Uke waphawula umbala ongajwayelekile emzimbeni wengane yakho futhi ukhathazekile? Mhlawumbe uzizwa unzima kancane uma uthinta indawo. Ungase ucabange ukuthi kuyinkinga yesikhumba evame ukwenzeka ezinganeni, kodwa ungase ucabange ukuthi lokhu kuhlukile kancane. Ngezikhathi ezinjengalezi, kubaluleke kakhulu ukuqaphela lokhu. Namuhla sikhuluma ngesimo esenzeka ezinganeni, kodwa abantu abaningi abakaze bezwe ngaso, kodwa kufanelekile ukwazi ngaso.
Iyini i-Juvenile Localized Scleroderma?
Kalula nje, lesi yisimo sokuzivikela komzimba lapho isikhumba sengane siba sikhulu futhi siqine ngendlela engavamile. Elinye igama lalokhu `(Morphea)`.
Igama elithi 'Scleroderma' ngokwalo lakhiwe ngamagama amabili esiGreki. Igama elithi "sclera" lisho 'ukuqina', kanti elithi "derma" lisho 'isikhumba'. Ngakho-ke incazelo yalo ithi "isikhumba esiqinile" . Igama elithi "localized" lisho ukuthi liqondile , okusho ukuthi lithinta kuphela izindawo ezilinganiselwe zomzimba.
Kulungile, manje ake sibone ukuthi lokhu kwenzeka kanjani. Sonke sinesimiso sokuzivikela emizimbeni yethu esisivikela ezifweni. Sikubiza ngokuthi isimiso sokuzivikela. Kodwa kulesi simo, isimiso sokuzivikela somntwana siqu siqala ngephutha ukuhlasela isikhumba sakhe . Ngenxa yalokhu kuhlasela, isikhumba siqala ukuvuvukala (ukuvuvukala). Lokhu kuvuvukala kubangela ukuthi amangqamuzana esikhumbeni akhiqize iphrotheni eningi kakhulu ebizwa ngokuthi i-collagen.
Cabanga ngakho njengesibazi esakheka ngemva kokulimala. Kodwa okwenzekayo lapha ukuthi isikhumba siqina njengesibazi ngaphandle kokulimala. Lokhu sikubiza ngokuthi `(fibrosis)`. Ungakubona lokhu emzimbeni wengane yakho njengendawo eshintshile umbala.
Yiziphi izinhlobo eziyinhloko zalesi sifo?
Kunezinhlobo eziningana ezahlukene zalesi simo, i-Localized Scleroderma. Uhlobo ngalunye lunezimpawu ezihlukile kancane.
| Uhlobo lwesifo | Incazelo |
|---|---|
| I-Circumscribed noma i-Plaque Morphea | Lolu uhlobo oluvame kakhulu. Lubonakala njenge-plaque eyodwa noma ngaphezulu eyindilinga noma efana ne-oval. Lokhu kuthinta kakhulu isikhumba. Ngezinye izikhathi, izicubu ezingaphansi kwesikhumba nazo zingathinteka kancane. |
| I-Linear Morphea | Kulolu hlobo, amabala avela ngendlela efana nomugqa. Kubonakala sengathi othile udwebe umugqa onomugqa. Lokhu kungavela ezingalweni nasemilenzeni yengane. Ingozi yalokhu ukuthi lokhu kuqina kungathinta nemisipha namathambo angaphansi, okwenza kube nzima ukugoba nokuqondisa lawo malunga. Lokhu kungathinta nokukhula kwengane. |
| I-Morphea Ejwayelekile | Kulokhu, kuvela amabala amakhulu angaphezu kwamane ezingxenyeni zomzimba ezingaphezu kwezimbili. Ngokuvamile avela kaningi esiqwini nasemilenzeni. Lawa mabala angahlangana futhi abe makhulu. |
| I-Deep Morphea | Lolu uhlobo olunzima kakhulu nolungavamile. Luthinta izicubu ezijulile ngaphansi kwesikhumba, njengemisipha namathambo. Ingane ingase ibhekane nobuhlungu kulolu hlobo. |
Ziyini izimpawu zalesi sifo?
