Mwana wenyu angoerekana ava nepfari here? Ngatidzidzei nezve Cortical Dysplasia!

Mwana wako mudiki angoerekana abatwa nepfari here? Kana kuti pane waunoziva ane zviratidzo zvepfari zvakadai here? Dzimwe nguva tinotya zvikuru patinoona zvinhu izvi, handiti? Chimwe chikonzero cheizvi chingave chirwere chepfungwa chausingambonzwa nezvacho. Nhasi tichataura nezvechimwe chirwere chakadaro, chinonzi Cortical Dysplasia . Kunyange zvazvo zita racho ringanzwika serakaoma, ngatiritsanangure.

Chii chinonzi cortical dysplasia?

Zvichitaurwa zviri nyore, cortical dysplasia chirwere chisingawanzoitiki chinogona kukonzera pfari . Dzimwe nguva vanachiremba vanoti focal cortical dysplasia, kana (FCD). Chinonzi "co-ticle" uye "dys-pla-sia."

Dambudziko iri rinokanganisa cerebral cortex yako. Kureva, chikamu chekunze cheuropi hwedu. Fungidzira, iyi cerebral cortex inodzora zvinhu zvakawanda zvakakosha zvakaita sekufamba kwemuviri wedu, pfungwa dzedu, kutaura, kurangarira, njere, uye hunhu. Zvakafanana ne 'CPU' yekombuta yedu.

Izwi rezvekurapa rekuti "dysplasia" rinoreva kukura kusingawanzoitiki kwemasero mumuviri. Saka, mumunhu ane cortical dysplasia, masero ari mucerebral cortex, kana masero europi, haakure zvakanaka. Izvi zvinoitika mwana achiri mudumbu .

Ndeapi marudzi makuru e cortical dysplasia?

Vanachiremba vanopatsanura chirwere ichi, chinonzi cortical dysplasia, kuita mhando nhatu huru, zvichienderana nekuti ndeapi mativi e cerebral cortex (lobes) anokanganisa, kana kuti masero asina kujairika anoumbwa sei muuropi.

Rudzi 1

Murudzi urwu, masero asina kujairika akaumbwa mu cortex yako, kana masero europi asina kurongeka sezvaanofanira kunge akaita. Izvi zvinogona kukanganisa chero chikamu cheuropi. Asi chinowanzoitika mu temporal lobe , inova chikamu cheuropi chiri kune nzeve, kana frontal lobe , inova chikamu chiri kune huma.

Rudzi rwechipiri

Murudzi urwu, masero ari mucerebral cortex akakura kupfuura akajairwa, kana kuti ane chitarisiko chakasiyana. Rudzi rwechipiri urwu rwakaoma uye rwakakomba kupfuura rwekutanga. Runowanzo kanganisawo frontal ne temporal lobes.

Rudzi rwechitatu

Rudzi urwu runoitika kana uine cortical dysplasia rudzi 1 kana rudzi 2 nezvimwe zvirwere muuropi. Semuenzaniso, zvinogona kuitika nebundu remuuropi, mitsipa yeropa isingawanzoitiki, kana maronda emuuropi. Chikamu cheuropi chakanganiswa chinoenderana nekuti bundu iri kupi kana nzvimbo yeuropi yakakuvara.

Zviratidzo zvacho ndezvipi? Unozviziva sei ?

Mu cortical dysplasiaChiratidzo chikuru uye chinowanzoonekwa pfari. Izvi ndizvo zvatinodaidzawo kuti pfari. Pfari iyi inogona kuuya nenzira dzakasiyana:

