Ngaba unentlungu engapheliyo, ukungaziva, okanye ukurhawuzelela ezandleni nasezinyaweni zakho? Ngamanye amaxesha ezi zinto zibangelwa yimeko ethile yezonyango emzimbeni wethu. Ngoko ke namhlanje siza kuthetha ngesitofu sikaPatisiran, esinikwa njengonyango lwemeko enjalo. Eli liyeza elikhethekileyo, ngoko ke kubaluleke kakhulu ukuba ukwazi ngokupheleleyo oku.
Yintoni le Patisiran? Ithetha ukuthini?
Ngamafutshane, iPatisiran liyeza labantu abanesi sifo esinegama elide elibizwa ngokuba yi-hereditary transthyretin-mediated amyloidosis (hATTR) . Siza kuyibiza ngokuthi yi-hATTR ngamafutshane.
Kulungile, yintoni ke i-haTTR? Le yimeko yemfuza edluliselwa kwizizukulwana ngezizukulwana. Isibindi sethu sivelisa iproteni ebizwa ngokuba yi-TTR. Ngokwesiqhelo, oku akuyongxaki. Kodwa kumntu one-haTTR, le proteni ye-TTR igoba ngendlela engafanelekanga, ihlangane, ize izibeke kwiindawo ezahlukeneyo emzimbeni, ingakumbi ezijikeleze imithambo-luvo. Kufana nothuli oluqokelelana kumbhobho wamanzi. Oku sikubiza ngokuba yi-amyloid deposits.
Xa le protein iqokelelana ijikeleze imithambo-luvo, iyayonakalisa. Yiyo loo nto iimpawu ezikhankanyiweyo ngaphambili, ezinje ngentlungu, ukuba ndindisholo, kunye nokulahlekelwa luvakalelo kwimilenze, zibonakala.
Ngoko ke into eyenziwa yiPatisiran kukuncedisa ekumiseni ukuveliswa kweproteni ye-TTR engalunganga. Kufana nokuyeka ingxaki kanye apho iqala khona. Emva koko iidipozithi ezintsha zeproteni ziyancipha, kwaye iimpawu ziqala ukulawula kancinci kancinci.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba ugqirha wakho agqibe ekubeni akunike eli yeza, kukho izinto ezimbalwa ekufuneka umxelele zona ngokuqinisekileyo. Musa ukuzifihla ezi zinto, kuba zibaluleke kakhulu kukhuseleko lwakho.
- Malunga ne-allergies zakho: Ukuba une-allergies, kungekuphela nje kweli yeza lePatisiran, kodwa nakweminye imithi, ukutya, izithinteli, okanye imibala, qiniseka ukuba usixelele ngayo.
- Ukuba ukhulelwe okanye uceba ukukhulelwa: Ukuba sele ukhulelwe, uzama ukukhulelwa, okanye unesikrokro sokuba ukhulelwe, xelela ugqirha wakho ngaphambi kokuba uqale eli yeza.
- Ukuba ungumama oncancisayo: Ukuba uncancisa umntwana wakho, yazisa ugqirha wakho ngaloo nto.
Ukunika ugqirha wakho olu lwazi ngokuchanekileyo kuya kumnceda kakhulu ukuba akunike unyango olungcono ngokukhuselekileyo.
Ndingakunika njani eli yeza?
I-Patisiran ayisiyopilisi oza kuyithatha uye nayo ekhaya.Ukufakwa ngemithambo yegazi. Oku kuthetha ukuba iyeza lifakwa kwenye yemithambo yakho ngetyhubhu efana ne-saline.
Olu nyango lwenziwa esibhedlele okanye eklinikhi kuphela. Ugqirha oqeqeshiweyo okanye abasebenzi bomongikazi baya kukunika lona. Ngoko ke akukho nto inokubangela ixhala.
Yintoni omawuyenze ukuba ugqithisile?
Oku kunikwa esibhedlele, ngoko ke amathuba okuba oku kwenzeke mancinci kakhulu. Nangona kunjalo, ukuba ucinga ukuba uthathe amayeza amaninzi kakhulu, yiya kwiCandelo loNgxamiseko (ETU) lesibhedlele ngoko nangoko. Okanye, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
Kuthekani ukuba ndiphoswa lusuku endifanele ndithathe ngalo iyeza?
Kubaluleke kakhulu ukulithatha eli yeza rhoqo . Ngoko ke, qiniseka ukuba uya esibhedlele ngeentsuku ozinikiweyo. Ukuba awukwazi ukuya ngenxa yesizathu esingxamisekileyo, fowunela ugqirha wakho okanye ikliniki ngokukhawuleza kwaye umxelele.
Izinto ezikhethekileyo ekufuneka uziqaphele xa usebenzisa amayeza
Kukho izinto ezimbalwa ekufuneka uzilumkele xa usebenzisa eli yeza.
