Ingaba izihlunu zakho zihlala zibuhlungu okanye zibuthathaka? Makhe sithethe ngePolymyositis!

Ngaba ngamanye amaxesha uziva iintlungu kwimisipha yakho, okanye uzive ungenakunceda? Okanye ngaba kukho umntu omaziyo onengxaki enjalo? Ezi zinto zinokusichaphazela ngokwenene kubomi bethu bemihla ngemihla. Namhlanje siza kuthetha ngesifo esichaphazela imisipha yethu, kodwa asixhaphakanga kangako. Oku kubizwa ngokuba yi-polymyositis.

Yintoni iPolymyositis? Ngamafutshane...

Ngamafutshane, i-polymyositis sisifo esingaqhelekanga sokuzikhusela komzimba. Xa usiva igama elithi "isifo sokuzikhusela komzimba," mhlawumbi kunzima ukuliqonda, akunjalo? Makhe ndiyichaze ngolu hlobo.

Sinenkqubo yokuzikhusela emzimbeni wethu. Ifana nomkhosi kwilizwe lethu. Indima yale nkqubo kukusikhusela ngokulwa neentsholongwane kunye nezinto ezibangela izifo ezivela ngaphandle. Nangona kunjalo, ngamanye amaxesha le nkqubo yethu yokuzikhusela iyaphazama. Emva koko iqala ukuhlasela kungekuphela nje iintshaba ezivela ngaphandle, kodwa neeseli eziphilileyo kunye nezicubu zomzimba wethu. Leyo yimeko ebizwa ngokuba sisifo sokuzikhusela.

Yiloo nto eyenzekayo kwi-polymyositis. Inkqubo yethu yokuzikhusela komzimba iqala ukuhlasela izihlunu zethu, oko kukuthi, izihlunu. Olu luhlobo lwe-myositis. I-Myositis kukudumba okungapheliyo, oko kukuthi, ukudumba, kwezihlunu. Oku kudumba kuza kwaye kudlule ngokuhamba kwexesha, kwaye ekugqibeleni kuyawenza buthathaka izihlunu zethu.

Ukuba une-polymyositis, oku kuvutha kunokwenzeka kwimisipha emininzi ngaxeshanye. Kuqheleke kakhulu kwimisipha ekufutshane nombindi womzimba. Umzekelo:

• Ezandleni zakho (iingalo)
• Kwindawo yesinqe nasemathangeni
• Esifubeni
• Buyela umva
• Esiswini
• Entanyeni

Oogqirha abakayazi kakuhle into ebangela i-polymyositis, kwaye akukho nyango. Kodwa ugqirha unokukunceda unyange iimpawu zakho kwaye ulawule indlela ezichaphazela ngayo ubomi bakho bemihla ngemihla.

Ixhaphake kangakanani le sifo?

I-Polymyositis sisifo esingaqhelekanga. Iingcali ziqikelela ukuba abantu abangaphantsi kwama-25 kwabayi-100,000 bafumana esi sifo minyaka le. Ngoko ke ungacinga ukuba sinqabile kangakanani.

Zithini iimpawu zoku? Sizibona njani?

Kukho iimpawu ezininzi eziqhelekileyo ze-polymyositis. Makhe sijonge ukuba zeziphi:

• Ubuthathaka bemisipha: Usenokuziva ngathi izihlunu zakho ziyaphelelwa ngamandla, ingakumbi emagxeni nasemaqakaleni.
• Intlungu yemisipha kunye nokuqina kwayo: Kusenokuba buhlungu ukuyichukumisa.
• Ubunzima bokuginya: Oogqirha bakubiza oku ngokuba yi-"dysphagia." Kuvakala ngathi ukutya okanye isiselo asihambi emqaleni wakho.
• Ubunzima bokuthetha: Amagama ayaxaka, nto leyo eyenza kube nzima ukuthetha ngokucacileyo.
• Ubunzima bokuphefumla okanye ukuphefumla kancinci: Oku kubizwa ngokuba yi-"dyspnea." Usenokuziva ngathi unengxaki yokuphefumla nangona usebenzisa amandla amancinci.
• Ukudinwa rhoqo: Nokuba ulala kangakanani na, uzive ngathi awunamandla, uhlala udiniwe.
• Intlungu yamalungu.
• Ifiva.
• Ukuqina komzimba: Umzimba wakho uziva uqinile njengomthi, ingakumbi xa uvuka kusasa.
• Ukuhla ukusinda.

