Ngaba umntwana wakho uhlala ekhalaza ngokuba umlenze okanye ingalo yakhe iyabuhlungu? Mhlawumbi ukudumba okubangelwa kukuwa ngexesha lokudlala akupheli nokuba emva kweenyanga? Sihlala sicinga ngezi zinto njengokulimala okuncinci okanye ukukruquka okubangelwa kukwenzakala kwabantwana. Kodwa ngamanye amaxesha, uphawu oluqala lula ngolu lunokuba luphawu lwento enzulu ngakumbi. Namhlanje siza kuthetha ngomhlaza ongaqhelekanga, kodwa obalulekileyo esifanele siwuqaphele sonke. Ngu-Ewing Sarcoma lowo.
Ngamafutshane, yintoni i-Ewing Sarcoma?
I-Ewing sarcoma luhlobo olungaqhelekanga lomhlaza oluvela emathanjeni okanye kwizicubu ezithambileyo eziwajikelezileyo . Izicubu ezithambileyo ziquka izihlunu zethu, imisipha, kunye nemisipha. Ezi zicubu zihlala zenzeka kwiindawo ezifana nesinqe, iimbambo, igxalaba, ithanga, okanye i-collarbone.
Le meko ixhaphake kakhulu ebantwaneni ngexesha lokufikisa, xa amathambo abo ekhula ngokukhawuleza. Ingakumbi, ichaphazela abo baphakathi kweminyaka eli-10 nengama-20 ubudala. Nangona kunjalo, inokuchaphazela nabantwana abancinci kunye nabantu abadala abaselula abakwiminyaka yabo yama-20 kunye nasekuqaleni kweminyaka yama-30.
Ngaba kukho iintlobo eziphambili ze-Ewing sarcoma?
Ewe, oogqirha bachonge iintlobo ezintathu eziphambili zale nto. Masibone ukuba zeziphi.
| Uhlobo lomhlaza | Ingcaciso elula |
|---|---|
| Ukususwa kwesarcoma yethambo | Olu lolona hlobo luxhaphakileyo. Njengoko igama lisitsho, lo mhlaza uvela ngqo emathanjeni. |
| Ithumba elingaqhelekanga lokusikwa kwesisu (EOE) | Apha, umhlaza ukhula kwizicubu ezithambileyo ezijikeleze amathambo, njengemisipha kunye nezicubu ezinamafutha. |
| Ithumba le-neuroectodermal eliyi-peripheral primitive (PPNET) | Olu hlobo lwahlukile kancinci. Lungaqala ethanjeni okanye kwizicubu ezithambileyo. Luqala kwizicubu zemithambo-luvo. |
Zithini iimpawu zesi sifo? Izinto ekufuneka ndizazi njengomzali
Iimpawu zesi sifo ngamanye amaxesha zinokubhidaniswa lula nezinye izifo eziqhelekileyo, ngoko ke kubalulekile ukuzazi ezi zinto.
Khawuthelekelele umntwana wakho edlala ikhilikithi aze ahlale esithi igxalaba lakhe liyabuhlungu. Ucinga ukuba yintlungu nje eyenzekayo xa uphosa ibhola. Kodwa ukuba intlungu ibikho kangangeenyanga, ingakumbi ebusuku, kwaye kukho ukudumba okuncinci apho, ayingombono ulungileyo ukuyityeshela.
Eyona nto ibalulekileyo kukuba ukuba umntwana uqhubeka ekhalaza ngentlungu, musa ukuyityeshela. Kungcono ukubona ugqirha, ingakumbi ukuba akukho sizathu sicacileyo sentlungu.
Apha ngezantsi kukho iimpawu eziphambili ezibonakala kwi-Ewing sarcoma.
| Uphawu | Inkcukacha ezithe vetshe |
|---|---|
| Intlungu emathanjeni | Olu lolona phawu luqhelekileyo. Intlungu isenokufika ihambe. Intlungu inokuba mandundu ebusuku, ingakumbi ukuba inzima ngokwaneleyo ukuba ivuse umntwana ebuthongweni. |
| Ithumba okanye ukudumba | Umhlaza ungabonakala njengeqhubu okanye ukudumba. Usenokuziva ushushu xa uwuchukumisa kwaye unokuba buhlungu. Oku kunokubonakala ezingalweni, emilenzeni, okanye esifubeni. |
| Umkhuhlane ngaphandle kwesizathu | Kunokubakho umkhuhlane ongapheliyo ngaphandle kwesizathu esinye (njengokukhupha impumlo egobhozayo, ukukhohlela, okanye umkhuhlane). |
| Ukuphula amathambo ngaphandle kwesizathu | Umhlaza unokwenza ithambo libe buthathaka, nokuba asiyongozi enkulu (njengokuvuka ebhedini), unokwaphuka. Oogqirha bakubiza oku ngokuthi 'kukwaphuka kwethambo okubangelwa kukugula.' |
| Ezinye iimpawu | Izinto ezinje ngokunciphisa umzimba ngequbuliso kunye nokuziva udiniwe ngamaxesha onke zinokwenzeka, kodwa ezi zinto zihlala zibonakala kuphela xa umhlaza usasazeke kwamanye amalungu omzimba. |
Kutheni olu hlobo lwesifo lusenzeka?
