Ngaba ngamanye amaxesha uphathwa ziintloko ngaphandle kwesizathu? Okanye ngaba ukhe waxhuzula ngequbuliso? Mhlawumbi ugqirha wakho uthe ngexesha lokuhlolwa kwengqondo ukuba unehlwili legazi elincinci engqondweni yakho? Kuqhelekile ukuba uzive usoyika kwaye ukhathazekile xa usiva into efana nale. Kodwa ungakhathazeki. Ixesha elininzi, oku akuyonto imbi. Namhlanje sithetha ngale 'hlwili lengqondo' okanye ngokwezonyango ebizwa ngokuba yi-'Cavernous Malformation'. Masithethe ngale nto ngokulula, ngendlela onokuyiqonda.
Yintoni iCavernous Malformation?
Ngamafutshane, i-'Cavernous Malformation' sisiqhuma esingaqhelekanga esenziwe yimithambo yegazi emincinci emzimbeni wethu, ebizwa ngokuba yi-capillaries, edibana. Sibonakala njenge-raspberry xa usijonga kuqala. Ngaphakathi kwesi siqhuma kukho imingxunya emininzi emincinci egcwele igazi.
Cinga nje, imithambo yegazi yethu eqhelekileyo yenziwe ngodonga oluqinileyo. Kodwa iindonga zemithambo yegazi kule 'Cavernous Malformation' zincinci kakhulu kwaye zibuthathaka . Kwaye azinankxaso ifanelekileyo. Kulapho ingxaki iqala khona. Ngenxa yezi ndonga zibuthathaka, ngamanye amaxesha kukho ithuba elikhulu lokuba igazi elithile liphume kule mithambo liye kwizicubu ezingqongileyo.
Le meko ixhaphake kakhulu engqondweni yethu nakwi-spinal cord . Yiyo loo nto ikwabizwa ngokuba yi-'Cerebral Cavernous Malformation'. Nangona kunjalo, ngamanye amaxesha inokuvela kwiindawo ezifana nolusu, isibindi kunye namehlo.
Oogqirha babiza le meko ngamagama ahlukeneyo. Ngoko ke ungakhathazeki ukuba ubona elinye lala magama kwingxelo yakho, onke athetha into enye.
- IiCavernomas
- IiCavernous Hemangiomas
- Iingxaki zeCerebral Cavernous
- IiCavernous Angiomas
Ngaba ezi Cavernous Malformations ziyingozi ngokwenene?
Umbuzo omkhulu abantu abaninzi abanawo xa besiva eli gama ngulo, "Ingaba lo ngumhlaza? Ingaba lo uyingozi?" Okokuqala, asingomhlaza .
Kodwa ukuba le meko iyingozi okanye ayisiyongozi iyahluka kumntu nomntu. Kuxhomekeke kwizinto ezininzi:
- Ubungakanani beqhuma: Ukuba likhulu kangakanani.
- Inani lamaqhuma: Zingaphi amaqhuma anje akhoyo emzimbeni wakho.
- Indawo: Iphi engqondweni?
- Umngcipheko wokopha: Kukho ithuba lokuba kuya kuqhuma kubangele ukopha okukhulu.
Ngenxa yokuba iindonga zale mibhobho yegazi zincinci, kukho umngcipheko wokopha. Ukopha ngaphakathi kwengqondo kunokubangela iimeko ezinje ngokuxhuzula, ukukhubazeka, okanye isifo sohlangothi. Ukuba ukopha kukhulu, kunokuba yingozi ebomini.
Nangona kunjalo, eyona nto ibalulekileyo ekufuneka uyikhumbule apha kukuba uninzi lweeCavernous Malformations azibangeli ngxaki zinkulu . Abantu abaninzi baphila bengazi nokuba banazo.
Ngoko ke, ukuze wazi kakuhle imeko yakho, kungcono ukuthetha ngokukhululekileyo nogqirha wakho. Uza kuhlola ingxelo yakho yeskeni aze achaze iingozi ezinxulumene nemeko yakho.
Zithini iimpawu zale meko?
Uninzi lwabantu abanale meko abanazo iimpawu. Kodwa ukuba banazo, kudla ngokuba luphawu lokuba kukho igazi elincinci eliphuma emithanjeni yegazi. Ezi mpawu zihlala ziqala ukubonakala phakathi kweminyaka engama-20 ukuya kwengama-60 ubudala.
