Owu, ngamanye amaxesha kuyadinisa ukucinga ngezifo ezinokuthi zithwalwe ziintsana zethu, akunjalo? Ingakumbi, ezinye iimeko esizifundayo ngelixa umntwana esesesibelekweni zinzima kakhulu kwaye kunzima ukuziqonda. Namhlanje siza kuthetha ngemeko yobuchopho enzulu engaqhelekanga, kodwa kubalulekile ukuyazi. Oku kubizwa ngokuba yi-hydranencephaly.

Yintoni kanye kanye iHydranencephaly?

Ngamafutshane, i-hydranencephaly yimeko engaqhelekanga ye-neurological eyenzeka ekuzalweni. Kule meko, iindawo ezimbini ezibalulekileyo zengqondo yomntwana, ezibizwa ngokuba zii-cerebral hemispheres , aziveki. Cinga ngayo, eyona nxalenye inkulu yengqondo yethu yi-cerebrum. Kulapho ezi hemispheres zimbini zikhoyo. Ukucinga, ukukhumbula, kunye nokuziva zonke zilawulwa zezi hemispheres ze-cerebral.

Ngoko ke, entlokweni yomntwana one-hydranencephaly, apho kufuneka ukuba khona ii-hemispheres zobuchopho, kukho iingxowa ezizaliswe lulwelo lwe-cerebrospinal (CSF) . Olu lwelo lwe-cerebrospinal (CSF) lulwelo olujikeleza kwaye lukhusela ingqondo yethu kunye nomqolo. Kodwa kule meko, kwenzeka into eyahlukileyo.

Ekuhambeni kwexesha, iintloko zezi ntsana ziqala ukukhula zibe nkulu. Kwakhona, ezinye iimpawu ezinzulu zinokuvela. Okubuhlungu kukuba, le meko idla ngokubangela ukuba umntwana afe emva nje kokuzalwa, nokuba akakho esibelekweni sikanina.

Yintoni umahluko phakathi kweHydranencephaly kunye neHydrocephalus?

Usenokuba ukhe weva ngemeko ebizwa ngokuba yi-hydrocephalus. Zombini ezi meko ziquka intloko ekhulisiweyo kunye nokuqokelelwa kolwelo lomgogodla (CSF). Kodwa ezi meko zimbini zahlukile kakhulu.

I-Hydrocephalus yimeko apho ulwelo olungaphakathi kwengqondo, olubizwa ngokuba yi-cerebrospinal fluid (CSF), luqokelelana khona, nto leyo ebangela uxinzelelo oluphezulu ngaphakathi kwentloko. Oku kunokubangela umonakalo engqondweni. Inokuba khona xa umntu ezalwa, okanye ingenzeka emva kwengozi okanye ukugula. Ngamanye amaxesha, i-hydrocephalus inokubakho njengophawu lwemeko ebizwa ngokuba yi-hydranencephaly.

Kodwa kwi-hydranencephaly, ingqondo ayikhuli kakuhle ngelixa umntwana esesesibelekweni. Oko kuthetha ukuba zimbalwa iindawo zengqondo ezikhula.

Kubalulekile ukwahlula phakathi kwezi meko zimbini, njengoko unyango kunye noqikelelo lwazo lwahlukile kakhulu. Iintsana ezininzi ezine-hydrocephalus zinokuphila ukuba zichongiwe kwaye zinyangwa ngokufanelekileyo. Nangona kunjalo, iintsana ezine-hydranencephaly azihlali ziphila.

Ngoko ke yintoni umahluko phakathi koku kunye ne-holoprosencephaly?

Le yenye into eyahlukileyo engaqhelekanga enxulumene nophuhliso lobuchopho.Kwi-holoprosencephaly, inxalenye engaphambili yengqondo yomntwana (ubuchopho obungaphambili), ii-hemispheres zobuchopho ezikhankanyiweyo ngaphambili, ayihlukani. Oko kukuthi, endaweni yokuba zibe ziinxalenye ezimbini, ihlala inye. Nangona kunjalo, kwi-hydranencephaly, ezo hemispheres azikho kwaphela.

Ngokuxhomekeke kubukhali bemeko, ezinye iintsana ezine-holoprosencephaly zinokuphila emva kokuzalwa.

Ixhaphake kangakanani le meko, Hydranencephaly?

Le yimeko engaqhelekanga kakhulu. Izazinzulu ziqikelela ukuba le meko ichaphazela malunga nomntu omnye kwabayi-10,000 abakhulelweyo, okanye omnye kwabayi-5,000. Oko kuphantsi kakhulu.

