Ingabe ingane yakho ine-scoliosis? Ake sifunde nge-neuromuscular scoliosis!

Wake wazizwa sengathi umhlane womntwana wakho ugobile kancane, noma ukuthi usinda ohlangothini olulodwa? Ingabe kubonakala sengathi unenkinga yokuhlala noma ukuma eqondile? Ngezinye izikhathi sicabanga ukuthi ingane ikwenza ngenxa yokudinwa. Kodwa-ke, ngemuva kwalezi zinto kungase kube nesimo esibizwa ngokuthi i-Neuromuscular Scoliosis . Ungakhathazeki, namuhla sizoxoxa ngakho konke ngamagama alula.

Kuyini i-Neuromuscular Scoliosis?

Kalula nje, lokhu kwenzeka lapho umgogodla wengane yethu udonswa ohlangothini olulodwa. Ngokuvamile, umgogodla kufanele uqonde phakathi nendawo. Kodwa kulesi simo, amathambo omgogodla (esiwabiza ngokuthi "ama-vertebrae") omgogodla ajikeleziswa kancane ohlangothini, okwenza umgogodla ugobe ube yisimo "C" noma "S" . Lokhu akusikho nje ukugoba emuva, kodwa futhi kwenzeka nakwezinye izimo ezingaphansi ezithinta uhlelo lwezinzwa lwengane (okungukuthi, ubuchopho, umgogodla, kanye nemizwa) kanye nemisipha.

Manje cabanga ngakho, sitshela izingane zethu ukuthi "zihlale ziqonde" etafuleni lesidlo sakusihlwa, akunjalo? Noma sibaxwayisa ukuthi "bangahlali kanjalo embhedeni." Kodwa enganeni enalesi simo, ukuhlala iqonde kuyinselele enkulu. Ngisho noma izama, kungaba nzima, futhi ngezinye izikhathi kube buhlungu. Ngakho akukhona ukuthi ingane ayikulaleli, kodwa ukuthi ikuthola kunzima kakhulu ukukwenza.

Le scoliosis ayithinti nje kuphela ukuma kwengane yakho. Ungase uqaphele ukuthi izingubo zengane yakho azilingani kahle. Ingalo eyodwa ingase ibukeke inde kunenye, noma izinkinobho zehembe zingase zingalingani kahle. Lokhu akubangelwa ukuthi izingubo zinciphile lapho ziwashwa noma ngoba umthungi wenze iphutha. Lokhu kungumphumela wesimo esibizwa ngokuthi "i-Neuromuscular Scoliosis".

Ngokuvamile, izimpawu ze-scoliosis zivela ngesikhathi sokuthomba, lapho ingane ikhula ngokuzumayo. Kodwa-ke, kulokhu, izimpawu zingavela ngisho nangaphambi kwesikhathi .

Ngokuhamba kwesikhathi, lokhu kugoba komgogodla kunganda. Uma lokhu kwenzeka, ubuhlungu nezinye izinkinga zingavela. Kodwa-ke, lezi zimo zingalawulwa ngokwelashwa okuhle, futhi ngezinye izikhathi ngokuhlinzwa.

Ingabe lobu buhlungu bomhlane buyanda kancane kancane?

Yebo, `(Neuromuscular Scoliosis)` yisimo esiqhubekayo . Okusho ukuthi, ukugoba komgogodla kuyawohloka ngokuhamba kwesikhathi. Njengoba lokhu kugoba kwenzeka ebuntwaneni, kunganda ngokushesha lapho ingane ikhula ngokuzumayo (lokho esikubiza ngokuthi `(ukukhula okusheshayo)`). Kungenzeka ukuthi lokhu kugoba kungaqhubeka nokukhula kuze kube yilapho umuntu emdala.

Sisakazeke kangakanani lesi simo?

I-neuromuscular scoliosis ivame kakhulu kwezinye izimo ezithinta uhlelo lwezinzwa nemisipha. Isibonelo, ivame ukubonakala ezimweni ezifana ne -muscular dystrophy, i-spinal muscular atrophy (SMA), kanye ne-cerebral palsy (CP) .

Ngokwezibalo, cishe abantu abangu-90% abane-Duchenne Muscular Dystrophy kanye nabantu abangu-80% abane-Spinal Muscular Atrophy bahlakulela i-scoliosis. Phakathi kuka-20% no-70% wabantu abane-Cerebral Palsy bahlakulela i-scoliosis.

Yiziphi izimpawu zalokhu?

Kulesi simo, kunezimpawu zangaphandle ongazibona enganeni yakho, kanye nezimpawu ingane engase izizwe.

Izici zangaphandle ezibonakalayo:

• Amahlombe awalingani. Kungase kubonakale sengathi elinye ihlombe likhuphuke kanti elinye liwile.
• Izimbambo zivele phambili ngakolunye uhlangothi.
• Izinqe nokhalo kuthambekile.

