Ngezinye iintsuku, uziva ungento yanto, umbono wakho uba mandundu, umzimba wakho uzive ubuthathaka... Kodwa emva kwexesha elithile, konke oku kuya kuba ngcono. Emva kwexesha elithile, ezi mpawu ziyavela kwakhona. Ngaba ukhe waba nalo olu lwazi? Olu luhlobo lwe-RRMS, uhlobo oluqhelekileyo lwe-Multiple Sclerosis (MS). Ngenxa yohlobo lwezi mpawu, kuqhelekile ukuba uzive ukhathazekile kwaye usoyika ngamanye amaxesha. Masithethe ngale nto ngokulula, ngendlela onokuyiqonda.
Yintoni i-RRMS ngokulula?
I-RRMS imele `(Relapsing-Remitting Multiple Sclerosis)`. Olu lolona hlobo luqhelekileyo lwe `(Multiple Sclerosis)` okanye i-MS. Malunga nama-80 ukuya kuma-85 kwi-100 izigulane ze-MS zinale meko.
Oku kunentsingiselo egameni layo.
- Ukubuyela umva: Oku kubhekisa ekubonakaleni ngequbuliso kweempawu ezintsha okanye ukuba mandundu kweempawu ezikhoyo. Oku kungathatha iintsuku ezimbalwa ukuya kwiiveki ezimbalwa. Oku kukwabizwa ngokuba yi-"flare-up" okanye "exacerbation".
- Ukuyeka: Kulapho iimpawu zesifo ebezisiba mandundu ziphela kancinci kancinci okanye ziphele ngokupheleleyo ngokuhamba kwexesha. Ngeli xesha, ungaphila ubomi obuqhelekileyo ngaphandle kweempawu.
Cinga ngayo njengesivuthuvuthu. Ngequbuliso, iimpawu ziza njengesivuthuvuthu zikwenze ungakhululeki. Emva koko isivuthuvuthu siyazola, size siphinde sithule okwethutyana. Yiyo loo nto i-RRMS ikhoyo.
Esi sifo sihlulwe ngolu hlobo ukuze sikuncede wena nogqirha wakho niqonde indlela esiqhubeka ngayo esi sifo kwaye nikhethe unyango olufanele wena.
Ziziphi iimpawu eziqhelekileyo ezibonakala kwi-RRMS?
Iimpawu ze-RRMS zinokwahluka kakhulu kumntu nomntu, kodwa kukho iimpawu ezimbalwa eziqhelekileyo. Makhe sijonge ukuba zeziphi.
| Uphawu | Ingcaciso elula |
|---|---|
| Utshintsho lombono | Izinto ezifana nokungaboni kakuhle, imibala engabonakali kakuhle, ukubona kabini, kunye nentlungu xa ushukumisa amehlo. |
| Ukurhawuzelela okanye ukulahleka kwemvakalelo | Ukuva ukurhawuzelela kwiindawo ezahlukeneyo zomzimba, njengezandla, imilenze, nobuso. Ngamanye amaxesha, kusenokungabikho kuvakala kwezo ndawo. |
| Ukuqina kwesifuba/isisu | Kuvakala ngathi kukho umntu okugoba ngokuqinileyo esifubeni okanye esiswini sakho. Abanye abantu bakubiza oku ngokuthi "yi-MS hug." |
| Ukudinwa okumangalisayo | Ukudinwa okugqithisileyo, okungachazekiyo okuvakalayo nokuba sele ulele kakuhle. Oku kwahluke kakhulu ekudinweni okuqhelekileyo. |
| Iingxaki zomchamo kunye namathumbu | Iingxaki ezifana nokungakwazi ukuyeka xa kufuneka uchame (ngokungxamisekileyo), okanye ukuba nobunzima bokuqala xa ufuna ukuchama (ukuthandabuza). |
| Ukuziva ngathi uthuswe ngumbane. | Xa ugoba intamo yakho phambili, usenokuziva ngathi kukho umbane otsho phantsi komqolo wakho. |
| Ubunzima bokuhamba kunye neengxaki zemisipha | Ulahlekelwa yibhalansi yakho xa uhamba, izihlunu zakho ziba buthathaka, okanye uzive uqinile. |
| Iingxaki ngenkumbulo nengqalelo | Kuba nzima ukukhumbula izinto, kwaye awukwazi ukugxila kwinto enye. Oku kukwabizwa ngokuba yi-"Brain fog". |
Ngexesha lokuqhuma kwesifo, uninzi lwezi mpawu zinokwenzeka kunye. Kwabanye abantu, ezi mpawu ziyanyamalala ngokupheleleyo ngexesha lokuphumla. Kwabanye, ezinye iimpawu zisenokuqhubeka. Kodwa ungakhathazeki , kukho unyango olufumanekayo lokulawula ezi mpawu zingapheliyo.
