Ese ntushobora kugenzura amaso yawe neza kandi uruhande rumwe rw'umubiri wawe rwaracitse intege? Reka tuvuge kuri Weber Syndrome

Ese wigeze utekereza ko ushobora gutakaza ubushobozi bwo kugenzura amaso yawe mu buryo butunguranye, ariko icyarimwe ukabura ukuguru cyangwa amaguru ku rundi ruhande rw'umubiri wawe? Iki ni ikintu giteye ubwoba kandi kigoye kwiyumvisha, ariko ni ikibazo tugomba guhura nacyo rimwe na rimwe mu buzima bwacu. Uyu munsi tugiye kuvuga ku ndwara idasanzwe buri wese agomba kumenya. Iyi ni yo abaganga bita Weber Syndrome .

Ese koko indwara ya Weber Syndrome ni iki?

Muri make, Weber Syndrome ni indwara iterwa no kwangirika k'ubwonko bwawe bwo hagati . Ubwonko bwo hagati ni ikiraro cy'ingenzi gitwara ubutumwa buva mu bwonko bwawe bujya mu ruti rw'umugongo. Ni igice cy'ubwonko bwawe kiri hejuru y'ubwonko bwawe. Imitsi ibiri y'ingenzi y'umutwe igenzura ibintu nko kwimura amaso yawe no kuzamura amaso yawe - umutsi wa oculomotor n'umutsi wa trochlear - bitangirira mu bwonko bwo hagati.

Rero, niba ubwonko bwo hagati bwangiritse mu buryo ubwo aribwo bwose, uzagira ikibazo cyo kubura ubushobozi bwo kugenzura uruhande rumwe rw'umubiri wawe. Muri icyo gihe, uzagira ibibazo by'amaso n'ibyo kureba ku rundi ruhande. Ibi nibyo bigaragara cyane muri Weber Syndrome. Iyi ndwara ifatwa nk'indwara idasanzwe .

Impamvu ikunze gutera kwangirika k'ubwonko bwo hagati ni indwara yo mu bwonko, ikaba ari uguhagarara k'amaraso mu bwonko mu buryo butunguranye. Ariko, bishobora no kubaho kubera izindi mpamvu.

Ni ibihe bimenyetso by'ibi? Twabimenya dute?

Hariho ibimenyetso byinshi by'ingenzi bishobora kugaragara muri Weber Syndrome. Ibyo ni ibi bikurikira:

• Ijisho rimwe rinanutse (ptosis) . Bisa nkaho ijisho rifunze igice kimwe.
• Ijisho ryafashwe n'indwara rishobora kuzamuka rigasubira inyuma , bivuze ko ijisho ridashobora kugenzurwa neza.
• Kubona ibintu bibiri icyarimwe (diplopia) . Ibi byitwa kureba kabiri.
• Gupfa kw'ukuboko no kuguru ku ruhande rumwe rw'umubiri cyangwa burundu . Ibi biba ku rundi ruhande rw'ijisho ryafashwe n'indwara.

Icy'ingenzi cyane: Niba ubonye kimwe cyangwa byinshi muri ibi bimenyetso, cyangwa ikindi kimenyetso cy'indwara yo mu bwonko , nko kuvuga nabi , kubura ibyiyumvo , kutabona neza , ibibazo byo kuringaniza imiterere y'umubiri , cyangwa kunanirwa kwituma mu maso , ugomba kujya kwa muganga vuba. Ibi bishobora kugutera ubuzima cyangwa urupfu.

Hari igihe abantu barwaye Weber Syndrome bagiraIbibazo byo kuringaniza no guhuza ibintu (ataxia) , bivuze kugorwa no kugenda no gufata ibintu, nabyo bishobora kubaho.

Ubusanzwe, iyo Weber Syndrome ihari yonyine, ibitekerezo byawe (urwibutso, ubwenge) ntibigira ingaruka. Ariko, iyo kwangirika ku bindi bice by'ubwonko byakwirakwiriye, hari ibindi bimenyetso bishobora kugaragara. Urugero, Weber Syndrome rimwe na rimwe ishobora guherekezwa no guhagarara kw'imyanya y'ubwonko, igice cy'ubwonko. Muri icyo gihe, hari ibindi bimenyetso bishobora kugaragara.

