Xa ugqirha ekuxelela okanye umntwana wakho ukuba unomhlaza obizwa ngokuba yi-"Ependymoma," kuyinto eqhelekileyo ukuziva uxinezelekile kwaye uxhalabile. Wakuva nje eli gama, kuvela imibuzo engqondweni. "Luhlobo luni lwesifo esi? Kutheni savela? Ndenza ntoni ngoku?" Kungokwemvelo ukuba ezi zinto zifike engqondweni. Ngoko ke namhlanje, masithethe ngale nto kancinci, ngendlela onokuyiqonda, kwaye ngokulula.
Yintoni i-Ependymoma?
Ngamafutshane, i-ependymoma sisimila esinomhlaza esinokukhula naphi na engqondweni yakho okanye emgogodleni. Siqala sikhule kuhlobo oluthile lweseli (iiseli ze-ependymal) ezijikeleze amagumbi azaliswe lulwelo (ii-ventricles) ngaphakathi kwengqondo yakho naphakathi emgogodleni wakho.
Iindaba ezimnandi zezokuba ngokungafaniyo nezinye iintlobo zomhlaza, awusasazeki kwamanye amalungu omzimba (njengesibindi okanye imiphunga). Nangona kunjalo, la mathumba anokusasaza kwiindawo ezahlukeneyo, kuquka ingqondo kunye nomqolo. Ingakumbi kubantwana abancinci , le meko inokubangela ukwanda kancinci kwamathuba okuphinda ubuye emva konyango.
Ukulawula uxinzelelo kunye nentlungu oyivayo xa ufunda ngesifo esifana nesi kubaluleke njengonyango. Ngoko ke thetha nosapho lwakho kunye nabahlobo bakho ngale nto. Inkxaso yabo iya kuba namandla amakhulu kuwe ngeli xesha.
Zithini iimpawu zoku?
Amaxesha amaninzi, la mathumba aqala emancinci aze akhule kancinci kwiminyaka emininzi. Ngoko ke, kusenokwenzeka ukuba kungabikho zimpawu ekuqaleni. Xa kuvela iimpawu, zixhomekeke ekubeni ikuphi ithumba.
| Indawo yethumba | Iimpawu ezichaphazelayo |
|---|---|
| Ebuchotsheni |
|
| Emqolombeni |
Ukuba umntwana unale meko, enye yeempawu zokuqala umama anokuzibona kukuba intloko yomntwana inkulu kunesiqhelo .
Yintoni ebangela i-ependymoma?
Oogqirha abazi unobangela ochanekileyo woku, kodwa ukuba unesifo semfuza esibizwa ngokuba yi-neurofibromatosis type 2, usemngciphekweni omkhulu wokufumana la mathumba.
Esi sifo sichaphazela amadoda nabafazi ngokulinganayo. Phakathi kwabantu abadala, sixhaphake kakhulu kubantu abaneminyaka ephakathi kwama-40 nama-60. Kubantwana, ama-30% eziganeko ezixeliweyo zesi sifo zingabantwana abangaphantsi kweminyaka emi-3 ubudala.
Ngaba kukho iintlobo zezi?
Ewe, ugqirha uza kukuxelela ngohlobo lwethumba. Oku kuhlelwa ngokwe "amanqaku". Ngamafutshane, okukhona inqanaba liphezulu, kokukhona ithumba likhula ngokukhawuleza.
- Ibanga lokuQala: Ezi ziintlobo ezikhula kancinci kakhulu, ezinobungozi obuphantsi. Zinokukhula kufutshane neeventricle zobuchopho okanye kwicandelo elisezantsi lomqolo.
- Ibanga lesiBini: Olu lolona hlobo luqhelekileyo lwe-ependymoma. Ludla ngokuvela engqondweni.
- Ibanga lesi-3 (i-Anaplastic Ependymoma): Ezi ziithumba ezikhula ngokukhawuleza nezinobungozi obukhulu. Zihlala zikhula engqondweni okanye entloko.
Indlela yokuxilonga esi sifo ngokuchanekileyo?
Ugqirha uza kwenza iimvavanyo ezininzi ukuqinisekisa ukuba unayo na i-Ependymoma.
