Cabanga ukuthi ngokuzumayo uthola kunzima ukuvuka esihlalweni, noma uma uphakamisa isandla sakho ukuze uhlanganise izinwele zakho, kuzwakala sengathi isandla sakho siphelelwe amandla. Ngesikhathi esifanayo, kuvela amabala amancane ansomi azungeze amehlo akho, entanyeni yakho, nasesifubeni sakho. Ingabe lokhu kuye kwenzeka kuwe? Ungase ucabange ukuthi lokhu kumane nje kuwukukhathala okuvamile. Kodwa ngezinye izikhathi kungaba uphawu lwesimo esibi kakhulu nesingavamile esibizwa ngokuthi i-Dermatomyositis . Ungakhathazeki, sizoxoxa ngakho konke ngamagama alula.
Kuyini i-Dermatyositis?
Kalula nje, i-Dermatyositis yisimo esingavamile esenza buthaka imisipha emzimbeni wethu futhi sibangele ukuqubuka kwesikhumba. Singesinye sezifo (i-myopathy) ezithinta imisipha. Lesi sifo ngezinye izikhathi singadala izimo ezingathi sína njengobunzima bokuphefumula nokugwinya.
Lezi zimpawu zingase zikhule kancane kancane ngemva kwezinyanga kwabanye abantu. Kodwa kwabanye, zingase zivele ngokuzumayo. Ngakho-ke uma unezinye zalezi zimpawu, kubalulekile ukubona udokotela wakho ngokushesha okukhulu. Uma siqala ukwelashwa ngokushesha, amathuba okugwema izinkinga ezinkulu ayanda.
Akuvamile kakhulu, ikakhulukazi phakathi nonyaka wokuqala ngemva kokuqala kwezimpawu, lesi sifo singaba yingozi. Futhi kwandisa ingozi yokuthola izinhlobo ezithile zomdlavuza.
Uyini umehluko phakathi kwe-Dermatyositis ne-Lupus?
Kungenzeka ukuthi uke wezwa ngesifo esibizwa ngokuthi i-lupus. I-Dermatyositis ifana ne-lupus nezinye izifo ezizimele. Kodwa-ke, kukhona umehluko ocacile phakathi kwalezi ezimbili. Njengoba imbangela eqondile ye-dermatomyositis ingakaziwa okwamanje, ayihlukaniswa njengesifo esizimele.
Ake sibheke leli thebula ukuze sicacise kabanzi umehluko.
| Isici | I-Lupus | I-Dermatyositis |
|---|---|---|
| Izimpawu eziyinhloko | Ubuhlungu bamalunga, ukuzwela kwesikhumba kanye nokuqubuka, imiphumela ezithweni zangaphakathi (ubuchopho, amaphaphu, izinso). Izimpawu ziyavela zidlule. | Ubuthakathaka bemisipha kanye nokuqubuka kwesikhumba okuthile. Ukulimala kwemisipha. |
| Ukuxilongwa | Kususelwa ekuhlolweni kwegazi okuqondile kanye nezimpawu. | Ukuhlolwa kwegazi, ukuhlolwa kwesikhumba nemisipha, kanye nokuskena. |
Kubalulekile ukuxilonga nokwelapha zombili lezi zimo ngokushesha okukhulu. Uma uthola izimpawu ezintsha, bheka udokotela ngokushesha.
Ubani onamathuba amaningi okuthola lesi sifo?
Noma ubani angaba ne-dermatomyositis, kodwa amanye amaqembu asengozini enkulu.
- Kwabantwana abaneminyaka ephakathi kwemi-5 neyi-15 ubudala.
- Kwabantu abadala abaneminyaka ephakathi kuka-40 no-60 ubudala.
- Abesifazane banamathuba amaningi okubona lesi sifo kunabesilisa.
