Namuhla sizokhuluma ngokwelashwa okuyinkimbinkimbi, kodwa okwesimanje kakhulu abantu abaningi abangakaze bakuzwe. Igama lakhona yi-Elivaldogene Autotemcel. Kuthengiswa ngaphansi kwegama elithi SKYSONA. Leli akulona iphilisi noma i-capsule evamile. Lokhu kuyindlela ethile yokwelapha isimo sezinzwa esingavamile futhi esibucayi esibizwa ngokuthi i-cerebral adrenoleukodystrophy (CALD). Ake sichaze lokhu kwelashwa ngendlela elula ongayiqonda.
Kwenzekani ngempela ngalo muthi?
Ukuze siqonde lokhu, ake sithathe isibonelo esincane. Cabanga ukuthi amangqamuzana ezinzwa ebuchosheni bethu nasemgogodleni afana nezintambo zikagesi. Lezi zintambo zikagesi zine-sheath yepulasitiki (insulation) ezizungezile, okusiza ugesi ukuthi uhambe kahle ngaphandle kokuvuza. Ngokufanayo, amangqamuzana ethu ezinzwa nawo ane-sheath evikelayo ebizwa ngokuthi 'i-myelin' ezungeze wona. Le sheath yiyo evumela imiyalezo yezinzwa ukuthi ihambe ngokushesha nangokunembile.
Esifweni esibizwa ngokuthi i-cerebral adrenoleukodystrophy (CALD), isici sofuzo sivimbela umzimba ekukhiqizeni iphrotheni edingekayo ukuze kulondolozwe lesi sigxobo 'se-myelin'. Lesi sigxobo esivikelayo sibe sesibhujiswa kancane kancane, okuphazamisa ukusebenza kwesimiso sezinzwa.
Kalula nje, lokhu kwelashwa, okubizwa ngokuthi i-Elivaldogene Autotemcel, kuhilela ukuthatha amaseli emzimbeni wesiguli, ukuwaguqula ngofuzo elebhu, bese ebanika ikhono lokukhiqiza iphrotheni engekho. Amaseli aguquliwe abe esefakwa emzimbeni wesiguli. Lokhu kubizwa nangokuthi ukwelashwa ngofuzo . Lokhu kusiza ukulawula ukuwohloka kwezimpawu.
Izinto udokotela wakho okufanele azazi ngaphambi kokuqala lokhu kwelashwa
Ngenxa yokuthi lokhu kuyindlela yokwelapha eyinkimbinkimbi kakhulu, kubalulekile ukuthi ithimba lakho lezokwelapha liqaphele ngokugcwele isimo sakho sempilo. Ngaphambi kokuqala ukwelashwa, kufanele utshele udokotela wakho uma unezinye zalezi zimo:
- Uma okwamanje unesifo esithile (njengomkhuhlane, umkhuhlane, ukukhwehlela).
- Uma une -allergies kulo muthi (i-elivaldogene autotemcel), eminye imithi, ukudla, udayi, noma izithasiselo.
- Uma ukhulelwe noma uzama ukukhulelwa .
- Uma uncelisa ingane yakho .
Ukwelashwa kunikezwa kanjani?
Lokhu akulona ikhambi lasekhaya. Lokhu kwelashwa kunikezwa esibhedlela noma emtholampilo okhethekile yithimba lezokwelapha eliqeqeshiwe.
Lomuthi ufakwa emzimbeni njengosawoti ngemithambo yegazi. Yonke inqubo yenziwa ngaphansi kokuqapha okuseduze kodokotela nabahlengikazi.
Ngaphambi kokwelashwa kwakho, uzonikezwa incwajana yolwazi ekhethekile ebizwa ngokuthi i-MedGuide . Iqukethe ulwazi oluningi olubalulekile ngalo muthi, inqubo kanye nezingozi. Kubaluleke kakhulu ukuwufunda nokuwuqonda ngokucophelela.
Lokhu kwelashwa kunikezwa nezingane ezingaphezu kweminyaka engu-4 ubudala, kodwa kucatshangelwa izinyathelo zokuphepha ezikhethekile kanye nemigomo.
Kuthiwani uma uphuza umuthi omningi kakhulu?
Njengoba lokhu kunikezwa ngaphansi kokuqashwa kwezokwelapha esibhedlela, amathuba okuba lokhu kwenzeke mancane kakhulu. Kodwa-ke, uma kukhona okusolakala ukuthi lokhu kwenzekile, iNational Poisons Information Centre eColombo National Hospital noma i -Emergency Treatment Unit (ETU) yesibhedlela kufanele yaziswe ngokushesha.
Izinto okufanele uzicabangele ngesikhathi nangemva kokwelashwa
Ngemva kokuthola lokhu kwelashwa, odokotela bazoqapha impilo yakho njalo. Ngenxa yalokhu, kuzodingeka unakekele ngokukhethekile izinto ezithile.
