Mwana wako akangoerekana arega kutaura here? Ingava Landau-Kleffner Syndrome here?

Mwana wenyu aimbomhanya-mhanya achitamba nekutaura zvakanaka. Asi kutaura kwake kwakadzikira here? Kana kuti makaona here kuti ari kunetseka kunzwisisa zvamuri kutaura? Dzimwe nguva ane pfari here? Kana mwana wenyu aine chimwe chezvinhu izvi kana kupfuura, munofanira kuita tsvakiridzo. Nekuti izvi zvinogona kunge zvichikonzerwa nechirwere chisingawanzoitiki chinonzi Landau-Kleffner Syndrome (LKS) . Musazvidya mwoyo, ngatitaurei nezvazvo zvakadzama.

Chii chinonzi Landau-Kleffner Syndrome?

Zvichitaurwa zviri nyore, Landau-Kleffner Syndrome (LKS) chirwere chinokanganisa pfungwa dzevana vedu. Chinhu chikuru pane izvi ndechekuti kugona kwemwana kutaura nekunzwisisa mutauro (watinodaidza sainzi yezvekurapa (Aphasia) ) kunoderera zvishoma nezvishoma kana kamwe kamwe. Uyewo, vazhinji vevana vane chirwere ichi vanogona kutambura nepfari, dzinoitika panguva yekurara.

Funga nezvazvo, kune mameseji madiki emagetsi anotenderera muuropi hwedu. Aya masaini emagetsi ndiwo anotibatsira kushanda zvakanaka patinotaura, kunzwa, kufunga, uye kuita zvese. Vana vane LKS vane zvimwe zvisina kujairika muhurongwa hwemagetsi uhwu muuropi hwavo. Ndosaka vachiomerwa nekunzwisisa mutauro nekutaura.

Ndiani anonyanya kukanganiswa nemamiriro ezvinhu aya eLKS?

Chirwere ichi, chinonzi LKS, chinowanzoonekwa muvana vari pakati pemakore matatu nemasere. Zvisinei, dzimwe nguva chinogona kubata vana vane makore maviri chete, pamwe nevana vakuru, vakaita sevechiri kuyaruka. Zvinonziwo vakomana vane mukana wekuwana chirwere ichi kupfuura vasikana.

LKS inokanganisa sei mwana wangu?

Kana mwana wako aine LKS, anogona kungoerekana arasikirwa nehunyanzvi hwekutaura kana kuti zvishoma nezvishoma. Anogonawo kunetseka kunzwisisa zvaunotaura uye zvinotaurwa nevamwe. Izvi ndizvo zvatinodaidza kuti (aphasia) .

Fungidzira, mwana wako aimbotaura nhetembo, achiimba nziyo, uye aitaura newe asingamiri. Asi ikozvino haatauri kana shoko rimwe chete, kana kuti anongokutarisa paunotaura, sekunge haanzwisisi chero chinhu, zvakaoma sei kuva akatendeseka?

Vana vanosvika 70% vane chirwere cheLKS vanogona kusangana nepfari kana kuti pfari panguva yekurara. Vamwe vana vanogonawo kuva nepfari idzi masikati.

Ko Landau-Kleffner syndrome yakafanana ne autism here?

Kwete, iyi ipfungwa isiriyo yakajairika. Landau-Kleffner Syndrome haisi autism. Zvisinei, zviratidzo zvezvose zvinogona kunge zvakafanana dzimwe nguva, saka zvinogona kuoma kuona mutsauko. Vanachiremba vanowanzoongorora zvirwere zviviri izvi nekuita bvunzo dzeEEG (electroencephalograms) mwana achiri akamuka uye akarara.

Pane mamwe mazita eLKS here?

Ehe, dzimwe nguva vanachiremba vanodanawo chirwere ichi kuti "Acquired Aphasia neEpilepsy." Kureva kuti, zvinoreva chimwe chinhu chakaita se "kutadza kutaura kunoitika nepfari uye kunowanikwa gare gare."

Chirwere ichi cheLKS chakajairika zvakadii?

