Mwana wenyu ari kusangana nematambudziko ekufamba kwemaziso here? Ngatikurukurei nezveDuane Syndrome!

Wakamboona here kuti vamwe vana vanonetseka nekutendeudza maziso avo nenzira imwe chete? Kana kuti zvinoita sekunge ziso rimwe rakatarisa mhino uye rimwe rakatarisa nzeve. Zvakajairika kuti vabereki vanzwe kunetseka zvikuru pavanoona chimwe chinhu chakadai, kunyanya kana chikaitika kumwana wavo. Duane Syndrome, yatichataura nezvayo nhasi, idambudziko rekuzvarwa naro rinoitika nekufamba kwemaziso. Zvichitaurwa zviri nyore, iyi imhando ye strabismus.

Chii chinonzi Duane Syndrome? Ungatsanangura zvishoma here?

Zvakanaka, ngatitsanangurei izvi zviri nyore. Munhu ane Duane Syndrome anonetseka nekutendeudza maziso ake kurutivi, kureva kuti, kurutivi rwemhino nerutivi rwenzeve. Ingave ziso rimwe chete, ingave maziso ese ari maviri. Kuwedzera pakuomerwa nekutendeudza maziso aya kurutivi, vamwe vanhu vanogonawo kunetseka nekutarira kumusoro nekudzika.

Chimwe chinhu ndechekuti maziso haaenderane, anotarira divi, uye kunyange maziso anogona kufamba zvakasiyana kana achiedza kufambisa maziso. Chikonzero chikuru cheizvi ndechekuti tsinga (tsinga dzemusoro) dzinodzora tsandanyama dziri mumaziso edu hadzishande nemazvo. Fungidzira, zvakafanana nekusakwanisa kutenderedza chidhiraivho chemotokari munzira dzese dziri mbiri.

Kazhinji, pakati pe80% ne90%, chirwere ichi chinokanganisa ziso rimwe chete (rimwe chete). Zvakaonekwawo kuti ziso rekuruboshwe ndiro rinonyanya kubatwa .

Pane mamwe mazita here eizvi?

Ehe, kune mamwe mazita akawanda anoshandiswa pakurapa Duane Syndrome. Usazvidya moyo kana chiremba wako akataura rimwe remazita aya, ese ari maviri akafanana.

• Duane retraction syndrome
• Chirwere chekudzora maziso
• Retraction syndrome kana congenital retraction syndrome
• Duane radial ray syndrome
• Chirwere cheStilling-Turk-Duane

Zvakanaka kuziva mazita aya, nekuti dzimwe nguva mazita aya anogona kuonekwa muzvinyorwa zvekurapa.

Kune marudzi eDuane Syndrome here?

Ehe, sezvatiri kutaura nezvechikafu, kune mhando nhatu huru dzeDuane syndrome. Dzinonzi mhando 1, mhando 2, uye mhando 3. Ngatitarisei mhando imwe neimwe zvakasiyana.

Duane syndrome yerudzi rwekutanga

Rudzi urwu ndirwo rwakajairika , rwunoverengera 78% yevarwere vese vane Duane syndrome.

Kana iwe kana mwana wako muine rudzi rwekutanga, zvakaoma kutarira ziso kunze, kureva kuti, kunzeve.Asi unogona kutendeudza ziso rako kurutivi rwemhino yako. Asi kana ukadaro, muromo uripo ziso unenge mudiki, uye bhora reziso rinogona kuita serinodhonza. Dzimwe nguva ziso rinogona kuita seriri kudhonzwa kurutivi rwemhino yako (esotropia).

Duane syndrome yerudzi rwechipiri

Rudzi urwu ndirwo rusingawanzoitiki , rwunokwana vanhu vanosvika 7% vane chirwere ichi.

Munhu ane rudzi rwechipiri ane mukana mudiki wekutendeudza maziso mukati, kureva kuti, akananga kumhino . Zvisinei, vanogona kutendeudza maziso akananga kunzeve. Zvisinei, pavanodaro, kuvhura kweziso kunova kudiki, sezvakaita rudzi rwekutanga, uye bhora reziso rinogona kuita seriri kupinda mukati. Vanhu ava vanogona kunge vakatarisa kunze, vakananga kunzeve (exotropia).

Duane syndrome yerudzi rwechitatu

Rudzi urwu runobata vanenge 15% yevarwere vese.

Munhu ane chirwere cherudzi rwechitatu haakwanise kutenderedza maziso ake kumativi ese, mukati nekunze . Uyewo, kana akatariswa kubva kumativi akasiyana, nzvimbo yeziso inogona kuita seyakatetepa uye bhora reziso rinogona kuita seriri kupinda mukati.

Kurongwa uku kwakakosha kuti vanachiremba varonge kurapwa uye vanzwisise rudzi rwechirwere.

Duane Syndrome yakajairika zvakadii?

Zvichienderana nenhamba dziri muUnited States, vanhu vanosvika 4%, kana kuti vanhu vanosvika mamiriyoni gumi nematatu, vane rudzi rwestrabismus. Zvinofungidzirwa kuti pakati pe1% ne5% yevanhu vane chirwere ichi vane Duane syndrome.

