Wake wazizwa ulele kakhulu ngesikhathi usebenza emini noma uxoxa nabangani? Ungase ucabange, "O... angizange ngilale ngokwanele izolo ebusuku." Kodwa akuyona nje indaba yokukhathala. Namuhla sizokhuluma ngohlobo oluhlukile kancane lwenkinga yokulala. Leso yisimo esibizwa ngokuthi i-Narcolepsy . Nakuba singavamile kakhulu, kuyinto abantu abaningi abaye bezwa ngayo ngenxa yezimpawu ezihambisana nayo . Ingelashwa, kodwa ingaba nomthelela omkhulu empilweni yakho, emsebenzini, nasebudlelwaneni nabantu.

Kuyini i-Narcolepsy?

Kalula nje, i-Narcolepsy yisimo sezinzwa esibangela ubuthongo obungazelelwe, obungalawuleki emini. Ngokukhethekile, ubuchopho bakho abukwazi ukulawula kahle ubuthongo nokuvuka. Lokhu kungabangela uzizwe ulele kakhulu emini, kungakhathaliseki ukuthi ulala kangakanani ebusuku.

Yiziphi izimpawu eziyinhloko ze-Narcolepsy?

Kunezimpawu ezine eziyinhloko ze-Narcolepsy. Kodwa abantu abaningi abanazo zonke ezine ngesikhathi esisodwa. Abanye abantu bangase babe neyodwa noma ezimbili. Ake sibone ukuthi ziyini lezi zimpawu.

• Ukulala Okukhulu Emini : Lokhu kuyimpawu evamile ye-Narcolepsy. Kufana nokuba "nokuhlaselwa ubuthongo" lapho ulala khona ngokuzumayo. Kungakhathaliseki ukuthi wenzani, uzizwa sengathi uyeka ukulala.
• I-Cataplexy: Lokhu ukulahlekelwa ukulawula imisipha ngokuzumayo . Ngezinye izikhathi kungaba mnene, njengokunyakazisa kwemisipha kolunye uhlangothi lobuso noma lwentamo. Uma kukhulu, ungase uwele phansi ngokuzumayo. Ake sixoxe ngalokhu ngokuningiliziwe.
• Ukubona izinto ezingekho ngokoqobo okuhlobene nokulala : Lokhu ukubona izinto ezingekho ngokoqobo okwenzeka lapho ulele noma lapho usuzovuka, futhi kungaba yinto eyesabekayo kakhulu.
• Ukukhubazeka Kokulala : Kungenzeka ukuthi uke wezwa ngalokhu njengokuthi "ukwesaba ephusheni nokungakwazi ukunyakaza" noma njengoba abanye besho, "ukuzizwa sengathi idemoni likhuphukele phezulu." Yilapho ungakwazi khona ukuhambisa umzimba wakho ngisho nalapho uvuka, noma mhlawumbe ungavuki ngokugcwele. Ake sibheke lokhu kakhudlwana.

Okunye okwengeziwe mayelana (ne-Cataplexy)

Sishilo ngaphambilini ukuthi i-cataplexy iwukulahlekelwa amandla emisipha ngokuzumayo. I-Narcolepsy ihlukaniswe ngezinhlobo ezimbili eziyinhloko kuye ngokuthi ngabe lolu phawu lwe-cataplexy lukhona noma cha:

• (Uhlobo 1 lwe-Narcolepsy) : Lolu hlobo lunezimpawu ze- (Cataplexy) . Cishe ama-20% eziguli (ze-Narcolepsy) angamalungu alolu hlobo.
• (Uhlobo lwe-Narcolepsy 2) : Lolu hlobo alunalo uphawu lwe- (Cataplexy) . Iningi, okungukuthi, cishe ama-80%, liwela kulolu hlobo.

Ngokuvamile, lapho silele, ubuchopho bethu buyayeka ukulawula imisipha yethu ukuze singenzi ngokwephupho lethu. Abantu abane-cataplexy babhekana nokulahlekelwa imisipha ngokuzumayo, okufana nalokho okwenzeka ngesikhathi sokulala kwe-REM, ngisho nalapho bevukile.

Ezimweni ezithambile, i-cataplexy ingathinta imisipha yobuso nentamo kuphela - isibonelo, umhlathi ungagoba. Noma ingathinta uhlangothi olulodwa lomzimba kuphela. Ezimweni ezimbi kakhulu, i-cataplexy ingabangela ukuwa okungazelelwe, okungaba yingozi. Lezi zigameko zivame ukuhlala imizuzu embalwa, kodwa ungase ungakwazi ukukhuluma noma ukunyakaza phakathi nalesi sikhathi.

