Ukuba wena okanye umntu omthandayo une-cystic fibrosis (CF), mhlawumbi uyazi kakuhle imingeni yokuphila nayo. Kodwa ngokuqhubeka kwezonyango, unyango olutsha kunye nethemba elitsha zihlala zongezwa. Namhlanje, siza kuthetha ngeyeza elikhethekileyo elizise ithemba elitsha. Igama leli yeza yiTrikafta. Makhe sibone ukuba liyintoni eli yeza, lisebenza njani, kwaye zeziphi izilumkiso ekufuneka uzithathe ngelixa ulisebenzisa, ngendlela elula onokuyiqonda.
Kwenzeka ntoni ngokwenene ngale mithi?
Ngamafutshane, iTrikafta liyeza elisetyenziselwa ukunyanga i-cystic fibrosis (CF). Liyindibaniselwano yamayeza amathathu: i-Elexacaftor, i-Tezacaftor, kunye ne-Ivacaftor.
Khawucinge nje, i-mucus engaphakathi kwimiphunga yomntu one-CF ityebile kakhulu kwaye inamathela. Njengeglu etyebileyo. Oku kwenza kube nzima ukuphefumla, kwaye usulelo luvela rhoqo. Oku kungenxa yokuba kukho ingxaki ngokuhamba kwetyuwa namanzi kwiiseli zomzimba.
Kulapho iTrikafta ingena khona. Isebenza ngokulungisa ingxaki ngokuhamba kwetyuwa namanzi, inceda umzimba ukuba ugcine ulungelelwano. Oku kunceda ukuba i-mucus etyebileyo emiphungeni ibe manzi, inciphe, kwaye isuswe lula emzimbeni . Oku kunokunceda ukulawula iimpawu ze-CF kakhulu.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale amayeza
Le yinxalenye ebaluleke kakhulu. Ngaphambi kokuba ugqirha wakho akunike eli yeza, kuya kufuneka abe nomfanekiso opheleleyo wempilo yakho. Ngoko ke, ukuba kukho nayiphi na kwezi zilandelayo ekusebenzelayo, qiniseka ukuba uthetha nogqirha wakho ngalo.
- Isifo sezintso: Ukuba unesifo esinxulumene nezintso.
- Isifo sesibindi: Ukuba uneengxaki zesibindi.
- Ii-Allergies: Sixelele ukuba unayo nayiphi na i-allergies, kungekuphela nje kwizithako ezikweli yeza, kodwa nakweminye imithi, ukutya, okanye idayi.
- Ukukhulelwa: Ukuba ukhulelwe okanye uceba ukuba nomntwana kungekudala.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo umntwana.
Kubaluleke kakhulu kukhuseleko lwakho ukuxelela ugqirha olu lwazi ngaphandle kokulufihla.
Ndingayisebenzisa njani kanye kanye le yeza?
Ukuze ufumane amayeza angcono, kufuneka uwasebenzise ngokuchanekileyo. Gcina ezi zinto engqondweni.
1. Yithathe nokutya: Le yeyona nto ibalulekileyo. Eli yeza lifanele lithathwe kunye nokutya okunamafutha.. Musa ukulisela ungenanto esiswini. Umzekelo, thatha eli yeza kunye nento enamafutha, njengeqanda, ibhotolo yamandongomane, itshizi, okanye iyogathi. Eli yeza lifunxwa ngcono ngumzimba xa lisetyenziswa kunye nokutya.
2. Ginya ithebhulethi: Musa ukuyiqhekeza, ukuyityumza, okanye ukuyihlafuna . Ginya ithebhulethi yonke ngamanzi amancinci.
3. Yithathe ngexesha: Zama ukusela amayeza akho ngexesha elifanayo yonke imihla kangangoko unako. Oku kuya kunceda ukugcina amanqanaba afanayo amayeza emzimbeni wakho.
4. Oku kubaluleke kakhulu: Musa ukulisebenzisa eli yeza kunye nejusi yegrapefruit nangasiphi na isizathu. Ijusi yegrapefruit isenokusabela kweli yeza kwaye ibangele iziphumo ebezingalindelekanga eziyingozi emzimbeni.
5. Musa ukuyeka: Qhubeka usela amayeza de ugqirha wakho akuxelele ukuba uyeke.
Ukuba unika abantwana eli yeza, kufuneka uxoxe ngalo nogqirha wakho. Nangona eli yeza ngamanye amaxesha linikwa abantwana abangaphezu kweminyaka emi-6 ubudala, kukho amanyathelo akhethekileyo okhuseleko abandakanyekayo.
Yintoni omawuyenze ukuba uphoswa lidosi yamayeza uze usele kakhulu?
Ukuba uphoswe yidosi yamayeza
Ungakhathazeki ngokuphoswa yidosi. Eyona nto ilungileyo onokuyenza kwangoko xa ukhumbula kukuthetha nogqirha wakho. Uza kukuxelela into omawuyenze ngokulandelayo. Ungaze uthathe idosi ephindwe kabini ukuze uhlawule idosi oyiphosiweyo .
