Ingabe ibunzi lomntwana wakho libukeka njengonxantathu? Ake sifunde nge-Metopic Craniosynostosis.

Ingabe kukhona okukuqaphelile okuhlukile ngesimo sekhanda lomntwana wakho, ikakhulukazi ebunzini, mhlawumbe isimo esingunxantathu? Kuvamile ukuthi umama noma ubaba azizwe ekhathazekile kancane uma ebona into efana naleyo. Ukuze siphendule imibuzo ephakama engqondweni yakho ngezikhathi ezinjalo, namuhla sizokhuluma ngesimo esibizwa ngokuthi i-Metopic Craniosynostosis. Ngezinye izikhathi lokhu kubizwa nangokuthi i-Trigonocephaly.

Kuyini i-Metopic Craniosynostosis?

Kalula nje, i-metopic craniosynostosis iyisici sokuzalwa . Kwenzeka lapho amathambo amabili angaphambili ekhanda lomntwana, noma ugebhezi, ehlangana ngaphambi kwesikhathi (ukuhlanganiswa kwangaphambi kwesikhathi), kungaba sesibelethweni noma ekuzalweni. Cabanga ngakho, ugebhezi lwethu alwenziwanga ngethambo elilodwa, kodwa kunezingcezu eziningana zamathambo. Lezi zingcezu zamathambo zixhunywe komunye nomunye ngento ebizwa ngokuthi "ama-sutures." Lezi zingcezu zifana nezindawo lapho amathambo akhula khona. Njengoba ubuchopho bomntwana bukhula, lezi zingcezu zisiza ugebhezi ukuba lukhule ukuze lukwazi ukulunakekela.

Manje, uma kwenzeka i-metopic craniosynostosis, umthungo ophakathi kwamathambo amabili angaphambili, obizwa ngokuthi "i-metopic suture," uyavaleka ngaphambi kokuba ubuchopho bomntwana bukhule ngokugcwele. Yilapho ibunzi lomntwana liba nesimo esingunxantathu. Lokhu kubizwa nangokuthi i-trigonocephaly.

Sivame kangakanani lesi simo?

Ucwaningo lwamuva nje lubonisa ukuthi i-metopic craniosynostosis ingaba uhlobo lwesibili oluvame kakhulu lwe-craniosynostosis. Kodwa-ke, ukwenzeka kwayo kuyahlukahluka kuye ngezwe. Emazweni afana ne-United States, kulinganiselwa ukuthi lesi simo sithinta noma yikuphi kusukela koyedwa kwabangu-700 kuya koyedwa kwabangu-15,000 abasanda kuzalwa.

Ziyini izimpawu zalokhu?

Ingane ene-metopic craniosynostosis ingabonisa lezi zimpawu ezilandelayo:

• Ukukhula okungavamile kwekhanda lomntwana kanye namathambo obuso .
• Ubuchopho bucindezelwa ngaphakathi kwekhanda lomntwana, okusho ukwanda kwengcindezi yangaphakathi kwekhanda .
• Izinkinga zokubona .

Ukubukeka komntwana kushintsha kanjani?

Lesi simo sithinta indlela izici zobuso zengane ezikhula ngayo. Kungabukeka kanje:

• Inebunzi elincane, elicijile, elinonxantathu .
• Amehlo abonakala sengathi asondelene .
• Kubukeka sengathi amashiya ami aphakanyisiwe .
• Ingemuva lekhanda libonakala libanzi .

Cabanga nje, kubonakala sengathi ibunzi lomntwana liphuma phakathi.

Kungani lokhu kwenzeka? Yiziphi izizathu?

Imbangela eyinhloko ye-metopic craniosynostosis ukuhlangana kwamathambo angaphambili ngaphambi kokuba ubuchopho bukhule ngokugcwele .Lokho kusho ukuthi ihlangana kusenesikhathi. Kodwa odokotela abakasitholi isizathu esiqondile sokuthi kungani la mathambo ehlangana ngokushesha kangaka. Kodwa-ke, ucwaningo lubonisa ukuthi izici eziningana zingadlala indima:

• Izinguquko zofuzo (isibonelo, izinguquko zofuzo zezakhi zofuzo ze-FREM1 kanye ne-SMAD6).
• Njengomphumela omubi wemithi ethile ethathwa ngumama ngesikhathi sokukhulelwa (isb., imithi efana ne-valproic acid kanye ne-clomiphene citrate).
• Umama unesifo se-thyroid .
• Indawo yengane esibelethweni .
• Njengophawu lwesinye isimo sofuzo, njenge-Williams syndrome.

Ubani osengozini enkulu yalokhu?

