Xa ufumana inxeba elincinci okanye ukukrweleka, igazi elincinci liya kuphuma lize liyeke lodwa, akunjalo? Oku kungenxa yendlela emangalisayo emizimbeni yethu. Kodwa kwabanye abantu, oku akwenzeki. Nokuba inxeba lincinci, ukopha kwabo kuthatha ixesha elide ukuyeka, ngamanye amaxesha akupheli konke konke. Oku kungenxa yokuba igazi labo alivali kakuhle. Namhlanje, siza kuthetha ngesinye sezi meko, iHemophilia B, kunye nonyango oluthile nolusindisa ubomi bayo, iFactor IX Complex Injection . Nangona oku kunokubonakala ngathi yingongoma enzima, masiyigcine ilula.
Ngamafutshane, yintoni le Factor IX Complex?
Khawuthelekelele ukuba igazi lethu liqela elincinci labasebenzi. Xa kukho inxeba ndaweni ithile kwaye kuqale ukopha, eli qela labasebenzi lihlangana ngokukhawuleza ukuze livale inxeba kwaye lenze "idama" lokuyeka ukopha. Umsebenzi ngamnye unceda kulo msebenzi ngandlela thile. Aba basebenzi sibabiza ngokuba ziiClotting Factors .
Ngoku, kumntu onesifo esibizwa ngokuba yiHemophilia B , umsebenzi we-9 (IX) kweli qela, iprotheyini ebizwa ngokuba yiFactor IX , iphantsi kakhulu okanye ayikho. Ngoko ke ngaphandle kwayo, loo "dam" ayinakulungiswa ngokufanelekileyo. Yiyo loo nto kunzima ukuba bayeke ukopha.
Kulapho ke i-Factor IX Complex ingena khona. Le vaccine inika i -Factor IX engekhoyo okanye enganelanga ngaphandle komzimba. Yi-injection enikwa nge-intravenously. Nje ukuba ingene emzimbeni, inkqubo yokujiya kwegazi iqala ukwenzeka ngokuqhelekileyo kwakhona. Oku kuthetha ukuba inokuthintela ukopha kwaye ilawule ukopha okusele kwenzeka.
Eli yeza linokuba phantsi kwamagama eempawu ezahlukeneyo eSri Lanka. Umzekelo, ungabiza amagama afana neBebulin kunye neProfilnine. Nokuba lithini igama leyeza olinikwayo, liqulethe eli factor linye elibizwa ngokuba yiFactor IX.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza:
Le yinxalenye ebaluleke kakhulu. Kubalulekile ukuxelela ugqirha wakho ngembali yakho epheleleyo yempilo ngaphambi kokuba uqale olu nyango, njengoko ezinye iimeko zifuna unonophelo olukhethekileyo xa usebenzisa eli yeza.
| Imeko ekufuneka uyixele | Kutheni kufuneka uxelele ugqirha loo nto? |
|---|---|
| Ukuba ukhe waba namahlwili egazi ngaphambili. | Ngenxa yokuba eli yeza linyusa ukujiya kwegazi, linokunyusa umngcipheko kumntu osele esengozini. Ugqirha wakho unokunika ingqalelo ekhethekileyo kwidosi kunye nonyango xa ekwazi oku. |
| Ukuba usandul’ utyando okanye uceba utyando kwixesha elizayo. | Utyando lixesha apho kukho umngcipheko wokopha. Kukwakho nomngcipheko wokuqhekeka kwegazi. Kungoko ke, kubalulekile ukuba ugqirha aqaphele oku. |
| Ukuba unesifo sentliziyo. | Abantu abanesifo sentliziyo basengozini enkulu yokuqhekeka kwegazi, ngoko ke kufuneka unonophelo olukhethekileyo xa usebenzisa eli yeza. |
| Ukuba unesifo sesibindi. | Isibindi sesona senza uninzi lwezinto ezibangela ukujiya kwegazi emizimbeni yethu. Oku kufanele kuqwalaselwe xa kunikwa umntu oneengxaki zesibindi eli yeza. |
| Ukuba une-allergies kwi-Factor IX, amanye amayeza, ukutya, okanye iidayi. | Oku kubaluleke kakhulu. Xelela ugqirha wakho ngazo naziphi na izinto ezibangela ukuba ungabi naso isifo se-allergy. Oku kunokunceda ekuthinteleni ukuba ube ne-allergy enzima. |
| Ukuba ukhulelwe okanye uzama ukukhulelwa. | Naliphi na iyeza kufuneka lisetyenziswe ngononophelo olukhulu ngexesha lokukhulelwa. Kufuneka ucinge ngemiphumo enokubakho kumntwana. Ngoko ke, kufuneka wazise ugqirha wakho ngale nto. |
| Ukuba ungumama oncancisayo. | Kubalulekile ukwazi ukuba iyeza lidlulela ebantwaneni ngobisi lwebele na. Ngoko ke qiniseka ukuba uxelela ugqirha wakho ngale nto. |
Isetyenziswa njani le gonyo?