Le theyibhile ingezantsi idwelisa ezinye zezona mpawu zixhaphakileyo.
| Uphawu | Inkcazo |
|---|---|
| Ukuxhuzula | Olu luphawu oluqhelekileyo. |
| Intloko ebuhlungu | Intloko ebuhlungu rhoqo okanye engaqhelekanga. |
| Ubuthathaka bomzimba okanye ukungakhululeki | Ukuziva ngathi kukho ukungaziva okanye ubuthathaka kwelinye icala lengalo, umlenze, okanye ubuso. |
| Iingxaki zokubona | Umbono ofipheleyo, ukubona kabini, okanye ukulahleka kombono. |
| Iingxaki zebhalansi | Ukulahlekelwa yibhalansi nokuwa xa uhamba okanye umi. |
| Utshintsho ebalini | Intetho engacacanga okanye ubunzima bokufumana amagama. |
| Ezinye iimpawu | Ukudinwa, ukudinwa, ukulahlekelwa yinkumbulo, ukuva kakubi, ukungcangcazela. |
Yintoni unobangela wale meko?
Uninzi lwexesha, oko kukuthi, malunga ne-80% yamatyala, oogqirha abazi unobangela ochanekileyo wezi `Cavernous Malformations`. Ziyenzeka 'ngamaxesha athile'.
Kodwa malunga nama-20% amatyala, inekhonkco lemfuza . Oku kuthetha ukuba le meko inokudluliselwa kwisizukulwana ukuya kwesinye. Kuchongwe ii-genes ezintathu ezibangela oku:
- `CCM1 (KRIT1)`
- `CCM2`
- `CCM3 (PDCD10)`
Ngamafutshane, ezi jini zezona zenza iiproteni ezinceda ekudibaniseni iiseli kwimithambo yegazi yethu kwaye zihlale zomelele. Xa kukho isiphene okanye umahluko kwezi jini, unxibelelwano phakathi kwezo seli luba buthathaka. Kulapho ke ezi mithambo yegazi engaqhelekanga nebuthathaka zenzeka khona.
Le meko izuzwe njengelifa ngendlela ethi ``Autosomal Dominant``. Oku kuthetha ukuba umntwana unokuba nale meko nokuba ufumana enye yezakhi zofuzo ezinesiphako kumama okanye kutata. Ukuba unale meko yezakhi zofuzo, kukho amathuba angama-50% okuba umntwana wakho ayizuze njengelifa. Ukuba kukho umntu kusapho lwakho onale meko okanye ukuba kukho umntu onezakhi zofuzo ezingaphezu kwenye, kusenokwenzeka ukuba kungenxa yesizathu sezakhi zofuzo.
Ugqirha uyixilonga njani le nto?
Rhoqo, le meko ifunyaniswa ngengozi ngexesha lokuhlolwa kwengqondo ngesinye isizathu, njengentloko ebuhlungu okanye ingozi, okanye emva kokuba kuvele iimpawu ezifana nokuxhuzula.
Uvavanyo oluphambili olusetyenziselwa ukufumanisa oku yi -MRI (Magnetic Resonance Imaging) .
- I-MRI eqhelekileyo: Oku kunokubona ngokucacileyo izinto ezifana nendawo kunye nobukhulu beqhuma.
- I-MRI ekhethekileyo (Umfanekiso oLungelelaniswa nokuThatha iNgcamango): Olu luvavanyo olunobuzaza ngakumbi. Lunokubona amahlwili amancinci kakhulu, kunye neempawu zokopha okuncinci kakhulu kwangaphambili. Olu lwazi lunokunceda ugqirha wakho ukuba afumane umbono womngcipheko wakho wexesha elizayo.
Ukongeza, uvavanyo lwemfuza lunokwenziwa ukujonga imbali yosapho, kwaye ukuba kuyimfuneko, kuchongwe ukuba ingaba yimeko yemfuza.
Zeziphi iindlela zonyango ezikhoyo?
Ayinguye wonke umntu ofunyaniswe ene-cavernous malformation oya kufuna utyando. Unyango luxhomekeke kwiimpawu zakho, indawo eqhuma kuyo, nokuba liphuma igazi na.
1. Ukubeka iliso
Ukuba awunazo iimpawu kwaye awuphumi eqhumeni, ugqirha wakho uhlala elandela indlela "yokulinda ngononophelo".
- Iiskeni ze-MRI rhoqo : Iiskeni zenziwa malunga kanye ngonyaka ukujonga utshintsho kubukhulu bethumba kunye nokopha okutsha.
- Ukwazi iimpawu: Uza kwaziswa malunga neempawu ekufuneka uzixhalabise ngazo kunye nexesha lokwazisa ugqirha ngoko nangoko.