Ezi mpawu zinokwenza kube nzima kuwe ukwenza imisebenzi yakho yesiqhelo. Cinga ngale ndlela:

• Kunzima ukuvuka xa uhleli esitulweni.
• Imilenze yam iyaphela xa ndinyuka izinyuko.
• Kunzima ukuphakamisa ubunzima.
• Kunzima ukuphakamisa isandla sakho uphakamise into ethile.

Into ebalulekileyo ekufuneka uyikhumbule: Ezinye zeempawu ze-polymyositis zinokubangela iingxaki ezinokuba yingozi ebomini. Ngoko ke, ukuba uziva ngathi unengxaki yokuphefumla okanye awukwazi ukuginya kakuhle, yiya esibhedlele okanye ubize i-ambulensi ngoko nangoko . Kubalulekile ukuthetha nogqirha wakho ngezi zinto kwaye uhlale unolwazi.

Kutheni kukho i-polymyositis? Yintoni unobangela?

Njengoko besikhe sathetha ngaphambili, i-polymyositis sisifo esibangelwa kukuzikhusela komzimba. Kodwa iingcali azikayazi kakuhle isizathu sokuba kwenzeke oku. Oko kukuthi, isizathu sokuba inkqubo yethu yomzimba yokuzikhusela iqale ukuhlasela imizimba yethu ngequbuliso siseyimfihlakalo.

Ngamanye amaxesha i-polymyositis ingaqala nje ngaphandle kwesizathu esicacileyo. Oogqirha bayibiza le nto ngokuthi "yi-idiopathic." Nangona kunjalo, kwezinye iimeko, inokubangelwa zezinye iimeko zempilo okanye iimpendulo kumayeza athile.

Usethubeni lokuba ne-polymyositis ukuba unezinye izifo ezizikhuselayo emzimbeni. Umzekelo:

• I-Lupus
• Irheumatoid arthritis
• I-Scleroderma

Kwakhona, ezinye izifo ezibangelwa yintsholongwane zinokubangela ukuba i-polymyositis ibe mandundu.

• I-Covid-19 `(COVID-19)`
• Umkhuhlane (umkhuhlane)
• Umkhuhlane oqhelekileyo
• I-HIV `(HIV)`

Ngubani onokuba nethuba elikhulu lokufumana esi sifo? Zithini izinto ezinokubangela umngcipheko?

Nangona nabani na enokuba ne-polymyositis, amaqela athile anokuba nayo.

• Kwabasetyhini: Abafazi banamathuba aphindwe kabini okufumana esi sifo kunamadoda.
• Kwabo banezinye izifo zokuzikhusela komzimba.
• Kubantu abaphakathi kweminyaka engama-30 ukuya kwengama-60 ubudala: Nangona inokukhula nakweyiphi na iminyaka, ixhaphake kakhulu kubantu abadala abakweli qela leminyaka.

Uyibona njani le nto? Ugqirha uyifumanisa njani le nto?

Ugqirha uxilonga i-polymyositis ngovavanyo lomzimba kunye nezinye iimvavanyo. Okokuqala, uza kukubuza ngeempawu zakho, ukuba zikho ixesha elingakanani, kunye nendlela oziva ngayo. Emva koko, uza kuhlola izihlunu zakho, ingakumbi ezo zibuthathaka nezibonisa iimpawu. Uza kukubuza nokuba uziva njani xa usenza iintshukumo ezithile.

Ugqirha wakho uza kusebenzisa iimvavanyo ezininzi ukuqinisekisa i-polymyositis. Ezinye zezi vavanyo zinokunceda ekuthinteleni ezinye iimeko ezibangela iimpawu ezifanayo. Ugqirha wakho angasebenzisa iimvavanyo ezifana nezi:

• Uvavanyo lwegazi: Olu vavanyo lujonga ii-enzymes zemisipha okanye ii-antibodies ezibonisa ukuba izihlunu zakho zonakele na.
• Iskeni ye-MRI (Magnetic Resonance Imaging): Oku kunokujonga ukudumba, okanye ukudumba, kwimisipha yakho.
• Uvavanyo lwe-EMG (i-Electromyography): Olu vavanyo lunokufumanisa ukusebenza okungaqhelekanga kwemisipha.
• I-biopsy yemisipha: Oku kuquka ukuthatha iqhekeza elincinci lemisipha echaphazelekayo uze ulihlolisise phantsi kwe-microscope. Oku kunokunika umbono wobungakanani bomonakalo kwimisipha kunye nempilo yayo iyonke.

