Uri kunetseka here nezvechimiro chechiso chemwana wako? Ngatikurukurei nezveBinder Syndrome!

Mwana wenyu paakazvarwa, makamboona here shanduko diki muchitarisiko chechiso chake? Dzimwe nguva mhino dzake dzingaratidzika sedzakatetepa, kana kuti muromo wake wepamusoro ungasave panzvimbo chaiyo. Zvakajairika kuti amai kana baba vatye kana vakaona chimwe chinhu chakadai. Asi musazvidya mwoyo, nhasi tichataura nezvechirwere chinoratidza zviratidzo zvakafanana, asi chisingawanzoitiki, chinonzi Binder Syndrome.

Chii chinonzi Binder Syndrome? Zvichitaurwa zviri nyore...

Binder syndrome chirwere chisingawanzoitiki chinoitika pakuzvarwa. Chinoratidzwa nemapfupa ari pakati pechiso, kunyanya mhino neshaya yepamusoro, asingakure zvakanaka. Zvakafanana nemaitiro emamwe madziro emba asina kuvakwa zvakanaka. Izvi zvinogona kukonzera kuti chiso chemwana chitaridzike zvakasiyana.

Funga nezvazvo, mhino dzedu nemuromo wepamusoro zvakaumbwa nekuda kwemapfupa ari pasi. Saka kana mapfupa iwayo akarega kukura, chitarisiko chawo chinochinja. Vamwe vana vanogona kunetseka kufema nekuda kwechirwere ichi, uye vanogonawo kuva nematambudziko ekudya, kunyanya pakuyamwisa . Asi mashoko akanaka ndeekuti, pane mushonga weizvi. Kazhinji, kana mwana akura zvishoma, ndiko kuti, paanosvika pazera rekuyaruka (kazhinji pakati pemakore 15-19), mapfupa aya anogona kugadziriswa uye chitarisiko chechiso chinogona kudzorerwa kuburikidza nekuvhiyiwa kwechiso neshaya (maxillofacial surgery) .

Pane mamwe mazita eBinder Syndrome here?

Ehe, vanachiremba dzimwe nguva vanoshandisa mamwe mazita padambudziko iri. Zvakanaka kuziva nekuti unogona kunzwawo mazita aya:

• Binder phenotype - Iri ndiro rimwe zita reBinder syndrome.
• Binder rudzi rwe nasomaxillary dysplasia
• Kusagadzikana kweMaxillonasal dysplasia
• Kusakwanisa kweNasomaxillary hypoplasia

Kunyange zvazvo mazita aya angaita seakaoma zvishoma, ose anoreva chinhu chimwe chete.

Chirwere ichi chinonzi Binder Syndrome chakajairika zvakadii?

Ichi chirwere chisingawanzoitiki . Sekureva kwemimwe mishumo, chirwere ichi chinoitika muvana vacheche vasingasviki mumwe chete pavana 10,000 vachangoberekwa. Saka musavhunduke nazvo. Asi, kunyangwe zvisingawanzoitiki, zvakakosha kuti muzvizive.

Ndezvipi zviratidzo zveBinder Syndrome?

Chinhu chikuru chinoratidza chirwere ichi kusakura zvakanaka pakati pechiso . Nekuda kweizvozvo, chiso chemwana chinogona kuratidza shanduko dzinotevera:

• Mhuno inova yakati sandara, uye muromo wepamusoro unova wakati sandara . Zvinogona kutaridzika sekunge mhuno yanyura mukati.
• Rushaya rwepazasi runobuda mberi.Zvinoita seizvi. Kuonekwa uku kunoitika nekuti shaya yepamusoro inopinda mukati uye shaya yepasi inopinda mberi.
• Mazino epamusoro neepasi haawirirane zvakanaka (malocclusion) . Izvi zvinogona kukonzera matambudziko pakudya nekutaura.
• Mhino dzinoita sedzakaita setriangle kana kuti crescent .

Izvi ndizvo zviratidzo zvinonyanya kuzivikanwa. Zvisinei, pamusoro pezvo, unogona kuonawo zviratidzo zvinotevera mune zvisingawanzoitiki :

• Mukanwa wakachekwa .
• Zvirwere zvemwoyo zvekuzvarwa nazvo .
• Kutadza kunzwa zvakanaka .
• Kuremara kwepfungwa .
• Kukanganisika kwemusana .
• Maziso akapatsanurwa kana kuti maziso akapatsanurwa .

Havasi vana vese vanozove nezviratidzo izvi zvese. Vamwe vana vanogona kunge vaine zviratidzo zvekutanga chete.