Kulesi simo, izimpawu ziyashintsha kancane kancane ngokuhamba kwesikhathi. Akusikho lokho okubonayo ekuqaleni, kodwa lokho okubonayo ngemva kwesikhashana. Ake sibone ukuthi la mabala ashintsha kanjani.
- Isigaba sokuqala: Okokuqala, kuvela ibala elibomvu ngokunsomi esikhumbeni sengane. Kuleli qophelo, isikhumba asikaqini.
- Isigaba esiphakathi: Ngemva kwezinsuku ezimbalwa, la mabala ayaqina futhi avuvuke kancane. Isikhungo sendawo siba nombala omhlophe noma ophuzi ofana ne-wax. I-halo epinki noma ensomi ingase ibonakale nxazonke.
- Kamuva: Ngokuhamba kwesikhathi, lokhu kuvuvukala nokuqina kuzophela, futhi isikhumba kulezo zindawo singaba nsundu noma sibe mhlophe futhi silahlekelwe umbala waso.
Ezinye izimpawu ezibonakala ezimweni ezinzima
Kwezinye izimo ezinzima, lesi simo sithinta nezicubu ezingaphansi kwesikhumba, ngakho-ke ezinye izimpawu zingase zivele.
- Ubuhlungu nokungakhululeki.
- Ukunyakaza okulinganiselwe kwamalungu nemisipha.
- Uma la mabala evela ebusweni, angabangela izinkinga ngamazinyo noma ukubona.
Ngisho noma la mabala engase anyamalale ngokwelashwa, ngezinye izikhathi angaphinde aqhume.
Iyini imbangela yalesi simo?
Eqinisweni, imbangela eqondile yalesi simo (i-Scleroderma) ayikatholakali . Kodwa-ke, odokotela bakholelwa ukuthi sibangelwa yinhlanganisela yezici zofuzo kanye nezemvelo.
Lokhu kusho ukuthi ezinye izingane zinohlobo lokusabela kwezakhi zofuzo oluhambisana nalolu hlobo lokusabela kwesistimu yokuzivikela komzimba. Khona-ke, into ethile emvelweni, njengokutheleleka noma ukulimala kwesikhumba, ingabangela lesi simo. Kodwa lesi akusona isifo esithathelwanayo .
Dokotela, ukuxilonga kanjani lokhu?
Uma uyisa ingane yakho kudokotela, into yokuqala ezoyenza ukuhlola ingane ngokucophelela bese ikubuza ngezimpawu zayo. Ngokuvamile, lesi sifo singabonakala ngokubonakala kwamabala esikhumbeni.
Nokho, ukuze kuqinisekiswe ukuxilongwa nokunquma ukujula kwesifo, ngezinye izikhathi kungase kwenziwe izivivinyo eziningana.
- Ukuhlolwa kwesikhumba: Lokhu kuhilela ukuthatha ingxenye encane kakhulu yesikhumba ku-mole bese uyihlola ngaphansi kwe-microscope. Lokhu kukuvumela ukuthi ubone kahle ukuthi yiziphi izinguquko ezenzekile kumaseli esikhumba.
- I-MRI scan: Lokhu kusetshenziselwa ukubona ukuthi ukuqina kwesikhumba kuthinte kangakanani nokuthi ngabe kuthinte imisipha namathambo angaphansi.
Yiziphi izindlela zokwelapha lokhu?