Ngaba ikhona unyango? Ungayilawula njani le nto?

Ngelishwa, akukho nyango lwe-polymyositis. Kodwa ungakhathazeki. Ugqirha wakho unokucebisa unyango olunokunceda ukulawula ukudumba, okanye ukudumba, kwimisipha yakho. Nangona olu nyango lungayi kuyinyanga ngokupheleleyo i-polymyositis, lunokunceda ukunciphisa impembelelo yeempawu kubomi bakho bemihla ngemihla. Abantu abaninzi banokulawula esi sifo ngolu nyango, bafikelele kwixesha elithile ngaphandle kokudumba kunye neempawu ezincinci (ezibizwa ngokuba yi-'remission').

Iindlela zonyango ezisetyenziswa kakhulu kwi-polymyositis zezi:

• IiCorticosteroids: Ezi luhlobo lwamayeza okulwa nokuvuvukala amiselwe ngugqirha. Zinceda ekulawuleni ukudumba kunye nentlungu.
• Ii-immunosuppressants: La mayeza asebenza ngokunciphisa ukusebenza kwenkqubo yakho yokuzikhusela komzimba, nto leyo enciphisa umonakalo onokwenziwa yiyo kwimisipha yakho. Ngamafutshane, kufana nokuzolisa umkhosi wethu.
• I-Intravenous Immunoglobulin (IVIG): Oku kuquka ukunika idosi eyongezelelweyo yee-antibodies ngemithambo yegazi. Olu nyango lwe-IVIG lunokuqondisa indlela inkqubo yakho yomzimba egxile ngayo. Emva koko lunokuhlasela kancinci izicubu zomzimba wakho. Kufana nokunika inkqubo yakho yomzimba umsebenzi wokwenza, ukuze yenze umonakalo omncinci kwimisipha yakho.
• Ulungiso lwenyama:Ugqirha wakho okanye ingcali yezonyango zomzimba iza kukufundisa imithambo kunye nokuzolula ukuze izihlunu ezichaphazelekileyo zihlale zithambile kwaye zomelele. Unyango lwezomzimba lunokunceda ukuqinisa izihlunu zakho kunye nokunciphisa ukuvela kweempawu ze-polymyositis kwixesha elizayo.

Ngaba oku kungathintelwa ukuba kwenzeke?

Ngenxa yokuba unobangela ochanekileyo wesi sifo awaziwa, akukho ndlela yokusithintela. Asinakwazi ukuqikelela ukuba ngubani oza kusifumana, nini iimpawu eziya kuvela, okanye nokuba siza kuphinda sibuye.

Kunjani ukuphila ne-polymyositis? Yintoni onokuyilindela?

I-Polymyositis idla ngokuba yimeko ehlala ubomi bonke. Nangona kungekho nyango, abantu abaninzi banokukwazi ukulawula esi sifo baze banciphise iimpawu ngokudibanisa unyango.

Nangona kunjalo, kwezinye iimeko, i-polymyositis inokubangela iingxaki ezisongela ubomi. Inokuba yingozi, ingakumbi ukuba ichaphazela kakhulu izihlunu zomqala wakho nesifuba ezikunceda uphefumle kwaye uginye.

I-Polymyositis ibangela ukudumba kunye nobuthathaka kwimisipha yakho, ingakumbi embindini womzimba wakho. Kuya kufuneka uhlale uyilawula ubomi bakho bonke, kunye namaxesha eempawu ezifikayo nezidlulayo. Nangona kungekho nyango luhlala luhleli, ugqirha wakho unokukunceda ufumane isicwangciso sonyango esikusebenzelayo. Oku kunokunceda ukunciphisa impembelelo yesi sifo kubomi bakho bemihla ngemihla. Abantu abaninzi banokulawula esi sifo kwaye bafumane iimpawu ezimbalwa.

Ndifanele ndimbone nini ugqirha?

Ukuba uqalisa ukuba nobuthathaka obutsha bemisipha, iintlungu, okanye ezinye iimpawu, ingakumbi ukuba aziphucuki kwiintsuku ezimbalwa, bonana nogqirha ngoko nangoko.