1. Iimpendulo zokufakwa
Le yeyona nto ibalulekileyo. Abanye abantu banokuba neempendulo ezithile xa eli yeza linikwa ngemithambo okanye emva nje kokuba linikwe. Ezi mpendulo sizibiza ngokuba yi-infusion reactions . Ezi zinokubandakanya:
- Iintlungu zesifuba
- Ubunzima bokuphefumla
- Ukuziva ngathi ujikeleza (vertigo)
- Ndiziva ndishushu
Ukuze kuncitshiswe lo mngcipheko, ugqirha wakho unokukunika amanye amayeza (afana neyeza lokunganyamezelani okanye i-paracetamol) malunga neyure ngaphambi kokuba akunike eli gonyo. Ngoko ke landela imiyalelo kagqirha wakho ngokuchanekileyo. Abasebenzi bezonyango baza kujonga imeko yakho ngononophelo ngelixa unikwa iyeza.
2. Utshintsho kwindlela yokubona
Ukuba ubona naluphi na utshintsho ekuboneni kwakho, ingakumbi ebusuku, okanye ukuba amehlo akho aziva omile, xelela ugqirha wakho ngoko nangoko.
3. IVithamin A
Ukusela eli yeza kunokunciphisa amanqanaba akho evithamini A. Ivithamini A ibalulekile kwimpilo yethu yamehlo kunye nolusu. Ke ngoko, ugqirha wakho unokukunika isongezelelo sevithamini A omele usithathe imihla ngemihla. Thatha umlinganiselo ochanekileyo ugqirha wakho akuxelele ukuba uwuthathe. Kukwangumbono olungileyo ukutya ukutya okutyebileyo kwivithamini A (njengeminqathe, iitapile ezimnandi, ispinatshi). Thetha nogqirha wakho ngale nto.
Iziphumo ebezingalindelekanga ezinokubakho ngenxa yamayeza
Njengayo nayiphi na iyeza, iPatisiran inokubangela ezinye iziphumo ebezingalindelekanga. Asinguye wonke umntu ozifumanayo. Kodwa kubalulekile ukuba uzazi. Siza kuzihlulahlula zibe ziindidi ezilula ukuziqonda.
| Imiphumela | Inkcazo kunye nento omawuyenze |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo Ezinzima Zokwaliwa Yi-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala, ubunzima bokuphefumla. Ukuba kukho nayiphi na kwezi zinto, funa ingcebiso kagqirha ngokukhawuleza. |
| Iimpendulo zokungenisa | Intlungu yesifuba, ubunzima bokuphefumla, ukuphefumla nzima, ukuquleka, isiyezi. Ukuba ufumana naziphi na ezi mpawu ngelixa usela amayeza, xelela ugqirha okanye umongikazi ngokukhawuleza. |
| Iimpawu zokunqongophala kweVithamini A | Utshintsho embonweni (ingakumbi ukubona ebusuku okunciphileyo), amehlo omileyo, ulusu olomileyo, usulelo oluqhelekileyo. Xela oku kugqirha wakho. |
| Izinto eziqhele ukungabi yingozi, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Intlungu yamalungu | Intlungu yamalungu. |
| Ukuqaqamba kwemisipha | Ukuziva ngequbuliso izihlunu zijijekile. |
| Umqala obuhkungu | Umqala obuhkungu. |
| Isisu esimoshakele | Ukungakhululeki okufana nesisu esibuhlungu kunye nokucaphuka. |
Olu luhlu lusenokungabandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona into engaqhelekanga, thetha nogqirha wakho ngayo.
Ngaba kukho iingxaki ngamanye amayeza?
Izifundo azikafumani ukuba iPatisiran ibangela naziphi na iingxaki ezinkulu ngamanye amayeza. Nangona kunjalo, kungcono ukuxelela ugqirha wakho malunga nawo onke amayeza owasebenzisayo (kuquka iivithamini kunye namayeza esintu).
Umyalezo Wokuya Ekhaya
- I-Patisiran lunyango oluthile lwengxaki yemithambo-luvo ebangelwa yijini ebizwa ngokuba yi-hATTR.
- Ngaphambi kokuba uqale eli yeza, qiniseka ukuba uxelela ugqirha wakho malunga nazo naziphi na izinto ezibangela ukuba ungabi namdla emzimbeni wakho nokuba ukhulelwe okanye uncancisa.
- Ukuba ufumana iintlungu esifubeni okanye ubunzima bokuphefumla ngelixa ufumana iyeza ngemithambo yegazi, yazisa abasebenzi bezonyango ngoko nangoko. Oku kusenokuba yimpendulo yokufakwa kweyeza.
- Ukuba ubona naluphi na utshintsho embonweni wakho, xelela ugqirha wakho ngalo nto. Thatha isongezelelo sevithamini A kanye njengoko ugqirha wakho ekuyalele.
- Musa ukulibazisa iintsuku ozilungiselele ukuthatha amayeza akho. Ukuba uneengxaki, nceda wazise ikliniki kwangaphambili.
- Ukuba unemibuzo okanye amathandabuzo malunga nale yeza, ungaze woyike ukubuza ugqirha wakho.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho