Mhlawumbi akukho xesha limnandi ebomini kunelixa olindele ukuba ngumama. Wonke umama uphupha ngokuphupha ngomntwana okhula esibelekweni sakhe kangangeenyanga ezilishumi kwaye enethemba lokuba yonke into iza kulunga. Nangona kunjalo, ngamanye amaxesha siva iindaba ezingalindelekanga ezivela kugqirha. Ingakumbi emva kokuhlolwa kwe-ultrasound ngexesha lokukhulelwa, ukuba kufunyaniswa ukuba umntwana unesiphene esithile sokuzalwa, intlungu kunye nokothuka okuviwa ngabazali kunzima ukukuthetha. Namhlanje siza kuthetha nge-'Spina Bifida', imeko enzima, kodwa ngoku ngonyango olutsha, kukho ithemba.
Ngamafutshane, yintoni i-Spina Bifida?
I-spina bifida sisifo sokuzalwa esenzeka kwiiveki zokuqala zobomi bomntwana. Cinga ngomqolo wethu njengesixhobo sokukhusela esikhusela umqolo, inkqubo yemithambo-luvo ebalulekileyo elawula umzimba wethu wonke. Kwi-spina bifida, amathambo omqolo awavaleki kakuhle, nto leyo eshiya umngxuma okanye umngxuma kumqolo.
Lo mngxuma ubangela umonakalo kumqolo nakwimithambo-luvo edibana nawo. Lo monakalo unokubangela iingxaki ezinkulu ezinokuchaphazela umntwana ubomi bakhe bonke.
- Ukukhubazeka: Ukulahlekelwa ngokupheleleyo okanye inxalenye yomsebenzi kwimilenze yomibini.
- Iingxaki zokulawula amathumbu kunye nesinyi: Ukungakwazi ukulawula amathumbu kunye nesinyi xa ufuna.
- Ubunzima bokufunda: Abanye abantwana banokuba nobunzima bokufunda.
- I-Hydrocephalus : Le yeyona ngxaki ixhaphakileyo. Ngamafutshane, kukuqokelelwa kolwelo engqondweni okubeka uxinzelelo engqondweni. Unyango loku ludla ngokubandakanya ukufakwa kombhobho okhethekileyo obizwa ngokuba yi-shunt ukuze kususwe ulwelo olugqithisileyo.
Utyando losana olungekazalwa - luyintoni ngokwenene?
Ngokwesiko, xa kuzalwa umntwana one-spina bifida, utyando lwenziwa kwiiyure ezingama-48 ukuvala inxeba elivulekileyo emqolo. Kodwa nangona kunjalo, kufuneka ukuba kukho umonakalo othile kwimithambo-luvo owenzekileyo.
Kodwa ukusukela ngasekupheleni kweminyaka yoo-1990, iqela loogqirha kwizibhedlele ezininzi eMelika liqalise ukuzama into eyahlukileyo, into ephucuke kakhulu. Oko kukuthi, ngaphambi kokuba umntwana azalwe, ngoxa esesesibelekweni sikanina, benza utyando lokuvala inxeba elisemqolo womntwana. Oku kubizwa ngokuba 'lutyando losana olungekazalwa' okanye 'lutyando losana olungekazalwa'.
Injongo ephambili yolu tyando ayikokubuyisela umva umonakalo wemithambo-luvo osele ukho. Oko akunakukwenziwa. Nangona kunjalo, injongo ephambili kukuyeka okanye ukunciphisa umonakalo ongakumbi onokwenzeka kuba inxeba lihlala livulekile kulo lonke ixesha lomntwana esibelekweni.
Khawucinge nje, le mithambo-luvo yonakaliswa ngakumbi kukuvezwa kulwelo lwe-amniotic olujikeleze umntwana ngelixa esesibelekweni. Ngoko ke, oogqirha bakholelwa ukuba ukuba oku kuvalwe kwangethuba, loo monakalo ungancitshiswa.
Oku akusiyo 'imilingo' - zithini iingozi kunye neziphumo?
Nangona oku kuphakamisa amathemba amakhulu, kufuneka siqonde ukuba oku akusiyo 'imilingo' eya kunika wonke umntu iziphumo ezifanayo, ngaphandle kweengozi. Olu lutyando oluntsonkothileyo nolunobungozi olusekwinqanaba lophando.
Abanye abantwana benza inkqubela emangalisayo emva kolu tyando. Umzekelo, uNicholas, owatyandwayo, uhamba engancediswanga eneminyaka emibini ubudala kwaye akafunanga shunt engqondweni yakhe. Unina uthi ukuba ebengakhange atyandwe , unyana wakhe ngewayengazange ahambe ngolu hlobo.
