Ese umwana wawe afite urutoki cyangwa amano y'inyongera? Reka tuvuge kuri Polydactyly

Iyo ureba umwana uvutse, hari igihe ababyeyi batangazwa gato kandi bagatinya kubona umwana afite urutoki rumwe cyangwa amano menshi ku kuboko cyangwa ku kirenge kurusha umubare usanzwe. Ni ibisanzwe kumva uhangayitse kandi ubabaye iyo ubibonye. Ariko ntutinye, sibyo? Iki si ikibazo gikomeye mu bihe byinshi. Uyu munsi turimo kuvuga ku kibazo cyo kugira intoki ziyongereye muri ubu buryo, ari byo bita polydactyly mu buvuzi. Hari n'abantu babyita hyperdactyly.

Kurwara polydactyly ni iki? Mu magambo make...

Mu magambo make, polydactyly ni igihe umwana avuka afite intoki imwe cyangwa nyinshi cyangwa amano ku biganza cyangwa ku birenge, aho kuba atanu asanzwe. Bifatwa nk'imwe mu ndwara zikunze kugaragara ku isi mu gihe cyo kuvuka . Abaganga bavuga ko kuba hari urutoki rw'inyongera, cyane cyane, ari indwara iri mu cyiciro kinini cy'itandukaniro ry'intoki. Ibi bivuze ko umwana avuka afite itandukaniro mu kiganza.

Noneho ushobora kuba urimo kwibaza uti “Ese ibi biba ku mwana wanjye gusa?” Ntubitekerezeho. Ibi ntabwo ari ibisanzwe nkuko ushobora kubitekereza.

Abaganga babimenya bate?

Akenshi, abaganga bashobora kubona izi ntoki z'inyongera mu gihe cyo gupima umwana hakoreshejwe ultrasound. Nubwo waba utarigeze uzibona mbere, abaganga bashobora kuzimenya umwana akimara kuvuka kuko urutoki rw'inyongera rugaragara neza.

Iyo abaganga babonye urutoki rw'inyongera nk'uru, basuzuma umwana witonze kugira ngo barebe niba ari iki kintu gusa cyangwa niba afite indi ndwara y'uturemangingo ijyana na yo. Kuko rimwe na rimwe iyi ndwara yitwa polydactyly ishobora kubaho yonyine, cyangwa ikaba ikimenyetso cy'indi ndwara y'uturemangingo.

Ni ibisanzwe kumva ufite ubwoba no guhangayika iyo umenye ko umwana wawe afite indwara ya polydactyly. Ariko ibuka ko iki gikoresho cyo hejuru akenshi kidatera ububabare cyangwa kubabara umwana.

Abaganga bashobora gukuraho uru rutoki rw'inyongera byoroshye bakoresheje uburyo bwo kubaga gato. Ariko, iyo umwana agaragaye ko afite indi ndwara y’uturemangingo ijyanye na rwo, ashobora gukenera kuvurwa no kwitabwaho mu buryo butandukanye.

Ni ubuhe bwoko bw'ingenzi bwa polydactyly?

Reka turebe ubwoko bw'ingenzi bw'iyi ndwara, ubwinshi bw'ibice bibiri. Iri tsinda rishingiye ku rutoki urutoki rw'inyongera rufatanyeho. Hari ubwoko butatu bw'ingenzi:

1. Preaxial polydactyly: Ibi bivuga uruhande rw'ikirenge kinini (niba kiri ku kuboko) cyangwa uruhande rw'ikirenge kinini .(Niba ku kirenge) Hari ikirenge cy'inyongera. Hari igihe abaganga bita ikirenge cy'inyongera ku rutoki runini rw'ikiganza "radial polydactyly"` naho ikirenge cy'inyongera ku rutoki runini rw'ikirenge bakakiyita "tibial polydactyly".

2. Ubusanzwe hagati mu manota: Ibi ni igihe umubare w'inyongera ugaragara hagati mu ntoki cyangwa mu mano . Ibi bivuze ko umubare w'inyongera ushobora kuba hagati y'intoki, hagati, n'impeta, cyangwa ahandi hose ku mano uretse ikirenge kinini n'ikirenge gito. Ibi ntibikunze kugaragara nk'ubundi bwoko bubiri.

