Ngaba wena okanye umntu omaziyo unesifo seGaucher? Ukuba kunjalo, ugqirha wakho usenokuba ukuxelele ngeyeza elibizwa ngokuba yiVelaglucerase Alfa. Igama lebrendi yale nto yiVPRIV. Ekubeni ligama elingaziwayo, usenokuba nemibuzo emininzi efana nethi, "Lithini eli yeza?" kunye "Kuza kwenzeka ntoni ngale nto?" Musa ukoyika nantoni na. Namhlanje, siza kuthetha ngeli yeza ngendlela elula kakhulu, indlela elisebenza ngayo, kunye nento ekufuneka uyilumkele.
Yintoni iVelaglucerase Alfa?
Ngamafutshane, eli liyeza elinikwa ukunyanga isifo seGaucher. Ngoku, khangela, isifo seGaucher senzeka xa i-enzyme eveliswa ngokwemvelo emzimbeni wethu inciphile okanye ingekho. Le enzyme iyaqhekeka kwaye isuse ii-lipids , uhlobo lwamafutha afumaneka kwiiseli zethu.
Ngoko ke kwenzeka ntoni xa le enzyme ilahlekile? Olu hlobo lwamafutha, okanye i-lipid, luqala ukuqokelelana kwiindawo ezahlukeneyo zomzimba wethu, ingakumbi kwiindawo ezifana ne- spleen , isibindi , kunye namathambo . Yindlela ezibonakala ngayo iimpawu zesifo seGaucher.
I-Velaglucerase Alfa yileyo enzyme ingekhoyo. Xa eli yeza linikwa umzimba njengenaliti, liyahamba lize lenze umsebenzi welo enzyme ingekhoyo. Oko kukuthi, linciphisa inani le-lipids eziqokeleleneyo. Emva koko iimpawu ziyancipha kancinci kancinci. Kufana nokunika umzimba wethu isixhobo esilahlekileyo kwakhona.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Kubaluleke kakhulu ukuba nencoko evulekileyo nogqirha wakho ngaphambi kokuba uqale olu nyango. Ukuba kukho nayiphi na kwezi zilandelayo echaphazela wena, ngokuqinisekileyo kufuneka umxelele ugqirha wakho .
- Malunga ne -allergies zakho : Ukuba une-allergies, nokuba yeyale mayeza abizwa ngokuba yiVelaglucerase, naliphi na elinye iyeza, ukutya, iidayi, okanye izithinteli, nceda usixelele ngayo.
- Ukuba ukhulelwe okanye uzama ukukhulelwa: Qiniseka ukuba wazisa ugqirha wakho ngale nto.
- Ukuba ungumama oncancisayo: Kubaluleke kakhulu ukuxelela ugqirha wakho ngale nto.
Kubaluleke kakhulu kukhuseleko lwakho ukunika ugqirha olu lwazi. Ngoko ke mxelele yonke into ngaphandle kokufihla nantoni na.
Ulisebenzisa njani eli yeza?
Eli asiloyeza onokulisela ekhaya. Eli yeza linikwa emzimbeni njengenaliti ( i-infusion ) emthanjeni . Olu nyango lunikwa esibhedlele okanye eklinikhi, phantsi kweliso likagqirha okanye abasebenzi abaqeqeshiweyo bomongikazi.
Ingaba ninika abantwana abancinci oku?
Ewe, ngamanye amaxesha olu nyango lunikwa abantwana abaneminyaka emi-4 ubudala. Kodwa lwenziwa ngononophelo olukhethekileyo kunye nokhuseleko. Ukuba umntwana wakho unikwe eli yeza, thetha nogqirha wezingane ngalo uze ufumane iinkcukacha.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Oku kunikwa esibhedlele, ngoko ke amathuba okuba oku kwenzeke mancinci kakhulu. Nangona kunjalo, ukuba ucinga ukuba ngempazamo uthathe eli yeza kakhulu, fowunela iZiko loLwazi lweeTyhefu zeSizwe kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko, okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kubalulekile: Eli yeza limiselwe wena wedwa. Ungaze ulinike omnye umntu.
