Ese intoki z'umwana wawe ni ngufi cyangwa zifatanye? Reka tuvuge kuri Symbrachydactyly.

Ese umwana wawe yavutse afite intoki ngufi cyangwa zivanze? Ni ibisanzwe ko wowe nk'umubyeyi wumva ubabaye cyane kandi ufite ubwoba iyo ubibonye. Ubuganga butwita iyi ndwara `(Symbrachydactyly)`. Nubwo izina rishobora kumvikana nk'iry'ibidasanzwe, numara kubimenya neza, ubwoba bwawe buzagabanuka cyane. Reka tubiganireho birambuye, si byo se?

Iki ni iki (Symbrachydactyly)? Reka tubisobanukirwe mu buryo bworoshye!

Mu magambo make, `(Symbrachydactyly)` ni indwara ibaho igihe cyo kuvuka . Ibi bibaho iyo intoki z'umwana (n'izindi, ariko akenshi amaboko ye) zidakura neza. Ibi bivuze ko intoki zishobora kuba ngufi kuruta ibisanzwe, cyangwa intoki ebyiri cyangwa eshatu zishobora guhuzwa, cyangwa rimwe na rimwe intoki zimwe na zimwe zishobora kuba zitariho burundu. Ibi bishobora kugira ingaruka ku kuntu ikiganza kigaragara ndetse n'imikorere yacyo.

Tekereza ibintu byinshi intoki zacu eshanu zidufasha. Gufata ikintu gito, kwandika, kurya, byose. Rero, umwana wavutse afite iyi ndwara ashobora kugorwa gato no kubikora. Ariko ntugahangayike, bitewe n'ubuvuzi bugezweho buboneka muri iki gihe, iyi ndwara ishobora gukemurwa ahanini.

Iyi ndwara ikunze kugaragara gute (Symbrachydactyly)?

Iyi ni indwara idakunze kugaragara . Ku isi yose, umwana umwe gusa mu bana 32.000 bavuka buri mwaka ni we ufatwa n'iyi ndwara (Symbrachydactyly). Rero, iki si ikibazo cyawe gusa, kandi ni gake cyane.

Ni gute Symbrachydactyly igira ingaruka ku mubiri w'umwana?

Ingaruka nyamukuru ni ku mikorere n'isura y'ukuboko . Bitewe n'ubusembwa bw'intoki, bishobora kugora umwana gufata ibintu no gukora imirimo y'amaboko. Nanone, imiterere y'ukuboko ishobora kuba itandukanye n'iy'ukuboko gusanzwe.

Ariko ni ngombwa kumenya ko akenshi iyi ndwara ifata ukuboko kumwe gusa (`(Unilateral)`) . Ni gake cyane ko ifata amaboko yombi.

Abaganga bagabanya iyi ndwara (Symbrachydactyly) mu moko ane y'ingenzi. Reka tuvuge gato kuri ubwo bwoko.

Ni ubuhe bwoko bw'ingenzi bwa (Symbrachydactyly)?

Iri shyirahamwe rishingiye ku miterere y'ingaruka ku ntoki.

1. Ingano y'intoki ngufi (Ubwoko bwa 1):

Muri ubu bwoko, umwana ashobora kuba afite igikumwe n'intoki enye zose. Ariko, izi ntoki ni ngufi kuruta izisanzwe . Amwe mu magufwa yo mu ngingo z'urutoki (`(Phalanges)`) ashobora no kuba ataboneka.

2. Oligodacylic symbrachydactyly (Ubwoko bwa 2):

Muri iki gihe, umwana ashobora kuba afite igikumwe n'urutoki ruto, ariko urutoki rwo hagati hagati yabyo rushobora kuba rubuze cyangwa rudakura neza . Hari igihe ibi bishobora kugaragara nk' "ikiganza kidasobanutse neza".

3.Monodactyly symbrachydactyly (Ubwoko bwa 3):

Nk'uko izina ribigaragaza, muri ubu bwoko bw'indwara, umwana aba afite urutoki rumwe rukuze neza (akenshi urutoki) . Izindi ntoki enye zishobora kuba ari utubyimba duto (`(Ibisigazwa cyangwa ibinure)`) cyangwa ibice bikuze neza. Ibi bivuze ko ibintu nk'amagufwa n'imitsi bitararemwa neza.

4. Andika nta minwe (`(Peromelic symbrachydactyly - Ubwoko bwa 4)`):

Iki ni cyo kibazo gikomeye cyane. Muri iki gihe , igikumwe cyangwa izindi ntoki ntacyo bizatwara .

Uko umwana wawe yaba afite ubwoko ubwo aribwo bwose, abaganga bazamusuzuma akivuka. Hanyuma bashobora kukwohereza kwa muganga w'abana ubaga intoki .

Ni ibihe bimenyetso bya (Symbrachydactyly)?

Ikimenyetso kimwe rukumbi kandi cy’ingenzi cy’iyi ndwara ni uko intoki z’umwana ziba ngufi, zivanze, cyangwa zibura igihe yavukaga . Ibi bikunze kugaragara ku ruhande rumwe.

