Ngaba ulala ngequbuliso emini? Oku kusenokuba yiNarcolepsy! Masithethe ngayo

Ngaba wakha waziva ulele kakhulu ngelixa usebenza emini okanye uncokola nabahlobo? Usenokucinga, "Owu... andizange ndilale ngokwaneleyo izolo ebusuku." Kodwa ayikuko nje ukudinwa. Namhlanje siza kuthetha ngohlobo olwahlukileyo kancinci lwengxaki yokulala. Le yimeko ebizwa ngokuba yiNarcolepsy . Nangona ingaqhelekanga kakhulu, yinto abantu abaninzi abaye beva ngayo ngenxa yeempawu ezinxulumene nayo . Inganyangeka, kodwa inokuba nefuthe elikhulu kubomi bakho, emsebenzini, nakubudlelwane bakho nabantu.

Yintoni iNarcolepsy?

Ngamafutshane, i-Narcolepsy yimeko yemithambo-luvo ebangela ubuthongo obungalawulekiyo emini. Ngokukodwa, ingqondo yakho ayikwazi ukulawula ubuthongo nokuvuka ngokufanelekileyo. Oku kunokubangela ukuba uzive ulele kakhulu emini, nokuba ulala kangakanani ebusuku.

Ziziphi iimpawu eziphambili zeNarcolepsy?

Kukho iimpawu ezine eziphambili zeNarcolepsy. Kodwa uninzi lwabantu alunazo zonke ezine ngaxeshanye. Abanye abantu banokuba nenye okanye ezimbini. Makhe sibone ukuba zeziphi ezi mpawu.

• Ukulala Okugqithisileyo Emini : Olu luphawu oluqhelekileyo lweNarcolepsy. Kufana nokuba "nohlaselo lokulala" apho ulala khona ngequbuliso. Nokuba wenza ntoni na, uziva ngathi uyayeka ukulala.
• I-Cataplexy: Oku kukulahlekelwa ngequbuliso kolawulo lwemisipha . Ngamanye amaxesha kunokuba buthathaka, njengokushukuma kwemisipha kwelinye icala lobuso okanye lentamo. Ukuba inzima, ungawa phantsi ngequbuliso. Makhe sithethe ngale nto ngokweenkcukacha.
• Ukungaboni okunxulumene nokulala : Ezi zizinto ezenzeka xa ulele okanye xa sele uza kuvuka, kwaye zinokuba yinto eyoyikisayo kakhulu.
• Ukukhubazeka Kokulala : Usenokuba ukhe weva oku "njengokoyika ephupheni kwaye ungakwazi ukushukuma" okanye njengoko abanye besitsho, "ukuziva ngathi idemon inyukile." Kulapho ungakwazi ukushukumisa umzimba wakho nokuba uvuka, okanye mhlawumbi ungavuki ngokupheleleyo. Makhe sijonge oku ngakumbi.

Okungakumbi malunga (neCataplexy)

Sitshilo ngaphambili ukuba i-cataplexy kukulahlekelwa ngamandla emisipha ngequbuliso. I-Narcolepsy yahlulwe yaba ziintlobo ezimbini eziphambili ngokuxhomekeke ekubeni olu phawu lwe-cataplexy lukhona okanye alukho:

• (Uhlobo lwe-Narcolepsy 1) : Olu hlobo lunempawu ze- (Cataplexy) . Malunga nama-20% ezigulane (ze-Narcolepsy) zilolu hlobo.
• (Uhlobo lwe-Narcolepsy 2) : Olu hlobo alunalo uphawu lwe- (Cataplexy) . Uninzi, oko kukuthi, malunga ne-80%, luwela kolu hlobo.

Ngokwesiqhelo, xa silele, ingqondo yethu iyayeka ukulawula izihlunu zethu ukuze singenzi ngokwephupha lethu. Abantu abane-cataplexy bafumana ukulahleka kwemisipha ngequbuliso, okufana noko kwenzeka ngexesha lokulala kwe-REM, nokuba bavukile.

Kwiimeko ezibuthathaka, i-cataplexy inokuchaphazela kuphela izihlunu zobuso nentamo - umzekelo, umhlathi unokugoba. Okanye inokuchaphazela icala elinye lomzimba kuphela. Kwiimeko ezinzima, i-cataplexy inokubangela ukuwa ngequbuliso, okunokuba yingozi. Ezi ziganeko zihlala imizuzu embalwa, kodwa usenokungakwazi ukuthetha okanye ukushukuma ngeli xesha.