| Uvavanyo | Wenza ntoni ngayo? |
|---|---|
| Uvavanyo lomzimba nolwemithambo-luvo | Ugqirha uza kuhlola umzimba wakho, akubuze ngembali yempilo yakho, aze avavanye ukusebenza kwengqondo yakho kunye nenkqubo yemithambo-luvo (ukuhamba, ukulinganisela). |
| Iskeni ye-MRI | Oku kungathatha imifanekiso ecacileyo yengqondo kunye nomqolo. Ngamanye amaxesha oku kwenziwa ngokufaka ulwelo olukhethekileyo (idayi). Oku kwenza iindawo apho iiseli zomhlaza zibonakala ngokucacileyo kwimifanekiso. |
| I-Spine Tap | Uza kujika ngecala uze usebenzise inaliti encinci ukuthabatha amathontsi ambalwa olwelo oluvela kwithambo lomqolo. Olu lwelo luza kuvavanywa ukuze kubonwe ukuba kukho iiseli zomhlaza na. |
| I-Biopsy | Le yindlela ekuphela kwayo yokuqiniseka ngokupheleleyo ukuba ithumba yi-Ependymoma. Ngexesha lotyando, iqhekeza elincinci lethumba liyathathwa lize lihlolwe phantsi kwe-microscope. Le yindlela echongwa ngayo uhlobo kunye nomgangatho wethumba. |
Zithini iindlela zonyango?
Xa kunyangwa, iqela loogqirha liya kwenza izigqibo ezilungileyo. Oku kungabandakanya ugqirha wezifo zomhlaza, ugqirha wezifo zengqondo, kunye nogqirha wezifo zengqondo. Izigqibo zonyango ziya kuthathela ingqalelo izinto ezininzi, kuquka ubudala bakho, indawo kunye nohlobo lwethumba, kunye nemiphumo emibi.
- Ukuqwalaselwa: Ukuba ithumba likhula kancinci kwaye alibonakali, ugqirha wakho usenokungaqali unyango ngoko nangoko. Endaweni yoko, baya kujonga imeko yakho baze benze i-MRI scan malunga kanye ngonyaka.
- Utyando: Ukuba ithumba likhulu okanye libangela iimpawu, utyando lolona nyango luphambili lokususa ithumba elininzi kangangoko kunokwenzeka. Emva kotyando, kwenziwa i-MRI ukuqinisekisa ukuba ithumba lisusiwe ngokupheleleyo. Ngamanye amaxesha, kunokufuneka olunye utyando ukususa naziphi na iindawo eziseleyo.
- I-radiation okanye i-chemotherapy: Olu nyango lusetyenziselwa ukutshabalalisa naziphi na iiseli zomhlaza ezinokuthi zihlale emva kotyando. Nangona kunjalo, unyango lwe-radiation luyingozi kancinci kubantwana abangaphantsi kweminyaka emi-3 ubudala kuba lunokuchaphazela ukukhula kwabo kunye nophuhliso lwengqondo. Ngoko ke, thetha nogqirha wakho malunga nokhetho olufanelekileyo lomntwana wakho.
- Unyango olujoliswe kumayeza: Olu lolona nyango lutsha. La mayeza ajolise kwiiseli zomhlaza ngelixa enciphisa umonakalo kwiiseli eziphilileyo.
Kwenzeka ntoni emva konyango?
Ezinye iziphumo ebezingalindelekanga ezihlala ixesha elide zinokwenzeka emva konyango. Ezi ziquka iimpawu zomzimba ezifana neentloko ezibuhlungu kunye nokudinwa, kunye neengxaki zengqondo ezifana nokudakumba. Abantwana banokuba neengxaki zokufunda okanye ukulibaziseka kokukhula.
Nangona kunjalo, izinga lokusinda iminyaka emi-5 kwabo banyangwa i-Ependymoma liphezulu kakhulu. Eli zinga liphantsi kancinci ebantwaneni.
Into ebalulekileyo kukuba la mathumba anokukhula kwakhona emva konyango, ingakumbi ebantwaneni. Ukuba ayakhula, ahlala ekhula kwakhona kwindawo awayekuyo ngaphambili. Ke ngoko, kubalulekile ukubona ugqirha wakho ngexesha elibekiweyo kwaye uvavanywe ukuqinisekisa ukuba umhlaza awukabuyi.
Umyalezo Wokuya Ekhaya
- I-Ependymoma ngumhlaza okhula engqondweni okanye emgogodleni. Ngokwesiqhelo ayisasazeki kwamanye amalungu omzimba.
- Iimpawu zixhomekeke ekubeni ithumba likuphi. Iimpawu zingabandakanya intloko ebuhlungu ukuba isebuchotsheni, kunye nentlungu yomqolo ukuba isemqolo.
- Uvavanyo lwe-MRI kunye ne-biopsy zibalulekile ukuqinisekisa isifo.
- Indlela yonyango igqitywa liqela loogqirha. Utyando lolona nyango luphambili. Ukongeza, kusetyenziswa imitha kunye ne-chemotherapy.
- Inkxaso yeemvakalelo yosapho kunye noogqirha ibaluleke kakhulu kuwe nakumntwana wakho ngeli xesha lohambo.
- Kubalulekile ukuba kubekho ukulandelela ngexesha elicwangcisiweyo, njengoko esi sifo sinokuphinda sibuye.
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