Bitewe n'ubu busembwa bw'intoki, hashobora no kubaho ibitagenda neza mu ngingo zikurikira:

• Amagufwa (`(Amagufwa)`)
• Imitsi (`(Imitsi)`)
• Imitsi
• Imitsi y'uruti
• Imitsi (`(Imitsi)`)

Ni iki gitera Symbrachydactyly?

Mu by’ukuri, impamvu nyayo ya `(Symbrachydactyly)` ntiraboneka kugeza ubu. Inzobere zimwe na zimwe zizera ko ishobora guterwa n’indwara yitwa `(Vascular dysgenesis)` ibangamira uburyo amaraso anyura mu ntoki z’umwana mu gihe umwana arimo gukura mu nda. Ibi bivuze ko iyo amaraso atembera nabi, ibice by’amaboko ntibikura neza.

Igikuru ni uko iyi atari indwara iterwa n'uturemangingo cyangwa ikibazo cy'umurage. Ibi bivuze ko umwana ashobora kuyirwara nubwo nta mubyeyi n'umwe wayirwaye, kandi umuntu uyirwaye ntazayitera abana be. Ibi ni ibintu bitunguranye. Rero, ntugahangayike utekereze uti "Ese ni ikosa ryanjye?"

Ni gute wasuzuma indwara (Symbrachydactyly)?

Akenshi, abaganga bashobora gusuzuma iyi ndwara umwana akimara kuvuka . Bashobora kumenya niba ari ``Symbrachydactyly``, niba ari byo, ubwoko bwayo, bareba impinduka ziri mu biganza by'umwana.

Hari igihe, iyi ndwara ishobora kugaragara hakiri kare mu gihe cyo gupima ultrasound (`(ultrasound mbere yo kubyara)`) usanzwe uhura nayo mu gihe utwite.

Mbere yuko ubuvuzi butangira, X-ray ishobora gukorwa kugira ngo harebwe uko amagufwa ari mu kiganza cy'umwana ameze.

Ni ubuhe buryo bwo kuvura (Symbrachydactyly)?

Kenshi na kenshi, uburyo bw'ingenzi bwo kuvura Symbrachydactyly ni ukubagwa.Ariko, si buri mwana wese ukeneye kubagwa, kandi ubwoko bw'ikibagwa gikenewe buratandukanye bitewe n'uko umwana arwaye.

Ubuvuzi bukorwa hakoreshejwe ubuvuzi

Ubusanzwe, abaganga ntibasaba kubagwa umwana kugeza agize umwaka umwe cyangwa ibiri , kuko icyo gihe, ingingo z'umwana ziba zarakuze gato kandi ubu zishobora kwihanganira kubagwa.

Intego nyamukuru yo kubagwa ni ukugarura ikiganza cy'umwana mu mikorere n'isura ye isanzwe . Hari igihe kubagwa rimwe gusa bishobora kuba bidahagije, kandi kubagwa inshuro nyinshi bishobora kuba ngombwa.

Mu gihe cyo kubaga, abaganga bashobora gukoresha utubuto tw’uruhu cyangwa izindi ngingo zo mu kuboko kugira ngo bazibe icyuho kiri hagati y’intoki, cyangwa bagerageze gutandukanya intoki. Ibi byorohereza umwana gufata ibintu no gukoresha amaboko ye.

Mu bihe bimwe na bimwe bikomeye, cyane cyane iyo intoki zitariho burundu, hari n'uburyo bwitwa "Toe transfer" aho urutoki rukurwa mu kirenge cy'umwana rugashyirwa mu kiganza . Iyo wumvise ibi, ushobora kugira ubwoba uti "Ese bizagenda bite ku kuguru?" Ariko, ntugatinye. Nubwo urutoki rukurwa mu kirenge muri ubu buryo, umwana ntazagorwa no guhagarara, kugenda, kwiruka cyangwa gusimbuka. Ariko, imikorere y'ukuboko izarushaho kuba myiza.

Umuganga w’inzobere mu kubaga azagusobanurira birambuye ubwoko bw’ikibagwa umwana wawe akeneye n’icyo ategereje nyuma yaho. Muri ibyo bihe, ni ngombwa cyane kuvura umwana hakiri kare, mbere yuko akuramo neza.

Uburyo bwo kuvura butari ubwo kubaga

Hari abana bamwe na bamwe bungukirwa no kuvurwa batari abagwa mbere cyangwa nyuma yo kubagwa.

• Kwambara agakoresho ko gupfuka intoki cyangwa agakoresho ko gupfuka intoki: Kwambara ibi bishobora gufasha uburebure no gukomeza intoki zo ku kuboko kwawe.
• Insimburangingo: Abana bamwe bashobora gukoresha ukuboko kw'insimburangingo kugira ngo babafashe gufata ibintu no gukora imirimo.
• Ubuvuzi bw'umubiri: Nyuma yo kubagwa, ubuvuzi bw'umubiri ni ingenzi cyane kugira ngo wigishe umwana wawe gukoresha ukuboko kwe uko bishoboka kose. Ibi bikomeza imitsi yo mu kiganza kandi byongera urwego rw'imikorere.