- Umsebenzi Wegazi: Ngemva kokwelashwa, kuzodingeka ukuthi igazi lakho lihlolwe njalo. Lokhu kuzohlola ukuthi ukwelashwa kuyasebenza yini, ukuthi amaseli amasha asebenza kahle yini, nokuthi ngabe kukhona yini imiphumela emibi.
- Ingozi yokutheleleka: Lokhu kwelashwa kungase kwenze amasosha omzimba wakho abe buthaka okwesikhashana, okwandisa ingozi yokutheleleka. Uma uba nezimpawu ezifana nomkhuhlane, ukubanda, ukukhwehlela, noma umphimbo obuhlungu , ungaziphilisi. Shayela ithimba lakho lezempilo ngokushesha . Futhi, zama ukuhlala kude nabantu abagulayo ngangokunokwenzeka.
- Ukunikela ngegazi: Awukwazi ukunikela ngegazi ngemva kokuthola lokhu kwelashwa.
- Ingozi yomdlavuza: Ngezindlela zokwelapha izakhi zofuzo zesimanje ezinjengalezi, kunengozi encane kakhulu yokuthola izinhlobo ezithile zomdlavuza wegazi. Ungakhathazeki ngalokhu, kodwa khuluma ngokukhululekile ngale ngozi nokuthi izoqashwa kanjani nodokotela wakho.
- Iseluleko esikhethekile samadoda: Uma uyindoda ethola lokhu kwelashwa, kufanele usebenzise ikhondomu uma uya ocansini nowesifazane ongase abe nomntwana. Le ndlela yokuzivikela kufanele ilandelwe izinyanga eziyisithupha ngemuva kokwelashwa. Uma usola ukuthi umlingani wakho ukhulelwe phakathi nalesi sikhathi, yazisa udokotela wakho ngokushesha.
Yimiphi imiphumela emibi engaba khona?
Njenganoma yimuphi umuthi, lokhu kwelashwa kungabangela imiphumela emibi. Eminye yayo idinga ukunakekelwa kwezokwelapha okusheshayo, kanti eminye ingaba yinto evamile.
| Umphumela ongemuhle | Incazelo / Izimpawu |
|---|---|
| Imiphumela emibi kakhulu okufanele ibikwe kudokotela ngokushesha | |
| Ukusabela kokungezwani komzimba | Ukuqubuka kwesikhumba, ukulunywa, ukuvuvukala kobuso, izindebe, ulimi noma umphimbo. |
| Ukopha | Igazi elisesihlahleni noma esihlahleni esimnyama, ukuhlanza okufana nokugayiwe kwekhofi, umchamo obomvu noma onsundu omnyama, amabala amancane abomvu/onsomi esikhumbeni, kanye nokushaqeka okuncane. |
| Ukutheleleka | Umkhuhlane, ukubanda, ukukhwehlela, umphimbo obuhlungu. |
| Izimpawu zesifo sokuwa (Ukuquleka) | Ukuba nesimo sokuquleka ( ukuxhuzula ). |
| Imiphumela emibi evame ukungabi yingozi, kodwa okufanele ibikwe kudokotela uma iqhubeka | |
| Izinkinga zesistimu yokugaya ukudla | Ukuqunjelwa, ubuhlungu besisu, uhudo, ukuhlanza, isicanucanu. |
| Ezinye izifo ezincane | Ukulahlekelwa yisifiso sokudla, ikhanda elibuhlungu, izilonda emlonyeni noma emphinjeni kanye nobuhlungu. |
Lolu hlu aluhlanganisi yonke imiphumela emibi engaba khona. Ngaphezu kwalokho, uma uhlangabezana nanoma yiziphi izimpawu ezingavamile, khuluma nodokotela wakho ngazo.
Umlayezo Wokuya Nawe Ekhaya
- I-Elivaldogene Autotemcel (SKYSONA) iyindlela yokwelapha izakhi zofuzo eqondile kakhulu yesifo esingavamile i-Cerebral Adrenoleukodystrophy (CALD).
- Lokhu kwelashwa kunikezwa esibhedlela ngaphansi kokuqondisa kwethimba lodokotela abangochwepheshe.
- Ngaphambi kokwelashwa, qiniseka ukuthi utshela udokotela wakho yonke imininingwane yakho yezempilo (ikakhulukazi izifo, ukungezwani komzimba).
- Qaphela kakhulu izimpawu ezifana nokutheleleka kanye nokopha ngemva kokwelashwa. Uma unemibuzo, yazisa udokotela wakho ngokushesha.
- Amadoda athola ukwelashwa kudingeka asebenzise ikhondomu ngesikhathi socansi sonke isikhathi sokwelashwa.
- Ungesabi ukukhuluma nodokotela wakho nganoma yimiphi imibuzo noma ukukhathazeka ongase ube nakho.
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