2. Ulawulo lweempawu ngamayeza
Ukuba uneempawu ezifana nokuxhuzula okanye intloko ebuhlungu ngenxa yeqhubu, ugqirha wakho uya kukunika amayeza okulawula ezo mpawu. La mayeza awayi kuyenza iqhubu liphele, kodwa anokunceda ukulawula ukungakhululeki okubangelwa yiyo.
3. Ukususwa ngotyando
Utyando lucetyiswa kuphela kwiimeko ezithile ezikhethekileyo.
- Ukuba ukhe wopha ngaphezu kwesinye kwaye uneempawu .
- Ukuba ukopha kubangele ukuphazamiseka kwemithambo-luvo (umz., ukulahlekelwa yimvakalelo kwelinye icala lomzimba, utshintsho embonweni) kwaye imeko iba mandundu imihla ngemihla.
- Ukuba unesithuthwane esingenakulawuleka ngamayeza.
- Ukuba ithumba likwindawo apho linokususwa khona ngokukhuselekileyo ngaphandle kokubangela umonakalo omkhulu engqondweni.
Isigqibo sokuba kwenziwe utyando okanye hayi senziwa ngugqirha wemithambo-luvo emva kwengxoxo ende nawe malunga neenzuzo kunye neengxaki zotyando.
Ndingenza ntoni ukunciphisa umngcipheko wokopha?
Nangona kungekho ndlela yokuthintela ukuba la maqhuqhuva angabikho, kukho izinto ezimbalwa onokuzenza ukunciphisa umngcipheko wokuba aphume igazi okanye aqhume. Oko kuthetha ukuba ukhathalele impilo yakho iyonke.
- Gcina uxinzelelo lwegazi olusempilweni, i-cholesterol, kunye namanqanaba eswekile egazini .
- Ukuba okwangoku usebenzisa amayeza, afana ne-blood thinners , thetha nogqirha wakho malunga nokuba angayichaphazela na le meko.
- Zilolonge ubuncinane imizuzu engama-30 phantse yonke imihla yeveki.
- Kuphephe ngokupheleleyo ukusebenzisa iimveliso zecuba (ukutshaya) .
- Dibana nogqirha ngexesha elibekiweyo ukuze uhlolwe kwaye ubuze ukuba unemibuzo okanye izinto ezikuxhalabisayo na.
Ndingaya nini kwi-ETU kungekudala?
Oku kubaluleke kakhulu. Ukuba uyazi ukuba une-'Cavernous Malformation', kwaye ezi mpawu zilandelayo zivele ngequbuliso, musa ukuchitha ixesha kwaye yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane .
- Ukuba unesithuthwane okokuqala ebomini bakho.
- Ukuba icala elinye lomzimba (ingalo, umlenze, ubuso) ngequbuliso livakala ngathi liphelelwa ngamandla.
- Ukuba umbono wakho utshintsha ngequbuliso (umz., ubona into enye uze ubone izinto ezimbini, ngoko ulahlekelwa ngumbono wakho).
- Intloko ebuhlungu ngequbuliso, enganyamezelekiyo, nebuhlungu kakhulu.
- Ukuba ibali liba nzima ngequbuliso.
Ezi zinokuba ziimpawu zokopha engqondweni, nto leyo enokubangela isifo sohlangothi, ngoko ke kubalulekile ukufuna unyango ngokukhawuleza.
Umyalezo Wokuya Ekhaya
- I-"Cavernous Malformation" kukwakheka kwemithambo yegazi engaqhelekanga, engengomhlaza engqondweni okanye emgogodleni. Uninzi lwexesha, ayisiyongxaki.
- Iimpawu zingabandakanya intloko ebuhlungu, ukuxhuzula, kunye nokuba ndindisholo emzimbeni. Nangona kunjalo, abanye abantu basenokungabi nazo naziphi na iimpawu ubomi babo bonke.
- Eyona ndlela ingcono yokuqinisekisa ngokuqinisekileyo le meko kukusebenzisa i-MRI scan.
- Unyango luxhomekeke kwiimpawu zakho, nokuba uphuma igazi, kunye nendawo apho iqhuma likhoyo. Asinguye wonke umntu odinga utyando.
- Ukuba ufumana iimpawu ezifana nokulahlekelwa zingqondo ngequbuliso kwelinye icala lomzimba, ukuxhuzula okokuqala, okanye intloko ebuhlungu, yiya kwiSebe leNgxamiseko (ETU) ngoko nangoko.
- Thetha nogqirha wakho ngayo nayiphi na imibuzo, iinkxalabo, okanye amathandabuzo onawo ngemeko yakho. Kubaluleke kakhulu ukufumana ingcebiso echanekileyo kugqirha kunokuzoyikisa ngokukhangela ulwazi kwi-intanethi.
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