Lo mbuzo ubuzwa ngabazali abaninzi. Usenokucinga, "Ngaba senze into engalunganga?" Kodwa oko akuyonyani.
I-Ewing sarcoma ibangelwa kukuguquka kwezakhi zofuzo okwenzeka emva kokuba umntwana ezelwe . Ngamafutshane, izakhi zofuzo ezimbini kwiiseli zethu (i-EWSR1 kunye ne-FLI1) ziyadibana zenze i-gene entsha enephutha. Le gene intsha ibangela ukuba iiseli zahlukane ngokungalawulekiyo kwaye zenze ithumba elinomhlaza.
Into ebalulekileyo kukuba esi ayisosifo esizuzwa njengelifa. Kwakhona, abaphandi abafumanisanga ukuba sibangelwa zizinto zangaphandle, ezinje ngokutshaya okanye ukuchanabeka kwiikhemikhali, njengezinye iintlobo zomhlaza. Oku kungenxa yokuba sidla ngokukhula kubantwana abancinci nakubantu abadala abancinci abangenalo ithuba lokubonakalisa ezo zinto ixesha elide. Ngoko ke, oku akuyonto ibangelwa yimpazamo yomntu.
Ngaba kukho izinto ezinokubangela umngcipheko?
Nangona nabani na enokuba nesi sifo, amanye amaqela afunyenwe esengozini enkulu kancinci.
- Ubudala: Abo baphakathi kweminyaka eli-10 nengama-20 ubudala basengozini enkulu.
- Isini: Amadoda anamathuba amancinci okuba nayo kunabafazi.
- Uhlanga: Esi sifo sixhaphake kakhulu kubantu abamhlophe kunakwabantu baseAsia okanye abamnyama.
Oogqirha bayixilonga njani ngokuchanekileyo le sifo?
Xa usiya kugqirha kuba ukrokrela iimpawu zomntwana wakho, into yokuqala ayenzayo kukuhlolisisa umntwana wakho ngononophelo. Uza kuziva iintlungu okanye ukudumba, akubuze wena nomntwana wakho ngeempawu, aze emva koko athumele uthotho lweemvavanyo ukuqinisekisa ukuba unesifo.
1. Uvavanyo lwemifanekiso: Olu luthatha imifanekiso yamathambo kunye nezicubu ezithambileyo ngaphakathi emzimbeni.
- Uvavanyo lwe-X-ray
- Iskeni ye-CT
- Iskeni ye-MRI
- Iskeni yePET
- Ukuskena amathambo
2. I-Biopsy: Olu luvavanyo oluqinisekisa isifo nge-100% . Apha, kuthathwa iqhekeza elincinci kakhulu lesicubu kwithumba lize lihlolwe nge-microscope. Oku kuya kukuxelela ngqo ukuba ngumhlaza okanye yi-Ewing's sarcoma.
3.Uvavanyo lwegazi: Ukubalwa kwegazi okupheleleyo (i-CBC) kunye namanye amanqanaba eeenzyme ezithile (ezifana ne-LDH) kunokunika umbono othile ngohlobo lomhlaza kunye nokuba usasazeke na.
Zithini iindlela zonyango zoku?
I-Ewing sarcoma inyangwa liqela leengcali zomhlaza. Isicwangciso sonyango sinokuhluka kwisigulana ngasinye. Kuxhomekeke kubukhulu bethumba, indawo elikuyo, nokuba lisasazeke na kwezinye iindawo.
Iindlela eziphambili zonyango zezi:
- Unyango lweKhemotherapy: Oku kuquka ukunika umzimba amayeza abulala iiseli zomhlaza. Unyango lweKhemotherapy ludla ngokunikezelwa kuqala ukuze lunciphise ithumba. Unyango lweKhemotherapy luphinda lunikwe emva kotyando ukuze kubulawe naziphi na iiseli zomhlaza eziseleyo.
- Utyando: Emva kokuba ithumba linciphile ngenxa yechemotherapy, lisuswa ngokupheleleyo ngotyando.