• Kubatwa nepfungwa: Izvi zvinotangira kune rumwe rutivi rweuropi. Hazvipararire kune rumwe rutivi. Unogona kusangana nezvinhu zvakaita sekugwinha nekudedera panguva iyi. Asi havasi vese vanonzwisisa izvozvo. Ungangonzwa zvisinganzwisisike kana zvakasiyana.
• Kubatwa neTonic-clonic (Grand Mal): Rudzi urwu rwekubatwa nepfungwa runokanganisa mativi ese europi. Apa ndipo apo muviri unozununguka uye unodedera zvisingadzoreki. Zvinokanganisa mativi ese emuviri.
• Kugwinha Kwevana Vacheche: Uku kugwinha kwemwana kunowanzoitika kuvana vari pasi pegore rimwe chete . Muizvi, mwana anongoerekana atambanudza maoko ake, makumbo, nemutsipa, obva akurumidza kuzvidzosera shure. Zvinoita sekunge ari kugwinha. Izvi zvinogona kuitika kakawanda pazuva.

Chinhu chakakosha ndechekuti pfari idzi dzinogona kutanga chero nguva muhupenyu. Vamwe vanhu vanotanga kudzibata vachiri vadiki, panguva yehucheche. Asi vamwe vanogona kutanga kubatwa nepfari kekutanga muhupenyu hwavo.

Pamusoro pepfari, unogona kusangana nezvimwe zviratidzo:

• Kuomerwa nekuisa pfungwa panzvimbo imwe chete, kutadza kuchengeta pfungwa dziri panzvimbo imwe chete .
• Kuomerwa nekudzidza zvinhu zvitsva nepfungwa itsva.
• Kushaya simba kwetsandanyama kune rumwe rutivi rwemuviri (hemiparesis).

Cortical dysplasia inogonawo kukanganisa chimiro cheuropi. Asi chiremba anogona kuona shanduko idzi chete neMRI scan, inova ndiyo nzira chete yekuziva shanduko dziri mu cortex (grey matter) yeuropi.

Sei izvi zvichiitika? Chikonzero chacho ndechei?

Cortical dysplasia chirwere chinokonzerwa nemajini . Izvi zvinoreva kuti nekuda kwekuchinja kwemajini, uropi hahukure zvakanaka panguva yekukura kwemwana ari mudumbu, ndiko kuti, mwana ari kukura mudumbu.

Asi vaongorori havasati vakwanisa kutaura kuti shanduko yemajini inokonzera izvi chii chaizvo. Vachiri kutsvaga zvikonzero zvinogona kukonzera izvi.

Dzimwe nyanzvi dzinofunga kuti Type 2 cortical dysplasia inokonzerwa nekuchinja kwemajini kunonzi MTOR pathway . Majini aya anogadzira puroteni inobatsira masero edu, kunyanya masero europi, kukura nekukura. Saka kana paine kuchinja kwemajini eMTOR, zvinogona kukonzera kukura kwemhando isiriyo yemasero.

Vanachiremba vanoongorora sei izvi? (Kuongororwa)

Chiremba anoongorora cortical dysplasia kuburikidza nekuongororwa kwakanangana kwemifananidzo .

Unofanira kuudza chiremba wako nezvezviratidzo zvako uye kuti wakatanga kuzviona riini. Kana zvichibvira, zvakakosha kupa ruzivo nezvezviitiko zvako zvepfari (semuenzaniso kuti zvakatanga sei, kuti zvakatora nguva yakareba sei, zvaiitika panguva iyoyo, nezvimwewo) nekuti ruzivo urwu runogona kukubatsira kuti uzive chirwere chacho.Chiremba anogona kuziva kuti rudzii rwechirwere ichi.

Chiremba achatora mifananidzo yehuropi hwako kuti aone kana paine masero asina kumira zvakanaka mu cerebral cortex. Miedzo yavanogona kushandisa pakuita izvi ndeiyi:

• `MRI (Magnetic Resonance Imaging):` Izvi zvinogona kutora mifananidzo yakajeka yehuropi.
• `EEG (Electroencephalogram)`: Izvi zvinoyera mashandiro emagetsi europi. Izvi zvinobatsira kuwana kwakabva pfari.
• `MEG (Magnetoencephalography):` Iyi bvunzo inotarisa mashandiro ehuropi, sezvakaita `EEG.`
• "PET scan (Positron Emission Tomography scan)"
• `SPECT scan (Single Photon Emission Computed Tomography scan)`

Miedzo iyi yese ndeyekutarisa zviri kuitika muuropi.

