Ese wigeze ubona umwana wawe agwa mu kantu, agakomera , cyangwa agapfukama umutwe? Hari igihe ibi bintu bibaho inshuro nyinshi zikurikiranye. Ni ibisanzwe ko umubyeyi yumva afite ubwoba bwinshi iyo abonye ibi bintu. Ushobora guhangayikishwa niba ibi ari ibikomere bisanzwe cyangwa ikintu gikomeye. Uyu munsi turimo kuvuga ku 'Ibikomere by'abana', indwara ikomeye ishobora kugaragara ku bana bato igaragaza ibi bimenyetso. Ibi kandi byitwa 'Uburengerazuba bw'Isi'.
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Ese koko ibi bikomere bimeze bite?
Izi ndwara zo gucika intege, cyangwa se gucika intege, ntizimara igihe kinini. Zirangira mu masegonda make. Ariko hari ikintu kidasanzwe kuri iyi ndwara. Ziza mu matsinda . Ibyo bivuze ko iyo imwe irangiye, indi iza.
Uku gutigita rimwe na rimwe bishobora kuba bitagaragara cyane. Hari n'igihe bishobora kuba bikomeye cyane. Umwana wawe ashobora guhura n'ubwoko bwombi mu bihe bitandukanye.
- Mu buryo butunguranye: Umwana ashobora kugaragara nk'aho ahengamye umutwe.
- Mu gihe umuntu arwaye cyane: Umubiri ushobora gukomera mu buryo butunguranye, amaboko ashobora gutabwa hanze ku mpande, amavi agakomera yerekeza ku nda. Cyangwa umutwe ushobora gutabwa inyuma, amaboko n'amaguru bigatunganywa.
- Hari igihe uku gutigita bishobora kugira ingaruka ku ruhande rumwe rw'umubiri gusa.
- Umwana ashobora kurira mbere cyangwa nyuma yo kubyara.
Ibindi bimenyetso ushobora kubona
Uretse uku gushyuha, ushobora kubona gushyuha cyangwa kunyeganyega mu mitsi y'umwana wawe. Abaganga babyita 'Myoclonus'. Ibi bishobora kubaho mu buryo bubiri bw'ingenzi.
| Ubwoko bwa myoclonus | Ni iki kiri kuba? |
|---|---|
| Myoclonus nziza | Kubabara cyane biterwa no gufungana gutunguranye kw'imitsi. |
| Myoclonus mbi | Kubabara mu mutwe biterwa no kuruhuka gutunguranye kw'imitsi. |
Uyu ni umwana.Si ikintu gikozwe ku bushake . Ni nk'aho tubyuka mu buryo butunguranye tugiye gusinzira, ikintu umwana adashobora kugenzura.
Indwara ya West Syndrome ishobora no kugira ingaruka ku buryo bworoshye bwo mu bwonko bw'umwana. Ibi nibyo bitera ibintu tudashobora kugenzura, nko gutera k'umutima no kwaguka kw'amaso yacu. Ibi bimenyetso rero bishobora no kugaragara iyo umuntu afashwe n'igicuri.
- Uruhu rw'umwana ruhinduka ibara ry'umutuku cyangwa rugahinduka urwererane.
- Kubira ibyuya
- Kwaguka kw'imboni y'ijisho
- Amarira ava mu maso
- Ubwiyongere cyangwa ukugabanuka k'umuvuduko wo guhumeka
- Umutima utera cyane cyangwa ukagabanuka
Ese ibi bizagira ingaruka ku mikurire y'umwana?
Yego, iki ni ikintu cy'ingenzi cyane. Uko umwana akura, anyura mu ntambwe zimwe na zimwe z'iterambere. Ibintu nko kuzenguruka, kumenya ijwi ryawe, no gushyira ibintu mu kanwa ke. Ariko umwana urwaye indwara ya West Syndrome ashobora gufata igihe kirekire kurusha umwana usanzwe kugira ngo agere kuri izi ntambwe. Abaganga babyita ko iterambere ritinze .
Igiteye impungenge kurushaho ni uko rimwe na rimwe umwana ashobora kwibagirwa ibintu yamaze kwiga . Urugero, ushobora kubona ko umwana wahoraga yicaye neza adashobora kongera kubikora. Ibi byitwa isubiranyuma ry'iterambere . Niba ubonye ikintu nk'iki, ntukirengagize .
Ni izihe mpinduka ziba mu bwonko?
