Ingabe izitho zesisu zomntwana wakho seziphumile? Ake sifunde ngalokhu okubizwa ngokuthi i-cloacal exstrophy!

Umama noma ubaba ubengesaba kangakanani uma bebona ukuthi isisu somntwana osanda kuzalwa asikakhiwa kahle nokuthi ezinye izitho okufanele zibe ngaphakathi ziphumile? Kunzima ngempela ukucabanga. Kodwa ungakhathazeki. Nakuba lesi kuyisimo esingavamile kakhulu, kukhona ukwelashwa kwaso. Ake sixoxe ngalesi simo esibizwa ngokuthi i-Cloacal Exstrophy ngendlela elula ongayiqonda.

Iyini le cloacal exstrophy?

Kalula nje, i-Cloacal Exstrophy iyisici sokuzalwa esenzeka lapho udonga lwesisu lomntwana lungakheki kahle ngesikhathi ekhula esibelethweni. Cabanga nje, ngoba ingxenye engezansi yesisu ayivali kahle, isinyi somntwana kanye nengxenye yamathumbu amakhulu, noma ezinye izitho, zimbozwe ulwelwesi oluncane futhi ziphuma emzimbeni. Lokhu kunzima kakhulu ukukubona. Lesi simo sithinta nezitho zobulili zomntwana.

Lokhu kwaziwa nangokuthi i-congenital urinary anomaly . Lokhu kusho ukuthi kuyinkinga eyenzeka ingane isesesibelethweni. Kodwa ungakhathazeki, ngemva kokuhlinzwa okumbalwa kokulungisa , kusukela ekuzalweni futhi okuhlala isikhathi esithile, izingane eziningi ezinalesi simo ziyaqhubeka nokuphila impilo evamile nejabulisayo.

Lokhu kuyithinta kanjani ingane? Iyini i-OEIS complex?

I-Cloacal Exstrophy yaziwa nangokuthi i-OEIS complex noma i-OEIS syndrome ngoba ihambisana nezinye izinkinga eziningana. Ake sibone ukuthi ziyini:

Iyini i-Omphalocele?

Lokhu kwenzeka lapho imisipha yesisu somntwana, eduze kwenkinobho yesisu, ingahlanganiswanga kahle, okudala imbobo. Ngale mbobo, isinye, amathumbu amakhulu, kanye nezinye izitho, njengesibindi, ziyaphuma. Kodwa lezi zitho aziphumi nje kuphela, zimbozwe ulwelwesi oluvikelayo.

Kuyini i-exstrophy?

Lokhu kwenzeka lapho udonga lwesinye somntwana luphendukela ngaphandle esikhundleni sangaphakathi. Lokhu kubizwa ngokuthi i-bladder exstrophy . Isinye siyisicaba esikhundleni sokuba yindilinga, futhi singase sihlukaniswe kabili. Futhi, imisipha yesisu namathambo e-pelvic, noma amathambo azungeze isinqe, awaxhumani kahle. Ngenxa yalokho, i-pelvis isakazeke nhlangothi zombili, njengencwadi evuliwe kabanzi.

Iyini i-anus engenalutho?

Kulesi simo, indunu yomntwana, imbobo esidlula kuyo indle, ayikakheki kahle. Ingase ivaleke, noma kungase kungabikho mbobo enjalo nhlobo. Ikholoni lifushane kakhulu, futhi lingase lixhunywe nesinye.

Kuyini ukukhubazeka komgogodla?

Cishe izingane ezintathu kwezine ezine-cloacal exstrophyKungase kube nesimo esibizwa ngokuthi i-spina bifida, lapho amathambo omgogodla engavaleki kahle, okubangela ukuthi isikhwama esigcwele uketshezi esizungeze umgogodla (mhlawumbe sinezinzwa) siphume phakathi kwesikhala.

Okubalulekile: Ingane ingaba nazo zonke lezi zinto, noma ezinye zazo kuphela. Odokotela bazohlola ngokucophelela zonke lezi zinto.

Ingabe lokhu kunethonya ezithweni zobulili?

Yebo, i-Cloacal Exstrophy ithinta nezitho zangasese zomntwana.

• Uma kungumfana: Ipenisi ingaba yicaba, imfushane, noma ihlukaniswe izinhlangothi kwesokudla nesobunxele.
• Uma kuyintombazane: I-clitoris ingahlukaniswa izingxenye ezimbili, enye ngakwesokudla kanti enye ingakwesobunxele. Kungase kube nezimbobo ezimbili zesitho sangasese sowesifazane.

