Ese imitsi yawe iragabanuka buhoro buhoro? Ese ibi byaba ari indwara ya Sclerosis yo mu ruhande rw'imbere (PLS)?

Ese hari igihe wumva amaguru yawe aremereye gato, nk'aho akozwe mu ibuye? Cyangwa wumva urimo gutakaza uburinganire bwawe iyo ugenda, cyangwa amaguru yawe arimo gutakaza imbaraga buhoro buhoro? Niba ibi bimenyetso bitaza mu buryo butunguranye, ahubwo bikiyongera buhoro buhoro, byaba ari ngombwa ko umenya iyi ndwara yitwa Primary Lateral Sclerosis (PLS). Ntugahangayike, tuzaganira kuri byose mu buryo bworoshye.

Mu magambo make, ni iki kivugwa mu ndwara zo mu mutwe zifata imitsi yo mu mutwe (PLS)?

Indwara ya Sclerosis y’inyuma, cyangwa PLS mu magambo ahinnye, ni indwara igira ingaruka ku mitsi n’imitsi yacu. Ituma imitsi yacu icika intege buhoro buhoro, cyangwa buhoro buhoro, cyangwa igakomera.

Akenshi, ibi bimenyetso bitangira ku maguru yawe. Uko igihe kigenda gihita, ubu ntege nke n'ubukomere bishobora gukwirakwira no mu yindi mitsi yo mu mubiri wawe. Iyi ni indwara ikomeza kwiyongera , bivuze ko ibimenyetso bigenda birushaho kwiyongera uko igihe kigenda gihita.

Nta muti wihariye w'iyi ndwara (PLS), bityo ubuvuzi bugamije ahanini kugenzura ibimenyetso no kugufasha gukora imirimo ya buri munsi mu buryo bworoshye. Urugero, gukoresha igikoresho gifasha nko gukubita inkoni cyangwa gukanda .

Iyi ni indwara idakunze kugaragara cyane, bivuze ko idakunze kugaragara muri sosiyete.

Itandukaniro riri hagati ya PLS na ALS ni irihe?

Ushobora kuba warumvise indwara yitwa Amyotrophic Lateral Sclerosis (ALS) . Nubwo indwara zombi zifata imitsi n'imitsi, hari itandukaniro rigaragara hagati yazo. Kugira ngo tubisobanukirwe neza, reka tubanze turebe uburyo imibiri yacu igenzura ingendo.

Hari ubwoko bwihariye bw'uturemangingo tw'imitsi dutwara ubutumwa buva mu bwonko bwacu bujya mu mitsi yacu, twita motor neurons . Hari ubwoko bubiri bw'ubu:

1. Utunyangingo tw’imitsi yo mu rwego rwo hejuru (UMN): Utu ni 'insinga nyamukuru' zitwara ubutumwa buva mu bwonko bujya mu ruti rw'umugongo.

2. Uturemangingo tw’imyakura yo hasi (LMN): Utu ni 'uturemangingo duto' dutwara ubutumwa buva mu ruti rw’umugongo bujya mu mitsi.

Noneho ni ingenzi cyane gusobanukirwa iri tandukaniro.

Ibimenyetso bya mbere bya ALS bishobora gusa cyane n'ibya PLS. Hari ubwo muganga ashobora kubanza kugusuzuma PLS hanyuma akayihindura ALS iyo ibimenyetso bigaragaye bikagira ingaruka kuri LMN. Kubera iyo mpamvu, kugira ngo byemezwe neza ko PLS ihari, ibimenyetso bigomba kugaragara byibuze mu myaka itatu kugeza kuri ine .

Ni ibihe bimenyetso bya PLS?

Ibimenyetso bya PLS biza buhoro buhoro. Dore bimwe mu bimenyetso bya mbere ushobora kubona:

• Kugorama kw'imitsi mu maguru.
• Intege nke z'imitsi yo mu maguru.
• Kugorwa no kugenda cyangwa kugira ikibazo cyo kuringaniza imiterere.
• Kunyara cyangwa kubabara mu mitsi cyangwa kuribwa mu nda.

Uko indwara ikomeza kwiyongera, hari ibindi bimenyetso bishobora kugaragara:

• Kugorama kw'imitsi no gucika intege mu ntoki, mu maboko no mu maboko.
• Kugorwa no kugenzura inkari(Gukenera kwihutira kunyara no kuva inkari).
• Kubabara umugongo n'ijosi.

