Huma yemwana wako yakaita setriangle here? Ngatidzidzei nezveMetopic Craniosynostosis.

Pane chimwe chinhu chawakaona chakasiyana here nezvechimiro chemusoro wemwana wako, kunyanya pahuma, pamwe chimiro chetriangle? Zvakajairika kuti amai kana baba vanzwe kunetseka zvishoma pavanoona chimwe chinhu chakadai. Kuti tipindure mibvunzo inomuka mupfungwa dzako panguva dzakadai, nhasi tichataura nezvechirwere chinonzi Metopic Craniosynostosis. Dzimwe nguva izvi zvinonziwo Trigonocephaly.

Chii chinonzi Metopic Craniosynostosis?

Zvichitaurwa zviri nyore, metopic craniosynostosis chirwere chekuzvarwa nacho . Chinoitika kana mapfupa maviri epamberi ari mumusoro wemwana, kana kuti dehenya, akabatana nguva isati yakwana (kusanganiswa nguva isati yakwana), kungave mudumbu kana pakuzvarwa. Funga nezvazvo, dehenya redu harina kugadzirwa nepfupa rimwe chete, asi zvidimbu zvakawanda zvepfupa. Zvidimbu izvi zvepfupa zvakabatana nechimwe chinhu chinonzi "sutures." Masuture aya akafanana nenzvimbo dzinokura mapfupa. Uropi hwemwana pahunokura, masuture aya anobatsira dehenya kukura kuti rigare zvakanaka.

Zvino, kana iri nyaya yemetopic craniosynostosis, musono uri pakati pemapfupa maviri epamberi, unonzi "metopic suture," unovhara uropi hwemwana husati hwanyatsokura. Apa ndipo panotanga huma yemwana kuita setriangle. Izvi zvinonziwo trigonocephaly.

Dambudziko iri rakajairika zvakadii?

Ongororo dzichangoburwa dzinoratidza kuti metopic craniosynostosis ingave iri mhando yechipiri inonyanya kuzivikanwa yecraniosynostosis. Zvisinei, kuwanda kwayo kunosiyana kubva munyika nenyika. Munyika dzakadai seUnited States, zvinofungidzirwa kuti chirwere ichi chinokanganisa mwana mumwe chete pavana 700 kusvika mumwe pavana 15,000 vachangoberekwa.

Ndezvipi zviratidzo zveizvi?

Mwana ane metopic craniosynostosis anogona kuratidza zviratidzo zvinotevera:

• Kukura kusina kujairika kwemusoro wemwana nemapfupa echiso .
• Uropi hunosundirwa mukati memusoro wemwana, zvichireva kuwedzera kwekumanikidzwa kwemukati memusoro .
• Matambudziko ekuona .

Chitarisiko chemwana chinochinja sei?

Dambudziko iri rinokanganisa kukura kwechiso chemwana. Rinogona kutaridzika seizvi:

• Ine huma yakamanikana, yakapinza, ine mativi matatu .
• Maziso acho anoita seari pedyo .
• Zvinoita sekunge tsiye dzangu dzakasimudzwa .
• Kumashure kwemusoro kunoonekwa kwakafara .

Fungidzira, zvinoita sekunge huma yemwana iri kubuda pakati.

Sei izvi zvichiitika? Ndezvipi zvikonzero?

Chikonzero chikuru che metopic craniosynostosis kusangana kwemapfupa epamberi uropi husati hwanyatsokura .Izvi zvinoreva kuti zvinobatana nekukurumidza. Asi vanachiremba havasati vawana chikonzero chaicho chinoita kuti mapfupa aya asanganiswe nekukurumidza kudaro. Zvisinei, tsvakiridzo inoratidza kuti zvinhu zvinoverengeka zvinogona kuita basa racho:

• Kuchinja kwemajini (semuenzaniso, kuchinja kwemajini emajini eFREM1 neSMAD6).
• Semhedzisiro yemimwe mishonga inotorwa naamai panguva yekuzvitakura (semuenzaniso, mishonga yakaita sevalproic acid uye clomiphene citrate).
• Amai vane chirwere chethyroid .
• Nzvimbo yemwana ari mudumbu .
• Sechiratidzo cheimwe chirwere chemajini, chakadai seWilliams syndrome.

Ndiani ari panjodzi huru yeizvi?