Nangona kunjalo, ayizizo zonke iimbali ezivuyisa kangaka. Omnye umntwana, u-'Nathan', kwafuneka afakwe i-shunt engqondweni yakhe xa wayeneeveki ezisi-7 ubudala, kwaye xa eneminyaka emibini akakahambi. Nangona kunjalo, uphuhliso lwakhe lwengqondo kunye nobukrelekrele bakhe bukwinqanaba elifanelekileyo lobudala bakhe.
Uyabona ke, akunjalo? Iziphumo zahlukile kakhulu kumntu nomntu. Yiyo loo nto kufuneka uzazi kakuhle iingozi ngaphambi kokuba wenze olu tyando.
| Iingozi eziphambili zotyando losana olungekazalwa | |
|---|---|
| Iingozi kumama | Iingozi ezinokubakho kumntwana |
| Olu tyando lunokonakalisa isibeleko kwaye lubangele ukopha kakhulu. | Ukuzalwa ngaphambi kwexesha. Le yeyona ngozi inkulu. Iintsana ezininzi zizalwa ngaphambi kwexesha, nto leyo enokubangela ezinye iingxaki zempilo. |
| Ukuvela kweemeko ezisulelayo. | Kukho ithuba elincinci kakhulu lokuba iingxaki ngexesha okanye emva kotyando zinokonakalisa ubomi bomntwana. |
| Iziphumo ebezingalindelekanga zamayeza anikwa ukulawula ukuzalwa kwangaphambi kwexesha. | |
| Kubaluleke kakhulu: Emva kolu tyando, bonke abantwana abasakhulayo kuya kufuneka bazalwe nge-cesarean section . | |
Eso sigqibo sinzima abazali abasenzayo
Ekubeni besazi konke oku, abazali basenza njani isigqibo esinjalo? Makhe sijonge ibali likaKelly, esithethe ngaye ngaphambili. Xa wafumanisa kwi-scan kwiiveki ezili-17 ukuba umntwana wakhe une-spina bifida, "okwemizuzwana" kuphela wacinga ngokuqhomfa, kodwa xa wafumanisa ngolu tyando, wagqiba ekubeni athathe zonke iingozi aze aqhubeke nalo.
Kwiiveki ezimbini emva kotyando, iingozi zaqala ukubonakala. Isibeleko sakhe saqala ukuvuza ulwelo lwe-amniotic. Ngoko ke kwafuneka ahlale esibhedlele de umntwana azalwe. Wayenokubona umyeni wakhe nentombi yakhe eneminyaka esi-7 kuphela ekhaya ngeempelaveki.
Kodwa phakathi kwalo lonke olu dano, ubalisa ibali elinamandla kakhulu. "Ndiyavuya ukuba ndenze olu tyando. Kuba ngoku akufuneki ndicinge, 'Owu, kuthekani ukuba bendikwenzile oko ngelo xesha?'"
Oku kubonisa ukuba esi sisigqibo esisuka entliziyweni kunokuba sithathwe kwezonyango. Bayazi ukuba oku akuyi kumenza umntwana aphile ngokupheleleyo. Kodwa ukuba kunokuphucula umgangatho wobomi bomntwana, kunciphise ukubandezeleka adlula kuko, abo bazali abayi kucinga kabini ngokumnika ithuba.
Umyalezo Wokuya Ekhaya
- I-Spine Bifida sisifo esibi kakhulu sokuzalwa, kodwa ngonyango olufanelekileyo kunye nonyango lomzimba, umntwana unokuncedwa ukuba aphile ubomi obuhle.
- Utyando losana olungekazalwa yindlela yonyango ephucukileyo kakhulu esekwinqanaba lophando. Injongo yalo asikokunyanga esi sifo, kodwa kukunciphisa umonakalo obangelwe siso.
- Olu tyando luyingozi kakhulu kumama nakumntwana. Ingakumbi, ukuzalwa ngaphambi kwexesha kuyingozi enkulu.
- Iziphumo zotyando zahlukile kakhulu kumntu nomntu. Nangona abanye abantwana bebonisa inkqubela enkulu, ayinguye wonke umntu ofumana iziphumo ezifanayo.
- Ukuba wena okanye umntu omaziyo ujongene nale meko, eyona nto ingcono onokuyenza kukuba nengxoxo evulekileyo nende nogqirha wakho. Kubalulekile ukuqonda ngokucacileyo izinto ezilungileyo, iingxaki, iingozi, kunye nazo naziphi na izinto ezikhethekileyo ezichaphazela wena.
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