Dzimwe nguva, masoja ekudzivirira muviri anodzivirira muviri wedu anova nesimba rakawandisa otanga kurwisa masero edu akanaka. Zvakafanana neuto rinodzivirira nyika richirwisa vanhu varo. Ichi chirwere chisingawanzoitiki asi chakakomba chinonzi Hemophagocytic Lymphohistiocytosis, kana kuti HLH muchidimbu. Saka, nhasi tiri kutaura nezvemushonga unoshandiswa navanachiremba kudzora masoja ekudzivirira muviri anova nesimba rakawandisa munguva dzakadai.
Zvichitaurwa zviri nyore, chii chinonzi Emapalumab?
Emapalumab (zita rekuti Gamifant) mushonga unoshandiswa kurapa chirwere cheHemophagocytic Lymphohistiocytosis (HLH) , chinogona kukonzera kuzvimba kwakanyanya uye kukuvara kwenyama mumuviri wese.
Saka mushonga uyu unoshanda kudzora kushanda kwakanyanya kwemuviri wedu wekudzivirira muviri uye kuita kuti ushande zvakanaka. Zvakafanana nekudzora mabhureki emotokari iri kumhanya. Kana muviri wekudzivirira muviri ukadzikira nenzira iyi, kuzvimba nekukuvadzwa kunokonzerwa mumuviri zvinoderera. Mukurapa, izvi ndezveboka remishonga inonzi monoclonal antibodies .
Mushonga uyu unogona zvakare kunyorerwa nachiremba wako kune zvimwe zvirwere, saka kana uine mibvunzo, bvunza chiremba wako.
Zvinhu zvaunofanira kuudza chiremba wako usati watanga mushonga uyu
Usati watanga kurapwa uku, zvakakosha kuudza chiremba wako nhoroondo yako yese yehutano . Kunyanya kana uine chimwe chezvirwere zvinotevera:
- Kana uine hutachiona parizvino: Udza chiremba wako nezvehutachiona hwaunahwo, hwakadai sefivha, kukosora, kana dzihwa . Mushonga uyu unogona kuderedza kugona kwemasoja emuviri kurwisa hutachiona.
- Kana uchangobva kugamuchira mushonga wekudzivirira chirwere kana kuti wakarongerwa kuuwana mune ramangwana: Mishonga yekudzivirira chirwere, kunyanya mishonga yekudzivirira chirwere chevhairasi mhenyu, inogona kukanganisa mushonga uyu.
- Nezvechirwere cheTiberculosis (TB):Kana wakambova nechirwere cherurindi, wakasangana nemunhu ane chirwere cherurindi, kana kuti wakaongororwa ganda rako kuti une chirwere cherurindi, unofanira kuburitsa pachena izvi.
- Zvimwe Zvirwere Zvekurwara : Udza chiremba wako kana uine chero allergies yemushonga uyu, Emapalumab, kana chero imwe mushonga, chikafu, kana dhayi.
- Kana uine pamuviri kana kuti uri kuedza kubata pamuviri: Taura nachiremba wako nezvekuti mushonga uyu ungakanganisa sei pamuviri.
- Kana uri amai vanoyamwisa: Tsvaga rubatsiro rwechiremba kana mushonga uyu uchizosvika kumwana wako kuburikidza nemukaka wemuzamu.
Mushonga uyu unouwana sei?
Uyu hausi mushonga waunogona kutora kumba. Emapalumab ijekiseni rinopinzwa mumuviri wako kuburikidza netsinga ( infusion ). Izvi zvinoreva kuti unopinzwa muchipatara kana kiriniki nevashandi vekurapa vakadzidziswa.
Zvakakosha: Mushonga uyu wakanyorerwa iwe chete. Usaugovane nemumwe munhu chero chikonzero chipi zvacho.
Mushonga uyu ungapiwa kuvana vadiki here?
Ehe, mushonga uyu unogona kunyorerwa kune mamwe marudzi ezvirwere, kunyangwe kune vacheche vachangoberekwa. Zvisinei, sarudzo yacho inotorwa nachiremba ane hunyanzvi mushure mekunyatsoongorora mamiriro emwana. Saka, kana uri kupa mwana mushonga uyu, kurukura nezvawo nachiremba zvizere.