3. Ubusanzwe bwo kubabara mu rutoki: Ubu ni ukuba hari umubare w’inyongera ku ruhande rw’urutoki ruto (ku kuboko cyangwa ku kirenge). Abaganga bita umubare w’inyongera ku ruhande rw’urutoki ruto ``ulnar polydactyly``` naho uwo ku ruhande rw’urutoki ruto ``fibular polydactyly```. Ubu ni bwo bwoko bukunze kugaragara bwa polydactyly.

Urabyumva? Sawa, reka turebe ibimenyetso by'ibi bikurikira.

Ni ibihe bimenyetso by'indwara ya polydactyly?

Mu by’ukuri, ikimenyetso cyonyine cy’uburwayi bwa polydactyly ni ukuba umwana afite intoki cyangwa amano arenga atanu ku kuboko cyangwa ku kirenge. Izi ntoki z’inyongera zigaragara neza igihe avutse.

Bitewe n'ubwoko bwa polydactyly umwana afite, izi ntoki z'inyongera zishobora kuba zakuze neza kandi zisa n'izindi ntoki. Ariko akenshi, izi ntoki z'inyongera ntiziba zikuze neza nk'izindi ntoki zisanzwe. Zimwe zishobora kuba ari utuntu duto tw'uruhu, cyangwa zishobora kuba zifatanye n'uruhu cyangwa imitsi. Hashobora kandi kuba hari agace gato k'igufwa.

Kuki ibi bitoki by'inyongera bigaragara? Ni izihe mpamvu?

Noneho ufite ikibazo, "Kuki ibi byabaye ku mwana wacu?" Impamvu nyamukuru yo kugira polydactyly ni uko hari impinduka mu ngirabuzimafatizo z'umwana mu gihe arimo gukura mu nda. Tekereza nk'igishushanyo mbonera kinini kirimo amabwiriza yose y'uko umubiri wacu ugomba gukura n'uko buri karemangingo kagomba gukora. Izi ngirabuzimafatizo zirazwe n'ababyeyi ku bana.

Rero, iyo habayeho ikibazo cyangwa impinduka mu mikurire y’izi ngirabuzimafatizo mu gihe umwana akiri mu nda, bishobora guteza impinduka zitandukanye mu mubiri w’umwana. Zimwe mu mpinduka zishobora kutagaragara. Ariko rimwe na rimwe izi mpinduka mu ngirabuzimafatizo zishobora gutera indwara zo kuvukana nka polydactyly.

Iyo hari ikintu kibangamiye imiterere y’uturemangingo (genes) tugenzura imikurire y’amaboko n’ibirenge by’umwana, aba afite amahirwe menshi yo kuvukana ubumuga bwa polydactyly. Izi ngirangingo zishobora kwibasirwa n’indwara z’uturemangingo. Bivugwa kandi ko hari ibintu bimwe na bimwe bidukikije (ibintu bigira ingaruka ku mubyeyi cyangwa ibidukikije mu gihe atwite) nabyo bishobora kubitera, ariko ingaruka z’uturemangingo ni zo nyamukuru.

Zimwe mu ndwara zishobora kugaragara mu gihe umuntu afite polydactyly zirimo:

• Indwara ya Carpenter
• Indwara ya Down
• Kubura amaraso mu mubiri (Fanconi anemia)

Uretse ibi, indwara ya polydactyly ishobora kugaragara hamwe n'izindi ndwara nyinshi zikomoka ku ngirabuzimafatizo.

Ni nde ufite ibyago byinshi byo kurwara polydactyly?

Nubwo indwara ya polydactyle ishobora ku mwana uwo ari we wese, hari abana bamwe bashobora kuyirwara cyane. Hari ibintu byinshi bishobora kuyigiraho ingaruka:

• Igitsina: Polydactyly ikunze kugaragara cyane mu bahungu kurusha abakobwa.
• Ubwoko: Iyi ndwara ikunze kugaragara cyane mu moko amwe n'amwe hirya no hino ku isi. Urugero, ubushakashatsi bumwe bwagaragaje ko ikunze kugaragara inshuro zigera ku icumi mu bahungu bakomoka muri Afurika kurusha abahungu bo mu yandi moko . Nanone bivugwa ko ikunze kugaragara cyane mu bakobwa bakomoka muri Afurika kurusha abakobwa bo mu yandi moko. Ibi bishobora kuba bifitanye isano n'ingaruka z'uturemangingo.
• Amateka y'umuryango: Niba hari umuntu wo mu muryango wawe, cyane cyane uwo mufitanye isano rya hafi (mama, data, abavandimwe) wavutse afite indwara ya polydactyly, cyangwa niba mu muryango hari amateka y'indwara za genetiki, umwana wawe ashobora no kurwara polydactylyly.