Enye into ekhethekileyo nge-cataplexy kukuba inokubangelwa ziimvakalelo ezithile. Inokwenzeka ngakumbi xa wonwabile, uhleka, okanye uqhula. Ingenzeka naxa umangalisiwe, usoyika, okanye unomsindo, kodwa ayixhaphakanga kangako.

I-Cataplexy inokubonakala yahlukile kancinci ebantwaneni nakubantu abaneenyanga ezintandathu ubudala xa iimpawu ziqala ukubonakala. Basenokugquma ubuso ngequbuliso, bakhuphe ulwimi lwabo, okanye babe nobuthathaka bemisipha obungahambelaniyo neemvakalelo.

Okungakumbi malunga nokukhubazeka kokulala

Xa silele, ingqondo iyayeka ukulawula izihlunu zethu ukuze zingasebenzi koko sikubonayo emaphupheni ethu. Kodwa xa sivuka, olu lawulo kufuneka lusebenze kakuhle kwakhona. Kodwa ukuba une-sleep parallelesis, umzimba wakho awufumani olo lawulo lwezihlunu kwakhona. Ungaphefumla kwaye ushukumise amehlo akho, kodwa awukwazi ukuthetha okanye ukuhambisa ezinye iindawo zomzimba wakho.

Ukungaboni kakuhle kuxhaphake kakhulu ngexesha lokukhubazeka kokulala. Kunokuba sobala kakhulu, ngamanye amaxesha koyikeke ngendlela engenakucingelwa. Ngethamsanqa, ukukhubazeka kokulala kuhlala imizuzu embalwa (nangona kunokuvakala ngathi lixesha elide kumntu ohlangabezana nako).

Ngaba zikhona ezinye iimpawu?

Ukongeza kwiimpawu ezine eziphambili, abantu abane-narcolepsy banokufumana ezinye iimpawu kunye nokuziphatha. Ezinye zazo ziquka:

• Iintshukumo Ezizenzekelayo : Abantu abane-narcolepsy ngamanye amaxesha banokuqhubeka beshukumisa amalungu omzimba, njengezandla zabo, nokuba balele.
• Ukungakwazi ukulinda okanye ukulibala : Kuqhelekile ukuba aba bantu balibele into abayenzileyo ngaphambi kokuba balale.
• Ukuqhuma/intetho ngequbuliso ngexesha lokuhlaselwa bubuthongo : Umntu one-narcolepsy angathetha into ngequbuliso (ngesiqhelo engenangqondo okanye engafanelekanga ngelo xesha). Xa oku kusenzeka, unokuvuka kwakhona ngokupheleleyo. Kodwa bahlala bengakukhumbuli.

Ngubani ofumana isifo se-narcolepsy? Sixhaphake kangakanani?

Oogqirha badla ngokuxilonga i-narcolepsy kubantu abaphakathi kweminyaka emi-5 nengama-50 ubudala. Nangona kunjalo, ixhaphake kakhulu kubantu abaselula , abaphakathi kweminyaka eli-18 nengama-25 ubudala. Amadoda anokuba nale meko.

I-Narcolepsy ayisiyonto ixhaphakileyo.Uphando lubonisa ukuba phakathi kwama-25 nama-50 kubantu abayi-100,000 kwihlabathi liphela banaso. Nangona kunjalo, kuba kuthatha iminyaka ukuxilonga esi sifo, kunzima ukutsho ukuba bangaphi abantu abanaso ngokwenene.

I-Narcolepsy iyichaphazela njani umzimba wam?

Ukuze uqonde i-narcolepsy, kuyanceda ukwazi okuncinci malunga nendlela esisebenza ngayo ubuthongo bethu. Kukho amanqanaba aphambili okulala kwethu:

• Inqanaba loku-1: Ukulala kancinci . Eli linqanaba elifutshane. Liqala kwangoko nje ukuba ulale. Lenza malunga ne-5% yobuthongo bakho bonke.
• Inqanaba lesi-2: Ukulala nzulu . Oku kunzulu kancinci. Kwenza malunga ne-45%-50% yokulala okupheleleyo (eli nani liyanda njengoko sikhula).
• Inqanaba lesi-3: Ukulala nge-Slow Wave . Malunga ne-25% yokulala iyonke (oku kuncipha ngokuya kukhula). Kunzima kakhulu ukuvusa umntu okule nqanaba. Ukuba umvusa ngequbuliso, uya kuba kwimeko yenkungu yengqondo ebizwa ngokuba yi-"sleep inertia". Ukuhambahamba ngeenyawo kunye nokuthetha ebuthongweni nako kwenzeka kweli nqanaba.
• (REM) Ukulala : (REM) imele (Rapid Eye Movement) , oko kuthetha ukuba amehlo ahamba ngokukhawuleza. Kungeli nqanaba apho siphupha khona. Xa umntu elele (REM), unokubona amehlo ehamba phantsi kweenkophe.