Kodwa khumbula, lesi yisifo esingavamile kakhulu . Ngokwesilinganiso, cishe umuntu oyedwa kwabayizinkulungwane eziyikhulu uthola lesi sifo minyaka yonke.
Lesi sifo siwuthinta kanjani umzimba kanye nengozi yomdlavuza?
I-dermatomyositis yisimo esingakuthinta impilo yakho yonke. Uma umonakalo emisipheni yakho unzima, ungase ungakwazi ukusebenzisa ingxenye yomzimba wakho kahle, okungaholela ohlotsheni oluthile lokukhubazeka. Lokhu kuvame ukwenzeka phakathi neminyaka, kodwa kwabanye abantu, lobu buthakathaka bemisipha bushesha kakhulu.
Ngaphezu kwalokho , ingozi enkulu kakhulu ingozi yomdlavuza.
Ucwaningo lubonisa ukuthi cishe abantu abayi-15% abane-dermatomyositis basengozini yokuthola uhlobo oluthile lomdlavuza kamuva ekuphileni.
Izinhlobo ezivame kakhulu zomdlavuza ezibonakala ngalesi sifo yilezi:
- Umdlavuza wesibeletho
- Umdlavuza wamaphaphu
- I-Lymphoma
- Umdlavuza webele
- Umdlavuza wamathumbu amakhulu
Ngakho-ke, uma utholakale unalesi sifo, kubaluleke kakhulu ukukhuluma ngokukhululekile nodokotela wakho mayelana nengozi yakho yomdlavuza kanye nokuhlolwa okufanele kwenziwe ngenxa yaso.
Ziyini izimpawu ze-dermatomyositis?
Izimpawu ezimbili eziyinhloko zalesi sifo ubuthakathaka bemisipha kanye nokuqubuka kwesikhumba.Kwabanye abantu, zombili lezi zimpawu zivela ngesikhathi esisodwa. Kwabanye, esinye isibonakaliso sivela amasonto, izinyanga, noma ngisho neminyaka ngemva kwesinye.
Ake sibheke lezi zici ngemininingwane ethe xaxa.
| Uhlobo oluyisici | Incazelo nezibonelo |
|---|---|
| Ubuthakathaka bemisipha | Lobu buthakathaka bungenza kube nzima ukwenza imisebenzi yansuku zonke. Isibonelo:
|
| Ukuqhuma kwesikhumba | Lezi zilonda zivela ikakhulukazi ezindaweni ezivezwe elangeni. Zinombala onsomi-opinki futhi zingase zivuvuke kancane. Izindawo ezivame kakhulu yilezi:
|
| Ezinye izici |
|
Abanye abantwana baqala ukuba nalesi sifo futhi izimpawu ziyanyamalala ngokuphelele njengoba bekhula. Kodwa-ke, ku-80% weziguli, kuyisimo sokuphila konke (esingamahlalakhona). Lokhu kusho ukuthi izimpawu ziyabuya ngezikhathi ezithile.
Yini ebangela lokhu?
Eqinisweni, ochwepheshe abakayazi imbangela eqondile ye-dermatomyositis, kodwa kunezici eziningana okucatshangwa ukuthi zibangela lokho.
- Izici zofuzo: Ezinye izifundo zibonisa ukuthi lokhu kungaba yisimo sofuzo esidluliselwa esizukulwaneni kuya kwesinye.
- Izinkinga zokuzivikela komzimba: Njengoba sixoxile ngaphambili, lokhu kufana nezifo zokuzivikela komzimba. Lokhu kusho ukuthi isimiso somzimba sokuzivikela somzimba, esivikela umzimba wethu, singase sihlasele ngephutha amangqamuzana ethu emisipha nesikhumba aphilile.
- Ukutheleleka ngegciwane: Ubufakazi obuthile busikisela ukuthi ukutheleleka ngegciwane, uma sekuphelile, kungabangela ukukhula kwe-Dermatyositis.