Uma unengane esebenzisa isihlalo sabakhubazekile, ungase ubone izinto ezifana nalezi:

• Ukuhlala egobile, encike ohlangothini olulodwa.
• Ukuthambekela kwe-pelvis ohlangothini olulodwa.
• Ubunzima bokuhlala (ukuhlala usekele ezandleni noma ezindololwaneni).
• Izilonda zokucindezeleka (umonakalo esikhumbeni obangelwa ukuhlala endaweni efanayo isikhathi eside kakhulu).

Ngaphezu kokudonswa komgogodla ohlangothini olulodwa, kungase kubonakale nezinye izigobe zomgogodla wengane, isibonelo , ukugoba phambili (kyphosis) (njenge-hunchback) noma ukugoba emuva (lordosis) (isimo lapho isisu siphuma phambili nomgogodla ugoba emuva) .

Izimpawu ezizwakala yingane:

Njengoba ukugoba komgogodla kukhuphuka, ingane ingase ibhekane nalezi zinkinga ezilandelayo:

• Ukuhlungu obusemhlane.
• Ukuzizwa ungakhululekile ngenkathi uhleli.
• Ubuthakathaka bemisipha.
• Ukuba ndikindiki ezandleni nasezinyaweni.
• Ububanzi obulinganiselwe bokunyakaza.
• Ubunzima bokugcina ikhanda, umzimba, nentamo zilinganisele kanye nokulawula ukunyakaza kwazo.

Kungani lokhu kwenzeka? Yiziphi izizathu?

Imbangela eyinhloko ye-"Neuromuscular Scoliosis" yisimo sezokwelapha esingaphansi esithinta uhlelo lwezinzwa kanye/noma imisipha yengane . Uma ingane inalolu hlobo lwesifo se-neuromuscular, ayikwazi ukulawula nokuhambisa eminye yemisipha emzimbeni wayo ngendlela efanele. Lokhu kubangela ukuthi imisipha ezungeze umgogodla ibe buthaka kanye nomgogodla uqale ukugoba.

Ezinye zezimo zezokwelapha eziyinhloko ezingahlotshaniswa nalolu hlobo lokucindezeleka emhlane yilezi:

• Ukukhubazeka Kwengqondo
• I-Duchenne Muscular Dystrophy
• Ukukhubazeka
• I-Spine Bifida (isimo somgogodla esenzeka lapho kuzalwa)
• Ukuwohloka Kwemisipha Yomgogodla

Yiziphi izinto ezibangela ingozi?

Uma ingane yakho inenkinga yemisipha futhi/noma isebenzisa isihlalo sabakhubazekile ukuhambahamba, kunethuba elikhulu lokuthola i-Neuromuscular Scoliosis.

Yiziphi izinkinga ezingabangelwa yilokhu?

Uma ukugoba komgogodla kuba kubi ngenxa ye-Neuromuscular Scoliosis, izinkinga ezifana nalezi:

• Ukucindezeleka kokuphefumula:Izimo ezifana ne-"Thoracic Insufficiency Syndrome", ezibangela ubunzima bokuphefumula kanye nokuntuleka kwesikhala esifubeni.
• Ubunzima bokusebenza ngokuzimela: Isibonelo, ubunzima bokugqoka noma ukudla wedwa.
• Ubunzima bokuhamba: Ubunzima bokuhamba.
• Ukulimala kwemizwa.
• Izinkinga ngesistimu yenhliziyo nemithambo yegazi.

Ngaphezu kwalezi zinkinga zomzimba, isimo `(Neuromuscular Scoliosis)` kanye nesimo sezokwelapha esibangela lokhu kungaholela nasekuzethembeni okuphansi enganeni. Ukuphila nezimo eziningana zezokwelapha ngesikhathi esisodwa akulula. Lokhu kwandisa ingozi yokuba ingane icindezeleke, ihlushwe yizimo ezifana `(Depression)` noma `(Anxiety) . Ngakho-ke, kubaluleke kakhulu ukunakekela impilo yengqondo yengane, futhi uma kudingeka, funa iseluleko sochwepheshe wezempilo yengqondo.

Ukuthola kanjani lokhu?

Ukuze kutholakale isimo esithi "Neuromuscular Scoliosis", udokotela uzoqala enze ukuhlolwa ngokomzimba bese ebuza ngezimpawu. Bazophinde babheke umlando wezokwelapha wengane nokuthi ngabe kukhona yini emndenini oke waba nezimo ezifanayo.