Landau-Kleffner Syndrome chirwere chisingawanzoitiki. Zvakaoma kuti vaongorori vataure kuti vangani chaizvo vane chirwere ichi. Hazviwanzoitiki.

Chii chinokonzera Landau-Kleffner syndrome?

Kazhinji, vana vazhinji vane LKS havakwanise kuwana chikonzero chaicho chechirwere chavo. Ichi ndicho chokwadi. Saka usazvifungisise zvakanyanya kana kuzvipa mhosva.

Zvisinei, vana vanosvika 20% vane LKS vane shanduko dzakati (mutations) mumajini avo. Kunyanya, shanduko mumajini anonzi (GRIN2A) akaonekwa kuti ane chekuita neizvi. Shanduko idzi dzemajini dzinogona kugara nhaka kubva kune mumwe wevabereki. Zvisinei, havasi vese vane shanduko iyi yemajini vanozokura LKS. Vamwe vana vanogonawo kuva neshanduko mumajini mamwe. Dzimwe nguva, mwana anogona kukura iyi gene mutation kekutanga (izvi zvinonzi a de novo mutation ) pasina mumwe munhu mumhuri.

Vaongorori vanotenda kuti shanduko idzi dzemajini dzinokonzera kusashanda zvakanaka kwehurongwa hwemagetsi muuropi, zvichiita kuti zviratidzo izvozvo zvisashande zvakanaka. Zviratidzo izvi zvisina kujairika ndizvo zvinokonzera zviratidzo zveLKS.

Ongororo iri kuitwawo kuti ione kana paine hukama pakati peLKS nemasoja emuviri wedu. Zvinotendwa kuti chirwere ichi chinogona kunge chichikonzerwa nemhinduro ye autoimmune umo masero emasoja emuviri anorwisa masero emuviri.

Ndezvipi zviratidzo zveLandau-Kleffner syndrome?

Havasi vana vese vane LKS vanoratidza zviratidzo zvakafanana. Zvinogona kusiyana kubva pamwana nemwana.

Kana mwana wako aine LKS, unogona kuona zvinhu zvakaita se:

• Kunzwa sekuti haakunzwi paunotaura: Anogona kusapindura paunotaura naye. Zvinoita sekunge haana kukunzwa.
• Kuoma kunzwisisa zvaunotaura iwe nevamwe: Ungasakwanisa kunzwisisa kunyange mirairo iri nyore.
• Kurasikirwa nekutaura kwakaderera kana zvachose: Mwana aimbotaura zvakanaka anogona kusataura zvachose, kana kuti anogona kungokwanisa kutaura mazwi mashoma nekuoma kukuru.
• Kunonoka kwekukura: Kusakwanisa kuita zvinhu nenzira inoenderana nezera.
• Kuchinja kwepfungwa kana matambudziko ekudzidza: Ungarasikirwa nehanya nebasa rechikoro uye ungaomerwa nekurangarira zvinhu.
• Kuchinja kwemaitiro: Mwana anogumbuka nematambudziko emutauro aya, izvo zvinogona kukonzeraMatambudziko ehunhu akadai sekusagadzikana, kutadza kuisa pfungwa pachinhu chimwe chete (izvi zvinogona kunge zvakafanana nezviratidzo zveAttention-Deficit Hyperactivity Disorder - ADHD), hasha, uye kuvhiringidzika zvinogona kuitika.

Fungidzira kuti mwana mudiki anonzwa sei asingabatsiri kana asingakwanise kuudza vabereki vake zvaanoda kutaura, kana asinganzwisisi zvavari kutaura? Kushaya simba uye kushushikana ikoko ndizvo zvinobuda mumhando iyi yemaitiro.

Vana vane LKS ndivo vanonyanya:

• Ungasakwanisa kutaura.
• Pane mukana mukuru wekuti munhu aite pfari.
• Pane mukana mukuru wekuva nezvirwere zvemaitiro (zvakadai seAttention-Deficit Hyperactivity Disorder - ADHD) .

Vanachiremba vanoongorora sei Landau-Kleffner syndrome?

