Zvakaoma kutaura manzwiro ekuonekwa uine chirwere chinorwadza, chinotyisidzira hupenyu seAnkylosing Spondylitis (AS) panguva yakanaka yehupenyu, paunenge uri mudiki uye uzere nehope, tariro, uye zvirongwa. Kune rumwe rutivi, uri kuedza kutanga hupenyu hwako patsva, uye kune rumwe rutivi, unofanira kutarisana nedambudziko rakadaro. Uyu mutoro unorema zvechokwadi. Zvisinei, kune vamwe pakati pedu vakawana nzira dzekurarama zvinobudirira nechirwere ichi uye vanogamuchira hupenyu hwavo hutsva. Nhasi, tiri kutaura nezvevanhu vaviri vakadaro.
'Ndakatya zvikuru' - Nyaya yaIvan
Ivan anga achitambura nekufamba kubva achiri mudiki. Dzimwe nguva aifanira kushandisa madondoro uye kunwa mishonga inonyaradza marwadzo kuti apedze zuva. Akatangawo kufungisisa achiri mudiki kuti agone kutsungirira kurwadziwa uku.
Pazera remakore makumi maviri nerimwe, paaidzidzira bvunzo yevanamukoti, Ivan akaona kuti zviratidzo zvaakanga achisangana nazvo kwenguva yakareba zvakafanana nechirwere chakatsanangurwa mubhuku rebvunzo. Nefungidziro iyoyo, akaenda kunoona chiremba wemapfupa, chiremba ane ruzivo rwematambudziko emajoini nemusana. Mushure mekuongororwa, akaonekwa aine Ankylosing Spondylitis (AS).
Kutya kukuru kwakauya mupfungwa dzake nemashoko aya kwaive nezvebasa rake raakasarudza.
"Pandakawana basa semukoti aishanda muEmergency Treatment Unit (ETU), ndakatya zvikuru," anodaro Ivan. "Ndaitya kuti kana ndikasangana nechirwere chepfungwa, ndaisazokwanisa kushanda. Ndakaona kuti kana ndaida kumisa dambudziko rekuremara mumakore angu ekuma20 kuti risaitike, ndaifanira kutarisira hutano hwangu nenzira dzese dzinobvira."
Saka, akatanga kuona chiremba wepfungwa dzemarwadzo akamudzidzisa nzira dzekugadzirisa marwadzo pasina mushonga. Akaedzawo mushonga unonzi Acceptance and Commitment Therapy (ACT) . Muchidimbu, mushonga uyu unotibatsira kurega kurwisa pfungwa dzedu nemanzwiro edu tobva tazvigamuchira.
"Ndakangopinda mashoma emisangano iyoyo yekurapa. Asi zvakandibatsira kukunda kurwadziwa kwepfungwa nekuora mwoyo kwemakore anopfuura gumi," anodaro Ivan. "Ndakasarudza kugamuchira mamiriro ezvinhu aya. Ndinotenda mukana wekukunda dambudziko iri uye kurarama hupenyu hunofadza."
Bhuku raViktor Frankl rinonzi 'Man's Search for Meaning' rakamukurudzirawo zvikuru kuti ave nemafungiro aya. Bhuku iri rinotaura nezvenguva yake ari musungwa mumusasa wevasungwa weNazi. Rinotsanangura kuti akararama sei neruremekedzo munguva iyoyo yakaoma uye akawana chinangwa muhupenyu.
"Kana uchifunga nezvazvo nenzira iyi, pane vanhu vakasimba uye vane rukudzo kupfuura isu vanorarama nemarwadzo asingaperi here?" Ivan anobvunza.
Dambudziko raIvan rave richiri nani kwemwedzi gumi nemana ikozvino.Kudya kwakakodzera, mishonga yakanyorerwa nachiremba, uye kurovedza muviri (anoita yoga, anosimudza zvinorema, uye anoita kanenge maminetsi makumi manomwe nemashanu ekurovedza muviri pasvondo) zvese zvakamubatsira zvikuru mukupora kwake.