Kutheni i-hydranencephaly isenzeka? Zithini izizathu?

Enyanisweni, izazinzulu azikayazi kakuhle into ebangela i-hydranencephaly. Kusenokwenzeka ukuba ibangelwa yimfuza, kodwa akukho kuqonda ngokucacileyo ukuba yenzeka njani.

Nangona kunjalo, kwezinye iimeko, le meko ifunyenwe inxulumene nokuvezwa kobuthi ngumama ngexesha lokukhulelwa . Ke ngoko, kufuneka kuqatshelwe kakhulu ngexesha lokukhulelwa.

Zithini iimpawu zale meko?

Xa umntwana one-hydranencephaly ezalwa, usenokubonakala njengomntwana oqhelekileyo kwiintsuku ezimbalwa zokuqala. Ngenxa yoko, kunokuba nzima ukumbona kwangoko. Iimpawu ziqala ukubonakala kwiiveki okanye kwiinyanga zokuqala zobomi. Nazi ezinye zeempawu ezinokuvela:

• Ukungaphumeleli kokukhula kuthetha ukuba umntwana akakhuli kakuhle okanye akakhuli kakuhle .
• Ukuqina kwemisipha kunokwanda okanye kunciphe, kunye nokushukuma kwemisipha .
• Intloko inkulu kunesiqhelo.
• Ubunzima bokubona nokuva .
• Ukuqina kwamalungu.
• Ubunzima bokuphefumla .

Ukuba unenye okanye ngaphezulu kwezi mpawu, kubaluleke kakhulu ukufuna ingcebiso kagqirha ngokukhawuleza.

Ifunyanwa njani iHydranencephaly?

Le meko ngamanye amaxesha inokubonwa ngaphambi kokuba umntwana azalwe, oko kukuthi, ngexesha le-ultrasound scan . Njengoko usazi, i-ultrasound scan yenza umfanekiso womntwana osesibelekweni sikanina. Emva koko, kunokubonwa ukuba ii-hemispheres zobuchopho bomntwana azikho.

Ukuba i-ultrasound yokukhulelwa ibonisa ukuba umntwana une-hydranencephaly, ugqirha unokuyalela i-MRI ukuze afumane imifanekiso ecacileyo.

Nangona kunjalo, ngamanye amaxesha ayibonakali ngexesha lokukhulelwa kwaye imeko inokuhlala injalo emva kokuba umntwana ezelwe. Kwimeko enjalo, kungathatha iiveki okanye iinyanga ukufumanisa imeko. Kuba, njengoko bekutshiwo ngaphambili, umntwana usenokubonakala eqhelekile ekuqaleni.

Ugqirha angaqinisekisa imeko ngokusekelwe kwiimpawu zomntwana kunye ne-MRI yengqondo. I-MRI inokunceda ukwahlula i-hydranencephaly kwezinye iimeko, ezifana ne-hydrocephalus kunye ne-holoprosencephaly, ebezixutyushwa ngaphambili.

Ukongeza, ezinye iimvavanyo zingenziwa, ezinje:

• I-Angiography: Oku kuquka ukuthatha imifanekiso ye-X-reyi yemithambo yegazi usebenzisa idayi ekhethekileyo.
• I-CT scan: Le yenye indlela yokuthatha imifanekiso yengqondo.
• I-Hydranencephaly ultrasound: Uvavanyo lwe-ultrasound olwenziwe ngokukodwa ukujonga le meko.
• Ukukhanya okugqithisileyo: Oku kuquka ukukhanyisa isibane esingaphakathi kwengqondo phantsi kwekhakayi ukuze kubonwe ukuba kukho naziphi na iingxaki.
• Uvavanyo lwemfuza: Jonga ukuba lufuzo na.

Ziziphi iindlela zonyango zeentsana ezine-hydranencephaly?

Le yingxaki ebucayi kakhulu. Ukuba i-hydranencephaly iqinisekisiwe ngexesha lovavanyo lwangaphambi kokukhulelwa, ezinye iintsapho zigqiba ekubeni zikhuphe isisu ngonyango , nto leyo ethetha ukuphelisa ukukhulelwa ngenxa yezizathu zempilo. Esi sisigqibo esinzima kakhulu, kodwa oogqirha kunye nabacebisi banika inkxaso efunekayo ngamaxesha anjalo.

Ukuba umntwana uzelwe ene-hydranencephaly, akukho nyango. Unyango lujolise kakhulu ekunciphiseni iimpawu nokwenza umntwana azive ekhululekile kangangoko.