Kazhinji, LKS isati yatanga, kukura kwemwana, sekutaura nekufamba, kwakajairika zvichienderana nezera rake. Unogona kuona shanduko mukutaura kwake nekukasika. Kana, chiremba wako anogona kuona zviratidzo izvi paunoenda nemwana wako kunoonekwa nemwana ari mutano.

LKS inogona kuoma zvishoma kuongorora chirwere ichi, saka zvakakosha kuudza chiremba wako nezvekuchinja kwaunoona muhunhu hwemwana wako, kunyangwe zvidiki.

Ndezvipi zviedzo zvinoshandiswa navanachiremba kuongorora LKS?

Chiremba wemwana wenyu anogona kukurudzira bvunzo idzi:

• Electroencephalogram (EEG): Iyi inoyera mashandiro emagetsi europi hwemwana wako. Iyi bvunzo isingarwadzi. Inobvumira chiremba kuona mashandiro ari kuita uropi hwemwana wako.
• Bvunzo iyi (EEG) inowanzoitwa kaviri, kamwe chete kana mwana akarara uye kamwe chete kana akamuka . Patinorara, mafungu edu europi anononoka zvishoma nezvishoma. Zvisinei, patinopinda muhope dzakadzika (REM sleep phase), mafungu europi anotanga kushanda zvakare. Zvisinei, zvinyorwa zve (EEG) zvevana vane LKS zvinoratidza kuti mashandiro asina kujairika emafungu europi anoenderera mberi muzvikamu zvese zvekurara.
• Kuongororwa kweAudiometry / Kuongororwa kwekunzwa: Kuongororwa uku kunoitwa kuti mwana anzwe kana achigona kunzwa. Dzimwe nguva, zvakakoshawo kutarisa kana kutadza kunzwa kuri iko kunokonzera matambudziko emutauro.
• MRI yeuropi hwavo: Izvi zvinobatsira kuona kuti hapana chimwe chirwere chakakomba, senge bundu reuropi.
• Kuongororwa nenyanzvi yepfungwa: Izvi zvakakosha kuti mwana aonekwe maitiro ake, njere dzake, uye kugona kwake kudzidza.

Chirwere cheLandau-Kleffner chinorapwa sei?

Pakurapa vana neLKS, vanachiremba vanoshandisa mishonga, kutaura, uye maitiro ekurapa . Kana kurapwa kwekutaura kukatanga nekukurumidza, mikana yemwana yekuwanazve hunyanzvi hwake hwemutauro inowedzera.Dzimwe nguva, vanachiremba vanogonawo kukurudzira kudya kwakakosha (ketogenic diet) kudzora pfari.

Mishonga ipi inopihwa yeLKS?

Chiremba wako anogona kunyora mishonga yakaita seyiyi:

• Mishonga inorwisa pfari: Iyi inoshandiswa kudzora pfari.
• Corticosteroids: Izvi zvinoshanda nekuderedza mashandiro emuviri wemuviri uye kudzora mamiriro akadai sekuzvimba kweuropi.

Kuvhiyiwa kunoitwa here paLKS?

Kashoma, vanachiremba vanogona kuita oparesheni yeuropi inonzi Multiple Subpial Transections . Zvisinei, hazvisati zvanyatsojeka kuti kubatsira kwakawanda sei kunogona kuratidzwa kubva mukuvhiyiwa uku. Saka, zvakakosha kunyatsoongorora zvakanakira nezvakaipa zvekuvhiyiwa uku usati waitwa.

Mwana wangu achapora kwenguva yakareba sei mushure mekutanga kurapwa?

Hapana munhu anoti "iyi ndiyo nzira yakanakisisa" yekurapa LKS. Mwana wako anogona kuvandudzika zvishoma nezvishoma nekurapwa kwemashoko nemamwe marapirwo. Zvisinei, mune dzimwe nguva, mwana wako angasagamuchira zvakanaka kurapwa. Chiremba wako achagara achitarisa mamiriro emwana wako uye achagadzirisa hurongwa hwekurapa sezvinodiwa.

Ndingaitei kuti ndideredze njodzi yekuti mwana wangu awane Landau-Kleffner syndrome?