"Ndinofara zvikuru kuwana mukana wekushanda zvinobudirira uye kunzwa kubudirira semukoti. Zvakare, ndinotenda AS, neimwe nzira. Nekuti yakandimanikidza kuisa hutano hwangu hwepfungwa nehwemuviri pakutanga ndichiri mudiki kudaro."
"Ndichiri kurwadziwa uye kuomarara, asi ndinofara zvikuru kurarama hupenyu hwangu nhasi, ndisina zvirwere zvakakomba zvakanditambudza kwemakore gumi," anodaro. Ari kugadzirirawo kuzadzisa chimwe chezviroto zvake zvikuru: kutora gore rimwe kana maviri zororo kubva mukuchengeta varwere nekufambisa mabhasikoro mumakondinendi.
'Ndaifunga kuti zvese izvi zvaive mhosva yangu' - Nyaya yaTristan
Muna 2013, Tristan aive mudzidzi akangwara achidzidza nezve chemistry. Asi muchirimo chegore iroro, akatanga kunzwa kuneta zvisinganzwisisike. Aisagona kumuka mangwanani, uye akatanga kushaya basa rechikoro.
"Ndaifunga kuti ndakanga ndisina kurangwa. Ndakafunga kuti imhosva yangu yese," anodaro.
Tristan akazoziva gare gare kuti aiva nechirwere chinonzi non-radiographic axial spondyloarthritis (nr-AxSpA), rudzi rweAS. Zvichitaurwa zviri nyore, AS ne nr-AxSpA kuzvimba kwemusana. Mu nr-AxSpA, kukuvara kwemusana hakuonekwe paX-rays nekuda kwekutanga kwechirwere. Sezvo chirwere ichi chichienderera mberi, mapfupa emusana anogona kubatana. Dzimwe nguva, izvi zvinogona kukanganisa dzimwe nhengo, dzakadai semaziso.
"Dambudziko nderekuti, kana kuzvimba kuri mumuviri wangu kuchiwedzera, zvinoita sekunge mashandiro ehuropi hwangu aderera. Zvakafanana ne'brain fog,'" anotsanangura kudaro.
"Pandaidzidza kemesitiri, ndaisakwanisa kuita basa remurabhoritari. Zvaida kumira kwenguva yakareba uye kubata midziyo yegirazi nokungwarira, asi ndakazviona zvakaoma."
Pakupedzisira, aifanira kuita sarudzo yakaoma zvikuru - yekusiya chikoro.
"Ndaiva munhu aifarira zvikuru uye airota kushanda mumunda wekemikari. Kurasikirwa nezvose zvaive zvakaoma kutsungirira," anodaro.
Asi Tristan haana kugumira ipapo. Akasarudza kuvhura rimwe gonhi. Kunyangwe aisambova mutambi, kurovedza muviri kwakava chikamu chikuru chehupenyu hwake. Akatanga kutambanudza chiuno nemusana uye kusimudza zvinorema zvine mwero. Asi chinhu chikuru chekurovedza muviri kwake chaive chishandiso chinonzi vibration plate . Chishandiso ichi chinoita kuti tsandanyama dziome uye dzizorore kakawanda pasekondi. Chinonzi chinowedzera simba, kuchinjika, uye kuderedza marwadzo. Tristan anochishandisa kwemaminitsi gumi mangwanani ega ega.
"Kudengenyeka ikoko kunosunungura kuomarara kwemuviri wangu. Dzimwe nguva ndinotambura zvikuru nemapfundo angu, asi mushure mekuita izvi, ndinonzwa zororo ipapo ipapo."
Mushure mekunge apora zvishoma, yakanga yava nguva yekutsvaga basa rinoenderana nehupenyu hwake hutsva. Tristan akazvidzidzisa kuronga mapurogiramu emakombiyuta. Nhasi, anoshanda semugadziri wemapurogiramu emakombiyuta.