Ni izihe mpamvu zitera indwara ya Weber Syndrome?

Indwara ya Weber iterwa n'igisebe kiri mu gice cy'ubwonko cyo hagati mu bwonko. Impamvu nyamukuru zitera ubu bwoko bw'ibyangiritse ni izi:

• Indwara ya Stroke: Iyi ni yo mpamvu ikunze kugaragara cyane. Ishobora guterwa no kuziba cyangwa gucika k'umuyoboro w'amaraso utanga amaraso muri icyo gice cy'ubwonko.
• Aneurysm yo mu bwonko (kubyimba no guturika k'umutsi w'amaraso mu bwonko).
• Kuva amaraso mu bwonko.
• Ikibyimba cyo mu bwonko.
• Indwara zikuraho myelin , nka Multiple Sclerosis, zangiza sheath ya myelin ikikije imitsi.

Ni nde ufite amahirwe menshi yo kurwara ibi? (Ibintu bishobora gutera ibyago)

Nkuko twabiganiriyeho mbere, impamvu nyamukuru itera indwara ya Weber Syndrome ni indwara yo mu bwonko, bityo ibintu bimwe na bimwe bishobora kugira ingaruka ku ndwara yo mu bwonko nabyo birayigiraho ingaruka. Ni ukuvuga:

• Umuvuduko w'amaraso ukabije (Umuvuduko w'amaraso ukabije / Umuvuduko ukabije w'amaraso).
• Igipimo cya cholesterol nyinshi mu maraso (Cholesterol nyinshi / Hyperlipidemia).
• Diyabete.
• Kunywa itabi.

Niba ufite kimwe cyangwa byinshi muri ibi bintu bishobora gutera ibyago, ni ngombwa cyane gushaka inama za muganga buri gihe no kubigenzura. Kubikora bishobora kugabanya ibyago byo kurwara indwara nka paralysis na Weber Syndrome.

Abaganga bapima iki kibazo gute? (Isuzuma)

Niba ufite ibimenyetso bifitanye isano na Weber Syndrome, abaganga bazabanza bagerageze kwemeza niba ufite stroke. Ibi biterwa nuko kuvurwa vuba ari cyo kintu cyingenzi kurusha ibindi. Kugira ngo ubikore:

• Isuzuma ryuzuye ry’imitsi rizakorerwa ku mitsi yawe .
• Isuzuma rya CT mu bwonko rikorwa ako kanya.
• Hari igihe hashobora kuba inama yo gusuzuma imitsi y'amaraso mu mutwe no mu ijosi ndetse no gusuzuma ubwonko hakoreshejwe MRI .

Niba ibimenyetso byawe n'izi scan zemeza ko wangiritse mu bwonko bwo hagati, abaganga bazasanga ufite Weber Syndrome.

Ni ubuhe buryo bwo kuvura ibi?

Mu kuvura indwara ya Weber Syndrome, icya mbere kibandwaho ni ukuvura impamvu nyamukuru (akenshi ni indwara yo mu bwonko). Itsinda ry’abaganga rizagufasha vuba mu gucunga uburyo bwo guhumeka no gusubiza amaraso mu bwonko bwawe. Hari igihe kubagwa ubwonko (neurosurgery) bishobora kuba ngombwa.

Ingamba zo kuvura indwara zo mu mutwe ni bwo buryo bw'ingenzi bwo kuvura indwara ya Weber Syndrome.

Gusubiza ubuzima mu buzima busanzwe ni iki? Ni ingenzi ku ki?

Gusubira mu buzima ni igice cy'ingenzi mu gukira kw'abantu benshi barwaye indwara yo mu bwonko. Bikubiyemo kugufasha kugarura ubumenyi watakaje bitewe n'impinduka mu bwonko bwawe, cyangwa kugufasha kumenya kubaho uhanganye n'impinduka. Itsinda ryihariye ryahuguwe mu kuvura indwara yo mu bwonko cyangwa abaganga b'imitsi bashobora kugufasha muri ibi. Ni byiza gutangira iyi gahunda yo kuvugurura vuba bishoboka.

