Unowanzo buda ropa mumhino here? Kana kuti une mavanga matsvuku paganda rako, kunyanya pachiso chako, pamiromo, uye paminwe? Pamwe amai vako, baba vako, kana mumwe munhu mumhuri yako akambosangana nematambudziko aya. Tingasanyanya kutarisisa zvinhu izvi, tichiti, "Ah, ndicho chizvarwa chedu chete." Asi, dzimwe nguva panogona kunge paine chikonzero chekurapa chiri shure kweizvi chatinofanira kuziva. Nhasi tiri kutaura nezvechirwere chisingawanzoitiki asi chakakosha kwazvo chekuziva. Icho HHT, kana kuti Hereditary Hemorrhagic Telangiectasia .
Zvichitaurwa zviri nyore, chii chinonzi HHT?
HHT chirwere chemajini chinopfuudzwa kubva kuchizvarwa kuenda kune chimwe. Chinonyanya kukanganisa magadzirirwo etsinga dzedu dzeropa, kana kuti mitsinga dzeropa. Funga nezvehurongwa hwetsinga dzeropa mumuviri wedu senzira yemigwagwa. Kune mitsinga, semigwagwa mikuru, uye mitsinga, semigwagwa mikuru. Migwagwa midiki, midiki yemativi inobatanidza migwagwa miviri mikuru iyi inonzi capillaries.
Chinoitika kumunhu ane HHT ndechekuti kubatana uku kudiki kunonzi capillaries hakuumbike zvakanaka. Pane kudaro, pane kubatana kwakananga, kusina kurongeka, kusina kusimba pakati petsinga netsinga. Mukurapa, tinodana kubatana uku kusina kurongeka kweArteriovenous Malformations (AVMs) .
MaAVM aya anogona kukura mune chero nhengo yemuviri wedu, semuenzaniso mumhino, mapapu, ura, kana kunyange muuropi. AVM diki kwazvo inokura pamusoro peganda inonzi Telangiectasia . Aya ndiwo mavara matsvuku anoonekwa mukati meganda rako, akadai semiromo. Mitsipa yeropa iyi isina simba inogona kuputika zviri nyore. Kana ikaputika uye ichibuda ropa, inogona kutokonzera zvirwere zvakakomba, zvichienderana nekuti iri kupi.
Chinhu chakakosha ndechekuti vanhu vazhinji vane HHT vanorarama kwemakore vasingazive. Kunyangwe pasina mushonga, kune nzira dzakawanda dzekurapa dzinoshanda dziripo nhasi kudzora zviratidzo uye kudzivirira zvirwere zvakakomba.
Chirwere ichi chinobata munhu mumwe chete pavanhu zviuru zvishanu pasi rose. Asi nekuda kwekuti vanhu vazhinji havaonekwe kuti vane chirwere ichi, zvinofungidzirwa kuti panogona kunge paine varwere vakawanda. Chinogona kuitika kuvanhu vezera ripi zvaro uye verudzi rupi zvarwo. Chinonziwo Osler-Weber-Rendu syndrome .
Ndezvipi zviratidzo zvikuru zvechirwere cheHHT?
Zviratidzo zveHHT zvinogona kusiyana kubva pamunhu kuenda kumunhu. Zvinoenderana nekuti mitsipa yeropa isina kujairika (AVM) yatakataura nezvayo iri kupi mumuviri. Vamwe vanhu vanogona kunge vasina zviratidzo zvinoonekwa. Asi vamwe vanogona kunge vaine zviratidzo zvakakomba.
Ngationgororei zviratidzo izvi muzvikamu zviri patafura iri pazasi.
| Rudzi rwechiratidzo | Tsananguro nemienzaniso |
|---|---|
| Hunhu hunowanzoonekwa nevanhu vazhinji |
|
| Zviratidzo zvekubuda ropa mukati | |
| Zviratidzo zvinokonzerwa neAVM munhengo huru dzakadai semapapu neuropi | |
| Matambudziko asingawanzoitiki asi akakomba |
Sei HHT ichiitika?
Izvi zvine chekuita nemajini zvachose.Zvinokonzerwa nechimwe chinhu. Kureva kuti, hachisi chirwere chinotapukira. Chinhu chinotorwa kubva kuvabereki kuenda kuvana. HHT chirwere chinokonzerwa nejini guru (dominant disorder). Izvi zvinoreva kuti, kana mumwe wevabereki vako aine chirwere ichi, une mukana we50% wekuwana chirwere ichi zvakare.
HHT inokonzerwa nekuchinja kwemajini maviri (jini re'ENG' uye jini re'ACVRL1'), uye masayendisiti achiri kuferefeta izvi.
Kana uine HHT, zvakakosha zvikuru kutaura nachiremba wako nezve mukana wekuti vana vako vazoiwana.
HHT inoonekwa sei?
Chiremba anogona kufungidzira izvi mushure mekunzwa nezvezviratidzo zvako uye nhoroondo yemhuri yako. Kunyangwe kuongororwa kwemajini kuchigona kuitwa kuti kusimbiswe chirwere, kuongororwa kunowanzoitwa zvichienderana nezviratidzo.