Sivame kangakanani lesi simo?

Lesi yisimo esingavamile kakhulu . Uma sikhuluma nje, sithinta cishe ingane eyodwa kwezingu-250,000 kuya kweyodwa kwezingu-400,000 ezizalwayo. Futhi, abafana banamathuba aphindwe kabili kuya kathathu okuba nalesi simo kunamantombazane.

Yiziphi izinhlobo ze-exstrophy-epispadius complex (EEC)?

I-cloacal exstrophy ingenye yeqembu leziphambeko zokuzalwa elibizwa ngokuthi i-Exstrophy-Epispadias Complex (EEC) . Eqinisweni, uhlobo olubi kakhulu lweqembu. Ingane ingaba nesifo esisodwa kuleli qembu, noma ingaba neziningana ndawonye.

Ezinye izimo esigabeni se-EEC yilezi:

• I-Epispadias: Kulesi simo, i-urethra yomntwana, ipayipi elikhipha umchamo emzimbeni, alakhiwe kahle.
• Ukuphuma kwesinye: Kulesi simo, isinye somntwana siphenduka singene ngaphakathi.

Yini ebangela i-cloacal exstrophy?

Odokotela abazi kahle ukuthi kungani ezinye izingane ziba nalesi simo, kodwa bakholelwa ukuthi kwenzeka lapho izicubu ezibizwa ngokuthi i-cloacal membrane zidabuka noma ziqhuma phakathi nekota yokuqala yokukhulelwa.

I- cloaca yindawo lapho uhlelo lokuzala lomntwana, uhlelo lokugaya ukudla, kanye nohlelo lomchamo kuhlangana khona. Ngokuvamile, izitho zalezi zinhlelo zihlukaniswa yile ngqamuzana ye-cloacal. Ngakho-ke lapho lolu ngqamuzana luqhuma, udonga lwesisu alukhi ngokugcwele. Izitho azikhuli kahle, futhi zingase zixhunywe ngokungalungile. Ekugcineni, ezinye izitho ziphuma ngesikhala esiswini.

Ziyini izimpawu zalesi simo?

Izimpawu ze-cloacal exstrophy zingabonakala ngokushesha ngemva kokuzalwa. Ingane yakho ingase ibhekane nalokhu okulandelayo:

• Izitho zomzimba ziphume emgodini esiswini, ngaphakathi kwesakhiwo esifana nesikhwama.
• Isakhiwo esifana nesikhwama siphuma esikhaleni esingemuva komgogodla (lesi yi-Spine Bifida).
• Ipenisi noma isitho sangasese sowesifazane kubonakala sengathi sihlukaniswe kabili.

Odokotela bakuthola kanjani lokhu?

I-cloacal exstrophy ingavame ukutholakala ngesikhathi sokuhlolwa kwe-ultrasound kwangaphambi kokukhulelwa ngesikhathi sokukhulelwa. Udokotela wakho angase futhi ancome ukuhlolwa kwe-MRI yengane . Lokhu kunganikeza izithombe ezicacile zezitho zomntwana wakho. Lokhu kuhlolwa kungabonisa izinto ezinjengalezi:

• Umchamo awugelezi kahle usuka esinyeni.
• Amathambo esitho ahlukene.
• Mncane kunosayizi ojwayelekile wezitho zangasese.
• I-omphalocele isho ukuthi intambo yesisu inamathele phansi kakhulu esiswini somntwana.

Ngemva kokuzalwa kwengane yakho, udokotela wakho angase acele ukuthi kwenziwe i -MRI scan , i -ultrasound yesisu , noma ezinye izikrini zezithombe . Lokhu kungahlola ukusebenza kwezitho zomzimba kanye nobunzima besifo. Esebenzisa lonke lolu lwazi, udokotela wakho uzokwakha uhlelo lokwelapha olungcono kakhulu lwengane yakho.

Iphathwa kanjani i-Cloacal Exstrophy?

Zonke izingane ezisanda kuzalwa ezine-cloacal exstrophy zizodinga ukuhlinzwa . Lokhu kuhlinzwa kuhilela ukubuyisela izitho ezivele ngaphakathi emzimbeni nokuvala izikhala esiswini nasemhlane. Ingane yakho cishe izohlinzwa kaningana phakathi neminyaka eminingana. Lokhu kubizwa ngokuthi ukuvuselelwa kwesigaba .