Enye into ekhethekile nge-cataplexy ukuthi ingabangelwa imizwa ethile. Ingenzeka ikakhulukazi uma ujabule, uhleka, noma uhleka. Ingenzeka futhi uma umangale, wesaba, noma uthukuthele, kodwa akuvamile.

I-Cataplexy ingabonakala ihlukile kancane ezinganeni nakubantu abanezinyanga eziyisithupha ubudala lapho kuvela izimpawu zokuqala. Bangase bahlehle ngokuzumayo, bakhiphe ulimi lwabo, noma babe nobuthakathaka bemisipha obungahlobene nomzwelo.

Okunye okwengeziwe mayelana nokukhubazeka kokulala

Uma silele, ubuchopho buyayeka ukulawula imisipha yethu ukuze ingasebenzi ngalokho esikubona emaphusheni ethu. Kodwa uma sivuka, lokhu kulawula kufanele kusebenze kahle futhi. Kodwa uma unesifo sokulala, umzimba wakho awukutholi lokho kulawula imisipha. Ungaphefumula futhi uhambise amehlo akho, kodwa awukwazi ukukhuluma noma ukuhambisa ezinye izingxenye zomzimba wakho.

Ukubona izinto ezingekho ngokoqobo kuvame kakhulu ngesikhathi sokukhubazeka kokulala. Kungaba sobala kakhulu, ngezinye izikhathi kube okwesabisa ngendlela engenakucatshangwa. Ngenhlanhla, ukukhubazeka kokulala kuvame ukuhlala imizuzu embalwa (yize kungazwakala sengathi kuyisikhathi eside kumuntu obhekana nakho).

Ingabe zikhona ezinye izimpawu?

Ngaphezu kwezimpawu ezine eziyinhloko, abantu abane-narcolepsy bangase babe nezinye izimpawu kanye nokuziphatha. Ezinye zazo zifaka:

• Ukunyakaza Okuzenzakalelayo : Abantu abane-narcolepsy ngezinye izikhathi bangase baqhubeke nokunyakaza izingxenye zomzimba, njengezandla zabo, ngisho nalapho belala.
• Ukukhohlwa noma Ukukhohlwa : Kuvamile ukuthi laba bantu bakhohlwe lokho abakwenzile ngaphambi kokulala.
• Ukuqhuma/inkulumo engazelelwe ngesikhathi sokuhlaselwa ubuthongo : Umuntu onesifo sokulala angase asho okuthile ngokuzumayo (ngokuvamile okunganangqondo noma okungabalulekile ngaleso sikhathi). Uma lokhu kwenzeka, angase avuke ngokuphelele futhi. Kodwa ngokuvamile akakukhumbuli.

Ubani othola i-narcolepsy? Ivame kangakanani?

Odokotela bavame ukuxilonga i-narcolepsy kubantu abaneminyaka ephakathi kwemi-5 nengama-50. Kodwa-ke, ivame kakhulu kubantu abasebasha , abaneminyaka ephakathi kwengu-18 nengama-25. Amadoda anamathuba amaningi okuthola lesi simo.

I-Narcolepsy akuyona into evamile kakhulu.Ucwaningo lubonisa ukuthi abantu abaphakathi kuka-25 no-50 kwabayi-100,000 emhlabeni wonke banaso. Kodwa-ke, ngoba kuthatha iminyaka ukuthola lesi sifo, kunzima ukusho ukuthi bangaki abantu abanaso ngempela.

I-Narcolepsy iwuthinta kanjani umzimba wami?

Ukuze uqonde i-narcolepsy, kuyasiza ukwazi okuncane ngendlela ubuthongo bethu obusebenza ngayo. Kunezigaba eziningana eziyinhloko zokulala kwethu:

• Isigaba 1: Ukulala Okuncane . Lesi yisigaba esifushane. Siqala ngokushesha nje lapho ulala. Sakha cishe u-5% wobuthongo bakho bonke.
• Isigaba 2: Ukulala Okujulile ((Ukulala Okujulile)) . Lokhu kujule kancane. Cishe u-45%-50% wokulala okuphelele (leli nani liyakhula njengoba sikhula).
• Isigaba 3: Ukulala Okuhamba Kancane . Cishe u-25% wokulala okuphelele (lokhu kwehla ngokuguga). Kunzima kakhulu ukuvusa umuntu kulesi sigaba. Uma umvusa ngokuzumayo, uzongena esimweni senkungu yengqondo ebizwa ngokuthi "i-sleep inertia". Ukuhambahamba ngokulala kanye nokukhuluma ngokulala nakho kwenzeka kulesi sigaba.
• (REM) Ukulala : (REM) imele (Rapid Eye Movement) , okusho ukuthi amehlo ahamba ngokushesha. Kungalesi sigaba lapho siphupha khona. Uma umuntu elele (REM), ungabona amehlo ehamba ngaphansi kwezinkophe.