• Kwenziwa utyando lokususa ulwelo olugqithisileyo engqondweni kunye nokufaka i-shunt (ityhubhu encinci) ukunciphisa uxinzelelo engqondweni. Nangona olu lunyango olusebenzayo lwe-hydrocephalus, alunamsebenzi kangako kwi-hydranencephaly.
• Unyango olubizwa ngokuba yi -Endoscopic Choroid Plexus Coagulation (ECPC) ngamanye amaxesha lungasetyenziswa njengonyango lokukhulisa ubuchopho ngokukhawuleza.

Ukongeza, ugqirha unokucebisa izinto ezifana nezi:

• Amayeza okuthintela ukuxhuzula .
• Inkxaso yesondlo.
• Unyango lomzimba ukunciphisa iimpawu zemisipha.
• Ukuba kukho ukungasebenzi kakuhle kokuphefumla, i-tracheostomy (utyando oluncinci emqaleni) okanye ukuphefumla ngomatshini kunokufuneka.

Ngaba le meko ye-hydranencephaly ingathintelwa?

Izazinzulu azikaqondi ngokupheleleyo ukuba kutheni oku kusenzeka, ngoko ke azinakutsho ngokuqinisekileyo ukuba zingakuthintela njani. Nangona kunjalo, njengoko bekutshiwo ngaphambili, ezinye iimeko ziye zanxulunyaniswa nokuchanabeka kwiityhefu ngexesha lokukhulelwa. Umzekelo, iziyobisi ezifana ne-cocaine, ukutshaya, kunye namayeza okuxhuzula afana ne-sodium valproate.

Kungoko ke, kubaluleke kakhulu ukuba oomama abakhulelweyo baphephe ukudibana neetyhefu. Kubalulekile nokuthetha nogqirha wabo malunga namayeza abawasebenzisayo.

Ingakanani ixesha lokuphila komntwana one-hydranencephaly?

Oku kuyadanisa ukuva. Imbono yabantwana abane-hydranencephaly ayilunganga kangako. Iintsana ezininzi ziyafa ngaphambi kokuzalwa okanye ngaphambi kokuba zibe neminyaka omnye ubudala. Amaxesha amaninzi, xa umntwana ene-hydranencephaly exhaswa kakhulu, unokuphila iminyaka eliqela.

Ujongana njani nemeko efana nale?

Ukufumanisa ukuba umntwana wakho unemeko efana ne-hydranencephaly yinto enzima kakhulu ukujongana nayo. Kuyaqondakala oko.

• Kubaluleke kakhulu ukubonelela iintsapho ngemfundo efunekayo ukuze ziqonde ubunzulu besi sifo.
• Kwakhona, ukufuna iingcebiso nokujoyina amaqela enkxaso apho unokunxibelelana nezinye iintsapho ezijongene neemeko ezifanayo kunokuba ngumthombo omkhulu wamandla.

I-Hydranencephaly sisifo esingaqhelekanga sokuzalwa esichaphazela uphuhliso lobuchopho. Sidla ngokufunyaniswa ngaphambi okanye emva nje kokuzalwa. Ukuba umntwana wakho unale meko, iqela lakho lezonyango liya kukunika wena nosapho lwakho lonke inkxaso, imfundo kunye neengcebiso enizifunayo. Khumbula, awuwedwa.

Umyalezo Wokugqibela Wokuya Ekhaya

Mama noTata abathandekayo, iHydranencephaly yimeko ebuhlungu kakhulu neyinzima. Nangona kunjalo, kubalulekile ukuyiqonda.

• Le yimeko engaqhelekanga kakhulu eyenzekayo xa iindawo ezithile zobuchopho zingakhuli kakuhle.
• Oku kunokubonwa rhoqo ngeeskeni zokukhulelwa .
• Nangona kungekho nyango loku, kukho iindlela zonyango zokulawula iimpawu nokwenza umntwana azive ekhululekile .
• Ngenxa yokuba unobangela ochanekileyo ungaziwa, kubalulekile ukuthatha amanyathelo okhuseleko, njengokuphepha iityhefu ngexesha lokukhulelwa.
• Iintsapho ezijongene nale meko zinokufumana amandla amakhulu koogqirha, abacebisi, kunye namaqela enkxaso .

Ukuba unemibuzo engaphezulu malunga noku, nceda uthethe nogqirha wakho. Baza kukunika lonke ulwazi kunye nesikhokelo osidingayo.

I- Hydranencephaly, ukukhubazeka kwengqondo, iziphene zokuzalwa, impilo yosana, ulwelo lomgogodla, i-hydrocephalus, ukuxilongwa kokukhulelwa