Ziziphi izinto ezibangela ukwanda kwezi mpawu?
Ngamanye amaxesha ungafumanisa ukuba izinto ezithile zenza iimpawu zakho zibe zimbi ngakumbi. Sizibiza ngokuba "ziiTriggers." Kodwa khumbula, into echaphazela omnye umntu isenokungamchaphazeli omnye.
- Uxinzelelo: Iimpawu zinokubonakala ngamaxesha oxinzelelo olukhulu.
- Ubushushu: Ubushushu obugqithisileyo, kwaye ngamanye amaxesha nokubanda kakhulu, kunokunyusa iimpawu.
- Izifo: Nokuba usulelo oluncinci, njengomkhuhlane okanye usulelo lomchamo, lunokubangela ukuba iimpawu ze-MS ezindala ziphinde zivele.
- Ukutshaya: Ukusetyenziswa kweemveliso zecuba yimbangela yokwanda kwesi sifo.
- Ukunqongophala kweVithamin D: Amanqanaba aphantsi eVithamin D emzimbeni nawo anokuchaphazela.
Kutheni i-MS ikhula? Yintoni unobangela?
Isizathu esichanekileyo se-MS asikaziwa okwangoku, kodwa sithathwa njengemeko yokuzikhusela komzimba .
Ngamafutshane, inkqubo yokuzikhusela yomzimba wethu (inkqubo yokuzikhusela komzimba) ihlasela ngempazamo amalungu aphilileyo omzimba wethu. Kwi-MS, olu hlaselo lujoliswe kwinkqubo yethu yemithambo-luvo ephakathi (ingqondo kunye nomqolo).
Ukuchaneka, isigqubuthelo sokukhusela esijikeleze imithambo-luvo ebuchotsheni nakwintambo yomqolo sonakele. Oku sikubiza ngokuba yi-"Myelin". Kufana nesigqubuthelo seplastiki esijikeleze ucingo lombane. Xa esi sigqubuthelo sonakele, imiyalezo yemithambo-luvo ayihambi kakuhle. Kulapho ke iimpawu ebesithetha ngazo zivela khona.
Uphando lufumanise ukuba oku kunokuchatshazelwa yimfuza kunye nezinto ezingqongileyo ezifana ne-Epstein-Barr virus.
Ifunyanwa njani i-RRMS?
Ukuchonga isifo se-MS kunokuba nzima kuba akukho vavanyo lunye olucacileyo. Ugqirha wakho uza kusebenzisa iimpawu zakho, imbali yakho yezonyango, kunye neziphumo zovavanyo oluninzi ukuze afikelele kwisigqibo.
- I-MRI scan: Oku kunokujonga iindawo ezinomonakalo (ukwenzakala/amanxeba) kwi-nerve sheath (myelin) ebuchotsheni nakwi-spinal cord.
- Ukubhaqwa Kweempumlo Zeempumlo: Oku kuquka ukuthatha ulwelo lomqolo nokukhangela iimpawu zeebhendi ze-oligoclonal ezifana ne-MS. Ezi zinokunika umbono wokuba kukho na ukudumba engqondweni/emgogodleni.
- Uvavanyo lwegazi: Olu vavanyo lunceda ekuthinteleni ezinye izifo ezineempawu ezifanayo neze-MS.
