Ngaba umntwana wakho uyeke ukuthetha ngequbuliso? Ngaba mhlawumbi yiLandau-Kleffner Syndrome?

Umntwana wakho wayedla ngokubaleka edlala ethetha kamnandi. Kodwa ngaba ukuthetha kwakhe kuye kwehla ngequbuliso? Okanye ngaba uqaphele ukuba unengxaki yokuqonda into oyithethayo? Ngaba ngamanye amaxesha unesifo sokuxhuzula? Ukuba umntwana wakho unenye okanye ngaphezulu kwezi zinto, kufuneka wenze uphando. Kuba oku kusenokuba kungenxa yesifo esingaqhelekanga esibizwa ngokuba yiLandau-Kleffner Syndrome (LKS) . Ungakhathazeki, masithethe ngale nto ngokweenkcukacha.

Yintoni iLandau-Kleffner Syndrome?

Ngamafutshane, iLandau-Kleffner Syndrome (LKS) yimeko echaphazela ubuchopho babantwana bethu. Eyona nto iphambili koku kukuba amandla omntwana okuthetha nokuqonda ulwimi (esilubiza ngokuba yi-Aphasia kwisayensi yezonyango) ayehla kancinci kancinci okanye ngequbuliso. Kwakhona, uninzi lwabantwana abanale meko banokuhlaselwa kukuxhuzula, okwenzeka xa belele.

Cinga ngayo, kukho imiyalezo emininzi emincinci yombane ebuyela umva ngaphakathi kwengqondo yethu. Le miqondiso yombane yiyo esinceda sisebenze kakuhle xa sithetha, siva, sicinga, kwaye senza yonke into. Abantwana abane-LKS banokuphazamiseka okuthile kule nkqubo yemiqondiso yombane engqondweni yabo. Yiyo loo nto benobunzima bokuqonda ulwimi nokuthetha.

Ngubani ochaphazeleka kakhulu yile meko ye-LKS?

Le meko, ebizwa ngokuba yi-LKS, idla ngokubonakala kubantwana abaphakathi kweminyaka emi-3 ne-8 ubudala. Nangona kunjalo, ngamanye amaxesha inokuchaphazela abantwana abaneminyaka emi-2 ubudala, kunye nabantwana abadala, abafana nabakwishumi elivisayo. Kuthiwa kwakhona ukuba abafana banamathuba amancinci okufumana le meko kunamantombazana.

I-LKS imchaphazela njani umntwana wam?

Ukuba umntwana wakho une-LKS, ngequbuliso okanye kancinci kancinci usenokuphelelwa ngamandla okuthetha. Basenokuba nobunzima bokuqonda into oyithethayo kunye nento ethethwa ngabanye. Oku sikubiza ngokuba yi-aphasia .

Khawucinge nje, umntwana wakho wayedla ngokucengceleza imibongo, ecula iingoma, aze athethe nawe rhoqo. Kodwa ngoku akathethi nelilodwa igama, okanye umane ekujonge xa ​​uthetha, ngokungathi akaqondi nto, kunzima kangakanani ukuba nenyaniso?

Malunga nama-70% abantwana abane-LKS banokufumana ukuxhuzula okanye ukuxhuzula xa belele. Abanye abantwana banokuba nokuxhuzula emini.

Ngaba i-Landau-Kleffner syndrome iyafana ne-autism?

Hayi, le yingcamango eqhelekileyo engafanelekanga. I-Landau-Kleffner Syndrome ayisiyo-autism. Nangona kunjalo, iimpawu zazo zombini ngamanye amaxesha zinokufana, ngoko ke kunokuba nzima ukubona umahluko. Oogqirha badla ngokuxilonga ezi meko zimbini ngokwenza uvavanyo lwe-EEG (electroencephalograms) ngelixa umntwana evukile kwaye elele.

Ngaba kukho amanye amagama e-LKS?

Ewe, ngamanye amaxesha oogqirha babiza le meko ngokuthi "yi-Acquired Aphasia ene-Epilepsy." Oko kukuthi, ithetha into efana "nokuphazamiseka kokuthetha okwenzeka kwi-epilepsy kwaye ifunyenwe kamva."

Ixhaphake kangakanani le meko ye-LKS?

I-Landau-Kleffner Syndrome yimeko engaqhelekanga kakhulu. Kunzima kubaphandi ukuxela ukuba bangaphi abantu abanayo. Ayiqhelekanga kangako.