Ukuba awunayo i-narcolepsy, xa ulala, uqala kwinqanaba loku-1, uze uye kwinqanaba lesi-2 nelesi-3. Ujikeleza phakathi kwezi zigaba, uze ekugqibeleni ungene kwi-REM sleep, apho uqala khona ukuphupha. Emva komjikelo wokuqala we-REM, uqala umjikelo omtsha uze ubuyele kwinqanaba loku-1 okanye lesi-2. Umjikelo omnye uhlala malunga nemizuzu engama-90. Uninzi lwabantu ludlula kwimijikelo emine ukuya kwemihlanu ngobusuku (ukuba balala iiyure ezisi-8).

Kodwa ukuba une-narcolepsy, umjikelo wakho wokulala awubi njalo. Endaweni yoko, ulala kwi-REM ngokukhawuleza nje emva kokuba ulele . Ubusuku bonke, ulala ngokukhawuleza, rhoqo ngaphandle kokugqiba umjikelo wesiqhelo wokulala.

Kwi-narcolepsy, nokuba ulala kakuhle kangakanani ebusuku, uziva ulele kakhulu emini. Kunzima kakhulu ukuyeka ukulala. Kodwa obu buthongo bufika emini bufutshane (malunga nemizuzu eli-15-30). Xa uvuka, uziva uhlaziyekile kwaye ulungele ukwenza oko ubukwenza ngaphambili. Nangona kunjalo, kungenxa yokuba oku kwenzeka amaxesha amaninzi ngemini apho i-narcolepsy iba yingxaki enkulu ebomini bakho.

Zithini izizathu ze-narcolepsy?

Izizathu ze-narcolepsy ziyahluka ngokuxhomekeke kuhlobo lwe-narcolepsy onayo, kodwa zonke zibandakanya indawo ekhethekileyo yobuchopho bakho ebizwa ngokuba yi-hypothalamus , elawula ukulala nokuvuka.

Izizathu ze (Uhlobo 1 lweNarcolepsy)

Ngo-1998, abaphandi bafumanise ikhemikhali ebizwa ngokuba yi-orexins (ngamanye amaxesha ibizwa ngokuba yi-hypocretins) . Ezi zisetyenziswa zii-neurons ezithile (iiseli zobuchopho) ukuthumela imiyalezo. Ii-neurons ezisebenzisa ii-orexins zikwinxalenye yobuchopho ebizwa ngokuba yi-hypothalamus. Ezi neurons zezona zisinceda kakhulu ukuba sihlale siphaphile.

Amanqanaba e-Orexin adla ngokufumaneka kwi-cerebrospinal fluid (CSF) – umaleko omncinci wolwelo ojikeleze ingqondo kunye nomqolo. Nangona kunjalo, kubantu abane-narcolepsy, amanqanaba e-orexin kwi-CSF aphantsi kakhulu okanye awabonakali. Oku kuthetha ukuba iiseli ezenza i-orexin ziyekile ukusebenza okanye zitshatyalaliswe yinto ethile.

Olunye uphando lubonisa ukuba isizathu sokuba ezi neuron zingasebenzi kusenokwenzeka ukuba yingxaki yokuzikhusela komzimba . Oku kuthetha ukuba inkqubo yomzimba wakho yokuzikhusela ihlasela ii-neurons ezenza nezisebenzisa i-orexin, okanye i-orexin ngokwayo, okanye zombini.

Malunga ne-90%-95% yabantu abane-Type 1 Narcolepsy bane-genetic change ethile echaphazela amasosha omzimba abo (eyaziwa ngokuba yi -HLA-DQB1*06:02 ). Nangona kunjalo, malunga ne-25% yabantu ngokubanzi nabo banayo le nguqu kodwa abanayo i-Narcolepsy. Ke ngoko, iingcali azivavanyi le nguqu, kwaye aziqinisekanga ukuba idlala yiphi indima. Kukwakho nobungqina bokuba le meko inokusebenza kwiintsapho. Ukuba isalamane sakho sokuqala (umzali, umntakwenu, umntwana) sine-Narcolepsy, nawe usemngciphekweni omkhulu wokuba nayo.