Uma ungenayo i-narcolepsy, uma ulala, uqala esigabeni 1, bese uya esigabeni 2 nesesi-3. Ujikeleza phakathi kwalezi zigaba, bese ekugcineni ungena ebuthongweni be-REM, lapho uqala khona ukuphupha. Ngemva komjikelezo wokuqala we-REM, uqala umjikelezo omusha bese ubuyela esigabeni 1 noma 2. Umjikelezo owodwa uvame ukuthatha cishe imizuzu engama-90. Iningi labantu lidlula cishe imijikelezo emine kuya kwemihlanu ngobusuku (uma belala amahora ayi-8).

Kodwa uma une-narcolepsy, umjikelezo wakho wokulala awubi njalo. Kunalokho, ulala ubuthongo be-REM cishe ngokushesha nje lapho ulala . Ubusuku bonke, ulala ngokushesha, ngokuvamile ngaphandle kokuqeda umjikelezo wokulala ojwayelekile.

Ku-narcolepsy, kungakhathaliseki ukuthi ulala kahle kangakanani ebusuku, uzizwa ulele kakhulu emini. Kunzima kakhulu ukuyeka ukulala. Kodwa lokhu kulala okufika emini nakho kufushane (cishe imizuzu eyi-15-30). Uma uvuka, uzizwa uqabulekile futhi usukulungele ukwenza lokho obukwenza ngaphambili futhi. Kodwa-ke, kungenxa yokuthi lokhu kwenzeka izikhathi eziningana ngosuku ukuthi i-narcolepsy iba yisiphazamiso empilweni yakho.

Ziyini izimbangela ze-narcolepsy?

Izimbangela ze-narcolepsy ziyahlukahluka kuye ngohlobo lwe-narcolepsy onayo, kodwa zonke zihilela indawo ekhethekile yobuchopho bakho ebizwa ngokuthi i-hypothalamus , elawula ukulala nokuvuka.

Izimbangela (Uhlobo 1 lwe-Narcolepsy)

Ngo-1998, abacwaningi bathola ikhemikhali ebizwa ngokuthi ama-orexin (ngezinye izikhathi abizwa ngokuthi ama-hypocretins) . Lawa asetshenziswa ama-neuron athile (amangqamuzana obuchopho) ukuthumela imiyalezo. Ama-neuron asebenzisa ama-orexin atholakala engxenyeni yobuchopho ebizwa ngokuthi i-hypothalamus. Lawa ma-neuron yiwo asisiza kakhulu ukuthi sihlale siphapheme.

Amazinga e-Orexin avame ukutholakala ku-cerebrospinal fluid (CSF) – ungqimba oluncane loketshezi oluzungeze ubuchopho nomgogodla. Kodwa-ke, kubantu abane-narcolepsy, amazinga e-orexin ku-CSF aphansi kakhulu noma awabonakali. Lokhu kusho ukuthi amangqamuzana enza i-orexin ayekile ukusebenza noma abhujiswe yinto ethile.

Olunye ucwaningo lubonisa ukuthi isizathu sokuthi la ma-neuron angasebenzi cishe kuyinkinga yokuzivikela komzimba . Lokhu kusho ukuthi amasosha omzimba wakho ahlasela ama-neurons enza futhi asebenzise i-orexin, noma i-orexin uqobo, noma kokubili.

Cishe abantu abangu-90%-95% abane-Type 1 Narcolepsy banoguquko oluthile lwezakhi zofuzo oluthinta amasosha omzimba abo (olubizwa ngokuthi i-HLA-DQB1*06:02 ). Kodwa-ke, cishe u-25% wabantu bonke nabo banaloluguquko kodwa abanalo i-Narcolepsy. Ngakho-ke, ochwepheshe abaluhloli loluguquko, futhi abaqiniseki ukuthi ludlala yiphi indima. Kukhona nobufakazi bokuthi lesi simo singasebenza emindenini. Uma isihlobo sokuqala (umzali, umfowabo, ingane) sine-Narcolepsy, nawe usengozini enkulu yokuba naso.

