.

Umuganga ashakisha ibintu bine by'ingenzi byo gukeka MCTD:

1. Ubushobozi bwinshi bwo kurwanya indwara ya U1-RNP mu maraso: Iki ni cyo gipimo nyamukuru cyo gusuzuma MCTD.

2. Nta kibazo gikomeye cy’impyiko cyangwa cy’imitsi yo hagati: Ibi bibazo bishobora kuba bikomeye ku barwayi ba lupus (SLE).

3. Kuba hari indwara ikomeye ya rubagimpande n'umuvuduko ukabije w'amaraso mu bihaha: Ibi ntibikunze kugaragara byonyine muri lupus cyangwa scleroderma.

4. Indwara ya Raynaud no kubyimba intoki: Ibi bimenyetso biba kuri 25% gusa by'abarwayi ba lupus.

Ni ubuhe buryo bwo kuvura MCTD?

Nta muti wa MCTD uraboneka kugeza ubu. Ariko hari uburyo bwinshi bwiza bwo kuvura bushobora kugufasha kugenzura ibimenyetso byawe, gukumira ingorane, no kubaho ubuzima busanzwe. Ubuvuzi buterwa n'ibintu nk'uburemere bw'ibimenyetso byawe n'ingingo z'umubiri zagizweho ingaruka.

Ni ibihe bintu wakora kugira ngo wite ku buzima bwawe?

Uretse gufata imiti, guhindura gato imibereho yawe bishobora gufasha cyane mu kurwanya ibi bimenyetso.

• Gukoresha imiti igabanya ububabare: Ku bubabare bworoheje no kubyimba, ushobora gufata imiti igabanya ububabare itari iya steroide nka Ibuprofen, umaze kugisha inama muganga wawe .
• Kwirinda ubukonje: Ibi ni ingenzi kugira ngo wirinde indwara ya Raynaud. Ambara uturindantoki n'udupfundikizo two mu matwi mu gihe ugiye hanze mu gihe cy'ubukonje. Gabanya amazi akonje n'ubukonje bwinshi.
• Kwirinda kunywa itabi:Kunywa itabi bigabanya imiyoboro y'amaraso. Ibi bishobora gutuma Raynaud arwara cyane. Niba rero unywa itabi, ni ngombwa cyane kurireka.
• Gabanya stress: Stress ishobora no gutera indwara ya Raynaud. Gerageza rero gutuza ubwenge bwawe binyuze mu bintu nk'imyitozo ngororamubiri yo guhumeka no gutekereza cyane. Shaka ubufasha bw'umujyanama mu by'ubuzima bwo mu mutwe niba bibaye ngombwa.

Ni ryari ugomba kujya kwa muganga?

Niba ufite kimwe mu bimenyetso twavuze mbere, cyane cyane niba bibangamira imirimo yawe ya buri munsi, ni byiza kujya kwa muganga. Niba ufite ububabare bushya bw'imitsi cyangwa ingingo, kubyimba intoki, cyangwa ibimenyetso bya Raynaud, ni byiza kujya kwa muganga kugira ngo bamusuzume.

Kubana n'iyi ndwara bishobora kugorana rimwe na rimwe. Ariko iyo uvuwe neza kandi ubayeho neza, ushobora kubaho neza. Komeza kuvugana na muganga wawe kandi uganire ku bibazo byawe byeruye.