Ukwelashwa kokuhamba ngokubeletha

Ukwelashwa okufana nalokhu kuqala ngokushesha nje lapho umntwana ezalwa:

• Ukwakha kabusha isinyi, ukubuyisela izitho ngaphakathi esiswini, nokuvala isikhala esiswini.
• Ukudala i- stoma . Lena imbobo esiswini evumela indle ukuthi idlule isuka emathunjini amakhulu. Le ndle iqoqwa esikhwameni esingaphandle (isikhwama se-colostomy). Lesi sikhwama se-colostomy singase sibe sesikhashana, kuze kube yilapho kwenziwa okunye ukuhlinzwa.
• Ukuvala isikhala emgogodleni.

Ukwelashwa ebuntwaneni

Uma ingane isikhulile kancane, okungukuthi, ebuntwaneni, ukwelashwa kwenziwa kanje:

• Ukuhlinzwa kwamathambo (i-osteotomy) kwenziwa ukuze kusikwe amathambo e-pelvic. Lokhu kuvumela i-pelvis ukuthi ivaleke kalula futhi kunikeza ukwesekwa okungcono kwesinye njengoba umntwana ekhula.
• Izitho zokuzala kanye nomgudu womchamo kuyahlelwa kabusha.
• Kudalwa imbobo yendunu. Uma indunu ide ngokwanele, udokotela angenza ukuhlinzwa kokudonsa ukuze axhumanise indunu nendunu. I-stoma ivalwa. Ingane ngeke isadinga isikhwama se-colostomy.

Yiziphi izinkinga ezingavela kulesi simo?

Ngemva kokwelashwa ngokuhlinzwa, iningi lezingane ezine-cloacal exstrophy liphila impilo esebenzayo negcwele . Ezinye izingane zingadinga ukuhlinzwa okwengeziwe njengoba zikhula.

I-cloacal exstrophy ingabangela izimo ezilandelayo zengozi:

• Ukungazali.
• Isifo sezinso, izifo zezinso, amatshe ezinso, kanye nokwehluleka kwezinso.
• Ukungasebenzi kahle kocansi, ukungasebenzi kahle kwe-erectile, njll.
• Ukungakwazi ukuzibamba umchamo kanye nokungakwazi ukuzibamba indle.

Izinto okufanele uzibuze udokotela wakho

Ungabuza udokotela wengane yakho izinto ezifana nalezi:

• Ingabe ingane yami isengozini enkulu yokuba nezinye izimo zempilo?
• Yikuphi ukwelashwa okungcono kakhulu kwe-Cloacal Exstrophy?
• Zingaki ukuhlinzwa ingane yami ezodinga?
• Yiziphi izinkinga okufanele ngiziqaphele ngemva kokuhlinzwa?
• Angakanani amathuba okuba ingane yami elandelayo nayo ibe ne-Cloacal Exstrophy?

Kuvamile ukuzizwa wesaba futhi ukhathazekile lapho uthola ukuthi ingane yakho ine-Cloacal Exstrophy, noma i-OEIS syndrome. Kodwa khumbula, awuwedwa.

Into ebaluleke kakhulu okufanele uyikhumbule

Kungokwemvelo ukuzizwa ukhungathekile futhi wesaba lapho uthola ukuthi ingane yakho ine-Cloacal Exstrophy. Kodwa ungakhathazeki . Odokotela bakho kanye nethimba lezokwelapha bakulungele ukukusiza wena kanye nengane yakho. Ingane yakho izodinga ukuhlinzwa okuningana ngemva nje kokuzalwa, bese kuba nokuhlinzwa okwengeziwe ukuze kulungiswe kabusha izitho zomzimba.

Kodwa into engcono kakhulu ukuthi, ngokwelashwa okufanele, iningi lezingane ezizalwa nalesi simo liphila impilo evamile nejabulisayo . Khuluma nodokotela wakho nganoma yimiphi imibuzo noma ukukhathazeka ongase ube nakho. Bazokuchazela konke.

I- Cloacal Exstrophy, Ukukhubazeka Kokuzalwa, I-OEIS Complex, I-Omphalocele, I-Bladder Exstrophy, Ukuhlinzwa Kwezingane