Kodwa-ke, i-Type 1 Narcolepsy ingavela futhi ngemva kokutheleleka okuthile okubangelwa amagciwane kanye namagciwane, ikakhulukazi amagciwane omkhuhlane afana ne -H1N1 influenza kanye namagciwane abangela i-strep throat. Ochwepheshe bakholelwa ukuthi lokhu kungenzeka ngoba ukutheleleka ngezinye izikhathi kungabangela izinguquko kanye nokungasebenzi kahle kwesimiso somzimba sokuzivikela.

Izimbangela (Uhlobo 2 lwe-Narcolepsy)

Nakuba kuningi okwaziwayo ngezimbangela ze-Type 1 Narcolepsy, hhayi kakhulu nge-Type 2 Narcolepsy. Ochwepheshe abakaqondi ngokugcwele ukuthi kungani i-Type 2 Narcolepsy ikhula. Kodwa bacabanga ukuthi ingaba nezimbangela ezifanayo. Isibonelo, kungaba ngenxa yomonakalo omncane kuma-neurons asebenzisa i-orexin, noma inkinga ngendlela i-orexin ehamba ngayo ebuchosheni.

I-Narcolepsy Yesibili

Ezimweni ezingavamile, i-narcolepsy ingabangelwa ukulimala kwe-hypothalamus yakho. Lo monakalo ungabangelwa izinto ezifana nokulimala ekhanda (ukuxhuzula), ukulimala kobuchopho okubuhlungu (ukulimala kobuchopho okubuhlungu), ukufa uhlangothi, kanye nezimila zobuchopho.

I-Narcolepsy ingaba uphawu lwezinye izimo ezingahlobene okungenzeka ukuthi uzizuze njengefa. Izibonelo:

• (I-Autosomal Dominant Cerebellar Ataxia, i-Narcolepsy kanye nokungezwa (ADCADN))
• (I-Autosomal Dominant Narcolepsy, Isifo Sikashukela Sohlobo 2 kanye Nokukhuluphala)

Ingabe i-Narcolepsy iyathelelana?

Cha, i-Narcolepsy ayisona isifo esithelelanayo. Awukwazi ukusithola komunye umuntu, futhi ngeke umuntu asithole kuwe.

Ungayibona kanjani i-narcolepsy?

Izimpawu zakho zingase zenze udokotela asole ukuthi unesifo se-narcolepsy. Kodwa-ke, izimpawu ze-narcolepsy zifana nezezinye izinkinga eziningi zobuchopho nokulala. Ngakho-ke, kubalulekile ukwazi ukuthi unesifo se-narcolepsy noma cha.Kungabonakala kuphela ngokuhlolwa okuqondile kokuxilonga.

Ngaphambi kokwenza izivivinyo eziningi eziyinhloko ze-narcolepsy, udokotela uzoqala ahlole ukuthi uthola ubuthongo obanele yini. Lokhu kuvame ukwenziwa kusetshenziswa izindlela ezilula eziqapha amaphethini akho okulala nokuvuka. Isibonelo yi- actigraphy . Lokhu kuhilela ukusebenzisa idivayisi, njengewashi lesandla, ukuqapha amaphethini akho okunyakaza (njengalapho ulele nalapho uvukile futhi uhambahamba).

Yiziphi izivivinyo ezisetshenziswa ukuxilonga i-narcolepsy?

Kunezivivinyo eziningana ezingenziwa ukuze kutholakale i-narcolepsy:

• Ucwaningo Lokulala (i-Polysomnogram) : Lolu vivinyo lusebenzisa izinzwa ezahlukahlukene ukuqapha indlela olala ngayo. Ingxenye eyinhloko yocwaningo oluphelele lokulala, olubizwa ngokuthi i-polysomnogram , ukusetshenziswa kwe-electroencephalogram (EEG) . Lezi zinzwa ziqapha amaza obuchopho bakho. Lokhu kuvumela odokotela ukuthi babone ukuthi ukusiphi isigaba sokulala umzuzu nomzuzu. Abantu abane-narcolepsy balala ngokushesha kunokujwayelekile, ngakho-ke lolu vivinyo lungakubona lokhu. Luphinde luqophe ukuthi bavuka nini ngesikhathi sokulala. Esinye isizathu esenza lolu vivinyo lube lubalulekile ukuthi ukulala ngokweqile emini kungaba uphawu lwesimo esibizwa ngokuthi i-sleep apnea . Ucwaningo lobuthongo lungaqinisekisa ukuthi awunayo i-sleep apnea.
• Ukuhlolwa Kokulala Okune-Multiple Sleep Latency (MSLT) : Lokhu kuhlolwa kulinganisa ukuthi ulala kalula kangakanani emini. Kuhilela ukulala izikhathi eziningana ngaphakathi kwesikhathi esithile. Kunganquma ukuthi ulele kakhulu emini. Lokhu kuyimpawu evamile ye-narcolepsy. Ngokuvamile kwenziwa ngosuku olulandela ucwaningo lokulala ebusuku.
• Ukuhlolwa Kokugcina Ukuvuka : Lokhu kuhlolwa kulinganisa ukuthi ungahlala uphapheme kahle kangakanani emini, ngisho noma ulala kalula. Akuvame ukusetshenziswa ukuhlola i-narcolepsy, kodwa kungasiza ekuvimbeleni ezinye izinkinga. Kuwusizo futhi ukubona ukuthi imithi evuselelayo iyasebenza yini.
• I-Spinal Tap (Ukubhoboza I-Lumbar) : Lokhu kuhlolwa kungathola amazinga aphansi e-orexin ku-cerebrospinal fluid yakho (CSF). Lena yindlela eyinhloko yokuxilonga i-Type 1 Narcolepsy. Amazinga aphansi e-orexin angaba uphawu lokuthi umuntu one-Narcolepsy akakabi ne-cataplexy, kodwa kungaba uphawu lokuthi angase abe ne-cataplexy esikhathini esizayo. Kodwa-ke, njengoba amazinga e-orexin engashintshi kubantu abane-Type 2 Narcolepsy, lokhu akulona njalo ukuhlolwa kokuxilonga.