Wenza ntoni ukuba uphoswe yintlanganiso yamayeza?
Eli liyeza ekufuneka lithathwe rhoqo. Kungoko ke, kubaluleke kakhulu ukuya kugqirha kwaye ufumane unyango kanye ngeentsuku akuxelela zona. Ukuba ngesizathu esithile awukwazi ukuya ngosuku olucwangcisiweyo, fowunela ugqirha wakho okanye ikliniki ngokukhawuleza kwaye ubazise . Baza kukuxelela into omawuyenze ngokulandelayo.
Ngaba ingadibana namanye amayeza?
Ngokubanzi, eli yeza alikabikwa ukuba libangela ukudibana okukhulu namanye amayeza.
Kodwa, musa ukuxelela ugqirha wakho ngezinto ozisebenzisayo kuphela. Ukuze ukhuseleke, nika ugqirha wakho uluhlu olupheleleyo lwazo zonke izinto ozisebenzisayo.
- Amanye amayeza kagqirha owasebenzisayo
- Amayeza angagunyaziswanga ngugqirha
- Iimveliso ze-Ayurvedic okanye ze-herbal `(imifuno)`
- Iivithamini okanye ezinye izongezo zokutya
- Kwakhona, qiniseka ukuba uyakhankanya ukuba uyatshaya, usela utywala, okanye usebenzisa ezinye iziyobisi.
Izinto ekufuneka uzilumkele xa usebenzisa amayeza
Ngelixa usela eli yeza, ugqirha wakho uza kukujonga rhoqo ukuze abone ukuba unjani na. Qiniseka ukuba uyahamba ngaloo mihla. Xelela ugqirha wakho ukuba iimpawu zakho aziphucuki okanye ukuba zibonakala zisiba mandundu.
Ngamanye amaxesha eli yeza linokubangela ukusabela okunamandla kokunganyamezelani.Ukuze kuncitshiswe lo mngcipheko, ugqirha wakho unokukunika amanye amayeza (afana ne-pheniridine) ngaphambi kokuba akunike olu gonyo. Ngoko ke landela imiyalelo yabo ngokuchanekileyo.
Zithini iziphumo ebezingalindelekanga ezinokubakho zale yeza?
Njengalo naliphi na iyeza, eli linokubangela iziphumo ebezingalindelekanga. Kodwa ayinguye wonke umntu ozifumanayo. Makhe sijonge izinto eziphambili ekufuneka sizilumkele.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Ukuba unale mpawu, xelela ugqirha wakho ngoko nangoko. | |
| Iimpendulo ze-allergy | Izinto ezifana nokurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi, okanye umqala. |
| Xelela ugqirha wakho ukuba iyaqhubeka okanye iyakukhathaza. | |
| Iziphumo ebezingalindelekanga eziqhelekileyo |
|
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona nantoni na engaqhelekanga ukongeza kwezi, thetha nogqirha wakho ngayo.
Uligcina phi iyeza?
Akufuneki ukhathazeke ngale nto. Kuba awuyi kuvunyelwa ukuba uye nalo mayeza ekhaya. Ligcinwa ngokukhuselekileyo esibhedlele okanye ekliniki, phantsi kolawulo olufanelekileyo lobushushu.
Umyalezo Wokuya Ekhaya
- I-Velaglucerase Alfa liyeza elithatha indawo ye-enzyme engekhoyo emzimbeni ukunyanga isifo seGaucher.
- Oku kunikwa njengenaliti ngemithambo esibhedlele okanye ekliniki.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho lonke ulwazi lwakho lwempilo, kuquka naluphi na uhlobo lwe-allergies onalo kunye namanye amayeza owasebenzisayo.
- Ukuba ufumana iimpawu zokunganyamezelani (ezifana nokudumba kolusu, ukudumba) emva kokusela iyeza, yazisa ugqirha wakho ngoko nangoko.
- Ungaphoswa yimihla yonyango olucwangcisiweyo. Ukuba awukwazi ukuya, sazise kwangaphambili.
- Thetha ngokukhululekileyo nogqirha wakho malunga nemibuzo, uloyiko, okanye amathandabuzo onawo malunga nale mithi.
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