Njodzi yako yekuva nemwana ane metopic craniosynostosis inogona kuwedzera kana iwe:

• Kana uri kutarisira mapatya .
• Kana uine dambudziko rehutano rakadai sechirwere chethyroid kana chirwere cheshuga .
• Kana ukatora mimwe mishonga yechirwere chakadai sepfari.
• Kana uchishandisa zvigadzirwa zvefodya .

Kuti udzidze zvakawanda nezvenjodzi yekuzvara mwana ane chirema chekuzvarwa nacho, ona chiremba wako kuti akupe mazano ekubatsira usati wabata pamuviri. Unogona kuwana mazano anogona kuderedza njodzi yekuzvara mwana ane chirema chekuzvarwa nacho .

Ndezvipi zvinetso zvinogona kukonzera izvi?

Matambudziko emetopic craniosynostosis anogona kusaonekwa kusvika mwana akura uye atanga chikoro. Matambudziko akajairika ndeaya:

• Kunonoka kukura (kutaura nemutauro kana hunyanzvi hwekufamba netsoka).
• Matambudziko ekukura kwepfungwa .
• Kuchinja kwemaitiro (sekushatirwa).
• Zviratidzo zvekuwedzera kwekumanikidzwa kwepfungwa ( kusanganisira musoro nezvinetso zvekuona).
• Musoro unokura zvishoma nezvishoma kana tichienzanisa nedzimwe nhengo dzemuviri.

Vanachiremba vanoongorora sei izvi?

Dzimwe nguva, chiremba anogona kufungidzira izvi panguva yekuongorora kwemwana asati aberekwa panguva yechipiri neyechitatu yekuzvitakura. Zvisinei, kazhinji, chirwere ichi chinoonekwa panguva yekuongororwa kwemuviri kwemwana achangoberekwa .

Chiremba achanyatsoongorora musoro wemwana kubva kumusoro (vertex) kusvika kurutivi rwechiso. Kana, kana akatariswa nemaziso eshiri, musoro wemwana ukaita setriangle kana conical panzvimbo pechimiro chedenderedzwa, anogona kuonekwa sechirwere chinonzi trigonocephaly.

Miedzo yakaita seX-rays kana CT scans (Computed Tomography - CT scan) inoitwawo kuti tizive zvakawanda nezvechimiro chemapfupa edehenya remwana. Ruzivo rwunowanikwa kubva mumiedzo iyi runobatsira pakuronga kurapwa.

Mamiriro ezvinhu aya anogona kunge akakomba zvakadini?

Kuoma kwe metopic craniosynostosis kunogona kusiyana kubva pamunhu nemunhu. Kuoma kwekukuvara kunoenderana nehukuru hwekona inogadzirwa nekusangana nekukurumidza kwemapfupa edehenya. Semuenzaniso:

• Muzviitiko zvisina kusimba, pane shanduko diki chete muchimiro chehuma.
• Muzviitiko zvakakomba, huma inova yakapinza zvakanyanya, ichiita chimiro chetatu kana kuti chekona.
• Mukana uri pakati nepakati uripo pakati pevaviri ava.

Izvi zvinorapwa sei?

Kana metopic craniosynostosis iri diki , kana paine metopic ridge yakabudikira isina kuremara kwakanyanya pahuma, kurapwa kungasave kwakakosha .

Zvisinei, kana trigonocephaly iri pakati nepakati kana kuti yakanyanya kuoma, kuvhiyiwa kunogona kuitwa kuti musoro wemwana ugadziriswe patsva uye kupa uropi nzvimbo yahunoda kuti hukure . Kana zvichidikanwa, kuvhiyiwa kunogonawo kuderedza kumanikidzwa kweuropi.

Kune mhando mbiri huru dzekuvhiya kurapa metopic craniosynostosis:

1. Kuvhiyiwa neEndoscopic-assisted Surgery:

• Kuvhiyiwa uku kunoitwa pavana vadiki, kazhinji vasati vasvika mwedzi mina, uye mwedzi mitanhatu .
• Chiremba anochera ganda diki pahuma yemwana, panotangira bvudzi.
• Zvadaro, uchishandisa endoscope (chubhu tete ine kamera), chidimbu chepfupa chiri pamusoro pemetopic suture chinobviswa. Endoscope iyi inobvumira chiremba wepfungwa kuona mukati medehenya uye kuita kuvhiya pasina kuchekwa kukuru.

