Ukhathalelo lweHospice: Masithethe ngalo

Kukho amaxesha ebomini bethu, akunjalo? Oko kukuthi, xa kuvela isifo esinzima, baze oogqirha bathi akusekho ndlela yokusinyanga ngokupheleleyo. Ngokwenene ngumthwalo engqondweni. Kodwa, ngexesha elinjalo, ingaba luncedo kangakanani ukuba noncedo lokuchitha ixesha eliseleyo ngokukhululeka kangangoko kunokwenzeka, ngaphandle kwentlungu, njengoko unqwenela, nabantu obathandayo ? Namhlanje, siza kuthetha ngenkonzo yokhathalelo ebaluleke kakhulu encedayo ngamaxesha anjalo, kwaye abantu abaninzi abangazi ngayo. Oku kubizwa ngokuba yi-'(Hospice Care)' okanye "ukhathalelo lokuphela kobomi".

Yintoni iHospice Care? Ngamafutshane...

Ngamafutshane, xa unemeko ethile yezonyango kwaye ixesha lokuphila kwakho lilinganiswa ngeenyanga endaweni yeminyaka, kwaye injongo yakho ephambili kukunciphisa iintlungu nokuhlala ukhululekile , oku kubizwa ngokuba yi-"Hospice Care". Cinga ngako, kukho ezinye izifo, umzekelo, kukho iintlobo ezithile zomhlaza, okanye kukho izinto ezifana "nesifo sentliziyo", ezithi, xa zifikelele kwinqanaba elithile, kube nzima ukuzinyanga ngokupheleleyo ngamayeza angaphezulu. Kulapho kufuneka ucinge ngolu nyango.

Eyona njongo iphambili yoku kukukunceda ugcine ulawulo lobomi bakho, ukukuvumela ukuba uphile ubomi obutofotofo nangendlela enesidima kangangoko, kwaye ukunike amandla kunye nenkxaso oyifunayo njengoko ulungiselela ukuphela kobomi bakho ngendlela yakho. Abantu ababonelela ngale nkonzo ziingcali ekulawuleni iimpawu. Ngoko ke ungachitha imihla yokugqibela yobomi bakho ngendlela enentsingiselo kuwe, ngaphandle kwentlungu. Oku kukukhulula kakhulu wena nosapho lwakho. Iqela labahlengikazi abakwi-hospice, abasebenzi bezentlalo, abacebisi bokomoya, abasebenzi bezempilo zasekhaya, oogqirha, amavolontiya kunye nabacebisi bentlungu baya kukungqonga kwaye bakunike lonke inkxaso oyifunayo.

Zithini iinqanaba ezine zokhathalelo lwe-hospice?

Ewe, kukho amanqanaba amane onyango olufumanekayo ngokuxhomekeke kwiimfuno zakho. Iqela lakho le-hospice liza kugqiba ukuba leliphi inqanaba elikulungeleyo. Eli nqanaba linokutshintsha njengoko imeko yakho itshintsha.

• Ukhathalelo oluqhelekileyo lwasekhaya: Kulapho usapho lwakho okanye abantu obathandayo bekunakekela ekhaya. Ababoneleli ngeenkonzo zokhathalelo lwe-hospice beza ekhayeni lakho ngeentsuku ezicwangcisiweyo baze bakunike ukhathalelo kunye neengcebiso ozifunayo. Kwinkcubeko yethu yaseSri Lanka, abantu abaninzi bakhetha ukuhlala emakhaya, kunye nabantu ababathandayo. Le ndlela ixabiseke kakhulu kubo.
• Unyango oluqhelekileyo lwezigulane ezilaliswayo (GIP): Ukuba unentlungu okanye ezinye iimpawu ezinzima kakhulu ukuba ungaziphatha ekhaya, uza kungeniswa esibhedlele okanye kwiziko elikhethiweyo lonyango lwe-hospice.
• Ukhathalelo lwasekhaya oluqhubekayo:Oku kusetyenziswa ukuba iimpawu zakho ziya zisiba mandundu ngequbuliso kwaye udinga unyango oluqatha nolwexesha elifutshane ekhaya. Oku kudla ngokunikwa abantu abafanelekela inqanaba `(GIP)` kodwa abanqwenela ukuhlala ekhaya.
• Ukhathalelo lokuphumla: Ukuba ufuna ukunika abanakekeli bakho ikhefu, ukhathalelo lwe-hospice lunokubonelelwa ngokukubeka kwindawo enezibonelelo okwethutyana elifutshane. Kuba nabo bafuna ixesha lokuphumla nokuphumla ngelixa beqhubeka nokunyamekela umntu.