Ingozi yakho yokuba nengane ene-metopic craniosynostosis inganda uma:

• Uma ukhulelwe amawele .
• Uma unesifo esingaqondakali njengesifo se-thyroid noma isifo sikashukela .
• Uma uthatha imithi ethile yesifo esifana nesifo sokuwa.
• Uma usebenzisa imikhiqizo kagwayi .

Ukuze ufunde kabanzi ngengozi yokuthola umntwana onesici sokuzalwa, bheka udokotela wakho ukuze uthole ukwelulekwa ngaphambi kokukhulelwa. Ungathola iseluleko esinganciphisa ingozi yakho yokuthola umntwana onesici sokuzalwa .

Yiziphi izinkinga ezingabangelwa yilokhu?

Izinkinga ze-metopic craniosynostosis zingase zingabonakali kuze kube yilapho ingane isikhulile futhi iqala isikole. Izinkinga ezivame kakhulu yilezi:

• Ukulibaziseka kokukhula (inkulumo kanye nolimi noma amakhono okunyakaza).
• Izinkinga zokuthuthukiswa kwengqondo .
• Izinguquko zokuziphatha (njengokucasuka).
• Izimpawu zokwanda kwengcindezi yangaphakathi kwekhanda ( kufaka phakathi ikhanda elibuhlungu kanye nezinkinga zokubona).
• Ikhanda likhula kancane uma liqhathaniswa nezinye izingxenye zomzimba.

Odokotela bakuthola kanjani lokhu?

Ngezinye izikhathi, udokotela angase asole lokhu ngesikhathi sokuhlolwa kwe-ultrasound ngaphambi kokubeletha phakathi nezinyanga zesibili nezesithathu zokukhulelwa. Kodwa-ke, ngokuvamile, lesi simo sitholakala ngesikhathi sokuhlolwa ngokomzimba kosana olusanda kuzalwa ngemva kokuzalwa komntwana .

Udokotela uzohlola ngokucophelela ikhanda lomntwana kusukela phezulu (i-vertex) kuya ohlangothini lobuso. Uma, uma ulibuka ngamehlo enyoni, ikhanda lomntwana liba nesimo esingunxantathu noma esiyindilinga esikhundleni sesimo esiyindilinga, lingatholakala njengesimo esibizwa ngokuthi i-trigonocephaly.

Ukuhlolwa okufana ne -X-ray noma i-CT scan (i-Computed Tomography - i-CT scan) kwenziwa futhi ukuze kufundwe kabanzi ngesimo samathambo ekhanda lomntwana. Ulwazi olutholakala kulezi zivivinyo lusiza ekuhleleni ukwelashwa.

Lesi simo singaba sibi kangakanani?

Ubukhali be-metopic craniosynostosis bungahlukahluka kumuntu nomuntu. Ubukhali bunqunywa ubukhulu be-engeli edalwa ukuhlangana okusheshayo kwamathambo ekhanda. Isibonelo:

• Ezimweni ezincane, kukhona ushintsho oluncane kuphela esimweni sebunzi.
• Ezimweni ezimbi kakhulu, ibunzi liba bukhali kakhulu, libe nesimo esingunxantathu noma esiyindilinga.
• Ithuba elilinganiselwe likhona phakathi kwalaba ababili.

Kuphathwa kanjani lokhu?

Uma i-metopic craniosynostosis incane , noma uma kukhona umugqa we-metopic ovele ngaphandle kokukhubazeka okukhulu kwebunzi, ukwelashwa kungase kungadingeki .

Kodwa-ke, uma i-trigonocephaly iphakathi noma inzima, ukuhlinzwa kungenziwa ukuze kulungiswe kabusha ikhanda lomntwana futhi kuhlinze ubuchopho isikhala esidingekayo ukuze bukhule . Uma kudingeka, ukuhlinzwa kunganciphisa nokucindezeleka ebuchosheni.

Kunezinhlobo ezimbili eziyinhloko zokuhlinzwa zokwelapha i-metopic craniosynostosis:

1. Ukuhlinzwa okusiza nge-endoscopic:

• Lokhu kuhlinzwa kwenziwa ezinganeni ezincane, ngokuvamile ngaphambi kwezinyanga ezine ubudala, futhi isikhathi esiphezulu singezinyanga eziyisithupha .
• Udokotela ohlinzayo wenza inxeba elincane ebunzini lomntwana, lapho kuqala khona izinwele.
• Ngemuva kwalokho, kusetshenziswa i -endoscope (ithubhu elincane elinekhamera), kususwa umucu wethambo ngaphezu kwe-metopic suture. Le endoscope ivumela udokotela ohlinzayo ukuthi abone ngaphakathi kwekhanda futhi enze ukuhlinzwa ngaphandle kokwenza ukusika okukhulu.