2. Kuvhiyiwa kwepachena (Kuvhiyiwa kwepachena - Kugadzirisa Cranial Vault):

• Kuvhiyiwa uku kunowanzoitwa pavana vane mwedzi iri pakati pe6 ne12 .
• Kazhinji, izvi zvinoitwa nachiremba wepfungwa nachiremba wepurasitiki vachishanda pamwe chete.
• Chiremba anochera ganda guru remusoro wemwana kupfuura rinoitwa ne endoscopic surgery .
• Zvadaro, zvikamu zvedehenya zvisina kurongeka zvinobviswa. Zvadaro, mapfupa anochekwa, anogadziriswazve, uye anosungirirwazve kuti musoro uve nechimiro chakakodzera.Izvi zvinoita kuti uropi hwemwana huve nenzvimbo yakakura yekukura.

Mwana anofanira kupfeka ngowani here mushure mekuvhiyiwa?

Mushure mekuvhiyiwa kwe endoscopic, mwana wako achafanirwa kupfeka ngowani yakakosha kusvika ava nemwedzi gumi nemiviri yekuberekwa. Ngowani iyi inobatsira kuti dehenya remwana rikure kuita denderedzwa. Ngowani haiwanzodiwi mushure mekuvhiyiwa pachena , asi chiremba wako achakupa mazano nezvazvo.

Pane migumisiro yakaipa here yekurapwa uku?

Sekunge kune chero kuvhiyiwa kupi zvako, kune njodzi dzakawanda uye migumisiro inogona kuitika nekuvhiyiwa uku kwese:

• Kurasikirwa neropa .
• Utachiona .
• Kubuda ropa muuropi (Hematoma) .

Chiremba wemwana wenyu achakutsanangurirai nezvemigumisiro iyi musati mavhiyiwa. Kuvhiyiwa kwemwana pachena kune njodzi huru kupfuura kuvhiyiwa kwe endoscopic . Zvakare, nguva inotora kuvhiyiwa nekupora inguva yakareba.

Dzimwe nguva, kana ropa richibuda mushure mekuvhiyiwa, mwana angangoda kuwedzerwa ropa . Izvi zvinonyanya kuonekwa mukuvhiyiwa kwepachivande.

Hazviwanzoitiki kuti trigonocephaly ide kuvhiyiwa zvakare kuti chirwere chigadziriswe, asi zvinogona kudiwa.

Zvinotora nguva yakareba sei kuti munhu apore mushure mekuvhiyiwa?

Mwana wako anogona kunzwa zviri nani mukati memavhiki mashoma ekuvhiyiwa. Zvisinei, zvinogona kutora mwedzi miviri kusvika mitatu kuti apore zvizere . Kupora kwemapfupa uye kukurazve zvinogona kutora kusvika gore. Chiremba wemwana wako achataura newe nezvenguva yekupora uye zvekutarisira usati wavhiyiwa.

Kana mwana wangu aine metopic craniosynostosis, chii chandinofanira kutarisira?

Kunyange hazvo chirwere chepfungwa chemetopic craniosynostosis chisingawanzoitiki, nzira yachinokanganisa nayo mwana wega wega inogona kusiyana. Vamwe vana vanogona kunge vaine shanduko diki muchimiro chemusoro uye vangasada kurapwa . Vamwe vangada kuvhiyiwa kuti vagadzirise chimiro chemusoro uye kurapwa kwezvinetso zvakaita sekunonoka kukura.

Kuvhiyiwa kunobudirira, uye migumisiro yacho inowanzova mishoma. Mushure mekuvhiyiwa kwe endoscopic, mwana anochengetwa muchipatara husiku hwese uye anotariswa zvakanaka. Anowanzo dzokera kumba mukati mezuva rimwe kana maviri. Kana akavhiyiwa pachena, mwana anochengetwa muchikamu chevarwere vakanyanya kwemaawa makumi maviri nemana uye anotariswa navanachiremba nguva dzese. Mushure meizvozvo, anotamisirwa kune imwe wadhi yechipatara kwemazuva mashoma kana vhiki kuti aongorore kupora kwake.

Panguva yekugara muchipatara, musoro wemwana nechiso zvinogona kuzvimba. Izvi zvakajairika. Maziso anogona kuzvimba ovharwa kwemazuva maviri kusvika matatu. Mushure meizvozvo, kuzvimba kunodzikira zvishoma nezvishoma.