- I-OCT scan (Optical Coherence Tomography): Olu luvavanyo olungenabuhlungu oluhlola imithambo-luvo engasemva kweliso (i-retina). Lunokujonga umonakalo kwimithambo-luvo yeliso obangelwa yi-MS.
Ziziphi iindlela zonyango ze-RRMS?
Nangona kungekho nyango lifunyenweyo lokunyanga ngokupheleleyo i-MS,Kukho unyango olusebenzayo kakhulu namhlanje olunokulawula isifo kwaye lutshintshe indlela esiqhubeka ngayo isifo.
Iinjongo eziphambili zezi zonyango zezi:
- Ukunciphisa inani lokubuyela umva.
- Ukunciphisa umonakalo omtsha kwinkqubo yemithambo-luvo.
- Ukunciphisa isantya apho iimpawu ziba mandundu khona.
La mayeza eza ngeendlela ezahlukeneyo, kuquka iinaliti, amayeza omlomo, kunye nokufakwa kwimithambo yegazi, njenge-saline.
La mayeza adla ngokubizwa ngokuba yi-"Disease-Modifying Agents" (DMTs). Asebenza ngokutshintsha uhlobo lwesifo nokuthintela umonakalo kwinkqubo yemithambo-luvo kwixesha elizayo. Ke ngoko , kubaluleke kakhulu ukuqala unyango ngokukhawuleza.
Qiniseka ukuba uthetha ngokukhululekileyo nogqirha wakho malunga nonyango olukulungeleyo kunye neziphumo ebezingalindelekanga. Uza kukunika isisombululo esifanelekileyo.
Buza kuba njani ubomi ngesi sifo?
Kuqhelekile ukuba uzive usoyika kwaye uxhalabile xa ufumanisa ukuba unesifo esingapheliyo esifana nesi. Kodwa inyaniso kukuba, nokuba une-MS, ungaphila ubomi obude, obonwabisayo nobunempumelelo.
Kuye kwakho inkqubela phambili enkulu kunyango lwe-MS kwiminyaka embalwa edlulileyo, nto leyo eyenza kube lula ukulawula indlela esi sifo esiqhubeka ngayo.
Emva kokuba abanye abantu benesifo se-RRMS okwethutyana, banokuba nemeko apho iimpawu zikhula kancinci kancinci, kodwa inani lokubuyela umva liyehla. Oku kubizwa ngokuba yi-"Secondary Progressive Multiple Sclerosis (SPMS)``. Nangona kunjalo, ngonyango lwangethuba nolufanelekileyo, le meko inokuthintelwa okanye ilibaziseke.
Ufanele uye nini kugqirha wakho?
- Ukuba ubonakalisa iimpawu ezintsha okanye ukuba iimpawu zakho ziya zisiba mandundu.
- Ukuba unyango lubangela iziphumo ebezingalindelekanga.
- Ukuba unemibuzo okanye iinkxalabo malunga nesifo.
Umyalezo Wokuya Ekhaya
- I-RRMS lolona hlobo luqhelekileyo lwe-MS, kwaye ibonakaliswa yimijikelo yokubuyela umva kunye nokuphumla.
- Iimpawu ziyahluka kumntu nomntu. Iingxaki zokubona, ukurhawuzelela, kunye nokudinwa kakhulu ziqhelekile.
- Nangona kungekho sizathu sicacileyo sale nto, ithathwa njengesifo sokuzikhusela komzimba.
- Nangona esi sifo singenakunyangwa ngokupheleleyo, kukho unyango olusebenzayo kakhulu (ii-DMT) namhlanje lokulawula esi sifo nokuthintela umonakalo wemithambo-luvo.
- Ukuxilongwa kwangoko kunye nonyango kubaluleke kakhulu kwixesha elizayo.
- Thetha ngokukhululekileyo nogqirha wakho malunga nemeko yakho, unyango, kunye nayo nayiphi na imibuzo onayo.
- Ukuphila nesifo esinganyangekiyo kunokuba nzima ngengqondo. Musa ukuthandabuza ukufuna inkxaso kwingcali yezempilo yengqondo ukuba kuyimfuneko.
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