Vugana na muganga wawe kugira ngo agufashe guhitamo uburyo bwiza bwo kuvura umwana wawe.

Bifata igihe kingana iki kugira ngo umuntu akire nyuma yo kubagwa (Symbrachydactyly)?

Ibi biterwa cyane n'ubwoko bw'ikibagwa umwana wawe yakoze. Muganga wawe cyangwa umuganga wawe azaguha amabwiriza y'uko wakwita ku kuboko k'umwana wawe nyuma yo kubagwa. Ni ngombwa cyane gukurikiza ayo mabwiriza neza.

Nigute nakwirinda Symbrachydactyly?

Mu by’ukuri, nta kintu na kimwe wakora kugira ngo wirinde iki kibazo (Symbrachydactyly) mu gihe utwite. Kuko, nk'uko twabiganiriyeho mbere, nta mpamvu yihariye yabonetse ibitera.

Ariko, muri rusange, hari ibintu bimwe na bimwe byongera ibyago byo kuvukana ubumuga. Ni byiza kwirinda ibi bintu mu gihe utwite:

• Kunywa inzoga.
• Kunywa itabi cyangwa gukoresha ibindi bicuruzwa by'itabi.
• Gukoresha ibiyobyabwenge mu kwidagadura.

Vugana na muganga wawe kugira ngo akugire inama ku byo ukwiye kurya cyangwa kunywa mu gihe utwite.

Niba umwana wanjye afite Symbrachydactyly, ni iki nakwitega?

Nubwo umwana wawe yafatwa nk'umuntu ufite `(Symbrachydactyly)`, iyi ndwara ntabwo izagira ingaruka ku mikurire isanzwe y'umwana cyangwa ku mikurire ye y'ubwenge . Ibyo bivuze ko umwana wawe azakura neza kandi yishimye nk'abandi bana.

Ariko, iyo habonetse ikindi kibazo cyo kuvuka cyangwa indwara hamwe na Symbrachydactyly, umwana wawe ashobora gukenera ubundi buvuzi cyangwa kwitabwaho. Muganga wawe azabigusobanurira.

Ni ryari ngomba kujya kwa muganga?

Niba ubonye impinduka mu biganza by'umwana wawe, ganira na muganga wawe kuri ibyo. Cyane cyane niba yabazwe, shakisha ibimenyetso bikurikira aho akorewe:

• Kuva amaraso.
• Ihinduka ry'ibara (ubururu, umutuku).
• Kubyimba.
• Gusohoka kw'amashyira cyangwa andi mazi.
• Niba umwana asa n'uri mu bubabare cyangwa adatuje mu buryo budasanzwe.

Nubona ikintu nk'iki, hita ubonana na muganga.

Ni ibihe bibazo ngomba kubaza muganga?

Baza muganga wawe ikibazo cyangwa impungenge ushobora kuba ufite. Urugero:

• Ni ubuhe bwoko bwa Symbrachydactyly umwana wanjye afite?
• Ni ubuhe bwoko bw'iki gikorwa akeneye cyo kubagwa?
• Hazakenerwa kubagwa inshuro zingahe?
• Agomba kubagwa afite imyaka ingahe?
• Ese umwana wanjye azakenera ubuvuzi bw'umubiri cyangwa ubundi buryo bwo kuvura butari ubwo kubaga?

Ni ingenzi cyane kuri wowe n'umwana wawe kubaza ibibazo nk'ibi no gusobanukirwa byose neza.

Amaherezo, ibintu byo kwibuka (Ubutumwa bwo kujyana mu rugo)

Symbrachydactyly ni indwara aho intoki z'umwana ziba ngufi cyangwa zigahuzwa mu gihe cyo kuvuka. Ibi bishobora kugira ingaruka ku bushobozi bw'umwana bwo gukoresha amaboko ye ubuzima bwe bwose. Ariko, kuvuka afite ubumuga bw'amaboko ntibivuze ko umwana wawe atazagira ibyishimo n'ubuzima bwiza.

Kubagwa akenshi birakenewe kugira ngo kunoze imikorere y'ukuboko. Nyuma y'ibyo, ibintu nk'ubuvuzi bw'umubiri bishobora gukenerwa kugira ngo kunoze imikorere y'ukuboko. Ariko, iyo ndwara `(Symbrachydactyly)` ntabwo igira ingaruka ku mikurire cyangwa iterambere ry'ubwonko ry'ikindi gice cy'umubiri w'umwana.

Umwana wawe aziga guhangana n'isi mu buryo bwe bwite, nk'abandi bana bose. Urukundo rwawe, inkunga yawe, n'inkunga yawe nibyo bimufitiye akamaro cyane.

Niba ushaka kumenya byinshi kuri ibi, ntutinye kuvugana na muganga wawe. Bazagufasha muri buri ntambwe.

"Symbrachydactyly, ubusembwa bw'ivuka, ubumuga bw'amaboko, gukubita intoki, gukuba urutoki, ubuzima bw'umwana, kubagwa