Ngaba wena okanye umntu omaziyo unesifo sikaGaucher? Ukuba kunjalo, kusenokwenzeka ukuba ukhe weva ngesitofu esibizwa ngokuba yi-'Imiglucerase'. Eli yeza lidla ngokuthengiswa phantsi kwegama elithi 'Cerezyme' kwilizwe lethu. Ngoko ke, namhlanje siza kuthetha nje ngohlobo lonyango olu, kwenzeka ntoni ngalo, kunye nezinto ekufuneka uzilumkele xa uthatha olu nyango.
Luhlobo luni lweyeza i-Imiglucerase?
Ngamafutshane, iGaucher's Disease yimeko yemfuza ebangelwa kukungabikho kwe-enzyme eveliswa yimizimba yethu ngokwendalo. Xa le enzyme ingekho, izinto ezinamafutha ziqala ukuqokelelana ngaphakathi kwezinye zeeseli zomzimba. Oku kungonakalisa amalungu omzimba afana namathambo, i-spleen, nesibindi.
I-Imiglucerase yi -enzyme yokwenziwa ethatha indawo ye-enzyme engafanelekanga. Xa eli yeza linikwa ngemithambo yegazi, lithatha umsebenzi we-enzyme yendalo kwaye lilawule ukuqokelelwa kwamafutha kwiiseli. Oku kunokunciphisa kakhulu iimpawu.
Kodwa oku kubaluleke kakhulu: I-Imiglucerase lunyango olulawula iimpawu zesifo seGaucher, hayi unyango.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba uqale olu nyango, kufuneka uxoxe ngale micimbi ngokucacileyo nogqirha wakho.
- Ngaba une-allergy kwi-Imiglucerase okanye naliphi na elinye iyeza, ukutya, okanye izithinteli?
- Ukhulelwe okanye unethemba lokukhulelwa ?
- Ingaba ungumama oncancisayo ?
Ngokusekelwe kolu lwazi, ugqirha uya kugqiba ukuba olu nyango lufanelekile na kuwe kwaye uza kuqhubeka njani.
Lunikwa njani unyango?
Eli yeza linikwa njenge-infusion emthanjeni, efana ne-saline. Le ayisiyonto unokuyenza ekhaya. Linikwa esibhedlele okanye ekliniki yingcali yezonyango eqeqeshiweyo. Lidla ngokunikwa rhoqo emva kweeveki ezimbini.
Ngaba eli yeza linokunikwa abantwana?
Ewe, eli yeza licetyiswa kubantwana abaneminyaka engaphezu kwemi-2 ubudala kwezinye iimeko ezikhethiweyo. Nangona kunjalo, kukho izinto ekufuneka uzilumkele xa ulinika abantwana. Ke ngoko, ukuba umntwana wakho unikwe olu nyango, thetha nogqirha wezingane ngalo uze ucacise yonke into.
Kuthekani ukuba umthamo wamayeza unyuswe ngempazamo?
Ekubeni olu nyango lunikwa esibhedlele, umngcipheko wokusebenzisa i-overdose uphantsi kakhulu. Nangona kunjalo, ukuba ukrokrela ukuba kukho into eyenzekileyo, fowunela ngokukhawuleza iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo okanye uye kwiSebe leNgxamiseko (ETU) lesibhedlele esikufutshane.
Kuthekani ukuba ndiphoswa lusuku lokuthatha iyeza?
Kubaluleke kakhulu ukufumana olu nyango ngomhla nexesha elicwangcisiweyo. Le yindlela onokugcina ngayo amanqanaba eeenzyme emzimbeni ngendlela ethile. Ukuba awukwazi ukufumana unyango ngomhla ocwangcisiweyo, yazisa ugqirha wakho ngoko nangoko. Uya kuthi emva koko akuxelele ngosuku olulandelayo ukuze ufumane unyango.
Ezinye izinto ezinokusebenzisana nale mithi
Amanye amayeza anokuchaphazela eli yeza. Umzekelo, iyeza elibizwa ngokuba yi-miglustat. Nangona kunjalo, olu luhlu aluphelelanga.
Ngoko ke xelela ugqirha wakho ngawo onke amayeza owasebenzisayo (kuquka iivithamini, amayeza emifuno, kunye nezongezo zokutya). Kufuneka uxelele ugqirha wakho ukuba uyatshaya, usela utywala, okanye usebenzisa iziyobisi ezingekho mthethweni.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengayo nayiphi na iyeza, i-Imiglucerase inokubangela iziphumo ebezingalindelekanga kwabanye abantu. Ezi zinokwahlulwa zibe ziindidi ezimbini eziphambili. Ezinye zazo kufuneka zixelwe kugqirha wakho ngoko nangoko, ngelixa ezinye, nangona zihlala zingengobungozi kangako, kufuneka zixelwe ukuba ziyaqhubeka.
| Uhlobo lwesiphumo esingesihle kunye nenkcazo |
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| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha wakho ngoko nangoko |
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| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ukuba ziyaqhubeka okanye ziyakhathaza |
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Ukuba ufumana naziphi na ezinye iimpawu ezingaqhelekanga ezingakhankanywanga kolu luhlu, thetha nogqirha wakho ngazo.
Umyalezo Wokuya Ekhaya
- I-Imiglucerase lunyango olulawula iimpawu zesifo sikaGaucher, kodwa ayilonyango lwesi sifo.
- Olu nyango lunikwa njengokufakwa emthanjeni esibhedlele okanye ekliniki.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo naziphi na izinto ezibangela ukuba ungabi namdla emzimbeni kunye nazo zonke ezinye izinto ozisebenzisayo.
- Ukuba ufumana naziphi na iziphumo ebezingalindelekanga ezinje ngobunzima bokuphefumla okanye ukudumba kobuso, funa ingcebiso kagqirha ngokukhawuleza.
- Kubaluleke kakhulu ukufumana unyango ngexesha. Ukuba uphoswe lusuku nangasiphi na isizathu, yazisa ugqirha wakho.
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