Eli yeza linikwaInikwa njengokufakwa kwe-intravenous. Oku kudla ngokunikwa ngabasebenzi bezonyango esibhedlele okanye eklinikhi. Nangona kunjalo, kwezinye iimeko, ingakumbi kubantu abafumana unyango olude, unokuqeqeshwa ukufumana olu tyando ekhaya.
Ukuba kufuneka usebenzise eli yeza ekhaya, uza kufumana uqeqesho olupheleleyo. Uza kufundiswa indlela yokuxuba ibhotile yomgubo kunye nebhotile yamanzi angenazintsholongwane, indlela yokufaka inaliti emthanjeni, kunye nendlela yokukhawuleza ukufaka iyeza emzimbeni wakho. Landela le miyalelo ngokuchanekileyo.
Wenza ntoni ngeenaliti neesirinji ezisetyenzisiweyo?
Oku kubaluleke kakhulu. Ungaze ulahle iinaliti kunye neesirinji ezisetyenzisiweyo enkunkuma . Ukwenza njalo kunokubangela ukwenzakala okukhulu kumqokeleli wenkunkuma okanye kwabanye, kuquka nezifo ezithwalwa ligazi.
Kukho isikhongozeli esikhethekileyo seesharps onokusisebenzisa ukufaka ezi zinto. Ukuba unyangwa ekhaya, buza iqela lakho lezempilo malunga nendlela yokusifumana. Baza kukunika nemiyalelo yokuba ungayilahla njani ngokukhuselekileyo xa igcwele.
Ngaba eli yeza linokunikwa abantwana?
Ewe, olu nyango lunikwa nabantwana ukuba kuyimfuneko. Kodwa lwenziwa ngononophelo olukhulu nangokulandela iingcebiso zonyango olukhethekileyo.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba usele amayeza amaninzi kunokuba ucinga, yiya kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele esikufutshane ngoko nangoko. Okanye utsalele umnxeba iZiko loLwazi lweeTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
Khumbula, eli yeza limiselwe wena wedwa. Ungaze ulinike omnye umntu.
Yintoni omawuyenze ukuba uphoswe yidosi yeyeza?
Kubaluleke kakhulu ukusela amayeza akho ngexesha, ingakumbi ukuba uwasebenzisa ukuthintela ukopha (prophylaxis). Ukuba uphoswe yidosi, ungoyiki kwaye uqhagamshelane nogqirha wakho okanye iqela lezonyango ngokukhawuleza ukuze ufumane ingcebiso malunga nento omawuyenze ngokulandelayo. Baza kukuxelela ukuba uthabathe idosi ephosiweyo okanye uthabathe idosi elandelayo ngexesha elicwangcisiweyo.
Ziziphi ezinye izinto ezinokusebenzisana nale mithi?
Amanye amayeza anokuchaphazela olu gonyo lweFactor IX Complex. Umzekelo,
- I-Aminocaproic acid
- I-Tranexamic acid
La mayeza afana namanye amayeza anceda ukujiya kwegazi. Ukusebenzisa la mayeza kunye kunokunyusa umngcipheko wokujiya kwegazi.
Kodwa olu luhlu aluphelelanga. Ngoko ke, naliphi na elinye iyeza olithathayoXelela ugqirha wakho ngayo nayiphi na imithi (eyalelwe ngoogqirha kwezinye iimeko), iivithamini , izongezo zesondlo , amayeza e-Ayurvedic okanye e-herbal owasebenzisayo. Xelela ugqirha wakho ukuba uyatshaya okanye usela utywala. Emva koko ugqirha wakho angakwenzela isicwangciso sonyango esikhuselekileyo.
Izinto ekufuneka uzilumkele ngakumbi xa usebenzisa iyeza
- Ukuhlolwa rhoqo kwezonyango: Hlala unxibelelana nogqirha wakho rhoqo ukuze ubone ukuba unyango lwakho lusebenza kakuhle kangakanani na. Yiya kwiikliniki ngemihla ebekiweyo. Xelela ugqirha wakho ukuba iimpawu zakho aziphucuki okanye ukuba ziya zisiba mandundu.
- Uvavanyo lwegazi: Ngexesha lonyango, kunokufuneka ukuba wenze uvavanyo lwegazi ukujonga amanqanaba akho eFactor IX kunye nezinye izinto egazini lakho.
- Umthombo wamayeza: Lo ngumbuzo abantu abaninzi abanawo. Ezinye iimveliso zeFactor IX zenziwe ngeplasma yegazi enikelwa ngabantu . Ngenxa yoku, kunokubakho inkxalabo malunga neentsholongwane ezifana ne-hepatitis okanye i-HIV ezinokudluliselwa ngegazi elo. Nangona kunjalo, ngobuchwepheshe bangoku, ezi mveliso zenziwe kusetyenziswa iinkqubo zokucoca ezingqongqo kakhulu ukubulala naziphi na iintsholongwane okanye iibhaktheriya ezinokubakho. Ke ngoko, umngcipheko wosulelo mncinci kakhulu . Ukuba unemibuzo engaphezulu malunga noku, ungathandabuzi ukuthetha nogqirha wakho.