Mu bihe bike cyane, imitsi y'ururimi nayo ishobora kugira ingaruka. Muri iki gihe, ushobora kubona ibimenyetso nk'ibi:

• Imvugo idasobanutse neza (Dysarthria).
• Kugorwa no kumira ibiryo (Dysphagia).

Ni iki gitera PLS?

Mu by’ukuri, ntabwo turamenya impamvu nyayo ya PLS ku bantu bakuru. Akenshi, ibaho ku buryo butunguranye, nta mpamvu igaragara ihari.

Ariko, hari ubwoko budasanzwe bwa PLS bufata abana n'abakiri bato. Buterwa n'impinduka mu miterere y'uturemangingo (impinduka muri ADN).

Igikuru ni uko PLS atari indwara umuntu arwara mu buryo bw'umubiri. Ibi bivuze ko ushobora kuyirwara nubwo nta muntu wo mu muryango wawe wigeze ayirwara mbere.

Ni nde uri mu kaga gakomeye kurusha abandi?

Umuntu wese ashobora kurwara PLS. Ariko, abarwayi bakunze kugaragara bafite imyaka iri hagati ya 50. Ariko, ishobora no kugaragara ku bantu bari munsi y’iyo myaka cyangwa irenga. Iyi ndwara ikunze kugaragara ku bagabo kurusha abagore .

Iyi ndwara ipimwa ite?

Nyuma yo kumenya ibimenyetso byawe, muganga wawe azagukorera isuzuma ry’umubiri n’iry’imitsi. Bashobora kandi gukora ibizamini kugira ngo barebe ko hari izindi ndwara zisa n’iza PLS, nka ALS cyangwa multiple sclerosis. Bimwe muri ibyo bizamini birimo:

• Gupima amaraso: Reba izindi mpamvu.
• Ibipimo byo gusuzuma indwara hakoreshejwe amashanyarazi: Ibi bipima uburyo imitsi n'imitsi yawe bikora neza.
• Gupima MRI: Fata amashusho arambuye y'ubwonko n'umugongo kugira ngo urebe niba hari ibindi bibazo.
• Gutobora umugongo (gutobora umugongo): Ibi bisaba gufata amazi make mu mugongo wawe no kuyasuzuma niba nta kibazo.

Ni ubuhe buryo bwo kuvura?

Nkuko twabivuze mbere, nta muti wihariye wa PLS. Ubuvuzi bugamije kugenzura ibimenyetso no kugufasha kubaho wigenga uko bishoboka kose.

• Imiti: Imiti itangwa kugira ngo igabanye imitsi igoramye, gucumbagira, no kugorwa no kumira (urugero: Baclofen, Tizanidine, Quinine, Diazepam).
• Ubuvuzi bw'umubiri: Imyitozo ngororamubiri irasabwa kugira ngo igabanye intege nke z'imitsi, yongere ubushobozi bwo koroherwa no kugumana uburyo bwo kugenda neza kw'ingingo.
• Ibikoresho byo gufasha: Ibikoresho nk'inkoni, igare ry'abanyamaguru , cyangwa amagare y'abamugaye bikoreshwa mu kugufasha kugenda wigenga.
• Ubuvuzi bwo kuvuga: Niba ufite ikibazo cyo kuvuga, bishobora kugufasha.

Ni ryari ukwiye kujya kwa muganga?

Niba wumva ko imitsi yawe ikomera cyangwa intege nke zigenda ziyongera buhoro buhoro, menya neza ko wagiye kwa muganga.

Nanone, niba waramaze gufatwa na PLS kandi umuti urimo gufata utuma ibimenyetso byawe birushaho kwiyongera cyangwa bigatera ingaruka mbi, bibwira muganga wawe na byo.

Niba wakomeretse bitewe no kugwa cyangwa impanuka itunguranye, jya mu Ishami ry’Ubuvuzi bw’Ingoboka (ETU) ry’ibitaro ako kanya.

Ni ibisanzwe kumva ufite agahinda kuko imbaraga z'imitsi yawe zigenda zigabanuka buhoro buhoro kandi ntushobora gukora ibyo wakoraga mbere. Niba wumva ufite stress kubera izi mpinduka z'umubiri, kuvugana n'umujyanama mu by'ubuzima bwo mu mutwe bishobora kugufasha.