Ngubani oxhamla kwiHospice Care?

Ngokwesiqhelo, oogqirha basebenzisa izinto ezifana nezikhokelo zeMedicare ukuze bafumanise ukuba umntu uyafaneleka na ukufumana unyango lwe-hospice. Oko kuthetha ukuba ukuba imeko yakho iyaqhubeka ngokwendalo kwaye uneenyanga ezintandathu okanye ngaphantsi kokuphila, ungafaneleka ukufumana unyango lwe-hospice. Olu nyango luyacetyiswa xa oogqirha bekholelwa ukuba unyango lwangoku alusenaluncedo kwaye akukho themba lokuba imeko yakho iya kuba ngcono. Unyango lwe-hospice ludla ngokugutyungelwa yi-Medicare, i-Medicaid, kunye nezicwangciso ezininzi ze-inshurensi yabucala.

Abantu abaninzi abafumana unyango lwe-hospice banezifo ezingapheliyo eziya zisiba mandundu kancinci kancinci zize ekugqibeleni zinganyangeki. Umzekelo:

• I-ALS (isifo esichaphazela inkqubo yemithambo-luvo)
• Isifo sika-Alzheimer
• Umhlaza
• Isifo sengqondo esixhalabisayo
• Isifo sentliziyo
• Isifo sezintso
• Isifo sikaParkinson
• Isifo semiphunga
• Nezinye izifo.

Amalungu eqela le-Hospice ziingcali ezinolwazi olupheleleyo ngeemfuno ezikhethekileyo zabantu abaphila kwiinyanga zokugqibela, kwiiveki, nakwiintsuku zobomi babo.

Ngubani obonelela ngolu nyango lwe-hospice? Kukho iqela elibanzi kakhulu...

Kule nkonzo, kukho ababoneleli ngeenkonzo abahlukeneyo abakhathalela impilo-ntle yakho yomzimba, yengqondo, yentlalo neyokomoya:

• Oogqirha: Oogqirha be-Hospice basebenzisana nawe kunye nabantu obathandayo ukwenza isicwangciso sokhathalelo esigxile kwintuthuzelo nesidima sakho.
• Abahlengikazi: Abahlengikazi be-hospice beza kukubona kanye okanye kaninzi ngeveki baze bakunike unyango olufunayo. Bakufundisa wena kunye nabanakekeli bakho indlela yokulawula iimpawu zakho. Abahlengikazi baququzelela umsebenzi kunye neqela lonke le-hospice.
• Abancedisi bezempilo yasekhaya: Aba bantu beza kanye okanye kaninzi ngeveki kwaye banceda ngemisebenzi yemihla ngemihla efana nokuhlamba umzimba kunye nococeko lomntu. Benza nemisebenzi emincinci yasekhaya. Njengabongikazi, aba bantu bakufundisa lukhulu. Bakufundisa wena nosapho lwakho indlela yokukunyamekela xa umongikazi okanye umsebenzi wezempilo engekho.
• Abacebisi bokomoya:Aba bantu bakunceda ukujongana notshintsho oluvayo njengoko usondela esiphelweni sobomi bakho, kwaye bakuncede utshintshele kwinqanaba lokugqibela lobomi. Akunyanzelekanga ukuba ube ngumntu okholelwa kwinkolo ethile. Lo ngumntu onokukuthuthuzela, athethe nawe ngendlela okholelwa kuyo, aze akuncede wenze isigqibo.
• Abasebenzi bezentlalo: Aba bantu banokukunika inkxaso ngokweemvakalelo kunye neengcebiso. Banokukunceda ulungiselele amaxwebhu afana neminqweno yakho yokugqibela (imiyalelo kwangaphambili) kwaye bathethe ngemiba yezemali. Banokukudibanisa nezixhobo ezixabisekileyo ezifana noncedo lwezemali, uncedo lokutya, kunye neenkonzo zeengcebiso.