- Lumka ngeepilisi zokuthomalalisa iintlungu: Le yinto ekufuneka uyikhumbule ngokuqinisekileyo. Kuphephe ukusebenzisa iipilisi zokuthomalalisa iintlungu ezifana ne -Aspirin, i-Ibuprofen, kunye ne-Naproxen . La mayeza andisa umngcipheko wokopha. Ukuba unomkhuhlane okanye iintlungu zomzimba jikelele, buza ugqirha wakho malunga nokusebenzisa i-Paracetamol .
- Ikhadi lesazisi okanye isongo sezonyango: Kungumbono olungileyo ukuphatha ikhadi okanye isongo esinolwazi malunga nemeko yakho (ukuba uneHemophilia B), amayeza owasebenzisayo, kunye nemilinganiselo. Oku kuya kuba luncedo olukhulu kwabo bakunyangayo xa kukho imeko engxamisekileyo, efana nengozi.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, eli linokubangela iziphumo ebezingalindelekanga kwabanye abantu. Kodwa ayinguye wonke umntu ozifumanayo. Makhe sijonge ukuba zeziphi ezi ziphumo ebezingalindelekanga kunye nento esinokuyenza ukuba ziyavela.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Ukuba ufumana ezi mpawu, yazisa ugqirha wakho okanye isibhedlele ngokukhawuleza. | |
| Iimpendulo eziqatha ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukuba bomvu, ukudumba kobuso, imilebe, ulwimi okanye umqala, ubunzima bokuphefumla. |
| Ihlwili legazi | Intlungu yomlenze, ukudumba okanye ukufudumala, ubunzima bokuphefumla, intlungu yesifuba. |
| Ezi zihlandlo azibalulekanga kangako, kodwa ukuba ziyaqhubeka, xelela ugqirha wakho. | |
| Ukudinwa | Ukuziva udiniwe kakhulu kwaye udinwe kakhulu. |
| Ukuhlanjwa ngamanzi | Indawo yobuso nentamo iba bomvu ize ivakale ifudumele. |
| Intloko ebuhlungu | Intloko ebuhlungu eqhelekileyo. |
| Isicaphucaphu | Ukuziva ngathi uhlanza. |
| Intlungu kwindawo yokutofa | Intlungu, ukuba bomvu, okanye ukudumba okuncinci kwindawo yokutofa. |
Olu luhlu luquka kuphela ezinye zeziphumo ebezingalindelekanga ezinokubakho. Ukuba ufumana nantoni na engaqhelekanga, qhagamshelana nogqirha wakho ngoko nangoko.
Uligcina kwaye ulilahla njani iyeza?
- Indawo yokugcina: Iqela lakho lezonyango liza kukunika imiyalelo ecacileyo yendlela yokugcina eli yeza. Amanye afanele agcinwe efrijini, ngelixa amanye angagcinwa kubushushu begumbi. Landela loo miyalelo ngokuchanekileyo. Yigcine kude nabantwana nezilwanyana zasekhaya.
- Ukulahlwa: Amayeza aphelelwe lixesha okanye angasafunekiyo kufuneka alahlwe ngokukhuselekileyo. Musa ukuwabeka kwinkunkuma yakho eqhelekileyo. Buza ugqirha wakho okanye iqela lezonyango malunga nendlela yokuwalahla ngokukhuselekileyo.
Umyalezo Wokuya Ekhaya
- Isitofu sokugonya seFactor IX Complex siyindlela yonyango esindisa ubomi ethintela kwaye ilawula ukopha kwegazi kubantu abane-hemophilia B ngokuhambisa i-blood clotting factor engafanelekanga (iFactor IX) ngaphandle.
- Ngaphambi kokuba uqale unyango, qiniseka ukuba uxelela ugqirha wakho ngembali yakho epheleleyo yempilo, amanye amayeza owasebenzisayo, kunye nazo naziphi na izinto ezibangela ukuba ungabi namdla.
- Ukuba ufumana unyango ekhaya, lahla izinto ezifana neenaliti kunye neesirinji ngokukhuselekileyo (kwiSikhongozeli seSharps). Ungaze uzibeke emgqomeni wenkunkuma.
- Ukuba ufumana naziphi na iziphumo ebezingalindelekanga ezinje ngobunzima bokuphefumla, ukudumba kobuso, iintlungu zesifuba, okanye ukudumba kwemilenze, funa ingcebiso kagqirha ngokukhawuleza.
- Musa ukuthatha amayeza okudambisa iintlungu afana ne-aspirin okanye i-ibuprofen ngaphandle kokubonisana nogqirha wakho. I-Paracetamol ikhuselekile kwiintlungu okanye umkhuhlane.
- Ukuba unemibuzo malunga nonyango lwakho okanye amayeza akho, ungoyiki ukubuza ugqirha wakho. Okukhona usazi ngakumbi ngemeko yakho, kokukhona kuya kuba lula kuwe ukuyilawula.
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