- Izici zemvelo: Ezinye izifundo zithole ukuthi ukuhlala ezindaweni ezinekhwalithi yomoya ephansi nakho kungaba nomthelela ekuthuthukisweni kwalesi sifo.
Ungasithola kanjani lesi sifo?
Ngemva kokuba udokotela wakho elalele izimpawu zakho, uzoyala ukuhlolwa okuningana ukuqinisekisa ukuthi unesifo.
| Indlela yokuhlola | Ubonani kulokho? |
|---|---|
| Ukuhlolwa kwegazi | Bafuna amazinga aphezulu ama-enzyme aqongelela egazini lapho imisipha yonakele, kanye nama- autoantibodies abonisa ukusebenza kwesimiso somzimba sokuzivikela. |
| Ukuhlolwa kwebhayoloji | Kuthathwa ingxenye encane kakhulu yezicubu esilondeni sesikhumba kanye nasemisipheni bese ihlolwa ngaphansi kwe-microscope. Lokhu kungaqinisekisa ukuthi kukhona yini ukuvuvukala ngaphakathi kwemisipha. |
| Ukuhlolwa kwezithombe | Kungenziwa i -MRI (Magnetic Resonance Imaging) noma i-X-ray yesifuba ukuhlola isimo semisipha, imizwa, amaphaphu, nezinye izitho zomzimba. |
| Ukuhlolwa kwe-EMG | I-Electromyography (EMG) ukuhlolwa okulinganisa umsebenzi kagesi wemisipha nezinzwa. Lokhu kungasiza ekunqumeni ukuthi ubuthakathaka bemisipha bubangelwa yisifo ngokwaso noma esinye isizathu. |
Yiziphi izindlela zokwelapha i-dermatomyositis?
Nakuba i-dermatomyositis ingelapheki, kunezindlela eziningi zokwelapha ezisebenzayo ezingasiza ekulawuleni izimpawu, ukunciphisa ukulimala kwemisipha, futhi zikusize uphile impilo evamile. Udokotela wakho uzokhetha ukwelashwa okufanele kakhulu ngokusekelwe ohlotsheni kanye nobukhali bezimpawu zakho.
- Ama-Corticosteroids: Le mithi inciphisa ukuvuvukala emisipheni.
- Ukwelashwa ngokomzimba: Uma imisipha yonakele, ukuvivinya umzimba kanye nokwelashwa ngokomzimba kubaluleke kakhulu ukuze kuqiniswe futhi. Uma imisipha iqina, kulapho imelana khona nokulimala ngenxa yalesi sifo.
- Imithi yokucindezela amasosha omzimba: Le mithi ivimba amasosha omzimba ekuhlaseleni amaseli anempilo.
- I-immunoglobulin efakwa ngemithambo yegazi (IVIg): Lokhu kuyindlela yokwelapha lapho i-immunoglobulin, ingxenye yegazi lethu, inikezwa khona ngaphandle emzimbeni, njenge-saline. Lokhu kusiza ukulawula ukungasebenzi kahle kwesimiso somzimba sokuzivikela.
- Ukwelashwa ngenkulumo: Uma imisipha emphinjeni ibuthakathaka futhi yenza kube nzima ukuyigwinya, ukwelashwa ngenkulumo kungasiza ekuqiniseni leyo misipha.
Ungazilawula kanjani izimpawu?
Ukuphila nalesi sifo kuwuhambo olude, ngakho-ke ukulawula izimpawu kubaluleke kakhulu.
- Ungayeki ukuzivocavoca: Yenza izivivinyo udokotela wakho noma uchwepheshe wezokwelapha umzimba akunikeza zona njengoba nje bekutshela. Lokhu kuzosiza ekugcineni imisipha yakho iqinile.
- Sebenzisa imithi ngendlela efanele: Thatha imithi oyinikezwe udokotela wakho ngesikhathi esifanele.