Ngokuxhomekeke kwiimfuno zakho, ukhathalelo lwe-hospice ngamanye amaxesha lunokubandakanya izinto ezifana nonyango lokumasaja, unyango lobugcisa, kunye nonyango lomculo.

Yintoni ngokwenene oyifumanayo kwi-Hospice Care?

Ukhathalelo lwe-hospice lubonelela ngezixhobo ezininzi kunye nenkxaso kwabo bakwinqanaba lokugqibela lobomi:

• Ukhathalelo olupheleleyo lokuphela kobomi: Eyona nto iphambili kwi-hospice kukukuphatha njengomntu opheleleyo nokuxhasa usapho lwakho. Uza kusebenzisana ngokusondeleyo noogqirha kunye nabongikazi abanyamekela iimfuno zakho zomzimba, kunye nabasebenzi bezentlalo kunye nabacebisi bokomoya abakhathalela impilo-ntle yakho yengqondo, yeemvakalelo, yentlalo, neyokomoya.
• Amayeza okuthuthuzela: Uza kufumana amayeza kunye nolunye unyango oluza kunceda ekunciphiseni iintlungu zakho kunye nokunciphisa ezinye iimpawu. Iqela le-hospice liza kusebenzisana nawe ukwenza isicwangciso samayeza akho afanelekileyo kuwe. Iimfuno zakho ziya kuhlolwa kwakhona ngamanye amaxesha njengoko imeko yakho itshintsha. Uza kuqhubeka ufumana amayeza aphucula intuthuzelo yakho kunye nomgangatho wobomi bakho.
• Izixhobo zonyango kunye nezixhobo: Uza kufumana izixhobo zokukunceda uhlale ebhedini kwaye uhambahambe - izinto ezifana neebhedi zesibhedlele ze-elektroniki ezinokuphakanyiswa okanye zehliswe, izitulo ezinamavili, kunye nezixhobo zokuhamba. Unokufumana nezixhobo zokukunceda uphefumle, ezifana neoksijini. Uza kufumana nezinto ezibalulekileyo ezifana neepani zokulala, iibhandishi, kunye neesirinji.
• Ukhathalelo lwexesha elifutshane kwindawo enika inkxaso: Ukuba kuvela iimfuno ezingenako ukuhlangatyezwa ekhaya, unyango lwakho lunokudluliselwa kwiziko lokuhlala ixesha elifutshane.
• Inkxaso yabanakekeli:Ukhathalelo lwe-hospice lukwafikelela nakubantu abakhathalela abantu abaphambili – amalungu osapho lwakho okanye abahlobo abachitha ixesha elininzi nawe. Iingcali ze-hospice zisebenza ngokusondeleyo naba bantu abakhathalela abantu abaphambili ukuze zibancede baqonde indlela yokukhathalela wena. Zikwabadibanisa nezixhobo zokunyamekela impilo yabo ngelixa bekhathalela wena. Umzekelo, ingabandakanya ukhathalelo lokuphumla, oluvumela abakhathalela abantu abaphambili ukuba bathathe ikhefu kwaye wena uhlale kwindawo ekhululekileyo ixesha elifutshane. Ukhathalelo lwe-hospice lukwabandakanya inkxaso yokufelwa, enceda abantu obathandayo ukuba bajongane nentlungu yabo emva kokuba uswelekile.

Yintoni engagutyungelwa yiHospice Care?