Chimwe chinhu ndechekuti chirwere ichi chinowanzoitika pakati pevakadzi .

Ndezvipi zviratidzo zveizvi? Vana vadiki vanoonawo izvi here?

Ehe, zvimwe zvezviratidzo zveDuane syndrome zvinogona kuonekwa kunyangwe kuvana vadiki. Ngationei kuti zviratidzo zvikuru ndezvipi:

• Kurereka musoro zvisina kujairika: Vamwe vanhu vane Duane syndrome vanowanzorereka misoro yavo kudivi vachiedza kuchengetedza maziso avo akatwasuka. Funga nezvazvo sekurereka musoro wako paunotarisa mufananidzo wakarembera pamadziro.
• Strabismus: Dzimwe nguva, asi kwete nguva dzose, zvinoita sekunge maziso ese ari maviri haana kutarisa divi rimwe chete .
• Amblyopia kana kuti ziso rine usimbe: Izvi zvinonziwo "ziso rine usimbe." Uropi pahunojaira ziso rakanaka, hunotanga kusateerera zviratidzo zvinobva kuziso rakakanganiswa. Izvi zvinogona kukonzera kusaona zvakanaka muziso iroro nekufamba kwenguva.
• Ziso rimwe richiratidzika sediki pane rimwe: Izvi zvinokonzerwa nekutetepa kwemboni yeziso.
• Kufambisa maziso mudenga kana pasi kana wakatarisa kune rimwe divi: Izvi zvinonzi "kukwira-kudzika" kana "kudzika-kudzika". Zvinogona kuita sekuti maziso ari kusvetuka-svetuka kana kudzika kamwe kamwe.

Kana ukaona zviratidzo izvi mumwana wako, zvakakosha kuti uone chiremba wemaziso kuti akupe mazano.

Vanhu vane Duane Syndrome vanogona here kuva nezvimwe zvirwere?

Kunyange zvazvo zvisiri nguva dzose, Duane syndrome dzimwe nguva inogona kuperekedzwa nemamwe matambudziko ehutano. Mamwe acho anosanganisira:

• Matambudziko ekunzwa
• Goldenhar syndrome: Ichi chirwere chinokonzera kusashanda zvakanaka kwechiso, nzeve, uye musana.
• Matambudziko nemusana wako kana vertebrae

Pamusoro pezvo, mamwe matambudziko emaziso anogona kuitika pamwe chete neDuane syndrome. Semuenzaniso:

• Cataract: Izvi zvinoreva kuvharika kwelenzi yeziso.
• Microphthalmos: Muchiitiko ichi, ziso rinova diki zvisina kujairika.
• Nystagmus: Apa ndipo panofamba maziso nekukurumidza uye zvisingadzoreki.
• Chirwere chemisodzi yengwena: Izvi zvine chekuita nedambudziko rekushaya simba kwetsinga dzechiso rinonzi Bell's palsy. Muchirwere ichi, misodzi inobuda kana munhu achidya kana kunwa chimwe chinhu.

Saka, kana chirwere cheDuane chikaonekwa, vanachiremba vanoongororawo zvimwe zvirwere zvakafanana.

Ndezvipi zvinokonzera Duane Syndrome?

Duane syndrome chirwere chinokonzerwa nemajini, asi hachiwanzogarwa nhaka . Matambudziko aya ekufamba kwemaziso anokonzerwa, sezvambotaurwa, nematambudziko etsinga dzemusoro dzinodzora kufamba kwemaziso edu.

Zvikuru sei, zvakaonekwa kuti vana vevanaamai vanobatwa nemushonga wethalidomide panguva yekuzvitakura vane mukana wekuti vabatwe neDuane syndrome (mushonga uyu hauchashandiswi pachinangwa ichi).

Vanhu vanosvika gumi muzana vane Duane syndrome vane vamwe vemumhuri vanewo chirwere ichi. Muzviitiko zvemhuri zvakadaro, maziso ese ari maviri anowanzo kanganiswa (mativi ese).

Kana Duane syndrome ikagara nhaka, inokonzerwa nemwana anogara nhaka yemhando yemajini `CHN1`, `MAFB`, kana `SALL4` kubva kuvabereki vake. Maitiro aya ekugara nhaka anonzi `autosomal dominant` . Izvi zvinoreva kuti inogona kuitika zvisinei nekuti murume kana mukadzi, uye kunyangwe kana mubereki mumwe chete ane chirwere ichi, mwana anogona kugara nhaka.

Duane Syndrome inotapukira here?

Kwete, kwete zvachose. Duane syndrome haisi chirwere chinotapuriranwa. Kureva kuti, hachitapurirwi kubva kune mumwe munhu kuenda kune mumwe sedzihwa kana furuu. Saka hapana chikonzero chekuitya.

Duane Syndrome inoonekwa sei?

Chiremba wako, kunyanya chiremba wemaziso, achaongorora nhoroondo yezvekurapa kwako nekungwarira. Achaongorora huwandu hwemvura iri mumaziso ako uye kuti unogona kuatenderedza kusvika papi kubva kurutivi kuenda kurutivi.