Nangona kunjalo, i-Type 1 Narcolepsy inokukhula emva kosulelo oluthile lweentsholongwane kunye neebhaktheriya, ingakumbi iintsholongwane zomkhuhlane ezifana ne-H1N1 influenza kunye neebhaktheriya ezibangela i-strep throat. Iingcali zikholelwa ukuba oku kungenxa yokuba iintsholongwane ngamanye amaxesha zinokubangela utshintsho kunye nokungasebenzi kakuhle kwenkqubo yomzimba yokuzikhusela.

Izizathu ze (Uhlobo lwesibini lwe-Narcolepsy)

Nangona kuninzi okwaziwayo ngezizathu ze-Type 1 Narcolepsy, akukabikho kangako nge-Type 2 Narcolepsy. Iingcali azikaqondi ngokupheleleyo ukuba kutheni i-Type 2 Narcolepsy ikhula. Kodwa zicinga ukuba isenokuba nezizathu ezifanayo. Umzekelo, isenokuba ngenxa yomonakalo omncinci kwii-neurons ezisebenzisa i-orexin, okanye ingxaki ngendlela i-orexin ehamba ngayo engqondweni.

I-Narcolepsy yesibini

Kwiimeko ezingaqhelekanga, i-narcolepsy inokubangelwa kukonakala kwe-hypothalamus yakho. Lo monakalo unokubangelwa zizinto ezifana nokwenzakala entloko (ukungqubana kwemisipha), ukwenzakala kwengqondo okubuhlungu (ukwenzakala kwengqondo okubuhlungu), ukubetheka, kunye neethumba zobuchopho.

I-Narcolepsy inokuba luphawu lwezinye izifo ezingahambelaniyo osenokuba uzifumene njengelifa. Imizekelo:

• (I-Autosomal Dominant Cerebellar Ataxia, i-Narcolepsy kunye nokungaqondi kakuhle (ADCADN))
• (I-Autosomal Dominant Narcolepsy, Isifo Seswekile Sohlobo Lwesibini kunye Nokutyeba Kakhulu)

Ngaba i-Narcolepsy iyosulela?

Hayi, iNarcolepsy ayisosifo esosulelayo. Awunakuyifumana komnye umntu, kwaye awunakuyifumana nakuwe.

Indlela yokubona i-narcolepsy?

Iimpawu zakho zinokubangela ukuba ugqirha acinge ukuba une-narcolepsy. Nangona kunjalo, iimpawu ze-narcolepsy ziyafana nezezinye iingxaki ezininzi zengqondo kunye nokulala. Ngoko ke, kubalulekile ukwazi ukuba unayo na i-narcolepsy.Ukuxilongwa okuqinisekileyo kungenziwa kuphela ngovavanyo oluthile lokuxilonga.

Ngaphambi kokuba enze uvavanyo oluninzi oluphambili lwe-narcolepsy, ugqirha uza kuqala ajonge ukuba ulala ngokwaneleyo na. Oku kudla ngokwenziwa kusetyenziswa iindlela ezilula ezijonga iipatheni zakho zokulala nokuvuka. Umzekelo yi -actigraphy . Oku kuquka ukusebenzisa isixhobo, esinjengewotshi yesandla, ukujonga iipatheni zakho zokuhamba (ezifana nokuba ulele nini na, xa uvukile kwaye uhambahamba).

Zeziphi iimvavanyo ezisetyenziselwa ukuxilonga i-narcolepsy?

Kukho iimvavanyo ezininzi ezinokwenziwa ukufumanisa isifo se-narcolepsy:

• Uphononongo Lokulala (iPolysomnogram) : Olu vavanyo lusebenzisa iisensa ezahlukeneyo ukujonga indlela olala ngayo. Inxalenye ephambili yophononongo olupheleleyo lokulala, olubizwa ngokuba yipolysomnogram , kukusetyenziswa kwe-electroencephalogram (EEG) . Ezi sensa zijonga amaza akho obuchopho. Oku kuvumela oogqirha ukuba babone ukuba ukuliphi inqanaba lokulala ngomzuzu ngomzuzu. Abantu abane-narcolepsy balala ngokukhawuleza kunesiqhelo, ngoko ke olu vavanyo lunokukufumanisa oku. Lukwabhala phantsi ukuba bavuka nini ngexesha lokulala. Esinye isizathu sokuba olu vavanyo lubalulekile kukuba ukulala kakhulu emini kunokuba luphawu lwesifo esibizwa ngokuba yi-sleep apnea . Uphononongo lobuthongo lunokuqinisekisa ukuba awunayo i-sleep apnea.
• Uvavanyo lwe-Multiple Sleep Latency (MSLT) : Olu vavanyo lulinganisa ukuba kulula kangakanani ukulala emini. Lubandakanya ukulala kaninzi ngexesha elithile. Lunokumisela ukuba ulele kakhulu emini. Olu luphawu oluqhelekileyo lwe-narcolepsy. Ludla ngokwenziwa ngosuku olulandela uphando lokulala ebusuku.
• Uvavanyo Lokugcina Ukuvuka : Olu vavanyo lulinganisa ukuba ungahlala uphaphile kangakanani emini, nokuba ulala lula. Alusetyenziswa rhoqo ukujonga i-narcolepsy, kodwa lunokunceda ekuthinteleni ezinye iingxaki. Kukwaluncedo ukubona ukuba amayeza avuselelayo ayasebenza na.
• I-Spinal Tap (Lumbar Puncture) : Olu vavanyo lunokufumanisa amanqanaba aphantsi e-orexin kwi-cerebrospinal fluid yakho (CSF). Le yindlela ephambili yokuxilonga i-Type 1 Narcolepsy. Amanqanaba aphantsi e-orexin anokuba luphawu lokuba umntu one-Narcolepsy akakabi ne-cataplexy, kodwa anokuba luphawu lokuba usenokuba ne-cataplexy kwixesha elizayo. Nangona kunjalo, ekubeni amanqanaba e-orexin engatshintshi kubantu abane-Type 2 Narcolepsy, olu ayilovavanyo lokuxilonga rhoqo.

Ezinye iimvavanyo

Abantu abane-narcolepsy banokuba nezinye iimvavanyo ezininzi. Umzekelo, ukuba une-cataplexy, ingafana neempawu ezinxulumene nokuhamba kwezinye iingxaki zobuchopho, ezifana nokuxhuzula. Ke ngoko, oogqirha basenokuqala bavavanye iimeko ezinzulu ngakumbi, ezifana nesifo sokuxhuzula. Ke ngoko, kungathatha ixesha ukufumanisa isifo sokuxhuzula. Ugqirha wakho ngumntu ongcono ukuchaza ukuba zeziphi iimvavanyo ekufuneka uzenze kunye nesizathu sokuba zenziwe.

Inyangwa njani i-narcolepsy? Ngaba inganyangeka?

I-Narcolepsy inokunyangeka, kodwa ayinakunyangwa . Unyango ludla ngokuqala ngamayeza. Kodwa ukwenza utshintsho kwindlela yakho yemihla ngemihla kunye nendlela ophila ngayo kunokunceda. I-Narcolepsy idla ngokuphendula kakuhle kunyango. Oku kunokunceda ukunciphisa ukuphazamiseka okubangelwa ziimpawu.

Khumbula, i-narcolepsy yimeko ehlala ihleli, kodwa ayibi mbi ngokuhamba kwexesha.

Ngawaphi amayeza e-narcolepsy?

Amayeza lolona nyango luphambili lwe-narcolepsy. Uninzi lwamayeza lujolise ekozeleni kakhulu emini. Nangona kunjalo, amanye amayeza achaphazela nezinye iimpawu. Nazi ezinye iintlobo zamayeza anokunikwa kwesi sifo:

• Amayeza Okuvuka : La adla ngokuba lunyango lokuqala. Imizekelo ibandakanya iModafinil kunye neArmodafinil . La mayeza avuselela inkqubo yakho yemithambo-luvo. Oku kunokunceda ukunciphisa ubukhali kunye nokuphindaphindeka kokulala emini.
• Ii-Amphetamines kunye nee-Amphetamine-like Stimulants : Iziyobisi ezifana ne -methylphenidate (ezaziwa phantsi kwamagama e-brand Ritalin®, Concerta®, Qullivant®) kunye nee-amphetamine/dextroamphetamine combinations (ezaziwa phantsi kwegama le-brand Adderall®).
• Ii-Antidepressants : Ezi zingabandakanya ii-Serotonin-Norepinephrine Reuptake Inhibitors (ii-SNRIs) (umz. iVenlafaxine - eyaziwa ngokuba yi-Effexor®), ii-Selective Serotonin Reuptake Inhibitors (ii-SSRIs) (umz. iFluoxetine - eyaziwa ngokuba yiProzac®), okanye ii-Tricyclic Antidepressants (umz. iClomipramine okanye iProtriptyline - ezi ngoku azisetyenziswa rhoqo).
• (I-Sodium Oxybate) : Eli yeza likunceda ulale ngcono kwaye linciphisa ukuphindaphindeka kwe-(Cataplexy). Ngenxa yemiphumo yale yeza, lilawulwa ngokungqongqo kumazwe amaninzi. Nangona kunjalo, lisetyenziswa rhoqo ukunyanga (uhlobo 1 lwe-Narcolepsy).
• Amayeza achaphazela i-histamine : Umzekelo weziyobisi ezinjalo yiPitolisant .Le yi-histamine receptor antagonist. Ii-Receptor antagonists ngamayeza athintela iikhemikhali ezithile emzimbeni wakho ukuba zinganamatheli kwiiseli. Oku kunciphisa okanye kumisa iiseli ekwenzeni izinto ezithile.