Iye zvino Tristan anoshanda pasi pemukuru webasa anonzwisisa mamiriro ake ezvinhu nematambudziko aanosangana nawo.
"Ndichiri kunetseka kushanda kubva na9am kusvika na5pm sevamwe vese. Kumhanya-mhanya kwemangwanani ndiko kwakanyanya kuoma. Asi ndine rombo rakanaka, nekuti mukuru wangu anondinzwisisa uye anondibatsira."
"Zvakaoma kubata nekushaya hupenyu hwaunoda," anodaro. "Ndaimbova munhu anonyanya kugona kuita zvinhu zvakawanda, munhu ane hunhu hwekuti 'type-A'. Ndaifanira kugamuchira kuti handisi kukurumidza sezvandaiita kare, uye kuti handifanirwe kuita zvinhu zvakanyanyisa kuti ndifare."
"Iye zvino ndava kukwanisa kuenda kumba ndonakidzwa nemanheru akanyarara, uye ndofamba-famba mupaki. Zvaive zvakaoma kusvika padanho iri, asi maonero angu ehupenyu achinja zvachose."
| Munhu | Matambudziko makuru akatarisana nawo | Mhinduro nezvidzidzo zvakadzidzwa |
|---|---|---|
| Ivan | Kutya kurasikirwa nebasa rako, makore ekurwadziwa kwepfungwa uye kuora mwoyo. | Kutsvaga rubatsiro rwepfungwa nerwezvekurapa (ACT therapy), kurovedza muviri, kudzora kudya, kugamuchira chirwere uye kuchishandisa sesimba. |
| Tristan | Kuneta zvakanyanya, kusiya dzidzo nebasa raunorota, kuzvipa mhosva. | Kuita kuti kurovedza muviri kuve chikamu chehupenyu (vibration plate), kudzidza basa idzva, kuchinja maonero ako nezvehupenyu, kuwana mufaro muzvinhu zvidiki. |
Nyaya idzi mbiri dzinotiratidza kuti zvakaoma sei kurarama nechirwere chisingaperi seAS. Zvisinei, kana uine mazano akakodzera ekurapa, rutsigiro rwepfungwa, shanduko dzemararamiro, uye mafungiro akasimba,Vari kutiratidza kuti tinogona kukunda dambudziko iri pamwe chete. Kana uri kusangana nemamiriro ezvinhu akafanana, usafunge kuti uri wega. Taura nachiremba wako uwane rubatsiro rwaunoda.
Mharidzo Yekuenda Nayo Kumba
- Usazvipa mhosva: Kuva nechirwere chisingaperi chakadai seAS haisi mhosva yako. Kuchigamuchira ndiyo nhanho yekutanga yekupora.
- Kumbira rubatsiro: Taura pachena nachiremba wako (kunyanya chiremba wemapfupa) nezvedambudziko rako. Uyewo, kana uchinetsekana nekushushikana, usatya kutsvaga rubatsiro kubva kune anokupa mazano.
- Kurovedza muviri kwakakosha: Wedzera maitiro ekurovedza muviri akatenderwa nachiremba anoenderana nerudzi rwemuviri wako pane zvaunoita zuva nezuva. Zvakakosha zvikuru kuderedza marwadzo nekuomarara.
- Chinja hupenyu hwako: Kana zviroto zvako zvekare kana basa rako rakaoma kuenderera mberi nemamiriro ezvinhu aya, tsvaga nzira itsva. Kufanana naTristan, unogona kuwana nzvimbo itsva inokodzera hunyanzvi hwako.
- Chinja tsananguro yako yemufaro: Pane kutsvaga zvinhu zvikuru muhupenyu, dzidza kufara nezvinhu zvidiki. Izvi zvichawedzera hutano hwako hwepfungwa.
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