LKS chirwere chinokonzerwa nemajini. Izvi zvinoreva kuti hapana chaunogona kuita kudzivirira Landau-Kleffner Syndrome kana kuderedza njodzi yekuibata. Haisi mhosva yako.

Ko Landau-Kleffner syndrome inogona kurapwa zvachose here?

Vamwe vana vanowanazve kugona kwavo kutaura nekunzwisisa mutauro. Vamwe vanogona kuwanazve hunyanzvi hwemutauro. Vana vanotanga zviratidzo mushure memakore matanhatu uye vanotanga kurapwa nekutaura nekukurumidza vane mukana wakanyanya wekupora. Kubatwa nepfari kunowanzopera kana munhu akura.

Chii chandinofanira kutarisira kana mwana wangu aine LKS?

Zvinogona kutora nguva yakareba kuti mwana wako apore kubva kuLKS. Unogona kuona zvimwe zviri nani nekufamba kwenguva. Zvakare, dzimwe nguva hunyanzvi hwemutauro hunogona kuvandudzika hwozodzikira zvakare (izvi zvinonzi kudzokera shure) . Chiremba wako anogona kukurudzira makirasi edzidzo yepamusoro kana kudzidza mutauro wemasaini , zvichienderana nezvinodiwa nemwana wako.

Rwendo urwu rwakaoma. Asi hausi wega. Vanachiremba, vanachiremba vekutaura, mhuri yako, neshamwari varipo kuti vakubatsire iwe nemwana wako. Chinhu chinonyanya kukosha kubata mwana wako nerudo nemwoyo murefu, usingarasi tariro.

Ndingatarisira sei mwana wangu ane LKS?

Tevedzerai mirairo yachiremba wenyu nokungwarira kuti mwana wenyu agare aine hutano hwakanaka. Kana mwana wenyu akaonekwa nezviratidzo zvitsva, zivisai chiremba wenyu nekukasika. Nenzira iyi, vanogona kuwana kurapwa kwakakodzera nekukasika.

Landau-Kleffner Syndrome inokonzera kuti vana vanowanzo rwara nekutadza kutaura nekunzwisisa mutauro. Vana vane LKS vane uropi husina kujairika panguva yekurara uye vanowanzova nepfari. Vanachiremba vanorapa LKS nemishonga uye kutaura. Nekufamba kwenguva uye nekurapwa kwakakodzera, vana vanogona kudzoka pahunyanzvi hwavo hwemutauro.

Zvinhu zvakakosha zvekurangarira (Mharidzo Yekuenda Kumba)

• LKS chirwere chisingawanzoitiki asi chakakomba: chinogona kukonzera mwana kurasikirwa nekugona kwake kutaura nekunzwisisa mutauro.
• Kubatwa nepfari kunowanzoitika panguva yekurara: Ichi chinhu chakakosha cheLKS.
• Chikonzero hachiwanikwe nguva dzose: Kunyange zvazvo majini anogona kuita basa muzviitiko zvakawanda, panogona kunge pasina chikonzero chaicho.
• Usazvisanganisa ne autism: Zviviri izvi zvinogona kusiyaniswa kuburikidza nemiedzo ye (EEG).
• Kuongororwa nekukurumidza uye kurapwa kwakakosha: kana kurapa kwekutaura kukatanga nekukurumidza, mhedzisiro yacho inova nani.
• Kupora kunosiyana kubva pamwana nemwana: vamwe vana vanopora zvachose, vamwe vanopora zvishoma chete. Mwoyo murefu uye rutsigiro runoramba ruchienderera mberi zvakakosha zvikuru.
• Hausi wega: Mazano ekurapa, rutsigiro rwemhuri, uye rudo zvinhu zvikuru zvinobatsira mwana kukunda dambudziko iri.

Ndinovimba ruzivo urwu ruchakubatsira. Kana mwana wako aine chimwe chezviratidzo izvi, ndapota ona chiremba ane hunyanzvi nekukurumidza.

` Landau-Kleffner Syndrome, LKS, pfari, matambudziko ekutaura, matambudziko emutauro, zvirwere zvevana, kushanda kwemagetsi muuropi, EEG