Ezinye izivivinyo

Abantu abane-narcolepsy bangase babe nezinye izivivinyo eziningi. Isibonelo, uma une-cataplexy, ingafana nezimpawu ezihlobene nokunyakaza kwezinye izifo zobuchopho, njengokuxhuzula. Ngakho-ke, odokotela bangase baqale bahlole izimo ezingathi sína, njengesithuthwane. Ngakho-ke, kungathatha isikhathi ukuxilonga i-narcolepsy. Udokotela wakho ungumuntu ongcono kakhulu ukuchaza ukuthi yiziphi izivivinyo okudingeka uzenze nokuthi kungani zenziwa.

Ilashwa kanjani i-narcolepsy? Ingabe ingelapheka?

I-Narcolepsy ingelashwa, kodwa ayinakwelapheka . Ukwelashwa kuvame ukuqala ngemithi. Kodwa ukwenza izinguquko endleleni yakho yansuku zonke nendlela yokuphila nakho kungasiza. I-Narcolepsy ivame ukusabela kahle ekwelashweni. Lokhu kungasiza ekunciphiseni ukuphazamiseka okubangelwa izimpawu.

Khumbula, i-narcolepsy iyisimo sokuphila konke, kodwa asibi sibi ngokuhamba kwesikhathi.

Yimiphi imithi ye-narcolepsy?

Imithi iyindlela eyinhloko yokwelapha i-narcolepsy. Imithi eminingi ihlose ukozela ngokweqile emini. Kodwa-ke, eminye imithi ithinta nezinye izimpawu. Nazi ezinye izinhlobo zemithi enganikezwa ngalesi simo:

• Imithi Yokuphaphama : Lezi ngokuvamile ziyizindlela zokuqala zokwelapha. Izibonelo zifaka phakathi i-Modafinil ne -Armodafinil . Le mithi ivuselela uhlelo lwakho lwezinzwa. Lokhu kungasiza ekunciphiseni ubukhali kanye nokuvama kokulala emini.
• Ama-Amphetamine kanye nama-Stimulants afana ne-Amphetamine : Izidakamizwa ezifana ne -methylphenidate (eyaziwa ngaphansi kwamagama omkhiqizo i-Ritalin®, i-Concerta®, i-Qullivant®) kanye nezinhlanganisela ze-amphetamine/dextroamphetamine (ezaziwa ngaphansi kwegama lomkhiqizo i-Adderall®).
• Ama-Antidepressants : Lawa angafaka phakathi ama-Serotonin-Norepinephrine Reuptake Inhibitors (SNRIs) (isb. i-Venlafaxine - eyaziwa ngokuthi i-Effexor®), ama-Selective Serotonin Reuptake Inhibitors (SSRIs) (isb. i-Fluoxetine - eyaziwa ngokuthi i-Prozac®), noma ama-Tricyclic Antidepressants (isb. i-Clomipramine noma i-Protriptyline - lawa manje awasasetshenziswa kakhulu).
• (I-Sodium Oxybate) : Lo muthi uyakusiza ulale kangcono futhi unciphisa ukuvama kwe-(Cataplexy). Ngenxa yemiphumela yalo muthi, ulawulwa ngokuqinile emazweni amaningi. Kodwa-ke, uvame ukusetshenziselwa ukwelapha (i-Type 1 Narcolepsy).
• Imithi ethinta i-histamine : Isibonelo salo muthi yi- Pitolisant.Lokhu kuyisithasiselo esilwa ne-histamine receptor. Ama-receptor antagonists yimithi evimba amakhemikhali athile emzimbeni wakho ukuthi anganamatheli kumaseli. Lokhu kunciphisa noma kuvimbele amaseli ekwenzeni izinto ezithile.