Nangona kukho iindlela ezahlukeneyo zonyango zabantu abadala (i-narcolepsy), iindlela zonyango zabantwana zinqongophele kakhulu. Ugqirha wezingane okanye ingcali yomntwana wakho inokukuxelela ngcono ukuba zeziphi iindlela zonyango ezikhoyo kuwe kunye nezinto abazicebisayo.

Iingxaki/iziphumo ebezingalindelekanga zonyango

Amayeza amaninzi asetyenziswa ukunyanga isifo se-narcolepsy kunye neempawu zaso zinethuba elikhulu lokudibana namanye amayeza. Uxinzelelo lwegazi oluphezulu kunye nokungahambelani kwentliziyo ziingxaki ezimbini ezinokubakho kulo naluphi na uhlobo lwamayeza avuselelayo. I-Sodium Oxybate, ngakumbi, iyingozi kakhulu xa idityaniswe namanye amayeza acinezela inkqubo yemithambo-luvo ephakathi. Kwakhona, ungaze usebenzise eli yeza kunye notywala .

Ngokubanzi, ugqirha wakho ngumntu ofanelekileyo ukukuxelela ukuba zeziphi iziphumo ebezingalindelekanga, iingxaki, kunye nokusebenzisana namayeza ekufuneka ukwazi. Angakunika ulwazi oluhambelana nemeko yakho ethile, imbali yempilo, kunye neemeko zakho zobuqu.

Ndingazinyamekela njani kwaye ndilawule iimpawu zam?

Akufuneki uzame ukuzixilonga okanye ukunyanga i-narcolepsy . Oku kungenxa yokuba iimpawu zesi sifo ziqhelekile nakwezinye iimeko ezinzulu, ezifana ne-sleep apnea kunye ne-epilepsy. Kwakhona, esi sifo singenza eminye imisebenzi, efana nokuqhuba imoto nokuqubha, ibe yingozi. Ngoko ke, soloko ubona ugqirha ukuze ufumane isifo kwaye ufumane unyango .

Ndiza kuziva bhetele nini emva konyango?

Ixesha elithathwayo ukuze unyango luqale ukusebenza, okanye ukuba iziphumo zonyango zivakale, lixhomekeke kwizinto ezininzi. Ugqirha wakho ngumntu ofanelekileyo ukukuxelela into omawuyilindele ngokusekelwe kwimeko yakho, ixesha eliza kuthatha ukuba amayeza asebenze, kunye nexesha eliza kuthatha ukubona utshintsho kwiimpawu zakho.

Ngaba uphuhliso lwe-narcolepsy lungancitshiswa okanye luthintelwe?

Kwiimeko ezininzi, i-narcolepsy ikhula ngequbuliso. Ngenxa yoko, akunakwenzeka ukunciphisa umngcipheko wokuyifumana okanye ukuyithintela ukuba ingaphumi.

Yintoni endimele ndiyilindele ukuba ndineNarcolepsy?

I-Narcolepsy ngokwayo ayisiyongozi. Kodwa ukulala ngequbuliso, okungalawulekiyo, kunokuba yingozi enkulu ebomini. Abantu abanale meko basenokungakwazi ukuqhuba (nokuba okwethutyana okanye ngokusisigxina - kuxhomekeke kwiimpawu zabo kunye nemeko yabo).

Nangona i-narcolepsy idla ngokungaba yingozi, kwi-Type 1 narcolepsy, kukho umngcipheko okhulayo wokwenzakala ngenxa yokuwa ngexesha le-cataplexy. I-Narcolepsy inokubangela iimeko eziyingozi xa uqhuba, usebenzisa izixhobo zamandla okanye oomatshini abanzima, okanye udada.

Xa abantwana befumana isifo sokudumba kwentliziyo

Abantwana abane-narcolepsy badla ngokujamelana nemiphumo yesi sifo. Ukulala emini kunokwenza kube nzima ukugxila kumsebenzi wesikolo, ukugcina ubudlelwane nabantu, kunye nokuthatha inxaxheba kwimisebenzi yesikolo neyezinye izinto ezenziwa ngaphandle kwesikolo.