Ukugqithisa
Khawucinge ukuba ngempazamo usele amayeza amaninzi kakhulu. Le yimeko engxamisekileyo. Ukuba oku kuyenzeka , fowunela iZiko loLwazi lweeTyhefu zeSizwe kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane ngaphandle kokulibazisa.
Ezinye izinto ezinokusebenzisana nale mithi (Intsebenziswano)
Amanye amayeza, ukutya, kunye nemifuno zinokusebenzisana neTrikafta, zinciphise ukusebenza kwayo okanye zibangele iziphumo ebezingalindelekanga eziyingozi. Ke ngoko, kubalulekile ukwazisa ugqirha wakho malunga nawo onke amayeza owasebenzisayo.
| Izinto ezinokusabela kwiTrikafta | |
|---|---|
| Musa ukuthatha amayeza kunye nezi. | |
| Ingxaki | Imizekelo |
| Amanye amayeza okuxhuzula | I-Carbamazepine, iPhenobarbital, iPhenytoin |
| Amanye amayeza esifo sephepha | I-Rifabutin, i-Rifampin |
| Iyeza lemifuno | I-St. John's Wort |
| Incindi yeziqhamo | Ijusi yegrapefruit |
| Qiniseka ukuba uxelela ugqirha wakho ukuba uyazisebenzisa ezi. | |
| Amanye amayeza okubulala iintsholongwane | IClarithromycin, i-Erythromycin |
| Izinto ezilwa nokungunda | I-Fluconazole, iKetoconazole, i-Itraconazole |
| Amanye amayeza ahlukeneyo | Amayeza afana neCyclosporine, iDigoxin, iWarfarin, iTacrolimus, iGlimepiride, iGlipizide yesifo seswekile |
Olu luhlu aluphelelanga. Xelela ugqirha wakho malunga namayeza, iivithamini, okanye amayeza esintu owasebenzisayo. Kwakhona, xelela ugqirha wakho ukuba uyatshaya okanye usela utywala.
Ezinye izinto ekufuneka uzikhumbule xa usebenzisa iyeza
- Ukuhlolwa rhoqo:Ugqirha uza kukujonga rhoqo. Ungaphoswa zezo zihlandlo. Mxelele ukuba iimpawu zakho azipheli okanye ziya zisiba mandundu.
- Uvavanyo lwamehlo negazi: Ugqirha wakho usenokufuna ukujonga amehlo akho negazi lakho ngaphambi nangexesha uqala ukusebenzisa eli yeza.
- Utshintsho embonweni: Ukuba ubona naluphi na utshintsho embonweni wakho (umbono ofipheleyo, ukubona iisangqa ezijikeleze izibane), xelela ugqirha wakho ngoko nangoko.
- Intloko ebuhlungu kunye nokuqhuba: Eli yeza ngamanye amaxesha linokubangela isiyezi kunye nokuphazamiseka kwengqondo. Ngoko ke, kuphephe ukuqhuba okanye ukusebenzisa oomatshini ude wazi ukuba eli yeza likuchaphazela njani. Ukusela utywala kunokuyenza mandundu le meko.
Masifunde ngemiphumo emibi.
Njengayo nayiphi na iyeza, iTrikafta inokubangela iziphumo ebezingalindelekanga. Nangona kungengabo bonke abantu abazifumanayo, kubalulekile ukuba uzazi.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi, ubunzima bokuphefumla. |
| Ukulimala kwesibindi | Intlungu kwicala eliphezulu lasekunene lesisu, ukuphelelwa ngumdla wokutya, isicaphucaphu, ukutyheli kolusu okanye amehlo, umchamo otyheli/omdaka omnyama, ukudinwa okungaqhelekanga. |
| Utshintsho lombono | Umbono ofipheleyo, ukubona izangqa ezijikeleze izibane, ukulahlekelwa ngumbono. |
| Iimpawu ezifana nomkhuhlane | Umkhuhlane, iintlungu zomzimba, ukukhohlela, intloko ebuhlungu, kunye nokungakhululeki. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga ukuba azikhathazeki, kodwa kufuneka zixelwe kugqirha wakho ukuba ziyaqhubeka | |
| Intlungu yesisu, urhudo | Intloko ebuhlungu |
| Impumlo egobhozayo okanye impumlo exineneyo | Intlungu enxulumene ne-sinus |
Umyalezo Wokuya Ekhaya
- Soloko usela iTrikafta kunye nokutya okunamafutha. Musa ukuyisela ungenanto esiswini.
- Musa ukulisebenzisa eli yeza kunye nejusi yegrapefruit nangasiphi na isizathu.
- Yazisa ugqirha wakho ngazo zonke ezinye iziyobisi, iivithamini, kwanemifuno yesintu oyithathayo.
- Ukuba ufumana naziphi na iziphumo ebezingalindelekanga ezinje ngokutyheli kwamehlo, ukurhawuzelelwa kakhulu lusu, okanye utshintsho embonweni, funa ingcebiso kagqirha ngoko nangoko.
- Eli yeza lelakho wedwa. Ungaze ulinike omnye umntu.
- Ukuba unemibuzo okanye iinkxalabo malunga namayeza, thetha nogqirha wakho ngawo ngokukhululekileyo.
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