Yintoni ebangela i-Landau-Kleffner syndrome?

Kwiimeko ezininzi, uninzi lwabantwana abane-LKS abakwazi ukufumana unobangela othile wemeko yabo. Le yinyaniso. Ngoko ke musa ukuyicinga kakhulu okanye uzibeke ityala.

Nangona kunjalo, malunga ne-20% yabantwana abane-LKS banotshintsho oluthile (iinguqu) kwiijini zabo. Ngokukodwa, utshintsho kwijini ebizwa ngokuba yi- (GRIN2A) lufunyenwe lunxulumene noku. Olu tshintsho lwejini lunokufunyanwa ngomnye wabazali. Nangona kunjalo, ayinguye wonke umntu onolu tshintsho lwejini oza kuphuhlisa ii-LKS. Abanye abantwana banokuba notshintsho kwezinye iijini. Ngamanye amaxesha, umntwana unokufumana olu tshintsho lwejini okokuqala (oku kubizwa ngokuba yi-de novo mutation ) ngaphandle komnye umntu kusapho.

Abaphandi bakholelwa ukuba olu tshintsho lwemfuza lubangela ukungasebenzi kakuhle kwenkqubo yokubonisa umbane engqondweni, nto leyo ebangela ukuba loo miqondiso isebenze gwenxa. Ezi mpawu zingaqhelekanga zezona zibangela iimpawu ze-LKS.

Kukwaqhutywa uphando ukuze kuchongwe ukuba kukho unxibelelwano phakathi kwe-LKS kunye nenkqubo yomzimba wethu yokuzikhusela . Kukholelwa ukuba le meko isenokuba ibangelwa yimpendulo yokuzikhusela komzimba apho iiseli zenkqubo yomzimba yokuzikhusela zihlasela iiseli zomzimba.

Zithini iimpawu zesifo sikaLandau-Kleffner?

Ayingabo bonke abantwana abane-LKS ababonisa iimpawu ezifanayo. Zinokwahluka ukusuka kumntwana ukuya komnye.

Ukuba umntwana wakho une-LKS, ungabona izinto ezifana nezi:

• Ukuziva ngathi akakuvi xa uthetha: Usenokungaphenduli xa uthetha naye. Kungathi akakuvanga.
• Ubunzima bokuqonda oko wena nabanye abantu nikutshoyo: Usenokungakwazi ukuqonda nemiyalelo elula.
• Ukuncipha okanye ukuphelelwa lilizwi ngokupheleleyo: Umntwana obethetha kakuhle ngaphambili usenokungasathethi konke konke, okanye usenokukwazi ukuthetha amagama ambalwa kuphela ngobunzima obukhulu.
• Ukulibaziseka kophuhliso olutsha: Ukungakwazi ukwenza izinto ngendlela efanelekileyo ngokweminyaka.
• Utshintsho lwengqondo okanye ubunzima bokufunda: Usenokulahlekelwa ngumdla kumsebenzi wesikolo kwaye ube nobunzima bokukhumbula izinto.
• Utshintsho kwindlela yokuziphatha: Umntwana uphoxekile zezi ngxaki zolwimi, ezinokukhokelela ekubeniIingxaki zokuziphatha ezifana nokungaphumli, ukungakwazi ukugxila (oku kusenokufana neempawu ze-Attention-Deficit Hyperactivity Disorder - ADHD), umsindo, kunye nokungakhululeki kusenokwenzeka.

Khawuthelekelele indlela umntwana omncinci aziva engenakuzinceda ngayo xa engakwazi ukuxelela abazali bakhe into afuna ukuyithetha, xa engayiqondi into abayithethayo? Oko kungazinzi kunye nokukhungatheka ngamanye amaxesha yiloo nto iphumayo kolu hlobo lokuziphatha.

Abantwana abane-LKS ikakhulu:

• Usenokungakwazi ukuthetha.
• Kukho amathuba aphezulu okuxhuzula.
• Kukwakho nethuba eliphezulu lokufumana iingxaki zokuziphatha (ezifana ne -Attention-Deficit Hyperactivity Disorder - ADHD) .

Oogqirha bayixilonga njani iLandau-Kleffner syndrome?