Nakuba kunezindlela eziningana zokwelapha abantu abadala (i-narcolepsy), izindlela zokwelapha izingane zilinganiselwe kakhulu. Udokotela wezingane wengane yakho noma uchwepheshe angakutshela kangcono ukuthi yiziphi izindlela zokwelapha ezitholakalayo kuwe nokuthi yini abayincomayo.

Izinkinga/imiphumela emibi yokwelashwa

Imithi eminingi esetshenziswa ukwelapha i-narcolepsy kanye nezimpawu zayo inethuba elikhulu lokuxhumana neminye imithi. Umfutho wegazi ophakeme kanye nokungajwayelekile kwenhliziyo kumane kuyizinkinga ezimbili ezingaba khona nganoma yiluphi uhlobo lwemithi evuselelayo. I-Sodium Oxybate, ikakhulukazi, iyingozi kakhulu uma ihlanganiswa neminye imithi ecindezela uhlelo lwezinzwa oluphakathi. Futhi, ungalokothi usebenzise lo muthi notshwala .

Ngokuvamile, udokotela wakho ungumuntu ongcono kakhulu ukukutshela ukuthi yimiphi imiphumela emibi, izinkinga, kanye nokusebenzisana kwezidakamizwa okufanele ukuqaphele. Angakunikeza ulwazi oluhambisana nesimo sakho esithile, umlando wezempilo, kanye nezimo zakho.

Ngingazinakekela kanjani futhi ngiphathe izimpawu zami?

Akufanele uzame ukuzixilonga noma ukwelapha i-narcolepsy . Lokhu kungenxa yokuthi izimpawu zalesi simo zivame nakwezinye izimo ezibucayi, njenge-sleep apnea kanye nesifo sokuwa. Futhi, lesi simo singenza eminye imisebenzi, njengokushayela nokubhukuda, ibe yingozi. Ngakho-ke, hlala ubona udokotela ukuze uthole ukuxilongwa nokwelashwa .

Ngizozizwa ngingcono ngokushesha kangakanani ngemva kokwelashwa?

Isikhathi esithathayo ukuze ukwelashwa kuqale ukusebenza, noma ukuthi imiphumela yokwelashwa izwakale, kuncike ezintweni eziningi. Udokotela wakho ungumuntu ongcono kakhulu ukukutshela ukuthi yini ongayilindela ngokusekelwe esimweni sakho, ukuthi kuzothatha isikhathi esingakanani ukuthi imithi isebenze, nokuthi kuzothatha isikhathi esingakanani ukubona ushintsho ezimpawini zakho.

Ingabe ukuthuthukiswa kwe-narcolepsy kungancishiswa noma kuvinjelwe?

Ezimweni eziningi, i-narcolepsy iqala ngokungazelelwe. Ngakho-ke, akunakwenzeka ukunciphisa ingozi yokuyithola noma ukuyivimbela ukuthi ingaveli.

Yini okufanele ngiyilindele uma ngine-Narcolepsy?

I-Narcolepsy ngokwayo ayiyona ingozi. Kodwa ukuqala kokulala okungazelelwe, okungalawuleki kungaba ukuphazamiseka okukhulu empilweni. Abantu abanalesi simo bangase bangakwazi ukushayela (kungaba okwesikhashana noma unomphela - kuncike ezimpawini zabo kanye nesimo sabo).

Nakuba i-narcolepsy ngokuvamile ingeyona ingozi, ku-narcolepsy yohlobo 1, kunengozi eyengeziwe yokulimala ngenxa yokuwa ngesikhathi seziqephu ze-cataplexy. I-narcolepsy ingadala nezimo eziyingozi lapho ushayela, usebenzisa amathuluzi kagesi noma imishini esindayo, noma ubhukuda.

Lapho izingane ziqala ukuba nesifo sokudakwa

Izingane ezine-narcolepsy zivame ukulwa nemiphumela yalesi simo. Ukulala emini kungenza kube nzima ukugxila emsebenzini wesikole, ukugcina ubudlelwano bezenhlalo, kanye nokuhlanganyela emisebenzini yesikole neyemisebenzi yangaphandle kwesikole.