Xa ucwangcisa ukuphela kobomi, ngelixa ucinga ngeengenelo zokhathalelo lwe-hospice, kubalulekile ukuqaphela izinto ezingabonelelwayo yi-hospice:

• Ukhathalelo lokunyanga: Ukhathalelo lwe-hospice lumalunga nokukugcina ukhululekile kwaye lukunike ubomi obusemgangathweni ophezulu xa unyango lokunyanga lungasancedi. Alunyangi isigulo sakho ukuze lunyangeke. Ukuba utshintsha ingqondo yakho uze ugqibe ekubeni ufuna ukuqhubeka nonyango lwesigulo sakho, ungayeka ukhathalelo lwe-hospice. Umzekelo, abanye abantu baqala unyango kwakhona xa iyeza elitsha okanye unyango lufumaneka ukuba baluzame.
• Igumbi kunye nesidlo: Ukhathalelo lwe-hospice aluthathi indawo yokhathalelo oluhlala iiyure ezingama-24 olufumana kwiziko lokuhlala, njengekhaya labalupheleyo. Ungalufumana ukhathalelo lwe-hospice naphi na apho ucinga ukuba luhlala khona – ikhaya lakho, ikhaya labalupheleyo, iziko lokhathalelo lwe-hospice, okanye indawo yokuhlala yoncedo. Nangona kunjalo, ukuba ufumana ukhathalelo kwiziko, kunokufuneka uhlawulele ngokwakho. Ukuba ungathanda ukuya kwiziko elinjalo kodwa awuqinisekanga ngeendleko, jonga kwisicwangciso sakho se-inshurensi.
• Ukhathalelo lwexesha elide, olusebenza iiyure ezingama-24: Ukhathalelo olufumanayo luxhomekeke kwizinto ezahlukeneyo, kuquka indawo ohlala kuyo, imeko yakho, kunye ne-inshurensi yakho. Ngokubanzi, nangona iingcali ze-hospice zifumaneka iiyure ezingama-24 ngosuku, iintsuku ezisixhenxe ngeveki ukuphendula imibuzo yakho yezonyango, azikuniki khathalelo ngqo iiyure ezingama-24 ngosuku kangangexesha elide. Kunoko, ziza kukubona ngeentsuku ezicwangcisiweyo. Abantu abaninzi abafumana unyango lwe-hospice ekhaya banamalungu osapho okanye abahlobo ababanyamekelayo ixesha elizeleyo.

Umntu angahlala ixesha elingakanani kwindawo yokhathalelo lwe-hospice?

Abanye abantu bayoyika, "Ukuba siphila ixesha elingaphezulu kweenyanga ezintandathu, ngaba siza kulahlekelwa yi-hospice?" Kodwa akunjalo. Inyaniso kukuba, akukho mntu waziyo ukuba omnye umntu uza kuphila ixesha elingakanani. Iinyanga ezintandathu lixesha elisetyenziswa yiMedicare. Ezinye iinkampani zeinshorensi nazo zisebenzisa ixesha leMedicare njengomgangatho wazo. Abantu abaninzi bafumana unyango oluhle kakhulu kwi-hospice kangangokuba baphila ixesha elide kunokuba bebecinga.

Ugqirha wakho we-hospice uza kuqhubeka nokuvavanya imeko yakho. Ukhathalelo lwe-hospice lunokwandiswa ngaphaya kweenyanga ezintandathu. Ukuba imeko yakho iyaphucuka, ugqirha wakho uza kukukhulula kwi-hospice. Iingenelo ozifumanayo ziya kuxhomekeka kwiimfuno zakho ezithile.

Yintoni umahluko phakathi kweHospice Care kunye nePalliative Care?

Abantu abaninzi bayadideka ngezi zimbini. Makhe sibone ukuba yintoni umahluko nje.

Unyango oluthomalalisa iintlungu luhlobo lonyango olugxile ekuphuculeni umgangatho wobomi babantu abanezifo ezinzulu. Ungafumana unyango oluthomalalisa iintlungu nakweyiphi na inqanaba lokugula okunzulu, kunye nonyango olunyangayo . Oku kuthetha ukuba ungalufumana olu nyango ukunciphisa iintlungu, ukungonwabi, kunye nokuphila kakuhle kwengqondo ngelixa usela amayeza okunyanga esi sifo. Injongo kukukhulula ubunzima bomzimba, beemvakalelo, bentlalo, kunye nobomoya obunokwenzeka xa unesifo esinzulu.