Ndeapi marapirwo aripo?

Chiremba wako achakurudzira kurapwa kudzora zviratidzo zvako uye kuderedza kuwanda kwepfari dzine epileptic.

Kazhinji vanotanga nemishonga yekudzivirira pfari . Asi heino nyaya. Cortical dysplasia dzimwe nguva inogona kukonzera pfari isingarapike nemishonga. Izvi zvinoreva kuti zvinogona kuoma kudzora nemishonga pane pfari yenguva dzose. Kunyange zvazvo mishonga ingashanda pakutanga, inogona kushaya simba nekufamba kwenguva.

Kutevera kudya kwe ketogenic (kana keto diet) kunogona kubatsira kuderedza kuwanda kwepfari. Izvi zvinosanganisira kudya kudya kune mafuta akawanda uye makabhohaidhiretsi mashoma. Izvi zvinoshandura nzira iyo uropi hunowana simba. Unogona zvakare kutsvaga rubatsiro kubva kune nyanzvi yezvekudya kuti ikubatsire kuchinjira kune rudzi urwu rwekudya.

Kana mamwe marapirwo asinganyatso dzora pfari yako, ungangoda kuvhiyiwa pfari . Chiremba wako achakutsanangurira rudzi rwekuvhiyiwa kwauchaita uye zvaunofanira kutarisira.

Dambudziko iri rinogona kubviswa zvachose nekuvhiyiwa here?

Chiremba wako anogona kukwanisa kubvisa chirwere ichi. Izvi zvinoenderana nezvinhu zvakati wandei:

• Une rudzii rwe cortical dysplasia?
• Pfari inotangira kupi muuropi?
• Kuoma kwechirwere che dysplasia.

Kana chiremba achigona kubvisa masero asina kujairika asingakanganisi mashandiro europi hwako, zvakanaka. Kubvisa masero aya kunogona kuderedza kuwanda kwechirwere uye kuderedza huwandu hwemishonga yaunofanira kutora. Zvisinei, dzimwe nguva kana uchifanira kubvisa masero ese asina kujairika, ungatofanira kubvisawo mamwe matishu europi akanaka.Kana izvi zvikaitika, kugona kwako kufamba, kuona, uye kunzwa mune dzimwe pfungwa kunogona kukanganiswa. Chiremba wako achakutsanangurira zvese zvakanakira nekuipira kwekuvhiyiwa uku uye achakubatsira kusarudza kana kwakakunakira.

Imwe nzira ndeyekuparadzanisa masero aya asina kujairika kubva kune dzimwe nzvimbo dzeuropi. Izvi zvinomisa kupararira kwepfari kubva kumasero iwayo. Dzimwe nguva, chiremba anogonawo kuparadza masero aya asina kujairika ne "laser treatment", iyo isina njodzi yakawanda uye isingakuvadzi zvakanyanya kupfuura kuvhiyiwa kweuropi kwechinyakare.

Cortical dysplasia yakakomba sei?

Chero chirwere chinokanganisa uropi chinogona kunge chakakomba. Cortical dysplasia ndeimwe yezvirwere zvakadaro. Asi usazvidya mwoyo . Chiremba wako achawana nzira dzekugadzirisa pfari yako nezvimwe zviratidzo. Zvishoma nezvishoma, uchakwanisa kuderedza kukanganisa kunoita chirwere ichi pahupenyu hwako hwezuva nezuva.

Izvi zvinogona kurapwa zvachose here?

Zvinogoneka, kunyanya mushure mekuvhiyiwa, kuti usazombofa wakarwara zvakare. Inyaya huru iyoyo!

Zvisinei, cortical dysplasia haisi mushonga we "kurapa" sekutora mushonga wedzihwa. Kurapa kunonyanya kutarisisa kugadzirisa zviratidzo nepfari pane kutsvaga mushonga .