Kodwa-ke, i-Narcolepsy iyisimo sezokwelapha. Ngakho-ke, izingane ezine-Narcolepsy zinelungelo lokuvikelwa ngokomthetho. Izikole nazo ziyadingeka ngokomthetho ukuthi zenze izixazululo. Isibonelo, ukushintsha amashejuli ekilasini, ukubekela eceleni isikhathi sokulala noma sokuphumula, nokwenza kube lula ngezingane ukuphuza imithi yazo esikoleni. Udokotela wezingane wengane yakho noma abanye ochwepheshe bangakusiza ukuthola izixazululo ezizosiza ingane yakho.

Kwabantu abadala abasebenzayo (i-Narcolepsy)

Njengoba nje izingane zivikelwe ngumthetho ezikoleni, abantu abadala abane-narcolepsy nabo bavikelwe ngumthetho. Ukubandlulula umuntu ngokusekelwe esimweni sezokwelapha, okuhlanganisa ne-narcolepsy, akuvunyelwe (isibonelo, e-United States, ngaphansi koMthetho WaseMelika Okhubazekile).

Ngenxa yaleso sivikelo esingokomthetho, abantu abane-narcolepsy bangakhuluma nabaqashi babo ezindaweni zabo zokusebenza futhi bathole indawo yokuhlala ukuze bakwazi ukuqhubeka nokusebenza ngenkathi belawula isimo sabo.

Kufanele ngizinakekele kanjani? (Iseluleko esiwusizo)

Uma unesifo se-narcolepsy, kunezinto eziningana ongazenza ukuze uphathe isimo sakho futhi uthole okuningi ekwelashweni kwakho. Eziningi zalezi zinto zihilela ukugcina imikhuba emihle yokulala (Ukuhlanzeka Kokulala Okuhle) kanye nokushintsha isimiso sakho kanye nesimiso sakho.

• Gcina isimiso sokulala esingaguquguquki : Ukujwayela ukulala nokuvuka ngesikhathi esifanayo kungathuthukisa ikhwalithi yokulala kwakho.
• Setha isikhathi sokulala : Setha isikhathi sokulala esikuvumela ukuthi uthole isikhathi sokulala esifanele iminyaka yakho. Futhi, beka eceleni isikhathi sokuphumula nokuzola ingqondo yakho ngaphambi kokulala.
• Nciphisa ukuchayeka ekukhanyeni okukhanyayo kanye namadivayisi kagesi : Ukukhanya okuvela kula madivayisi eduze nesikhathi sokulala kungaphazamisa umjikelezo wemvelo wokulala nokuvuka komzimba wakho.
• Gwema ukuphuza utshwala, i-caffeine, ukusebenzisa ugwayi, nokudla ngaphambi kokulala.: Uma uzizwa ulambile ngaphambi kokulala, ukudla okulula kungcono kakhulu. Uma uthatha imithi ethile, kufanele uyeke ngokuphelele ukuphuza utshwala (udokotela wakho uzokutshela ukuthi ngabe unikezwe imithi enjalo). Ochwepheshe batusa kakhulu ukuyeka ngokuphelele imikhiqizo kagwayi (kufaka phakathi ugwayi, ugwayi kagesi ((ukubhema)), kanye nogwayi ongenantuthu ((ugwayi ongenantuthu))).
• Yiba matasa ngokomzimba : Ngisho noma kufana nokuhamba nje, ukuhlala umatasa kungasiza ngekhwalithi yokulala kwakho.
• Thatha isihlwathi : Abantu abane-narcolepsy bavame ukuzizwa bengcono ngemva kokulala. Kungasiza ukuthola ukuthi yiziphi izikhathi zosuku ozizwa ulele kakhulu futhi uhlele ubuthongo bakho ngalezo zikhathi.

Gwema imisebenzi eyingozi, noma uthathe izinyathelo zokuphepha.

I-narcolepsy ingabangela izingozi ezinkulu, ngisho nezibulalayo. Ukuze uzivikele wena nalabo abakuzungezile, ungalokothi ushayele ngaphandle kokuthi udokotela akunike imvume ekhethekile .

Uma ubona izimpawu ze-narcolepsy ngenkathi ushayela, yeka ukushayela ngokushesha bese uthintana nodokotela wakho. Nakuba lokhu kungakhululeki, kubalulekile ukuvimbela ingozi ebulalayo noma eshintsha impilo ukuthi ingenzeki ngenxa yokulala ushayela.

