Mhlawumbi ufumana zonke iintlobo zeerhashalala kunye namaqhuma eluswini lwakho, akunjalo? Ngamanye amaxesha ziyaxobuka kwaye ziyarhawuzelela kakhulu. Sihlala sicinga ukuba ezi zizinto nje eziqhelekileyo zokunganyamezelani, i-eczema, okanye i-psoriasis. Kodwa ingxaki yesikhumba engapheliyo engapheliyo kangangeminyaka ngamanye amaxesha inokuba yinto embi ngakumbi. Le yenye yeemeko ezingaqhelekanga ekufuneka sonke siziqaphele.
Yintoni iCutaneous T-cell Lymphoma (CTCL)?
Ngamafutshane, i-CTCL luhlobo olungaqhelekanga kakhulu lomhlaza wegazi oluchaphazela ulusu lwethu. Ulusu lolona lungu likhulu emzimbeni wethu. Lo mhlaza uchaphazela ngqo ulusu lwethu. Enyanisweni ungoweqela elikhulu lomhlaza elibizwa ngokuba yi-`(non-Hodgkin lymphoma)`.
Ngoku usenokuba uzibuza ukuba umhlaza osegazini ungangena njani eluswini. Kaloku, igazi lethu liqulathe uhlobo lweeseli ezimhlophe zegazi ezibizwa ngokuba yi-"lymphocytes". Ezi ziyinxalenye ebaluleke kakhulu kwinkqubo yomzimba wethu yokuzikhusela. Olunye uhlobo lwezi seli ze-lymph lubizwa ngokuba yi-"T-cells". Kwi-CTCL, ezi seli ze-T ziba ziiseli zomhlaza kwaye ziqala ukwahlukana ngokungalawulekiyo. Emva koko ezi seli zomhlaza ziza eluswini kwaye ziqokelelene. Kulapho iimpawu zesikhumba ziqala ukubonakala khona.
Musa ukoyika ukuthi ngumhlaza. Abantu abaninzi abane-CTCL banokulawula esi sifo emva konyango (`remission`). Ngoko ke banokuphila ubomi obuqhelekileyo ngaphandle kokuphazamiseka okukhulu. Kodwa kuqhelekile ukuziva udandathekile xa ufumanisa ukuba unomhlaza. Ugqirha wakho kunye neqela lezonyango bahlala bekulungele ukukunceda.
Ziziphi iintlobo eziphambili ze-CTCL?
Kukho iintlobo ezahlukeneyo ze-CTCL. Kodwa phakathi kwazo, kukho iintlobo ezimbini eziphambili ezibonakalayo. Masiziqonde ngokucacileyo ezi.
| Uhlobo lomhlaza | Inkcazo |
|---|---|
| I-Mycosis fungoides | Olu lolona hlobo luxhaphakileyo, luchaphazela malunga nesiqingatha sezigulane ze-CTCL. Ingcali yalo kukuba lukhula kancinci kakhulu.Apha, ii-T-cells ezinomhlaza zihlala zigcinwe eluswini. Nangona kunjalo, ngamanye amaxesha, ezinye zinokuhamba ziye kwii-lymph nodes nasegazini. Ii-cancer cells ezihamba ziye egazini ngale ndlela zibizwa ngokuba zii-Sézary cells. |
| Isifo sikaSézary | Olu luhlobo lwe-CTCL olukhula ngokukhawuleza . Kwimeko enjalo, unokubona inani elikhulu leeseli ze-Sézary kulusu lwakho nasegazini. Ngamanye amaxesha i-mycosis fungoides inokuba nzima kwaye ikhule ibe yi-Sézary syndrome. Abantu abanale meko banokubona utshintsho kumbala wolusu kuwo wonke umzimba wabo. |
Zingaba yintoni iimpawu zesi sifo?
Iimpawu ze-CTCL zinokwahluka kumntu nomntu. Zifana kakhulu neemeko eziqhelekileyo zolusu, yiyo loo nto kunzima ukuzifumanisa.
- Amaqhuma avela eluswini. Ngamanye amaxesha la maqhuma anokuqhekeka aze abe zizilonda.
- Ukulahleka kweenwele .
- Imeko efana nokurhawuzelela ebonakala emzimbeni wonke kwaye ihlala irhawuzelela .
- Ukuvela kwamabala anombala oguqulweyo eluswini.
- Iiplaque ezirhawuzelelayo, ngamanye amaxesha ezinamaqabunga, eziye zavela eluswini.
- Ukudumba kwamadlala ( emqaleni , emakhwapheni, emathunjini, njl.njl.).
- Ukujiya nokurhabaxa kolusu ezintendeni nasezinyaweni .
Kutheni olu hlobo lwesifo lusenzeka?
Sixelelwe ukuba kwi-CTCL, ii-T-cells ziba ziiseli zomhlaza. Kodwa oogqirha abakayazi ukuba kutheni oku kusenzeka. Kodwa kukho izinto ezimbini ekucingelwa ukuba zidlala indima.