- Zivikele elangeni: Lokhu kubaluleke kakhulu. Imisebe ye-ultraviolet (UV) elangeni ingabangela umonakalo esikhumbeni. Ngakho-ke, nciphisa isikhathi sakho elangeni. Uma uphuma,Sebenzisa isithako esihle sokuvikela ilanga esine-SPF okungenani engu-50+. Phinda usifake njalo emahoreni amabili.
- Bona udokotela wakho njalo: Kufanele ubonane nodokotela njalo ukuze uqaphe izimpawu zakho futhi ubone ukuthi isimo sakho siyashintsha yini.
Izinto ezengeziwe okufanele uzazi ngalesi sifo
Kuvamile ukuzizwa wesaba uma utholakala une-dermatomyositis. Kungaba yinto eshaqisayo ukwazi ukuthi yisifo esingaba khona impilo yonke, esingaba yingozi. Kodwa khumbula, uma usheshe utholakale futhi uqala ukwelashwa, amathuba akho okuphila kahle ayanda.
Nakuba kungekho ukwelashwa kwalesi sifo, abantu abangu-80% bahlala begula isikhathi eside benezimpawu. Kodwa-ke, ngokwelashwa, cishe abantu abangu-20% bangafinyelela ukuphulukiswa kwesikhathi eside ngaphandle kwezimpawu.
Ingozi yokufa iphansi kakhulu njenge-5%. Kodwa-ke, ezinye izici zingandisa le ngozi:
- Ukuphuza ukuqala ukwelashwa ngezinyanga ezingaphezu kweziyisithupha.
- Ukuba neminyaka engaphezu kwengu-60 ubudala.
- Ukuba nezimpawu ezinzima.
- Isifo esithinta umphimbo, amaphaphu, noma inhliziyo.
- Ukuba nomdlavuza noma ukuqala omusha.
Kufanele ngimbone nini udokotela?
Uma uzwa ubuthakathaka obusha bemisipha, ikakhulukazi uma buhambisana nokuqubuka kwesikhumba, bona udokotela wakho ngokushesha. Njengoba sesishilo ngaphambili, uma ungathola ukwelashwa ngokushesha, kulapho ungagwema khona izinkinga ezinkulu ngokushesha.
Ungakhohlwa ukubuza le mibuzo uma ubona udokotela wakho:
- Ingabe ngine-Dermatyositis noma esinye isifo?
- Yiziphi izivivinyo okudingeka ngizenze?
- Yiziphi izindlela zokwelapha engizidingayo futhi ngizozidinga isikhathi esingakanani?
- Ingabe ngidinga ukuhlolwa umdlavuza?
Yenza uhlelo nodokotela wakho mayelana nohambo lwakho lokwelashwa. Lokhu kuzokunikeza ukuqonda okungcono ngalokho okufanele ukulindele ngokulandelayo nokuthi yini okufanele uyenze uma izimpawu zakho ziba zimbi kakhulu.
Umlayezo Wokuya Nawe Ekhaya
- I-Dermatyositis yisimo esingavamile esibangela ubuthakathaka bemisipha kanye nezilonda ezithile zesikhumba.
- Kubaluleke kakhulu ukubona udokotela ngokushesha okukhulu uma ubona izimpawu. Ukwelashwa okusheshayo kungavimbela izinkinga ezinkulu.
- Njengoba lesi sifo ngokuvamile sihlala isikhathi eside, kudingeka ukuphathwa isikhathi eside.
- Kubalulekile ukuphuza imithi njengoba kuqondiswe udokotela wakho, ukwenza izivivinyo zokwelapha ngokomzimba, futhi ikakhulukazi ukuzivikela elangeni.
- Lesi sifo singandisa ingozi yakho yokuba nomdlavuza, ngakho khuluma nodokotela wakho ngaso kanye nanoma yiziphi izivivinyo ezidingekayo.
💬 Comments (0)
No comments yet. Be the first to share your thoughts here.
Add Your Comment