- Unyango lweMisebe: Kwezinye iimeko, imisebe enamandla aphezulu isetyenziselwa ukutshabalalisa iiseli ezisele emva kotyando okanye ukuba utyando alunakukususa ngokupheleleyo ithumba.
Kwamanye amazwe aphuhlileyo, unyango olufana nokufakelwa kweeseli ze-stem autologous luyasetyenziswa ukuba umhlaza awukasasazekanga uye kumongo wethambo. Usenokukwazi ukuthatha inxaxheba kuvavanyo lweklinikhi oluphanda unyango olutsha. Ungathetha nogqirha wakho ngale nto ukuze ufumane okungakumbi.
Iziphumo ebezingalindelekanga kunye neziphumo zonyango ezihlala ixesha elide
Unyango lomhlaza alulula. Unyango lwe-chemotherapy kunye nonyango lwe-radiation lunokubangela iziphumo ebezingalindelekanga zexesha elifutshane ezifana nokulahlekelwa ziinwele, ukuhlanza, kunye nokudinwa. Kunokubakho neziphumo zexesha elide (iziphumo ezifike emva kwexesha) ezinokuvela kwiinyanga okanye iminyaka emva kokuba unyango luphelile.
- Iziphumo kwizitho zangaphakathi (intliziyo, izintso)
- Iziphumo ekukhuleni komntwana
- Iingxaki zempilo yengqondo (uxinzelelo, ukudakumba)
- Imiphumo ekufundeni nasekukwazini ukukhumbula
- Iziphumo ekuzaleni kwixesha elizayo
Ngoko ke, kubalulekile ukuqhubeka uphantsi kweliso likagqirha, ngexesha lonyango nasemva kwalo.
Njengomzali, ndingamnceda njani umntwana wam?
Xa umntwana efunyaniswa ukuba unomhlaza, lonke usapho luyawa. Yinto eqhelekileyo leyo. Kodwa ngeli xesha linzima, umntwana wakho uyakudinga ngaphezu kwanini na ngaphambili.
Cinga ngako oku, ixesha lokufikisa lixesha apho iimvakalelo zabantwana zihlala ziphezulu kwaye ziphantsi, kwaye bacinga kakhulu ngenkangeleko yabo kunye nabahlobo babo. Ukujongana nomhlaza ngexesha elinjalo kunokuba ngumthwalo abangenakuwuthwala.
- Mamela ngomonde:Bavumele baveze uloyiko lwabo, ingqumbo, kunye nosizi. Kungcono ukumamela oko bakuthethayo kunokuthi, "Musa ukucinga ngako."
- Ubomi bemihla ngemihla: Basenokuba buhlungu kakhulu kuba bengenakukwazi ukuya esikolweni okanye ukudlala nabahlobo ngenxa yonyango. Bakhuthaze ukuba bahlale benxibelelana nabahlobo kangangoko banako (njengee-video calls) kwaye benze izinto abazithandayo abanokuzenza ekhaya.
- Cinga ngawe nawe: Ukuze unyamekele umntwana wakho, kufuneka uqale ube namandla. Ukuba nawe unengxaki yokujongana noku, thetha nomntu omthembayo. Ukuba kuyimfuneko, funa ingcebiso yengqondo.
- Sebenzisana ngokusondeleyo neqela lezonyango: Yiba nolwazi olupheleleyo ngemeko yomntwana wakho, unyango lwakhe, kunye nemiphumo emibi. Musa ukoyika ukubuza imibuzo.
Olu luhambo esijongene nalo njengentsapho. Singayoyisa le ngxaki ngenkxaso nothando omnye komnye.
Umyalezo Wokuya Ekhaya
- I-Ewing Sarcoma luhlobo olungaqhelekanga lomhlaza oluchaphazela kakhulu amathambo kunye nezicubu ezithambileyo zabantwana kunye nabantu abadala abancinci.
- Ukuba unentlungu yamathambo engachazekiyo nengapheliyo (ingakumbi ebusuku), ukudumba, okanye iqhuma, musa ukulibazisa kwaye ubone ugqirha ngoko nangoko.
- Esi sifo sibangelwa lutshintsho olungaqhelekanga kwizakhi zofuzo, kungekhona ngenxa yempazamo yabazali okanye yomntwana.
- Nangona iindlela zonyango (i-chemotherapy, utyando, i-radiation) zinzima, zibonelela ngeziphumo eziphumelelayo kakhulu.
- Ngeli xesha lohambo olunzima, umntwana udinga unyango, kunye nothando, inkathalo, kunye nenkxaso yeemvakalelo yamalungu osapho.
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