Chiremba wako achafungidzira kuti une HHT kana uine zvitatu zvinotevera:
- Kubuda ropa mumhino kakawanda.
- Kuvapo kwemasero akawanda eganda (telangiectasias) munzvimbo dzeganda dzinowanzoonekwa mavara (kumeso, miromo, minwe).
- Kuva neAVM kana Telangiectasia munhengo iri mumuviri (yakadai semapapu, uropi, chiropa).
- Kuva nehama yepedyo (amai, baba, munin'ina) ane HHT.
Miedzo yekusimbisa chirwere
Chiremba wako anogona kukukurudzira kuti uite mimwe miedzo, yakaita se:
- Ultrasound Scan: Izvi zvinobatsira kuona kana paine maAVM muchiropa.
- MRI (Magnetic Resonance Imaging) Scan: Inobatsira zvikuru, kunyanya pakuongorora maAVM muuropi.
- Kuongororwa kweCT (Computed Tomography): Kunogona kuwana mifananidzo yakajeka yenhengo dzemuviri.
- Bhora reKuongorora (Echocardiogram): Iyi bvunzo yakakosha. Inoshandiswa kuona kana paine maAVM mumapapu.
Ndezvipi zvirongwa zvekurapa HHT?
Chinhu chekutanga chekurangarira ndechekuti hapana mushonga weHHT. Zvisinei, kune nzira dzakawanda dzinoshanda dzinogona kubatsira kudzora zviratidzo, kuderedza njodzi yematambudziko akakomba, uye kukubatsira kurarama hupenyu hwakajairika.
Paunenge uchirapa zviratidzo zvako zvazvino, chiremba wako achaongororawo chero maAVM akavanzika angave asati ava nezviratidzo.
Heano mamwe maitiro ekurapa:
- Kana uchigara uchibuda ropa mumhino: Shandisa mafuta ekuzora nesaline spray kuti mhino igare yakanyorova.
- Kune Anemia: Ipa mapiritsi ekutsiva iron kana, kana zvichidikanwa, kuwedzerwa ropa.
- Kumisa kubuda ropa: Kurapwa neLaser (`Ablation`) kunoparadza tsinga diki dzeropa dziri kubuda ropa.
- Kubvisa ropa: Izvi zvinosanganisira kuvhara tsinga yeropa ichienda kuAVM iri panjodzi yekubuda ropa kana kuputika nechimwe chinhu chakakosha.
- Kuvhiyiwa kana kurapwa nemwaranzi: Izvi zvinoshandiswa kubvisa kana kuderedza mamwe maAVM.
- Kumisa mimwe mishonga: Mishonga yakaita seaspirin inoderedza kugwinha kweropa ingangoda kumisa kana wapihwa zano nachiremba.
Zvakakosha: Kana uine HHT, kunyanya kana uchiziva kuti une AVM mumapapu ako, zvingave zvakakosha kutora mishonga inorwisa mabhakitiriya usati wavhiyiwa mazino, senge kubviswa mazino. Izvi zvinoitirwa kudzivirira hutachiona hwakadai semapundu muuropi. Iva nechokwadi chekutaura nachiremba wako nezvazvo.
Zvinhu zvekufunga nezvazvo kana uchigara neHHT
Munhu ane HHT angada kutariswa uye kurapwa kwehupenyu hwake hwese, asi kana akarapwa zvakanaka, varwere veHHT vane nguva yekurarama yakajairika.
Chii chingaitwe kudzivirira kubuda ropa mumhino?
- Taura nachiremba wako uye usashandise mishonga inowedzera kubuda ropa (semuenzaniso aspirin, NSAIDs).
- Chengeta mhino yako yakanyorova nguva dzese. Kushandisa humidifier kumba, kushandisa saline nasal sprays, uye kushandisa mafuta akanyorerwa nachiremba wako zvakakosha zvikuru.
- Chengeta dhayari kuti uone kana zvimwe zvekudya kana mabasa zvichiwedzera njodzi yako yekubuda ropa mumhino.
Kana wakamboonekwa uine HHT, zvakakosha zvikuru kuudza vamwe vemumhuri yako kuti vaongororwewo, nekuti kana chirwere chikangoonekwa nekukurumidza, matambudziko akakomba anogona kudzivirirwa.
Mharidzo Yekuenda Nayo Kumba
- HHT chirwere chemajini chinokonzera kusasimba kwetsinga dzeropa.
- Zviratidzo zvikuru kubuda ropa mumhino nguva nenguva uye mavanga matsvuku (telangiectasias) paganda, miromo, neminwe.
- Kana iwe kana mumwe munhu wemumhuri mako aine zviratidzo izvi, zvakakosha zvikuru kutaura nachiremba nezvazvo.
- Kunyange hazvo pasina mushonga wakakwana wechirwere ichi, kune mishonga inoshanda inogona kudzora zviratidzo uye kudzivirira matambudziko akakomba (akadai sestroke uye kubuda ropa rakawanda).
- Kana ukawanikwa chirwere ichi nekukurumidza uye ukachirapwa zvakanaka, unogona kurarama hupenyu hwakanaka uye hwakanaka.
💬 Comments (0)
Hapana zvakataurwa parizvino. Isa mhinduro yako pano kekutanga.
Wedzera zvaunofunga