Sei Binder Syndrome ichiitika? Ndezvipi zvikonzero?

Kutaura chokwadi, nyanzvi hadzisati dzawana kuti chii chinokonzera izvi . Kazhinji, vana vanokura nechirwere ichi pasina chikonzero chakajeka.

Zvisinei, sezvo vana vakati wandei mune dzimwe mhuri vaine chirwere ichi, zvinofungidzirwa kuti panogona kunge paine zvinhu zvinokonzerwa nemajini, kureva kuti, simba remajini . Zvisinei, izvi hazvisati zvaratidzwa zvakajeka.

Pamusoro pezvo, vaongorori vanotenda kuti zvinhu zvakati wandei zvakatipoteredza zvinogonawo kuita basa racho. Zvinhu zvakadaro zvinosanganisira:

• Kunwa doro naamai panguva yekuzvitakura.
• Kusangana nemimwe mishonga panguva yekuzvitakura. Mienzaniso inosanganisira anti-epileptic phenytoin (Dilantin®, Phenytek®) uye blood thinner warfarin (Coumadin®, Jantoven®). (Mishonga iyi inofanira kutorwa pasi pekutarisirwa nachiremba kana zvichidikanwa, asi kungwarira kwakakosha kunofanira kutorwa panguva yekuzvitakura.)
• Kushaikwa kweVitamin K panguva yekuzvitakura.
• Kukuvara mumusoro kana kumeso panguva yekuzvarwa.

Izvi ndizvo zvinhu zvinozivikanwa pari zvino zvine njodzi.

Vanachiremba vanoongorora sei Binder Syndrome?

Vanachiremba vanotanga vafungidzira dambudziko iri nekutarisa chitarisiko chechiso chemwana . Zvadaro, kuti vasimbise kana kubvisa fungidziro iyoyo, vanoita bvunzo dzakakosha dzinogona kuona zvakajeka chimiro chemapfupa echiso . Idzi dzinonzi:

• Kuongororwa kweCT
• Kuongororwa kweMRI (MRI)
• Kuongororwa kweUltrasound (ultrasound)

Kuburikidza nekuongororwa uku, tinogona kuona nemazvo kusakura kwemapfupa echiso.

Ndeipi mishonga yekurapa Binder Syndrome?

Kurapwa kweizvi kunosiyana kubva pamwana kuenda kumwana, uye zvinoenderanawo nekuoma kwezviratidzo.Zvinosiyana. Kune nzira mbiri huru dzekurapa:

1. Kutarisirwa kwemazino:

• Izvi zvinosanganisira kuisa waya (braces) mumuromo kuti shaya nemazino zvienderane zvakanaka .
• Dzimwe nguva, kana zviratidzo zvisiri zvakanyanya, kurapwa kwemazino uku chete kunogona kukwana.
• Mune zvimwe zviitiko, kurapwa uku kungada kuitwa usati wavhiyiwa kana kuti mushure mekuvhiyiwa.

2. Kuvhiyiwa:

• Iyi ndiyo nzira huru yekurapa. Chiremba wepfungwa (chiremba anonyanya kuongorora dehenya nechiso) ndiye anoita maoparesheni aya.
• Mukuita izvi, chimiro chemhino chinogadziriswazve uchishandisa mapfupa, cartilage, kana zvinhu zvakagadzirwa kubva mumuviri wemwana . Izvi zvinonziwo rhinoplasty .
• Uyewo, rudzi rwekuvhiya runonzi Le Fort I kana II osteotomy runogona kuitwa kuti shaya yepamusoro igare panzvimbo yakakodzera. Uku kuvhiya kwakaoma, asi vanachiremba vane ruzivo vanogona kuzviita zvinobudirira.
• Vanachiremba vanowanzokurudzira kuti mwana amirire kusvika mapfupa echiso chake amira kukura zvachose asati aita oparesheni iyi, iyo inowanzova pakati pemakore gumi nemashanu negumi nemapfumbamwe. Izvi zvinodaro nekuti kana ikamboitwa kare, matambudziko anogona kudzoka sezvo mapfupa acho achiramba achikura.

Zvakakosha: Havasi vana vese vanoda kurapwa kwese kuri kuviri. Vamwe vana vangangoda kurapwa kumwe chete. Izvi zvichasarudzwa nechikwata chevanachiremba mushure mekuongororwa kwemwana.

Dambudziko iri rinonzi Binder Syndrome rinogona kudzivirirwa here?

Sezvo chikonzero chaicho cheizvi chisingazivikanwi, hazvigoneke kuvimbisa kuti zvinogona kudzivirirwa zvachose .