Ngokwesiqhelo, ngaphambi kokuba i-LKS iqale, ukukhula komntwana, njengokuthetha nokuhamba, kuyinto eqhelekileyo ngokweminyaka yakhe. Ungabona utshintsho kwindlela athetha ngayo ngoko nangoko. Okanye, ugqirha wakho angabona ezi mpawu xa umsa umntwana wakho kutyelelo lomntwana ophilileyo.

I-LKS inokuba nzima ukuyixilonga, ngoko ke kubalulekile ukuxelela ugqirha wakho ngalo naluphi na utshintsho olubonayo kwindlela umntwana wakho aziphethe ngayo, nokuba lolona luncinci.

Zeziphi iimvavanyo ezisetyenziswa ngoogqirha ukuxilonga i-LKS?

Ugqirha womntwana wakho unokucebisa ezi mvavanyo zilandelayo:

• I-Electroencephalogram (EEG): Le ilinganisa umsebenzi wombane wengqondo yomntwana wakho. Olu luvavanyo olungenabuhlungu. Luvumela ugqirha ukuba abone indlela esebenza ngayo ingqondo yomntwana wakho.
• Olu vavanyo (i-EEG) ludla ngokwenziwa kabini, kube kanye xa umntwana elele kwaye kube kanye xa evukile . Xa silala, amaza ethu engqondo ayancipha kancinci kancinci. Nangona kunjalo, xa singena ebuthongweni obunzulu (isigaba sokulala se-REM), amaza engqondo ayasebenza kwakhona. Nangona kunjalo, iirekhodi (ze-EEG) zabantwana abane-LKS zibonisa ukuba umsebenzi ongaqhelekanga wamaza engqondo uyaqhubeka kuzo zonke izigaba zokulala.
• Uvavanyo lwe-Audiometry / Uvavanyo lokuva: Olu vavanyo lwenzelwa ukubona ukuba umntwana uyakwazi na ukuva. Ngamanye amaxesha, kuyimfuneko ukujonga ukuba ingxaki yokuva yimbangela yeengxaki zolwimi.
• I-MRI yengqondo yabo: Oku kunceda ukuqinisekisa ukuba akukho nye imeko enzulu, efana nomhlaza wobuchopho.
• Uvavanyo lwengcali yezengqondo: Oku kubalulekile ukuze kuhlolwe indlela umntwana aziphethe ngayo, ubukrelekrele bakhe, kunye nobuchule bakhe bokufunda.

Inyangwa njani i-Landau-Kleffner syndrome?

Xa benyanga abantwana abane-LKS, oogqirha basebenzisa kakhulu amayeza, unyango lokuthetha, kunye nonyango lokuziphatha . Okukhona unyango lokuthetha luqaliswa ngokukhawuleza, kokukhona amathuba omntwana okuphinda afumane izakhono zakhe zolwimi aba mahle.Ngamanye amaxesha, oogqirha banokucebisa ukutya okukhethekileyo (ketogenic diet) ukulawula isifo sokuwa.

Ngawaphi amayeza anikwa i-LKS?

Ugqirha wakho angakunika amayeza anjengala:

• Amayeza okulwa nokuxhuzula: La mayeza asetyenziselwa ukulawula ukuxhuzula.
• IiCorticosteroids: Ezi zisebenza ngokunciphisa umsebenzi wenkqubo yomzimba yokuzikhusela nokulawula iimeko ezifana nokudumba kwengqondo.

Ngaba utyando lwenziwa kwi-LKS?

Kunqabile kakhulu ukuba oogqirha benze utyando lobuchopho olubizwa ngokuba yiMultiple Subpial Transections . Nangona kunjalo, akukacaci ukuba zingakanani iingenelo ezinokubonakaliswa kolu tyando. Ke ngoko, kubalulekile ukuphonononga ngononophelo iingenelo kunye neengxaki zolu tyando ngaphambi kokuba ulwenze.

Umntwana wam uza kuphola nini emva kokuqala unyango?

Akukho mntu "le yeyona ndlela ilungileyo" yokunyanga i-LKS. Umntwana wakho unokuphucuka kancinci kancinci ngonyango lokuthetha kunye nolunye unyango. Nangona kunjalo, kwezinye iimeko, umntwana wakho usenokungasabeli kakuhle kunyango. Ugqirha wakho uya kujonga imeko yomntwana wakho rhoqo aze alungise isicwangciso sonyango njengoko kufuneka.