Gusubirana indwara ya Weber Syndrome na midbrain palsy bishobora kuba birimo:

• Imyitozo ifasha kwimura urugingo rw'umubiri rumugaye (Imyitozo yo kugabanya imigendere) .
• Imyitozo yo kunoza uburinganire n'imikoranire.
• Suzuma amaso yawe kandi ukore imyitozo ikwiye kugira ngo ugabanye kureba kabiri.
• Hari abantu bashobora kudashobora kugenzura inkari zabo (kutagira indorerwamo y'inkari). Hakenewe amahugurwa yihariye kuri ibyo (amahugurwa y'inkari) .
• Hakenewe imiti n'ubundi buryo bwo kuyivura kugira ngo hagenzurwe ibintu bishobora gutera stroke no gukumira stroke mu gihe kizaza.

Bizatwara igihe kingana iki kugira ngo umuntu akire iyi ndwara? (Icyizere cyo gukira)

Hari ibintu byinshi bigira ingaruka ku ihinduka ry’indwara y’umuntu urwaye Weber Syndrome, harimo:

• Impamvu ni iyihe?
• Uburyo wavuwe vuba .
• Ese ufite indwara ya Weber Syndrome gusa, cyangwa hari n'ibindi bice by'ubwonko byangiritse ?
• Uko umeze neza kugira ngo wirinde ubumuga bw'ejo hazaza .

Abantu barwaye indwara ya Weber Syndrome bonyine, badafite ubundi bwandu bw'ubwonko, muri rusange baba bafite icyerekezo cyiza . Nanone, gutangira kuvura hakiri kare ni ingenzi cyane mu nzira yo gukira.

Iyo umuntu avuwe, bamwe bashobora kongera gukora neza mu ngingo n'amaso byabo byangiritse. Ariko abandi bashobora kugira ingorane zidashira zo kugenda no kuruhuka ndetse n'izindi ngorane z'imitsi.

Itsinda ry'abaganga bawe rizashobora kuguha igitekerezo gisobanutse cy'ibyo ugomba kwitega bitewe n'uburwayi bwawe.

Ni izihe ngorane zindi zishobora guterwa na Weber Syndrome?

Indwara ya Weber Syndrome ikunze gutera ingorane, cyane cyane iyo uri ku buriri. Niyo mpamvu itsinda ry'abaganga rizagerageza kugufasha kwimuka vuba kandi mu mutekano uko bishoboka kose. Zimwe mu ngorane zishobora kubaho zirimo:

• Gukomera kw'imitsi no gufungana .
• Ibisebe byo mu buriri .
• Umusonga uterwa n'ibihaha ubaho iyo ibiryo cyangwa ibinyobwa byinjiriye mu nzira z'ubuhumekero bigatera indwara zo mu bihaha.
• Amaraso afunganye mu mitsi yo mu birenge (Deep vein thrombosis - DVT) .
• Iyo mitsi y'amaraso igenda igera mu bihaha (pulmonary embolism) .
• Indwara zo mu nzira y'inkari (UTIs) .

Amaherezo, ikintu cy'ingenzi cyane cyo kwibuka

Indwara yo mu bwonko ishobora guhindura ubuzima bwawe mu kanya gato. Kubwibyo, ni ngombwa cyane kumenya neza ibimenyetso byayo no kujya kwa muganga vuba iyo wowe cyangwa umuntu wawe wa hafi ugaragaje ibimenyetso nkibyo. Indwara ya Weber ishobora kuba indwara idakunze kugaragara, kandi ushobora kumva ufite ubwoba kandi uhangayitse iyo ubyumvise. Ariko ibuka ikintu kimwe, itsinda ry'abaganga bawe rihora ryiteguye kugufasha no kubana nawe mu rugendo rwawe rwo gukira. Bityo rero komeza ubwenge bwawe kandi ukurikize inama wahawe.

Indwara ya Weber , ubumuga, ubumuga bwo mu bwonko, ubwonko bwo hagati, ibimenyetso by'amaso, indwara z'imitsi, gusubiranamo