Ngesikhathi sokuhlolwa, udokotela uzohlola ngokucophelela umgogodla wengane, ukuma kwayo, kanye nokulinganisela kwayo. Isikhumba sizohlolwa futhi ukuthi asinazo yini izilonda zokucindezeleka. Idivayisi ebizwa ngokuthi i-scoliometer ingasetshenziswa ukukala ukugoba komgogodla. Ngaphezu kwalokho, ukuhlolwa kwezithombe ezifana ne -X-ray noma i-MRI scan kungenziwa ukuze kubonakale kahle isimo somgogodla.

Yiziphi izindlela zokwelapha?

Udokotela uzoqala azame ukulawula lesi simo ngokwelashwa okungadingi ukuhlinzwa.

Ukwelashwa okungadingi ukuhlinzwa

• Ukuguqulwa kwesihlalo sabakhubazekile: Uma ingane yakho isebenzisa isihlalo sabakhubazekile, udokotela angase asikisele ukufaka isihlalo esisekelwe ngokwezifiso noma izisekelo eziseceleni esihlalweni sabakhubazekile ukuze isize ilinganisele kalula.
• Ukwelashwa ngokomzimba: Udokotela wezokwelapha ngokomzimba uzofundisa ingane yakho ukuzivocavoca ukuqinisa amaqembu emisipha athintekile. Lokhu kungasiza ekuxazululeni izinkinga zokulinganisela nokwandisa ikhono lengane lokusebenza ngokuzimela.
• I-brace yomgogodla: Lokhu kungase kunconywe noma kunganconywa kuye ngesimo sengane. Isibonelo, i-brace egqokwa ezungeze isiqu sengane esebenzisa isihlalo sabakhubazekile ingabasiza ukuba balondoloze ibhalansi ngenkathi behleli. Kodwa-ke, ngeke ivimbele ukugoba komgogodla ukuthi kwande. I-brace ngokuvamile ayiphephile ezinganeni ezihambayo. Kungandisa ingozi yokuba ziwe futhi zilahlekelwe ibhalansi yazo.

Okubalulekile:Ukwelashwa okungekhona ukuhlinzwa kunganciphisa noma kumise ukuqhubeka kwe-scoliosis, kodwa akukwazi ukuqondisa ngokuphelele ukugoba komgogodla.

Ukuhlinzwa

Ukuhlinzwa kwe-"Neuromuscular Scoliosis" kungavimba ukugoba ukuthi kube kubi kakhulu futhi kuqinise umgogodla. Udokotela angase acabangele ukuhlinzwa ezimweni ezilandelayo:

• Uma ukugoba komgogodla kungaphezu kwama-degrees angu-40 futhi kuqhubeka nokuba kubi kakhulu.
• Uma ingane izwa ubuhlungu noma ingakhululekile.
• Uma kunezinkinga ezithinta ukusebenza kwamaphaphu noma kwenhliziyo.

Ngaphambi kokunquma ngokuhlinzwa, udokotela uzocabangela ngokucophelela impilo yengane iyonke, uhlobo lwesifo se-neuromuscular esiyisisekelo, kanye nobunzima bokuqaqamba komhlane. Kuzokhethwa inketho yokwelapha ephephile yesimo sengane.

Izinhlobo zokuhlinzwa ezenzelwe i-neuromuscular dystrophy:

Kunezinhlobo ezimbili eziyinhloko zokuhlinzwa:

1. Ukuhlanganiswa Komgogodla: Kulokhu kuhlinzwa, udokotela ohlinzayo ulungisa umgogodla wengane bese ehlanganisa amalunga omgogodla athintekile. Lokhu kuhilela ukusebenzisa izixhumi zamathambo, izinduku zensimbi, nezikulufo . Lokhu kusetshenziselwa ukubamba amathambo ndawonye kuze kube yilapho amathambo amabili ephola njengenye. Kodwa-ke, ngemva kwalokhu kuhlinzwa kokuhlanganiswa komgogodla, ukukhula kwethambo elihlanganisiwe kuyayeka. Lokhu kungabangela ukuba ingane ibe mfushane ngomzimba.

2. Izinduku Zokukhulisa: Lokhu kuhlinzwa kungcono kakhulu ezinganeni ezisakhula. Udokotela ohlinzayo ufaka induku emgogodleni wengane. Le nduku iqinisa umgogodla futhi ilungise ukugoba. Njengoba ingane ikhula, induku ingandiswa njalo ezinyangeni ezingu-6-8, kungaba ngokuhlinzwa okuncane noma ngenqubo yokwelula umgogodla ehhovisi. Lapho ingane ifinyelela ekuvuthweni kwamathambo, okusho ukuthi ayisekho ukukhula, udokotela ohlinzayo uyayisusa induku bese enza ukuhlangana komgogodla.

Ingane ene-"Neuromuscular Scoliosis " isengozini enkulu yezinkinga ngesikhathi sokuhlinzwa, njengokutheleleka noma ukulimala kwemizwa, ngoba ilawula esinye isimo sezokwelapha esiyisisekelo. Futhi, udokotela ohlinzayo kufanele elaphe izindawo eziningi zomgogodla ngesikhathi esisodwa, okwandisa ingozi yezinkinga .