Chii chaunofanira kuita kana ukatora mushonga wakawandisa?
Izvi zvinopihwa muchipatara, saka mikana yekuti izvi zviitike yakaderera. Zvisinei, kana uchifunga kuti ungave wakashandisa zvinodhaka zvakanyanya, fonera National Poisons Information Centre kuColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo.
Ko kana ndikarasikirwa nedosi remushonga?
Zvakakosha zvikuru kutora mishonga yako nenguva uye pamazuva akarongwa panguva yekurapwa uku. Saka, usapotsa nguva yekusangana nachiremba wako. Kana nekuda kwechimwe chikonzero usingakwanise kuenda pazuva rako rakarongwa, fonera chiremba wako kana timu yezvekurapa nekukasika wovazivisa.
Zvinhu zvekurangarira panguva yekurapwa
Chiremba wako achakutarisa nguva nenguva paunenge uchitora mushonga uyu.
- Kuongororwa kweTB: Usati watanga kurapwa uku, uchaongororwa chirwere cheTB. Kana chiremba wako akakunyorera mushonga weTB, unofanira kutanga kuutora usati watanga Emapalumab wopedza kwenguva yese yawakarairwa.
- Njodzi yekutapukirwa:Mushonga uyu unogona kuderedza mashandiro emuviri wako, izvo zvinogona kuwedzera njodzi yako yekuwana hutachiona. Saka, kana ukava nefivha, dzihwa, pahuro panorwadza, kana zvimwe zviratidzo zvakaita sedzihwa , usazvirape uye fonera chiremba wako nekukasika kuti akupe mazano. Edza kugara kure nevanhu vanorwara.
Migumisiro inogona kuitika nekuda kwemishonga
Kufanana nemushonga upi zvawo, mushonga uyu unogona kukonzera migumisiro yakaipa. Zvisinei, havasi vese vanouwana. Vamwe vanhu vanogona kuuwana, uye vamwe vangasauwana zvachose. Heano mamwe emigumisiro yakaipa.
| Rudzi rwemhedzisiro yakaipa | Tsananguro |
|---|---|
| Zvinhu zvekuudza chiremba wako nekukasika | |
| Kusawirirana neAllergy | Mapundu paganda, kuvaviwa, kuzvimba kwechiso, miromo, rurimi kana pahuro. |
| Zviratidzo zvehutachiona | Fivha, dzihwa, kukosora, pahuro panorwadza, maronda asingapore, kurwadziwa pakuita weti, uye kusagadzikana kwakajairika. |
| Maitiro eKupinzwa | Kurwadziwa pachipfuva, kuoma kufema, kupera simba, kana kunzwa dzungu. |
| Zvimwe zviratidzo zvakakomba | Kurwadziwa mudumbu, kunzwa kuneta kana kushaya simba zvakanyanya, kuda kurutsa, kurutsa, manyoka, kana fivha isingaperi. |
| Kazhinji hazvisi zvekurwara zvakanyanya (asi udza chiremba wako kana zvikaramba zviripo) | |
| Migumisiro midiki | Kuzvimba, kukosora, manyoka, kurwadziwa mudumbu. |
Rondedzero iyi haina mimwe migumisiro yese. Kana ukaona chimwe chinhu chisingawanzoitiki pamusoro peizvi, taura nachiremba wako nezvazvo.
Mharidzo Yekuenda Nayo Kumba
- Emapalumab mushonga unonyanya kupihwa kurapa HLH, chirwere chakakomba chinokonzerwa nekushanda zvakanyanya kwemasoja emuviri.
- Usati watanga kurapwa uku, udza chiremba wako ruzivo rwako rwese rwehutano, kunyanya chero nhoroondo yezvirwere, allergies, uye TB.
- Pakurapwa, chenjerera zvikuru zviratidzo zvehutachiona, zvakaita sefivha nechando. Kana ukasangana nechimwe cheizvi, zivisa chiremba wako nekukasika.
- Usapotsa nguva yawakapihwa nachiremba. Zvakakosha kutora mishonga yako nenguva.
- Mushonga uyu unongopihwa muchipatara kana kukiriniki chete uye haugone kutorwa kumba.
- Kana muine mibvunzo kana kusava nechokwadi nezvemushonga uyu, bvunzai chiremba wenyu kuti akutsanangurirei.
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