Enye indawo lapho i-narcolepsy ingaba yingozi kakhulu isemanzini . Uma une-narcolepsy, kubaluleke kakhulu ukugqoka njalo ijazi lokuphila kahle uma ubhukuda noma kunoma yisiphi isikebhe noma isikebhe samanzi esincoma umlondolozi wokuphila. Ngaphandle komlondolozi wokuphila, ukuhlaselwa ubuthongo emanzini kungaba nemiphumela ebulalayo.

Kufanele ngimbone nini udokotela?

Uma ulala ngokuzumayo, ngokungazelelwe, kuyisibonakaliso sokuthi udinga ukubona udokotela. Lokhu akuyona nje i-narcolepsy, kodwa futhi kungabonisa izimo ezahlukene zezokwelapha. Ezinye zazo zimbi kakhulu. Ezimweni eziningi, uma uphuza isikhathi eside ukuxilongwa nokwelashwa, kulapho ingozi yezinkinga iba nkulu khona noma ukwelashwa kungasebenzi kahle.

Kufanele ngiye nini e-Emergency Treatment Unit (ETU) ?

Uma uquleka ngokuzumayo noma ulahlekelwa ingqondo, funa usizo lwezokwelapha ngokushesha esibhedlela noma egumbini lezimo eziphuthumayo. Lokhu kuyisibonakaliso esikhulu sezimo eziningi, okuhlanganisa ukuhlaselwa yinhliziyo, ukufa uhlangothi, kanye nokushaya kwenhliziyo okungajwayelekile. Lezi zimo ziyizimo eziphuthumayo zezokwelapha futhi zidinga ukwelashwa ngokushesha.

Ukulimala okuhlobene nokuwa ukulimala okwenzeka uma uwe ngokungazelelwe, njengokudonswa noma ukulahlekelwa ingqondo.Kukhona ingozi yokulimala. Hlala ucela iseluleko sezokwelapha uma ucabanga ukuthi kungenzeka ukuthi ulimele ekhanda lakho, entanyeni, noma kunoma iyiphi ingxenye yomhlane wakho. Ukuphuka nokulimala emgogodleni kungabangela umonakalo ongapheli, ukukhubazeka, ngisho nokufa.

Uma uwa, futhi uthatha noma yiluphi uhlobo lwemithi yokunciphisa igazi , ikakhulukazi uma ushaya ikhanda lakho, kufanele ufune usizo lwezokwelapha ngokushesha. Ukuwa nokulimala kungabangela ukopha kwangaphakathi okuyingozi. Udinga usizo lwezokwelapha ukuqinisekisa ukuthi awunazo ukulimala okungaholela ezinkingeni ezisongela ukuphila.

Izinto ezibaluleke kakhulu okudingeka uzikhumbule (Umyalezo Wokuya Ekhaya)

Ngakho-ke, ngithemba ukuthi ukwazile ukukhumbula ezinye zezinto ezibaluleke kakhulu kulokho esikhulume ngakho (i-Narcolepsy).

• I-Narcolepsy akuyona nje ukozela okubangelwa ukukhathala, kodwa iyinkinga ngekhono lobuchopho lokulawula ukulala nokuvuka.
• Qaphela izimpawu eziyinhloko zokulala ngokweqile emini, i-cataplexy (ubuthakathaka bemisipha obungazelelwe), ukubona izinto ezingekho ezingqondweni okuhlobene nokulala, kanye nokukhubazeka kokulala . Akuzona zonke lezi zimpawu ezenzeka kuwo wonke umuntu.
• Imbangela yalesi simo ivame ukwehla kwe- orexin yamakhemikhali ebuchosheni, noma izinkinga zokuzivikela komzimba.
• I-Narcolepsy idinga ukuhlolwa okukhethekile kwezokwelapha ukuze kutholakale ukuthi unesifo esinjani. Ngakho-ke ungasheshi ufinyelele eziphethweni ngokwakho.
• Nakuba lokhu kungelapheki ngokuphelele, kuyisimo esingalawulwa kakhulu ngemithi kanye nokushintsha indlela yokuphila .
• Cabanga ngokucophelela ngokuphepha. Qaphela kakhulu lapho ushayela, ubhukuda, futhi usebenza ezindaweni eziphakeme. Landela iseluleko sezokwelapha.
• Uma unalezi zimpawu, ungesabi ukubona udokotela. Awuwedwa. Usizo luyatholakala.

Ngiyethemba ukuthi lolu lwazi luzokusiza. Uma wena noma othile omaziyo ebhekene nalolu hlobo lwenkinga, kungcono ukufuna iseluleko sezokwelapha ngokushesha okukhulu.

I- Narcolepsy, ukozela ngokweqile emini, i-cataplexy, i-sleep apnea, imibono yokungalali kahle, i-orexin, izifo zobuchopho