Ukhathalelo lwe-hospice luhlobo lokhathalelo olugxile ekuboneleleni ngentuthuzelo kunye nenkxaso eyongezelelweyo xa ixesha lokuphila lilinganiswa ngeenyanga, kungekhona iminyaka . Ukhathalelo lwe-hospice luluncedo xa unyango lokunyanga lungasancedi, okanye xa umntu egqibe ekubeni ayeke ukunyanga isigulo sakhe. Kwi-hospice, injongo ephambili kukuthuthuzela .

Khawucinge nje, umntu unomhlaza kwaye unyangwa. Ngelixa unyangwa, ungafumana unyango oluthomalalisayo ukunciphisa izinto ezifana neentlungu kunye nokucaphuka. Kodwa, ukuba ngenye imini oogqirha bathi, "Lo mhlaza awusanyangeki, kwaye kungcono ukuhlala ubomi bakho bonke," ungacinga ngononophelo lwe-hospice.

Ngaba ukufumana unyango lwe-hospice kuthetha "ukuyeka"?

Hayi suka! Le yinto ebaluleke kakhulu ukuyiqonda. Ukufumana unyango lwe-hospice kuthetha ukuba uzama ukuphila ubomi bakho kakuhle kangangoko kunokwenzeka nangendlela ekhululekileyo, nangona imeko yakho yempilo isiba mandundu. Ukuba ugqirha wakho ucebisa unyango lwe-hospice, oko kubonisa indlela abazibophelele ngayo kwimpilo-ntle yakho.

Nangona kunjalo, khumbula ukuba isigqibo sokugqibela sokungena kunyango lwe-hospice okanye ukuqhubeka nonyango sesakho. Ungatshintsha ingqondo yakho nangaliphi na ixesha.

Ukufa yinxalenye yobomi njengokuzalwa. Ukufa yinto esidibana nayo sonke ngaxa lithile. Ukuba unesifo esinzulu, ukuthetha nabantu obathandayo malunga nokuba yintoni ebalulekileyo kuwe kunye nendlela (kwaye phi, nabani) ongathanda ukuchitha iinyanga ezimbalwa zokugqibela zobomi bakho kunokukunceda wena nosapho lwakho nenze izigqibo malunga nokhathalelo lwakho. Ukuba nombono ocacileyo weminqweno yakho kwiintsuku zakho zokugqibela kuya kukunika inkululeko yokuphila yonke imihla yobomi bakho ngoxolo olukhulu lwengqondo. Thetha nogqirha wakho ngale nto (ucwangciso lokhathalelo kwangaphambili).

Izinto ezibalulekileyo ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Hospice Care yintsikelelo enkulu ngamaxesha anzima ebomini. Ibonelela:

• Inciphisa iintlungu nokungonwabi: Ikunceda uhlale ukhululekile kangangoko unako.
• Intlonipho noLawulo: Ikuvumela ukuba uphile ubomi bakho bonke ngesidima, ngokweminqweno yakho.
• Ukunceda usapho: Oku kukwanika inkxaso enkulu kunye nokuphumla kusapho olunyamekela isigulana.
• Impilo-ntle yengqondo neyokomoya: Ayincedi nje kuphela kwimpilo-ntle yomzimba, kodwa ikwanceda noxolo lwengqondo.
• Asikuko "ukuyeka": linyathelo elihle lokuqonda inyani yobomi nokusebenzisa ixesha eliseleyo kakuhle.

Ukuba wena okanye umntu omaziyo ukule meko, ungathandabuzi ukuthetha nogqirha wakho malunga nokhathalelo lwe-hospice. Oku kunokukuzisela intuthuzelo engenakuthelekiswa nanto.

I- Hospice, ukhathalelo lokuphela kobomi, ukhathalelo lokudambisa iintlungu, ulawulo lweentlungu, ukugula okungapheliyo, intuthuzelo, umgangatho wobomi