Vana vakavhiyiwa endoscopic vanofanira kupfeka ngowani kusvika vasvika mwedzi gumi nemiviri, izvo zvinogona kuva dambudziko kuvabereki vatsva. Nekuti mwana wavo acharatidzika zvakasiyana nevamwe kusvika apora. Vabereki vazhinji vanoshongedza ngowani nemasticker akanaka kuti aenderane nehunhu hwemwana wavo.

Nekuti mwana wako anotaridzika zvakasiyana, vanhu vanogona kubvunza mibvunzo nezvazvo. Ungawana zvakaoma kugovana ruzivo urwu nemunhu wese. Mhuri dzakawanda dzakawana nyaradzo mukutaura nachiremba wepfungwa panguva dzakadai.

Mamiriro ezvinhu aya anogona kudzivirirwa here?

Parizvino hapana nzira yekudzivirira metopic craniosynostosis. Zvisinei, unogona kuderedza njodzi yako nekutaura nachiremba wako nezvekuti ungaramba sei uine hutano usati wava nepamuviri uye panguva yekuzvitakura uye nzira dzekudzivirira matambudziko ekuzvarwa nawo.

Mwana wangu anofanira kuona chiremba rini?

Kana mwana wako anyatsopora, timu yenyanzvi (chikwata checraniofacial) ichamutarisa kusvika akura.

Kana mwana wako akanonoka kusvika padanho rekukura rakakodzera zera rake , enda kuna chiremba nekukasika. Semuenzaniso, kufamba kana kutaura mazwi ake ekutanga. Kunyange zvazvo vana vazhinji vane metopic craniosynostosis vachikura zvakanaka, vamwe vana vanogona kunge vaine kunonoka kukura. Vangada nguva yakati rebei kupfuura vamwe. Chiremba anogona kubatsira mwana wako kuzadzisa zvinangwa zvake.

Mushure mekuvhiyiwa, chiremba wako achakupa ruzivo nezvezvinhu zvekuchenjerera, zvakaita sehutachiona. Kana ukaona chimwe chinhu chisingawanzoitiki, taura nachiremba wako nekukasika.

Mibvunzo ipi yandinofanira kubvunza chiremba wemwana wangu?

• Mwana wangu anofanira kuvhiyiwa here?
• Unokurudzira kuvhiyiwa kwerudzii?
• Pane migumisiro yakaipa here yekurapwa kwacho?
• Ndinofanira kudzoka riini kuzoongororwa mushure mekuvhiyiwa?
• Ndingaitei kana mwana wangu anonoka kusvika padanho rekukura?

Zvinogona kushamisa kuona chimiro chemusoro wemwana wako achangoberekwa chakasiyana nezvaitarisirwa. Asi musazvidya mwoyo. Mwana wako paanongozvarwa, timu yenyu yezvekurapa ichaongorora chirwere chemetopic craniosynostosis uye ichachirapa kudzivirira matambudziko anogona kukanganisa kukura nekukura kwemwana wako. Kuvhiyiwa kuchabatsira uropi nedehenya remwana wako kukura zvakanaka.

Pfupiso (Mharidzo Yekuenda Nayo Kumba)

Kana ukaona huma yemwana wako ichichinja kuita mativi matatu, chingave chiratidzo chekuti suture yemetopic yavharika nguva isati yakwana. Izvi zvinonzi metopic craniosynostosis kana trigonocephaly .

Usatya!Kana chirwere chacho chiri chinyoro, kurapwa kungasave kwakakosha. Kana chakanyanya kuoma, kuvhiyiwa kunogona kuitwa kugadzirisa chimiro chemusoro uye kubvumira uropi kukura zvakanaka. Kuvhiyiwa kwacho kunobudirira, uye vana vanopora nekukurumidza. Ungangoda kupfeka ngowani yakakosha kwenguva yakati mushure mekuvhiyiwa.

Chinhu chinonyanya kukosha kutevedzera mirairo yachiremba nokungwarira uye kugara uchiziva nezvekukura kwemwana wako . Kana uine mibvunzo kana kusava nechokwadi, usazeza kubvunza chiremba. Tose tinoda kuti mwana wako akure aine hutano uye achifara!

` Metopic craniosynostosis, trigonocephaly, dehenya revacheche, chimiro chehuma, zvirema zvekuzvarwa nazvo, kukura kwehuropi, kuvhiyiwa