Chiremba anogonawo kuraira bvunzo kuti aongorore zvimwe zvirwere zvinogona kunge zvakabatana neDuane syndrome.

Kune rimwe dambudziko rinonzi sixth cranial nerve palsy, rakafanana zvikuru neDuane syndrome, asi hariwanzoitiki. Chiremba achaedzawo kusiyanisa pakati pezvirwere zviviri izvi.

Duane Syndrome inorapwa sei?

Nzira dzekurapa dzinoenderana nezera rako, kuoma kwechirwere, uye chero zvimwe zvirwere zvaungave nazvo.

• Vamwe vanhu vangasada kurapwa: Vamwe vanhu vane Duane syndrome havadi kurapwa kwakasiyana. Vanongoda kuramba vachiona chiremba wemaziso uye kuongororwa maziso avo.
• Kurapa Ziso Rine Utsi (Amblyopia): Kana iwewo uine ziso rine utsi, unogona kuedza kuvandudza kuona kweziso iroro nekuvhara ziso rakanaka nechidimbu uye kuita kuti ziso risina simba rishande nesimba. Izvi zvakafanana nekukumbira mwana akangwara mukirasi kuti amire padivi kwechinguva achipa mumwe mwana mukana.
• Kuvhiyiwa: Kana chirwere cheDuane chakanyanya kuipa, kuvhiyiwa kungadiwa kugadzirisa tsandanyama dzemaziso. Kuvhiyiwa uku hakugone kugadzirisa dambudziko retsinga, asi kunogona kubatsira kugadzirisa tsandanyama dzemaziso, kuderedza kutsveyama kwemusoro kusina kujairika, kuchengetedza maziso akatwasuka kana akatarisa mberi, uye kudzora kutsveyama/kudzika kwetsandanyama.

Yeuka kuti havasi vese vanoda kuvhiyiwa. Izvi zviri kuna chiremba wako kuti asarudze.

Duane Syndrome inogona kudzivirirwa here?

Panguva ino, hapana nzira yekudzivirira Duane syndrome. Mushonga wethalidomide, unogona kukonzera Duane syndrome (pakati pezvimwe zvikanganiso zvakawanda zvekuzvarwa nazvo), hauchashandiswi. Saka hapana chikonzero chekuutya.

Kana ndine Duane Syndrome, chii chandinofanira kutarisira?

Vamwe vanhu vane Duane syndrome vanogona kutendeudza pfungwa dzavo zvishoma, vovandudza kuona kwavo, uye vorarama hupenyu hwakajairika. Mune zvimwe zviitiko, kuvhiyiwa kunogona kudiwa, sezvambotaurwa.

Kana uine chimwe chirwere pamwe chete neDuane syndrome, chiremba wako acharapawo chirwere ichocho.

Unogonawo kukurudzirwa kupfeka magirazi kuti uvandudze kuona uye/kana kugadzirisa nzvimbo yemaziso ako.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Unogona kubvunza chiremba wako mibvunzo yakaita seiyi:

• Ndinofanira kuona chiremba wezvemajini here? (Kunyanya kana mumwe munhu mumhuri aine chirwere ichi, kana kuti ndiri kutarisira vana vakawanda).
• Pane zvishandiso zvinobatsira kuona here?

Chiremba anowanzo ongorora mwana ane Duane syndrome mukati memakore gumi ekutanga ehupenyu hwake. Kana uine zvinokunetsa nezvekuona kwako kana kuona kwemwana wako, enda kuna chiremba nekukasika. Chiremba wako anogona kukubatsira kusarudza mushonga wakanakisa weDuane syndrome uye kurapa amblyopia kana iripo.

Pakupedzisira, zvinhu zvekurangarira (Mharidzo Yekuenda Kumba)

Zvakanaka, saka, kuti tipfupise Duane Syndrome yatave tichitaura nezvayo, yeuka zvinhu izvi:

• Duane syndrome chirwere chekuzvarwa nacho chinoita kuti zviome kutenderedza maziso kubva kurutivi kuenda kurutivi.
• Ichi hachisi chirwere chinotapuriranwa.
• Zviratidzo zvinosanganisira kutendeudza musoro kurutivi, kutsvedza, uye kusaona zvakanaka muziso rimwe chete.
• Kune mhando nhatu dzeizvi, uye dzimwe nguva zvinogona kuitika pamwe chete nemamwe matambudziko ehutano.
• Kurapa kunogona kusanganisira kutarisa, kuchenesa ziso rine usimbe, kana kuvhiyiwa. Havasi vese vanoda kuvhiyiwa.
• Chinhu chinonyanya kukosha ndechekuti kana iwe kana mwana wako muine zviratidzo izvi, musavhunduka moenda kuna chiremba wemaziso kuti akupei mazano akakodzera uye kurapwa.

Ndinovimba ruzivo urwu ruchakubatsira. Kana muine mimwe mibvunzo, musazeza kubvunza chiremba wenyu!

Duane syndrome, strabismus, mamiriro emaziso ekuzvarwa nawo, kufamba kwemaziso, ziso rine usimbe, amblyopia, matambudziko ekuona