Ithimba lezokwelapha lengane yakho lizohlola ngokucophelela ukuthi ukuhlinzwa kuphephile yini futhi lizokufundisa ngemiphumela emibi engaba khona ngaphambi kwenqubo, ukuze ukwazi ukwenza isinqumo esinolwazi mayelana nokunakekelwa kwengane yakho.

Iyini inhloso yalesi simo? (Isibikezelo)

Umbono wengane uncike ezintweni eziningana:

• Impilo yengane iyonke.
• Uhlobo lwesifo esiyisisekelo esibangele ubuhlungu emhlane.
• Ubukhali bokugoba komgogodla kanye nesivinini okwanda ngaso.
• Izindlela zokwelapha ezifanele isimo sengane.

Nakuba ukuhlinzwa kungalungisa i-scoliosis, kunezingozi ezihilelekile. Ithimba lezokwelapha lengane yakho lizohlala lizama ukunikeza ukwelashwa okuphephile kakhulu kwenhlalakahle yomzimba neyengqondo yengane yakho. Uma unemibuzo mayelana nombono wengane yakho, khuluma nodokotela wakho.

Kuthiwani ngokuphila kwesikhathi?

I-Neuromuscular Scoliosis ingase ithinte noma ingayithinti impilo yengane yakho. Kodwa-ke, ezimweni ezimbi kakhulu, kungavela izinkinga ezithinta inhliziyo namaphaphu. Lokhu kungaba yingozi empilweni. Uma ingane yakho isengozini yezinkinga ezinkulu, ithimba lezokwelapha lengane yakho lizokweluleka ngalokho okufanele ukulindele.

Ingabe lokhu kungavinjelwa?

Ngeshwa, ayikho indlela yokuvimbela ukuthuthukiswa kwe-"Neuromuscular Scoliosis". Kodwa-ke, uma lesi sifo sitholakala kusenesikhathi futhi ukwelashwa kuqala kusenesikhathi , odokotela bangase bakwazi ukunciphisa ukuqhubeka kwe-curve noma ngisho nokulungisa ngokuhlinzwa.

Kufanele ngimbone nini udokotela?

Uma ubona izimpawu ze-scoliosis enganeni yakho, njengobunzima bokuhlala phansi, ukungahlali kahle kwamahlombe, noma izilonda zokucindezeleka , xhumana nodokotela ngokushesha .

Uma ingane yakho isivele itholakale ine-Neuromuscular Scoliosis, khuluma nodokotela uma ibona izimpawu ezifana nobuhlungu, ukungakhululeki, ubunzima bokuphefumula, noma ezinye izinkinga.

Yimiphi imibuzo okufanele uyibuze udokotela?

Ungabuza udokotela wengane yakho imibuzo efana nale:

• Hlobo luni lokwelashwa olunconywayo?
• Ingabe ingane yami idinga ukuhlinzwa?
• Iyini imiphumela emibi yokwelashwa?
• Ngingamgcina kanjani umntwana wami ephephile futhi ekhululekile?

Umyalezo obalulekile kuwe (Umyalezo Wokuya Ekhaya)

Njengomzali, kuvamile ukuzizwa ukhungathekile futhi ukhathazekile lapho uthola ukuthi ingane yakho ayinazo izimo ezimbili (isifo esiyisisekelo semisipha kanye ne-neuromuscular scoliosis). Ungase ube nemicabango eminingi ngekusasa nokuthi ungayigcina kanjani ingane yakho ikhululekile. Lokhu kungaba ukucindezeleka okukhulu. Kodwa khumbula, akudingeki ubhekane nalezi zinto wedwa.

Ngenxa yokuthi i-neuromuscular scoliosis iyisimo esiqhubekayo, kuzodingeka ubone ithimba lezokwelapha lengane yakho njalo. Phakathi nalokhu kuvakashela, udokotela uzolinganisa ukugoba komgogodla wengane yakho. Uma ukugoba kukhulu, udokotela ohlinzayo angase acabangele ukuhlinzwa uma izingozi zokuhlinzwa zingaphezu kwezinzuzo ezingatholwa ingane yakho.

Uma unemibuzo mayelana nombono wengane yakho noma ukuthi ungabasiza kanjani ekhaya, ungesabi ukukhuluma nodokotela wakho. Bazokunikeza isiqondiso osidingayo. Masibambisane sonke ukuze sinikeze ingane yakho umphumela ongcono kakhulu.

'I-Neuromuscular Scoliosis, Ubuhlungu bomhlane, I-Scoliosis, Impilo yengane, Izifo ze-neurological, Izifo ze-Musculoskeletal, Umgogodla