Umgomo oyinhloko wokwelashwa ukulawula ukuvuvukala, ukuvimba isifo ukuthi singasabalali, nokunciphisa ukuqina kwesikhumba. Njengoba uhlobo lwesifo luhlukahluka kuye ngengane, ukwelashwa nakho kuqondene nalowo mntwana.
| Indlela yokwelapha | Incazelo |
|---|---|
| Ama-Corticosteroids | Lena imithi enamandla elawula ukuvuvukala. Inganikezwa njengokhilimu osetshenziswa esikhumbeni, amaphilisi athathwa ngomlomo, noma imijovo emthanjeni. |
| Amanye ama-creams akhethekile | Amafutha anjenge (Calcipotriene, Tacrolimus) alawula futhi anciphise ukusebenza kwesimiso somzimba kuleyo ndawo. |
| Ama-immunomodulating agents | Uma lesi sifo sibi kakhulu, kunikezwa imithi ecindezela amasosha omzimba (njengeMethotrexate, iMycophenolate mofetil). |
| Ukwelashwa okulula (i-Phototherapy) | Ukwelashwa okusebenzisa imisebe ye-ultraviolet (UV) ukuthambisa amabala amnyama esikhumbeni. Kodwa-ke, udokotela uncoma lokhu ngokuqapha okukhulu ngoba kungabangela imiphumela emibi esikhumbeni. |
| Ukwelashwa ngokomzimba | Lokhu kusiza kakhulu ukuqinisa imisipha, ukugcina amalunga esebenza kahle, nokwandisa ukuthamba kwesikhumba. |
Khumbula, imiphumela iba ngcono kakhulu uma lesi sifo sitholakala futhi selashwa kusenesikhathi . Ngakho-ke uma ubona noma yiziphi izinguquko esikhumbeni sengane yakho, bona udokotela ngokushesha.
Njengomzali ungamsiza kanjani ingane yakho?
Kunezinto ezimbalwa ezilula ongazenza ukuze uvikele isikhumba somntwana wakho.
- Gwema ukusebenzisa insipho kanye nezinsipho ezinephunga elinamandla.
- Sebenzisa njalo ama-moisturizer athambile afanele isikhumba esibucayi.
- Uma ugeza, sebenzisa amanzi afudumele esikhundleni samanzi ashisayo.
- Ukusebenzisa i-humidifier ukugcina umswakama emoyeni ekhaya kungasiza ekuvimbeleni isikhumba esomile.
- Uma uphuma, qiniseka ukuthi ugqoka isivikelo selanga ukuze uzivikele elangeni.
Lesi simo siyithinta kanjani impilo yengane?
Ungase wesabe ukuzwa ngalokhu, kodwa injabulo yangempela ukuthi izingane ezinalesi simo zingaphila impilo evamile nejabulisayo .
- Isikhathi Sokuphila: Lesi sifo asisithinti isikhathi sokuphila kwengane nganoma iyiphi indlela. Ungakhathazeki ngaso.
- Impilo yansuku zonke: Akukho sithiyo enganeni sokuya esikoleni, ukudlala, ukudlala imidlalo, nokuhlanganyela kweminye imisebenzi njengenjwayelo. Eqinisweni, ukuzivocavoca kusiza ukuqinisa imisipha.
- Ukudla: Akudingi ukudla okukhethekile. Ukudla okunomsoco nokulinganiselayo kwanele.
- Impilo yengqondo:Ngezinye izikhathi, ingane ingase izizwe ingakhululekile noma inamahloni emphakathini ngenxa yokushintsha kokubukeka kwesikhumba sayo. Ngaleso sikhathi, kubaluleke kakhulu ukuthi uyiqonde, uyinike ukuzethemba, futhi uchaze ukuthi lokhu akulona iphutha layo.
Umlayezo Wokuya Nawe Ekhaya
- I-Juvenile Localized Scleroderma yisimo esingavamile kodwa esingesibi kakhulu esibangela ukuqina kwesikhumba ezinganeni.
- Lokhu kungenxa yokungasebenzi kahle kwesimiso sethu somzimba sokuzivikela. Lesi akusona isifo esithathelwanayo.
- Uma ubona indawo emnyama esikhumbeni sakho eshintshile umbala, kubaluleke kakhulu ukubonana nodokotela ngokushesha ngaphandle kokulibala.
- Lesi simo singalawulwa kahle ngokwelashwa okuhle, futhi asithinti isikhathi sokuphila kwengane.
- Uthando, ukwesekwa, kanye nesikhuthazo sabazali kungamandla amakhulu engane ukuze iphile ngempumelelo nalesi simo.
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