Nangona kunjalo, i-Narcolepsy yimeko yezonyango. Ngenxa yoko, abantwana abane-Narcolepsy banelungelo lokukhuselwa ngokusemthethweni. Izikolo nazo ziyafuneka ngokomthetho ukuba zenze amalungiselelo. Umzekelo, ukutshintsha iishedyuli zeklasi, ukubekela bucala ixesha lokulala okanye lokuphumla, kunye nokwenza kube lula kubantwana ukuba bathathe amayeza abo esikolweni. Ugqirha wezingane womntwana wakho okanye ezinye iingcali zinokukunceda ufumane izisombululo eziza kunceda umntwana wakho.

Kwabantu abadala abasebenzayo (i-Narcolepsy)

Njengokuba abantwana bekhuselwe ngumthetho ezikolweni, abantu abadala abane-narcolepsy nabo bakhuselwe ngumthetho. Ukucalucalulwa komntu ngokusekelwe kwimeko yezonyango, kuquka ne-narcolepsy, akuvumelekanga (umzekelo, eMelika, phantsi koMthetho wamaMerika aKhubazekileyo).

Ngenxa yokhuseleko olusemthethweni, abantu abane-narcolepsy banokuthetha nabaqeshi babo kwiindawo zabo zokusebenza baze bafumane indawo yokuhlala ukuze baqhubeke nokusebenza ngelixa belawula imeko yabo.

Ndingazinyamekela njani? (Iingcebiso eziluncedo)

Ukuba une-narcolepsy, kukho izinto ezininzi onokuzenza ukulawula imeko yakho kwaye ufumane okuninzi kunyango lwakho. Uninzi lwezi zinto lubandakanya ukugcina imikhwa emihle yokulala (Ucoceko Oluhle Lokulala) kunye nokutshintsha ishedyuli yakho kunye nenkqubo yakho.

• Hlala ulala rhoqo : Ukuziqhelanisa nokulala nokuvuka ngaxeshanye kunokuphucula umgangatho wobuthongo bakho.
• Beka ixesha lokulala : Beka ixesha lokulala elikuvumela ukuba ufumane ixesha lokulala elifanelekileyo ngokweminyaka yakho. Kwakhona, beka bucala ixesha lokuphumla nokuzola ingqondo yakho ngaphambi kokuba ulale.
• Nciphisa ukukhanya okukhanyayo kunye nezixhobo ze-elektroniki : Ukukhanya okuvela kwezi zixhobo xa sele zisondele ixesha lokulala kunokuphazamisa umjikelo wendalo womzimba wakho wokulala nokuvuka.
• Kuphephe ukusela utywala, i-caffeine, ukusebenzisa icuba, nokutya xa sele kusondele ixesha lokulala.: Ukuba uziva ulambile ngaphambi kokuba ulale, ukutya okulula yeyona nto ilungileyo. Ukuba usela amayeza athile, kufuneka uyeke ngokupheleleyo ukusela utywala (ugqirha wakho uya kukuxelela ukuba unikwe amayeza anjalo). Iingcali zikwacebisa kakhulu ukuba uyeke ngokupheleleyo iimveliso zecuba (kuquka icuba, icuba le-elektroniki ((vaping)), kunye necuba elingenamsi ((icuba elingenamsi))).
• Yiba nomdla womzimba : Nokuba yinto efana nokuhamba nje, ukuhlala unomdla wokusebenza kunokunceda ulale kakuhle.
• Lala kancinci : Abantu abane-narcolepsy badla ngokuziva bebhetele emva kokulala kancinci. Kungakunceda ukufumanisa ukuba zeziphi izihlandlo zosuku oziva ulele kakhulu kwaye ucwangcise ixesha lakho lokulala ngaloo maxesha.

Ziphephe izinto eziyingozi, okanye uthathe amanyathelo okuzikhusela.

I-narcolepsy inokubangela iingozi ezinkulu nezibulalayo. Ukuze uzikhusele wena kunye nabo bakungqongileyo, ungaze uqhube ngaphandle kokuba ugqirha wakho ekunika imvume ethile .

Ukuba ufumana iimpawu ze-narcolepsy ngelixa uqhuba, yeka ukuqhuba ngoko nangoko kwaye uqhagamshelane nogqirha wakho. Nangona oku kungakhululeki, kubalulekile ukuthintela ingozi ebulalayo okanye etshintsha ubomi ngenxa yokulala uqhuba.