2. Ukuhlinzwa Okuvulekile (Ukuhlinzwa Okuvulekile - Ukulungiswa Kwegumbi Lokuhlinza Lekhanda):

• Lokhu kuhlinzwa kuvame ukwenziwa ezinganeni eziphakathi kwezinyanga eziyi-6 neziyi-12 ubudala .
• Esikhathini esiningi, lokhu kwenziwa udokotela wezinzwa kanye nodokotela ohlinzayo we-plastic besebenzisana.
• Udokotela ohlinzayo wenza ukusika okukhulu ekhanda lomntwana kunasekuhlinzeni kwe-endoscopic .
• Ngemuva kwalokho, izingxenye zekhanda ezingakahleleki kahle ziyasuswa. Okulandelayo, amathambo ayasikwa, aphinde akhiwe, bese ehlanganiswa kabusha ukuze kwakheke ukuma kwekhanda okufanele.Lokhu kunikeza ubuchopho bomntwana isikhala esikhulu sokukhula.

Ingabe ingane idinga ukugqoka isigqoko sokuzivikela ngemva kokuhlinzwa?

Ngemva kokuhlinzwa kwe-endoscopic, ingane yakho kuzodingeka igqoke isigqoko esikhethekile kuze kube yilapho isinezinyanga eziyi-12 ubudala. Lesi sigqoko sisiza ugebhezi lomntwana ukuba lukhule lube yindilinga. Isigqoko ngokuvamile asidingeki ngemva kokuhlinzwa okuvulekile , kodwa udokotela wakho ohlinzayo uzokweluleka ngakho.

Ingabe ikhona imiphumela emibi yalezi zindlela zokwelapha?

Njenganoma yikuphi ukuhlinzwa, kunezingozi eziningana kanye nemiphumela emibi engenzeka kokubili lokhu kuhlinzwa:

• Ukulahlekelwa yigazi .
• Ukutheleleka .
• Ukopha kobuchopho (iHematoma) .

Udokotela ohlinzayo wengane yakho uzokuchazela le miphumela emibi ngaphambi kokuhlinzwa. Ukuhlinzwa okuvulekile kunezingozi ezinkulu kunokuhlinzwa kwe-endoscopic . Futhi, isikhathi esithathayo sokuhlinzwa nokululama side kakhulu.

Ngezinye izikhathi, uma kukhona ukopha ngemva kokuhlinzwa, ingane ingadinga ukumpontshelwa igazi . Lokhu kuvame ukubonakala ekuhlinzweni okuvulekile.

Akuvamile ukuthi i-trigonocephaly idinga ukuhlinzwa okwengeziwe ukuze kulungiswe lesi simo, kodwa kungase kudingeke.

Kuthatha isikhathi esingakanani ukululama ngemva kokuhlinzwa?

Ingane yakho ingase izizwe ingcono kakhulu phakathi namasonto ambalwa emva kokuhlinzwa. Kodwa-ke, kungathatha izinyanga ezimbili kuya kwezintathu ukululama ngokuphelele . Ukuphulukiswa kwamathambo nokukhula kabusha kungathatha unyaka. Udokotela ohlinzayo wengane yakho uzokhuluma nawe ngesikhathi sokululama nokuthi yini ongayilindela ngaphambi kokuhlinzwa.

Uma ingane yami ine-metopic craniosynostosis, yini okufanele ngiyilindele?

Nakuba i-metopic craniosynostosis iyisimo esingavamile, indlela esithinta ngayo ingane ngayinye ingahluka. Ezinye izingane zingase zibe nezinguquko ezincane kakhulu esimweni sekhanda futhi zingase zingadingi ukwelashwa . Ezinye zingase zidinge ukuhlinzwa ukuze kulungiswe isimo sekhanda kanye nokwelashwa kwezinkinga ezifana nokubambezeleka kokukhula.

Ukwelashwa ngokuhlinzwa kuyaphumelela, futhi imiphumela emibi ivame ukuba mincane. Ngemva kokuhlinzwa nge-endoscopic, ingane igcinwa esibhedlela ubusuku bonke futhi iqashwe ngokucophelela. Ngokuvamile ingaya ekhaya zingakapheli izinsuku ezimbili. Ngokuhlinzwa okuvulekile, ingane igcinwa egunjini lokunakekelwa okujulile amahora angama-24 futhi iqashwe odokotela ubusuku nemini. Ngemva kwalokho, idluliselwa kwelinye iwadi lesibhedlela izinsuku ezimbalwa noma isonto ukuze iqaphe ukululama kwayo.

Ngesikhathi sokuhlala esibhedlela, ikhanda nobuso bengane kungase kuvuvuke. Lokhu kuyinto evamile. Amehlo angase avuvuke futhi avalwe izinsuku ezimbili kuya kwezintathu. Ngemva kwalokho, ukuvuvukala kuzoncipha kancane kancane.