Ni gute abaganga bemeza ibi neza?

Nkuko twabiganiriyeho mbere, muganga wawe ashobora kubimenya mu gihe cyo gupima umwana wawe mu gihe atwite. Bitabaye ibyo, muganga wawe azabibona neza igihe usuzumye umwana wawe nyuma yo kuvuka. Azashobora kumenya intoki cyangwa amano y'inyongera ku biganza cyangwa ku birenge by'umwana wawe, maze akakubwira ubwoko bwa polydactyly.

Hari igihe, muganga wawe ashobora kukugira inama yo gukora X-ray y'intoki cyangwa X-ray y'ibirenge mbere yo kuvurwa, cyane cyane kugira ngo arebe uko amagufwa y'ikirenge cy'inyongera ahagaze n'uko ahuza n'andi mano.

Ese natwe tugomba kwiga ibijyanye no gupima imiterere y'uturemangingo?

Niba hari umuntu wo mu muryango wawe wagize ikibazo cya polydactyline, cyangwa niba ukeka ko uyirwaye, ni byiza kuvugana n'umujyanama mu by'imiterere y'umubiri . Bashobora kugufasha gufata icyemezo niba ukwiye gupimwa imiterere y'umubiri. Ibi bizamini bishobora kugaragaza impinduka zitandukanye mu miterere y'umubiri, harimo n'impinduka mu miterere y'umubiri, zishobora gutera polydactyline.

Wibuke ko nubwo waba ufite ubwoko runaka bw'uturemangingo, ntabwo bivuze ko umwana wawe azarwara iyo ndwara.

Umujyanama mu by’imiterere y’umubiri ashobora gusobanura ibyago byawe, uburyo bwo kurinda ubuzima bwawe, n’ibyo wakora kugira ngo ugabanye ibyago byo kwanduza abana bawe ibibazo by’imiterere y’umubiri.

Indwara ya Polydactyly ivurwa ite?

Uburyo bwo kuvura indwara ya polydactyly bushobora gutandukana gato bitewe n’imiterere y’indwara. Ariko uburyo bukunze kugaragara ni ugukuramo umubare w’inyongera mu kuboko cyangwa ku kirenge cy’umwana. Hari uburyo bwinshi bwo gukuramo uyu mubare w’inyongera. Reka turebe ibyo ari byo:

1. Imigozi yo kubaga: Muri ibi, muganga ahambira umugozi ukomeye (imigozi) ku gice cyo hasi cy'urutoki rw'inyongera. Ni nko guhambira ipfundo rito. Iyo ahambiriye cyane gutya, amaraso ajya ku rutoki rw'inyongera arahagarara, kandi nyuma y'iminsi mike (nk'icyumweru kimwe cyangwa bibiri), yumira ikagwa ubwayo. Ibi bikunze gukorwa ku ntoki nto, zidakuze neza zimanitse ku ruhu.

2. Gukata mu biro: Muri ubu buryo, muganga azatera urushinge ruto kugira ngo agabanye aho urutoki rw'umwana ruri. Hanyuma, akoresheje igikoresho cyihariye (rimwe na rimwe cyitwa icyuma gica urwagashya), urutoki rw'inyongera ruracibwa rukavanwaho. Ubu buryo kandi ni uburyo bworoshye bushobora gukorerwa kwa muganga.