Ingufu z'amashanyarazi zihora zikora mu bwonko bw'umwana wawe. Iyo iki gikorwa kibaye kidasanzwe, gishobora gutera indwara zo mu mutwe. Muganga wawe ashobora gutegeka ko hakorwa ikizamini cya EEG (Electroencephalography) kugira ngo hamenyekane imikorere y'ubwonko bw'umwana wawe.
Ibi bikubiyemo gushyira "electrodes" zimeze nk'izifatirwa ku mutwe w'umwana, kuzihuza n'imashini, no kwandika imiterere y'imiraba y'amashanyarazi y'ubwonko. Imiterere yihariye kandi idasobanutse yitwa 'Hypsarrhythmia' ikunze kugaragara mu nyandiko za EEG z'abana bafite Spasms z'abana bato.
Byongeye kandi, muganga ashobora gusaba ko basuzuma ubwonko nka CT (Computed Tomography) na MRI (Magnetic Resonance Imaging) . Aya mashusho ashobora gufasha kumenya niba ubwonko buri gukura neza kandi niba hari ibyangiritse, ubwandu, cyangwa igisebe ku bwonko.
Ni iki gitera iki kibazo?
Mu magambo make, ikintu cyose cyangiza ubwonko bw'umwana gishobora gutera imitsi y'uruhinja. Hari impamvu zibaho mbere y'uko umwana avuka, izindi zibaho nyuma yo kuvuka.
| Impamvu | Ibisobanuro bigufi |
|---|---|
| Ikibabi cya Tuberous Sclerosis Complex | Iyi ni yo mpamvu ikunze kugaragara cyane. Indwara y’uturemangingo. Ibibyimba bitari kanseri bivuka ahantu nko mu bwonko, mu ruhu no mu mpyiko. |
| Indwara z'uturemangingo | Indwara nka Down Syndrome. |
| Gukomereka mu bwonko | Ibikomere byo mu bwonko igihe cyo kuvuka cyangwa nyuma yo kuvuka. |
| Kunanirwa k'ubwonko | Imiterere y'ubwonko ntabwo ikorwa neza mu nda ya nyina. |
| Kubura umwuka wa ogisijeni | Kugabanuka k'umwuka wa ogisijeni mu bwonko igihe umwana avuka. |
| Indwara zo mu bwonko | Indwara nka meningite cyangwa encephalitis. |
| Kubura Vitamine B | Cyane cyane kubura vitamine B6. |
Hari igihe abaganga badashobora kubona impamvu yihariye ibitera. Ariko hari ikintu kimwe kigaragara. Nta gihamya kigaragaza ko hari isano iri hagati y’inkingo zihabwa abana n’iyi ndwara. Rero ntugatinye bitari ngombwa.
Kuki ugomba guhita ubonana na muganga?
Iki ni cyo kintu cy'ingenzi kurusha ibindi. Niba ubonye imwe mu mpinduka mu mikurire y'umwana wawe yavuzwe muri iyi nkuru, mujyane kwa muganga w'abana vuba vuba.
Ibi si ibintu byoroshye nko kunyara ku mwana bisanzwe. Iyi ni indwara ikomeye igira ingaruka ku bwonko. Gusuzuma hakiri kare no kuvurwa hakiri kare ni ingenzi cyane ku mikurire y'ubwonko bw'umwana mu gihe kizaza.
Kugira ngo umuganga amenye uko indwara iteye, ashobora gutegeka ko apimwa amaraso n'inkari, gupimwa EEG, gupimwa ubwonko, ndetse no gutobora mu ruhu kugira ngo arebe niba hari indwara nka meningite.
Ubutumwa bwo kujyana mu rugo
- Niba umwana wawe atangiye kunyaragura, gukomera umubiri we, cyangwa kuzunguza umutwe we mu itsinda ry’abana, ntubyirengagize.
- Ibi si ukuzungagurika gusanzwe, ariko bishobora kuba ibimenyetso by'indwara ikomeye isaba ubuvuzi bwihuse.
- Niba wumva ko imikurire y'umwana wawe iri kugenda igabanuka, cyangwa niba asa n'uwibagirwa ibintu yize (nko kwicara, kumwenyura), bwira muganga wawe ako kanya.
- Impamvu iyo ari yo yose, gusuzuma no kuvura hakiri kare ni ingenzi kugira ngo ubwonko bw'umwana burusheho gukura neza.
- Nta sano ifatika iri hagati y'iki kibazo n'inkingo. Kubwibyo, ntugasimbuze inkingo umwana wawe agomba guhabwa abigiriwemo inama na muganga.
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