1. Iinguqu zemfuza: Iimfuza zilawula ukusebenza kweeseli zethu. Abaphandi bafumanise ukuba utshintsho (utshintsho) kwiimfuza ezithile lunokubangela esi sifo.
2. Usulelo: Khawucinge ngento eyenzekayo xa imizimba yethu ifumana usulelo olukhulu. Inkqubo yethu yokuzikhusela komzimba ilungiselela ukulwa. Oko kuthetha ukuba umongo wethu uqala ukuvelisa iiseli ezimhlophe zegazi, ingakumbi ii-lymphocytes, ngesantya esiphezulu. Kufana nomzi-mveliso onyusa imveliso ngequbuliso. Xa usebenza ngesantya esiphezulu, ngamanye amaxesha iimpazamo zinokwenzeka. Yileyo ndlela iimpazamo ezinokwenzeka ngayo kwi-DNA yeeseli, nto leyo enyusa amathuba okukhula kweeseli zomhlaza.
Eyona nto ibalulekileyo kukuba i-CTCL ayisosifo esosulelayo. Kwaye ayisiyonto onokuyenza.
Ngubani osengozini enkulu yokuhlaselwa sesi sifo?
Ezi zizinto nje ezinobungozi. Asinguye wonke umntu onazo oza kuba nesifo.
- Kwabo baneminyaka engaphezu kwama-50 ubudala.
- Amadoda asemngciphekweni omkhulu kancinci kunabafazi.
- Kubantu abaneenkqubo zomzimba ezibuthathaka (umzekelo, abo bafakelwe amalungu omzimba).
- Ngokwezinye izifundo, abantu abanemvelaphi yaseAfrika.
Ugqirha uyifumana njani le nto?
Xa ubona ugqirha ngengxaki yolusu, uza kuqala akubuze ngeempawu zakho. Emva koko uza kuhlola ulusu lwakho kakuhle. Nangona kunjalo, ukuqinisekisa ukuba unayo na i-CTCL, kufuneka uvavanyo oluninzi.
| Uvavanyo | Kalula nje... |
|---|---|
| I-biopsy yolusu | Olu lolona vavanyo lubalulekileyo. Okwenziwayo apha kukuthatha iqhekeza elincinci lesikhumba kwindawo enesilonda okanye kwindawo ethile uze ulihlolisise nge-microscope. Oku kunokuqinisekisa ngokuchanekileyo ukuba kukho iiseli zomhlaza. |
| Uvavanyo lwegazi | Oku kunceda ukujonga iiseli zomhlaza (iiseli zeSézary) egazini, kunye nezinye izinto ezingaqhelekanga. |
| I-lymph node biopsy | Ukuba kukho i-lymph node evuvukileyo, kuthathwa iqhekeza elincinci layo lize lihlolwe ukuze kubonwe ukuba umhlaza usasazeke kuyo na. |
| Uvavanyo lokufota | Uvavanyo olufana ne -CT scan okanye i-PET scan lunokuqinisekisa ukuba umhlaza usasazeke na kwizitho zangaphakathi emzimbeni. |
Ziziphi iindlela zonyango ze-CTCL?
I-CTCL inyangwa ngokusekwe kuhlobo, inqanaba, kunye nempilo yakho iyonke. Akukho nyango lufanayo. Ugqirha wakho uza kwenza isicwangciso sonyango esilungele wena.
- Iikhrimu kunye namafutha asetyenziswa eluswini: Ezi ziikhrimu eziqulethe amayeza afana neesteroids. Ezi zinokwanela izigulana ezikwinqanaba lokuqala.
- Unyango lokukhanya (Phototherapy): Uhlobo oluthile lokukhanya kwe-ultraviolet (UV) lujoliswe eluswini ukuze kutshatyalaliswe iiseli zomhlaza.
- I-Extracorporeal photopheresis (ECP): Olu lonyango oluntsonkothileyo kancinci. Apha, inxalenye yegazi lakho iyathathwa, idluliselwe kumatshini, apho inyangwa ngamayeza kunye nokukhanya ukunyanga iiseli zomhlaza, ize ibuyiselwe emzimbeni wakho.
- Unyango ngemitha: Imitha enamandla aphezulu isetyenziselwa ukutshabalalisa iiseli zomhlaza eluswini.
- Unyango lwe-Immunotherapy: Sinika amayeza avuselela inkqubo yethu yokuzikhusela komzimba kwaye ayenze ilwe neeseli zomhlaza.
- Unyango lweKhemotherapy: Amayeza anamandla abulala iiseli zomhlaza. La mayeza anokunikwa njengeepilisi okanye inaliti.
Buza kuba njani ubomi ngesi sifo?