Enye indawo apho i-narcolepsy inokuba yingozi kakhulu kukwindawo enamanzi . Ukuba une-narcolepsy, kubaluleke kakhulu ukusoloko unxibe ijakethi yokusindisa ubomi ngokufanelekileyo xa udada okanye nakweyiphi na inqanawa okanye inqanawa yamanzi ecebisa umlondolozi wobomi. Ngaphandle komlondolozi wobomi, ukuhlaselwa bubuthongo emanzini kunokuba nemiphumo ebulalayo.

Ndifanele ndimbone nini ugqirha?

Ukuba ngequbuliso, ulele ngokungalindelekanga, luphawu lokuba kufuneka ubone ugqirha. Oku akusiyo nje i-narcolepsy, kodwa kunokubonisa neemeko ezahlukeneyo zonyango. Ezinye zazo zimbi kakhulu. Kwiimeko ezininzi, okukhona ulibazisa ukuxilongwa nonyango ixesha elide, kokukhona umngcipheko weengxaki okanye unyango lungasebenzi kakuhle.

Ndingaya nini kwiYunithi yoNyango oluNgxamisekileyo (i-ETU) ?

Ukuba ngequbuliso uquleka okanye ulahlekelwe zingqondo, funa uncedo lwezonyango ngokukhawuleza esibhedlele okanye kwigumbi likaxakeka. Olu luphawu olukhulu lweemeko ezininzi, kubandakanya ukuhlaselwa yintliziyo, isifo sohlangothi, kunye nokungahambelani kakuhle kwezingqiniba zentliziyo. Ezi meko ziimeko ezingxamisekileyo zonyango kwaye zifuna unyango olukhawulezileyo.

Ukulimala okunxulumene nokuwa kukulimala okwenzeka xa uwe ngequbuliso, njengokutsalwa okanye ukulahlekelwa zingqondo.Kukho umngcipheko wokwenzakala. Soloko ucela ingcebiso kagqirha ukuba ucinga ukuba unokwenzakala entloko, entanyeni, okanye nakweyiphi na inxalenye yomqolo wakho. Ukuqhekeka kunye nokwenzakala kwintambo yomqolo kunokubangela umonakalo ongunaphakade, ukukhubazeka, kwanokufa.

Ukuba uyawa, kwaye uthatha naluphi na uhlobo lwamayeza okunciphisa igazi , ingakumbi ukuba ubetheke entloko, kufuneka ufune unyango ngokukhawuleza. Ukuwa nokwenzakala kunokubangela ukopha okuyingozi ngaphakathi. Udinga unyango ukuqinisekisa ukuba awunazo naziphi na iingozi ezinokukhokelela kwiingxaki ezisongela ubomi.

Izinto ezibalulekileyo ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

Ngoko ke, ndiyathemba ukuba ukwazile ukukhumbula ezinye zezona zinto zibalulekileyo kwizinto esithethe ngazo (iNarcolepsy).

• I-narcolepsy ayikokulala nje okubangelwa kukudinwa, kodwa yingxaki enxulumene nokukwazi kwengqondo ukulawula ukulala nokuvuka.
• Qaphela iimpawu eziphambili zokulala kakhulu emini, i-cataplexy (ubuthathaka bemisipha ngequbuliso), ukubona izinto ezingekhoyo okunxulumene nokulala, kunye nokukhubazeka kokulala . Ayizizo zonke ezi mpawu ezenzeka kuye wonke umntu.
• Isizathu sale meko sidla ngokuba kukuncipha kwe- orexin yekhemikhali engqondweni, okanye iingxaki zokuzikhusela komzimba.
• I-Narcolepsy ifuna uvavanyo lwezonyango olukhethekileyo ukuze kuchongwe isifo. Ngoko ke musa ukungxama ufikelele kwizigqibo ngokwakho.
• Nangona oku kungenakunyangwa ngokupheleleyo, yimeko enokulawulwa kakhulu ngamayeza kunye notshintsho kwindlela yokuphila .
• Cinga ngokhuseleko. Lumka ngakumbi xa uqhuba, udada, kwaye usebenza kwiindawo eziphakamileyo. Landela iingcebiso zonyango.
• Ukuba unale mpawu, ungoyiki ukubona ugqirha. Awuwedwa. Uncedo luyafumaneka.

Ndiyathemba ukuba olu lwazi luza kukunceda. Ukuba wena okanye umntu omaziyo unengxaki efana nale, kungcono ukufuna ingcebiso kagqirha ngokukhawuleza.

I- Narcolepsy, ukozela kakhulu emini, i-cataplexy, i-sleep apnea, ukubona izinto ezingekhoyo xa ulele, i-orexin, izifo zobuchopho