Thetha nogqirha wakho ukuba iimpawu zakho ziya zisiba mandundu okanye ukuba zibonakala zisasazeka kwezinye iindawo. Xelela ugqirha wakho ukuba uvakalelwa kukuba unyango lwakho alusebenzi kakuhle njengangaphambili, okanye ukuba iimpawu zakho ze-polymyositis ziya zisiba mandundu okanye zisiba mandundu.

Ukuba unezinye zeempawu ezilandelayo, yiya kwigumbi likaxakeka ngoko nangoko okanye utsalele umnxeba ku-911 (okanye inombolo yakho kaxakeka yasekuhlaleni):

• Ukuba awukwazi ukuhambisa inxalenye yomzimba, unokuyihambisa ngokuqhelekileyo.
• Ukuba unengxaki yokuphefumla.
• Ukuba unengxaki yokuginya.

Yeyiphi imibuzo omele uyibuze ugqirha wakho?

Kungcono ukubuza ugqirha wakho imibuzo efana nale:

• Ngaba kunokwenzeka ukuba ndingafumana olunye uhlobo lwe-myositis?
• Luhlobo luni lonyango endiludingayo?
• Zeziphi iimpawu okanye utshintsho ekufuneka ndilujonge?
• Kufuneka ndize kangaphi ukuze ndivavanywe ukuze ndijonge iimpawu zam okanye nditshintshe unyango lwam?

Ingaba le yinto evela kwizizukulwana ngezizukulwana?

Ezinye izifundo zifumanise ukuba i-polymyositis (kunye nezinye iintlobo ze-myositis) inokuba nekhonkco lemfuza. Oku kuthetha ukuba abantwana banokuzuza iinguqu ezithile zemfuza kubazali babo, nto leyo enokunyusa umngcipheko wokuba nale meko.

Nangona kunjalo, iingcali azikafumani tshintsho oluthile lwemfuza olubangela i-polymyositis. Kwaye akukabonakali ukuba ukuba une-polymyositis, abantwana bakho basengozini enkulu yokuba nayo.

Ukuba ukhathazekile malunga nokudlulisela ezi meko kubantwana bakho, thetha nogqirha wakho malunga neengcebiso zofuzo.

Ingakanani iminyaka yobomi bomntu one-polymyositis?

I-polymyositis ayidli ngokuyichaphazela indlela obuphila ngayo ubomi bakho (ukuba uza kuphila ixesha elingakanani). Nangona kunjalo, inokubangela iingxaki ezisongela ubomi, ingakumbi ukuba izihlunu entanyeni nasemqaleni wakho ziba buthathaka kakhulu. Ukuba unengxaki yokuphefumla okanye yokuginya, xelela ugqirha wakho ngoko nangoko. Angakunceda ulungise unyango lwakho ukuze ulawule ezi mpawu ngaphambi kokuba zibe yingozi.

Okokugqibela, izinto ekufuneka uzikhumbule

I-Polymyositis yimeko enzima nesongela ubomi. Nangona kunjalo, ngengcebiso efanelekileyo yezonyango, unyango, kunye nokuzinikela kwakho, abantu abaninzi baye bakwazi ukuyilawula kakuhle le meko kwaye baphila ubomi obuphumelelayo.

Khumbula, awuwedwa. Xa uphila kwimeko efana nale, inkxaso yosapho nabahlobo ibaluleke kakhulu. Kubalulekile ukuthetha ngokukhululekileyo nogqirha wakho malunga nezinto ezikuxhalabisayo kunye noloyiko lwakho. Kulapho kuphela apho unokuphuhlisa isicwangciso sonyango esifanelekileyo kuwe.

Thetha nogqirha wakho malunga nomngcipheko weengxaki ezinkulu, ingakumbi ezo zibandakanya izihlunu ezilawula ukuginya nokuphefumla. Uza kukuchazela ukuba zeziphi iimpawu zesilumkiso ekufuneka uziqaphele. Ungaze uzityeshele iimpawu. Ukufuna uncedo lwezonyango kwangethuba kunokukunceda uphephe ezinye iingxaki ezininzi.

I- Polymyositis, i-Polymyositis, ubuthathaka bemisipha, iintlungu zemisipha, izifo zokuzikhusela komzimba, ubunzima bokuginya, ubunzima bokuphefumla, unyango