3. Gukuraho ikirenge (kubaga hakoreshejwe uburyo bwa Polydactyly): Hari igihe, iyo ikirenge cy’inyongera gikuze neza kandi gifatanye neza n’andi mano afite amagufwa, cyangwa ku mano y’inyongera ku kirenge, uburyo bworoshye twavuze haruguru ntibukora. Muri icyo gihe, hakenewe kubagwa gato kugira ngo hakurweho ikirenge cy’inyongera. Ibi akenshi bikorwa umwana amaze gukura gato, ari munsi y’ikinya.

Uburyo ubwo aribwo bwose bukoreshwa, muganga azahitamo uburyo bukwiriye kandi bwizewe ku mwana.

Nyuma yo kuvurwa, ni ryari nkwiye kongera kubonana na muganga?

Nyuma yo gukuraho urutoki rw'inyongera, ugomba kwita ku gace kugeza gakize. Niba ubonye impinduka cyangwa ikibazo mu gace urutoki rw'umwana wawe rwakuwemo, ugomba kuvugana na muganga wawe. Shaka muganga ako kanya, cyane cyane niba ufite kimwe muri ibi bikurikira:

• Niba hari amaraso
• Niba hari amazi cyangwa amashyira aturuka mu gikomere
• Niba ibara ry'uruhu muri ako gace risa n'aho ryahindutse (nk'ihinduka umutuku cyangwa ubururu)
• Niba hari kubyimba
• Niba umwana asa n'aho ari kubabara muri ako gace

Niba ubonye ikintu nk'iki, ntukwiye kubibwira muganga vuba?

Niba umwana wanjye afite polydactyly, ni iki nkwiye kwitega?

Numenya ko umwana wawe afite polydactyly, ntugatinye. Ushobora kwitega ko umwana wawe azakira neza nyuma yo gukuraho urutoki rw'inyongera. Gukuraho urutoki rw'inyongera ntibizagira ingaruka ku mikurire ye cyangwa ku mikurire ye y'ejo hazaza.

Ariko, niba umwana wawe afite ubundi busembwa yavukanye cyangwa indwara ya gene ijyanye na polydactyly, ashobora gukenera uburyo butandukanye bwo kuvurwa cyangwa kwitabwaho byihariye. Muganga wawe azabigusobanurira.

Bishobora gutungurana no gutera ubwoba kubona urutoki cyangwa ikirenge cyiyongereye igihe umwana wawe avutse. Ariko ntugahangayike. Polydactyly ni indwara ivurwa idafite ingaruka z'igihe kirekire ku mikurire n'imikurire y'umwana wawe. Uburyo bwose bwo gukuramo urutoki cyangwa ikirenge cyiyongereyeho buzatuma akira vuba kandi ntibizagira ingaruka ku bushobozi bw'umwana wawe bwo gukoresha ukuboko cyangwa ukuguru kwe mu gihe kizaza. Niba ufite ikibazo kuri ibi cyangwa izindi ndwara za genetiki, ntugatinye kuvugana na muganga wawe.

Amaherezo, ibintu byo kwibuka (Ubutumwa bwo kujyana mu rugo)

Noneho rero, dore ibintu by'ingenzi cyane ugomba kuzirikana mu byo twavuze:

• Polydactyly ni igihe umwana avuka afite urutoki rumwe cyangwa amano menshi yiyongereyeho. Ntabwo ari ikibazo gikomeye nkuko ushobora kubitekereza, kandi ni ibisanzwe cyane.
• Ubusanzwe urutoki rw'inyongera ntirutera ububabare ku mwana.
• Abaganga bashobora gukuraho urutoki rw'inyongera bakoresheje uburyo bworoshye bwo kuvura.
• Nyuma yo gukuraho urutoki rw'inyongera, umwana akira vuba kandi nta kibazo afite cyo gukoresha amaguru ye.
• Hari igihe polydactyle ishobora kujyana n'indi ndwara ya genetiki. Muganga wawe azabikubwira.
• Niba ufite gushidikanya, ubwoba cyangwa ibibazo, menya neza ko uganira na muganga wawe nta guhisha. Barahari kugira ngo bagufashe.

Rero, ndizera ko aya makuru azaba ingirakamaro kuri wewe. Ndifuriza umwana wawe ubuzima bwiza!

` Polydactyly, intoki zirenze, ubumuga bwo kuvuka, imiterere y'uturemangingo, ubuzima bw'umwana, kubagwa, ubuvuzi bw'abana