Ndingenza ntoni ukunciphisa umngcipheko wokuba umntwana wam abe nesifo iLandau-Kleffner?

I-LKS yimeko yemfuza. Oku kuthetha ukuba akukho nto unokuyenza ukuthintela iLandau-Kleffner Syndrome okanye ukunciphisa umngcipheko wokuba nayo. Asikuko ukuba unetyala.

Ngaba isifo sikaLandau-Kleffner singanyangeka ngokupheleleyo?

Abanye abantwana baphinda bakwazi ukuthetha nokuqonda ulwimi. Abanye banokuphinda bafumane izakhono ezithile zolwimi. Abantwana abaqala iimpawu emva kweminyaka emi-6 kwaye baqale unyango lokuthetha kwangethuba banethuba elihle lokuchacha. Ukuxhuzula kudla ngokuphela xa sele bekhulile.

Yintoni endimele ndiyilindele ukuba umntwana wam une-LKS?

Kungathatha ixesha elide ukuba umntwana wakho aphile kwi-LKS. Ungabona uphuculo oluthile ngokuhamba kwexesha. Kwakhona, ngamanye amaxesha izakhono zolwimi zinokuphucuka zize ziphinde zehle (oku kubizwa ngokuba kukubuyela umva) . Ugqirha wakho unokucebisa iiklasi zemfundo ekhethekileyo okanye ukufunda ulwimi lwezandla , kuxhomekeke kwiimfuno zomntwana wakho.

Olu hambo lunzima. Kodwa awuwedwa. Oogqirha, iingcali zentetho, usapho lwakho, kunye nabahlobo bakho bonke bakhona ukunceda wena nomntwana wakho. Eyona nto ibalulekileyo kukuphatha umntwana wakho ngothando nangomonde, ngaphandle kokulahla ithemba.

Ndingamnyamekela njani umntwana wam one-LKS?

Landela imiyalelo kagqirha wakho ngononophelo ukuze umntwana wakho ahlale esempilweni. Ukuba umntwana wakho ufumana naziphi na iimpawu ezintsha, yazisa ugqirha wakho ngoko nangoko. Ngale ndlela, banokufumana unyango olufunekayo ngoko nangoko.

I-Landau-Kleffner Syndrome ibangela ukuba abantwana abaqhele ukukhula balahlekelwe yikhono labo lokuthetha nokuqonda ulwimi. Abantwana abane-LKS banomsebenzi ongaqhelekanga wobuchopho xa belele kwaye badla ngokuba nokuxhuzula. Oogqirha banyanga i-LKS ngamayeza kunye nonyango lokuthetha. Ekuhambeni kwexesha nangonyango olufanelekileyo, abantwana banokuphinda bafumane izakhono zabo zolwimi.

Izinto ezibalulekileyo ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

• I-LKS yimeko engaqhelekanga kodwa imbi kakhulu: inokubangela ukuba umntwana alahlekelwe yikhono lakhe lokuthetha nokuqonda ulwimi.
• Ukuxhuzula kuqhelekile xa ulele: Olu luphawu oluphambili lwe-LKS.
• Unobangela awusoloko ufumaneka: Nangona izinto ezibangela ufuzo zinokudlala indima kwiimeko ezininzi, kusenokungabikho unobangela uthile.
• Musa ukuyibhidanisa ne-autism: Ezi zimbini zinokwahlulwa ngovavanyo (lwe-EEG).
• Ukuxilongwa kwangoko kunye nonyango kubalulekile: okukhona unyango lokuthetha luqala ngokukhawuleza, kokukhona iziphumo zingcono.
• Ukuchacha kuyahluka kumntwana ngamnye: abanye abantwana bayachacha ngokupheleleyo, abanye bayachacha kancinci. Umonde kunye nenkxaso eqhubekayo kubaluleke kakhulu.
• Awuwedwa: Iingcebiso zonyango, inkxaso yosapho, nothando zizinto ezinamandla amakhulu kumntwana ukuze oyise le meko.

Ndiyathemba ukuba olu lwazi luza kukunceda. Ukuba umntwana wakho unezinye zezi mpawu, nceda ubone ugqirha ofanelekileyo ngokukhawuleza.

Isifo sikaLandau -Kleffner, i-LKS, isifo sokuwa, ubunzima bokuthetha, iingxaki zolwimi, izifo zabantwana, umsebenzi wombane wobuchopho, i-EEG