Hupenyu huchava hwakaita sei kana paine dambudziko iri?

Cortical dysplasia kazhinji haikonzeri matambudziko anouraya kana kukanganisa hupenyu hwako. Aya mashoko akanaka. Zvisinei, kana uchigara uine pfari dzakakomba (kunyanya tonic-clonic seizures), zvinogona kuwedzera njodzi yako yekufa nekukurumidza . Kana uchinetseka nezvekuti izvi zvingakanganisa sei hutano hwako hwenguva refu, taura nachiremba wako. Iye anogona kukubatsira kuti ugare wakachengeteka uye uine hutano.

Tinofanira kuona chiremba rini?

Chiremba wako achakuudza kuti unofanira kudzoka kangani ('kushanya kwekutevera') uye kuti ndeapi maedzo aunofanira kuita. Pakutanga, kunyanya mushure mekutanga kurapwa uye usati wavhiyiwa uye mushure mekuvhiyiwa, uchafanira kuona chiremba wako kakawanda.

Zvakakosha: Kana uine pfari dzakawanda, kana kuti dzichiita sedzakanyanya kuipa kupfuura kare, iva nechokwadi chekuudza chiremba wako . Zvingave chiratidzo chekuti mushonga wako unofanirwa kuchinjwa, kana kuti ungave uchitanga pfari isingarapike nemishonga.

Chii chekuita kana paine emergency?

Kana uine pfari inogara kwemaminitsi anopfuura mashanu, kana kuti uine pfari dzakawanda dzakatevedzana, fonera 911 (kana nhamba yako yekukurumidzira yemuno) nekukasika. Iyi idambudziko.

Mibvunzo inokosha yekubvunza chiremba wako

Kana ukaona chiremba wako, usazeza kubvunza mibvunzo yakaita seiyi:

• Nderudzii rwe cortical dysplasia rwandinarwo?
• Mishonga yepfari inoshanda here kwandiri?
• Ndirini pandinofanira kufunga nezvekuvhiyiwa?
• Rudzii rwekuvhiya rwandinakira?

Zvakaoma kufungidzira kuti masero madiki mashoma ari muuropi anogona sei kukanganisa hutano hwedu. Asi, bvunza chiremba wako kana chiremba wepfungwa chero mibvunzo kana zvinokunetsa . Vachatsanangura zvese zvaunoda kuziva nezvezviri kuitika muuropi hwako nemuviri wako, uye zvavanogona kuita kuti unzwe zviri nani.

Heino pfupiso yezvatakakurukura (Mharidzo Yekuenda Kumba):

Zvakanaka, saka ikozvino wava kunzwisisa zviri nani Cortical Dysplasia yatataura nezvayo nhasi. Yeuka:

• Ichi chirwere chinoitika kana masero europi asingakure zvakanaka uye chinogona kukonzera pfari .
• Izvi zvinogona kunge zvichikonzerwa nezvikonzero zvemajini .
• Chiratidzo chikuru mhando dzakasiyana dzepfari .
• Izvi zvinoonekwa kuburikidza nemiedzo yakakosha yakaita seMRI.
• Nzira dzekurapa dzinosanganisira mishonga, kudya kwe ketogenic, uye, kana zvichidikanwa, kuvhiyiwa .
• Pane kutaura nezve "mushonga" wakakwana, zvakakosha kudzora zviratidzo .
• Zvinokwanisika kurarama hupenyu hwakajairika uine chirwere ichi, asi unofanira kungwarira nezvepfari dzakakomba.
• Zvakakosha kugara uchitaura nachiremba wako uye kutevedzera zvaanotaura.

Kana iwe kana mumwe munhu waunoziva aine zviratidzo izvi, usazeza kuona chiremba kuti akupe mazano. Kuongororwa nekukurumidza uye kurapwa kunogona kuita mutsauko mukuru.

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