Lo ngumbuzo omkhulu engqondweni yomntu wonke. Uninzi lweentlobo ze-CTCL zikhula kancinci kakhulu. Ngenxa yoko, azisongeli ubomi. Nangona oogqirha bengenakunyanga ngokupheleleyo esi sifo, unyango lunokulawula ngempumelelo iimpawu.
Kodwa kufuneka siqonde inyaniso. Njengayo nayiphi na imhlaza, i-CTCL inokubulala ukuba ifikelela kwinqanaba eliphezulu.
Yiyo loo nto sithi kubaluleke kakhulu ukubona ugqirha kwangoko xa ubona naluphi na utshintsho eluswini lwakho . Okukhona uqala unyango ngokukhawuleza, kokukhona amathuba akho okuphila ubomi obungcono.
Izifundo zibonise ukuba abantu abali-9 kwabali-10 abafunyaniswe benesifo kwisigaba sokuqala (isigaba sokuqala okanye sesibini) basaphila emva kweminyaka eli-10. Elo lizinga lokusinda eliyi-90%. Kwabo banesifo esiqhubekekayo, izinga liyi-53% kuphela. Ezi ziinkcukacha-manani nje. Umntu ongcono ukwazi kakuhle imeko yakho ngugqirha wakho.
Singalunyamekela njani ulusu lwethu size sinciphise umngcipheko?
Akukho nto sinokuyenza ukuthintela ukuphuhliswa kwe-CTCL, njengoko izinto ezibangela umngcipheko ezichaphazelayo zingenakutshintshwa. Kodwa ukugcina amajoni ethu omzimba enamandla kulungile kuzo zonke izifo.
Kwakhona, ukuba une-CTCL, kubaluleke kakhulu ukunyamekela ulusu lwakho.
- Gcina ulusu lwakho lufumile: Sebenzisa isithambisi esifanelekileyo emva kokuhlamba nasemini yonke. Oku kuya kunceda ekunciphiseni ukoma, ukuxobuka, kunye nokurhawuzelela.
- Zikhusele kwizifo zesikhumba: Sebenzisa isepha ezingenavumba kunye neesepha zokuhlamba impahla. Nxiba impahla egquma ulusu lwakho xa uphuma elangeni, kwaye ufake i-sunscreen. Nxiba impahla ekhululekileyo nephefumlayo.
- Yeka ukukrwela: Ukukrwela yeyona ngxaki inkulu abaguli abajongene nayo. Xa bekrwela, baphula ulusu kwaye iintsholongwane zinokungena, zibangele usulelo. Ngoko ke, lawula ukukrwela kangangoko unako. Ungafumana isiqabu ngokwenza izinto ezifana nokuhlamba ngamanzi abandayo, ukuhlamba ngamanzi e-oatmeal, kunye nokusebenzisa ii-antihistamines ezicetyiswe ngugqirha wakho.
Ngawaphi amaxesha afanelekileyo okubonana nogqirha?
Wakuba uqalile unyango, ugqirha wakho kufuneka akubone rhoqo. Kodwa ukuba kukho into efana nale eyenzekayo okwangoku, qiniseka ukuba uthetha nogqirha wakho.
- Ukuba ubona naluphi na utshintsho olutsha eluswini lwakho .
- Ukuba uziva ngathi unesifo solusu (umz., sibomvu, sibuhlungu, sidumbile, okanye siphuma ubomvu).
- Ukuba unomkhuhlane ongaphezulu kwe-100.4 Fahrenheit (38 Celsius) .
Ngokwesiqhelo, xa sifumana irhashalala okanye i-mole eluswini lwethu, sicinga ukuba yinto eqhelekileyo. Akukho mntu ucinga ukuba inokuba ngumhlaza ongaqhelekanga onje. Kodwa eyona nto ibalulekileyo kukuba, ukuba ubona utshintsho eluswini lwakho, ungalubeki bucala kwaye ulubonise ugqirha. Isenokungabi ngumhlaza. Kodwa ukuba kunjalo, ukuqala unyango ngokukhawuleza kangangoko kunokwenzeka yeyona nto ilungileyo onokuyenza ebomini bakho.
Umyalezo Wokuya Ekhaya
- I-CTCL luhlobo olungaqhelekanga lomhlaza wegazi oluchaphazela ulusu. Iimpawu zayo zifana kakhulu neemeko eziqhelekileyo zolusu ezifana ne-eczema kunye ne-psoriasis.
- Ukuba uneengxaki zolusu ezingapheliyo ezingaphiliyo ixesha elide, musa ukuzityeshela uze ubone ugqirha.
- Okukhona esi sifo sifunyanwa ngokukhawuleza, kokukhona amathuba okufumana unyango oluphumelelayo kunye nobomi obungcono aba maninzi.
- I-CTCL ayisosifo esosulelayo. Unyango lunokulawula iimpawu kwaye lugcine umgangatho wobomi ulungile.
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