Izingane ezike zahlinzwa nge-endoscopic kumele zigqoke isigqoko sokuzivikela zize zibe nezinyanga ezingu-12 ubudala, okungaba yinselele encane kubazali abasha. Ngoba ingane yazo izobukeka ihlukile kwabanye ize ilulame. Abazali abaningi bahlobisa isigqoko ngezitika ezinhle ukuze zifane nobuntu bengane yabo.

Ngenxa yokuthi ingane yakho ibukeka ihlukile, abantu bangase babuze imibuzo ngayo. Ungase ukuthole kunzima ukwabelana ngale mininingwane nawo wonke umuntu. Imindeni eminingi ithole induduzo ngokukhuluma nochwepheshe wezempilo yengqondo ngezikhathi ezinjengalezi.

Ingabe lesi simo singavinjelwa?

Okwamanje ayikho indlela yokuvimbela i-metopic craniosynostosis. Kodwa-ke, unganciphisa ingozi yakho ngokukhuluma nodokotela wakho mayelana nendlela yokuhlala uphilile ngaphambi nangesikhathi sokukhulelwa kanye nezindlela zokuvimbela ukukhubazeka kokuzalwa.

Ingane yami kufanele ibone nini udokotela?

Uma ingane yakho isilulame ngokuphelele, ithimba lochwepheshe (ithimba le-craniofacial) lizoyiqapha ize ikhule.

Uma ingane yakho yephuza ukufinyelela izigaba zokukhula ezifanele iminyaka yayo , bona udokotela ngokushesha. Isibonelo, ukuhamba noma ukukhuluma amazwi ayo okuqala. Nakuba iningi lezingane ezine-metopic craniosynostosis zikhula ngendlela evamile, ezinye izingane zingase zibe nokubambezeleka kokukhula. Zingase zidinge isikhathi esithe xaxa kunezinye. Udokotela angasiza ingane yakho ifinyelele imigomo yayo.

Ngemva kokuhlinzwa, udokotela wakho ohlinzayo uzokunikeza ulwazi mayelana nezinto okufanele uziqaphele, njengokutheleleka. Uma ubona noma yini engavamile, xhumana nodokotela wakho ngokushesha.

Yimiphi imibuzo okufanele ngiyibuze udokotela wengane yami?

• Ingabe ingane yami idinga ukuhlinzwa?
• Hlobo luni lokuhlinzwa olunconywayo?
• Ingabe ikhona imiphumela emibi yokwelashwa?
• Kufanele ngibuye nini ukuzohlolwa ngemva kokuhlinzwa?
• Ngenzenjani uma ingane yami yephuza ukufinyelela ezingeni lokukhula?

Kungaba yinto eshaqisayo ukubona isimo sekhanda lomntwana wakho osanda kuzalwa sibukeka sihlukile kunalokho obekulindelwe. Kodwa ungakhathazeki. Lapho nje umntwana wakho ezalwa, ithimba lakho lezokwelapha lizoxilonga i-metopic craniosynostosis futhi liyiphathe ukuze kuvinjelwe izinkinga ezingathinta ukukhula nokukhula komntwana wakho. Ukuhlinzwa kuzosiza ubuchopho nogebhezi lomntwana wakho kukhule kahle.

Isifinyezo (Umyalezo Wokuya Nawe Ekhaya)

Uma ubona ibunzi lomntwana wakho liba nesimo esingunxantathu, kungaba uphawu lokuthi umthungo we-metopic uvalekile ngaphambi kwesikhathi. Lokhu kubizwa ngokuthi i-metopic craniosynostosis noma i-trigonocephaly .

Ungesabi!Uma isimo sincane, ukwelashwa kungase kungadingeki. Uma sibi kakhulu, ukuhlinzwa kungenziwa ukuze kulungiswe ukuma kwekhanda futhi kuvumele ubuchopho bukhule kahle. Ukuhlinzwa kuyaphumelela, futhi izingane ziyalulama ngokushesha. Kungase kudingeke ugqoke isigqoko esikhethekile isikhashana ngemva kokuhlinzwa.

Into ebaluleke kakhulu ukulandela imiyalelo kadokotela ngokucophelela nokuhlala uxhumene nokukhula kwengane yakho . Uma unemibuzo noma ukungabaza, ungangabazi ukubuza udokotela. Sonke sifuna ingane yakho ikhule iphilile futhi ijabule!

I- Metopic craniosynostosis, i-trigonocephaly, ugebhezi lwezingane, ukuma kwebunzi, ukukhubazeka kokuzalwa, ukukhula kobuchopho, ukuhlinzwa