Zvisinei, kana uine pamuviri, unogona kuderedza njodzi yako yekubatwa nechirwere ichi kusvika pamwero wakati nekuderedza kusangana kwako nezvimwe zvezvinhu zvatakakurukura kare. Unogona kutaura nachiremba wako nezveizvi:

• Kuchengetedzeka kwemishonga panguva yekuzvitakura , kunyanya phenytoin newarfarin (musatore chero mushonga kunze kwekunge wanyorerwa nachiremba, uye kana wanyorerwa, taurai nachiremba wenyu nezvazvo).
• Nezvekushomeka kwemavhitamini, kunyanya kushomeka kwevhitamini K. Zvakakosha zvikuru kuwana kudya kwakakodzera panguva yekuzvitakura.

Ndeipi tarisiro yemwana ane Binder Syndrome?

Aya ndiwo mashoko akanakisa. Pane tarisiro yakanaka yemamiriro ezvinhu aya .

Vana vazhinji havadi kurapwa zvakare mushure mekuvhiyiwa kwe rhinoplasty. Vanogona kufema zvakanaka, kudya zvakanaka, uye chitarisiko chavo chechiso chinovandudzika mushure mekuvhiyiwa.Zvinogoneka. Saka hapana chekunetseka nacho, asi chinonyanya kukosha kutsvaga mazano echiremba nekukurumidza.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Kana ukaona kuti iwe kana mwana wako ane Binder Syndrome, unogona kubvunza chiremba wako mibvunzo yakaita seiyi. Iyi ichakubatsira kunzwisisa chirwere chacho:

• "Chiremba, chii chingave chiri chikonzero chikuru chechirwere chemwana wangu? "
• " Ndedzipi bvunzo dzinoitwa kuti vaongorore chirwere ichi cheBinder Syndrome nemazvo? "
• " Ndedzipi nzira dzekurapa izvi? Chii chakanakira mwana wangu?"
• " Ndeipi mikana yekuti munhu achazoda kurapwa zvakare gare gare muhupenyu? "
• "Kana ndikava nemumwe mwana, mikana yekuti iyewo achava nechirwere ichi ndeipi? "

Pamusoro pemibvunzo iyi, bvunza chiremba wako chero chauri kufunga nezvacho.

Ndezvipi zvimwe zvirwere zvine zviratidzo zvakafanana neBinder Syndrome?

Kune zvimwe zvirwere zvakawanda zvinokanganisa kukura kwemapfupa echiso uye zvakafanana neBinder syndrome. Vanachiremba vanonetsekawo nezvazvo. Mimwe mienzaniso ndeiyi:

• Acrodysostosis
• Chirwere cheApert
• Chondrodysplasia punctata, rhizomelic type (CDPR)
• Fetal warfarin syndrome (chirwere chinokonzerwa nekusangana newarfarin panguva yekuzvitakura)
• Keutel syndrome
• Chirwere cheStickler

Ingo ziva mazita aya. Vanachiremba ndivo vachaona kuti mwana wako ane chirwere chipi chaizvo.

Pakupedzisira, zvinhu zvekurangarira (Mharidzo Yekuenda Kumba)

Zvakanaka, saka ngatipfupisei zvatataura nezvazvo:

• Binder Syndrome chirwere chisingawanzoitiki, chinongoitika kuzvarwa nacho .
• Izvi zvinokonzera kudzikira kwekukura kwemapfupa pakati pechiso, kunyanya mhino neshaya yepamusoro . Izvi zvinoguma nezviratidzo zvakaita semhino yakati sandara uye shaya yepasi yakabudikira.
• Chikonzero chaicho cheizvi hachizivikanwe , asi majini nezvinhu zvakatikomberedza zvinogona kunge zvichikonzera izvi.
• Dambudziko iri rinogona kurapwa zvinobudirira nekurapa mazino emusana uye/kana kuvhiyiwa .
• Vana vazhinji vanowana mhedzisiro yakanaka mushure mekurapwa uye vanogona kurarama hupenyu hwakajairika.

Kana muine zvinokunetsai kana zvinokunetsai nezvechitarisiko chechiso chemwana wenyu, ndapota shanyirai chiremba ane hunyanzvi nekukurumidza . Chinhu chakakosha hakusi kutya, asi kuwana ruzivo rwakakodzera nenhungamiro. Vanachiremba varipo kuti vakubatsirei.

Ndinovimba ruzivo urwu ruchakubatsira. Ndinokushuvira iwe nemhuri yako hutano hwakanaka!